Author Topic: Let's help Dr. Wise and the Rutgers Team!  (Read 28180 times)

BluesBrother

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Re: Let's help Dr. Wise and the Rutgers Team!
« Reply #40 on: March 22, 2015, 02:00:10 PM »
VERY NICE SURVEY, BluesBrother and Nightingale!! :-)

Thanks a lot, Stef!

We are looking forward to hearing more from the research team regarding the survey - and will keep you updated.
Used to have brain fog, flue-like symptoms, un-refreshing sleep, extreme exhaustion, muscle and joint pain, digestive problems, social anxiety, urge to urinate frequently.
Used niacin in the past. Now using nanna1's maintenance stack. Exhaustion and brain fog now main problem. 3-day POIS cycle

superfrancais

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Re: Let's help Dr. Wise and the Rutgers Team!
« Reply #41 on: March 26, 2015, 05:11:36 AM »
I've got a special thing to show you all that BluesBrother and I have completed: https://pois.wufoo.com/forms/your-pois-history/

Thanks for preparing the survey. I didn't fill it up yet because I am waiting for a final validation of it.

As I didn't complete the survey I could not go passed the first page. Just to say I don't know if there are more pages. But, to be honest, I was not convinced by the questions on this first page. Most of them were related to the way we have an orgasm (alone, with a partner, etc). For me, there is absolutely no difference, so I tend to think that it's a "mistake" to focus our attention on this. But maybe I am wrong.

I think an important goal of the survey would be to find the "greatest common divisor" between us. In order to do that we have to ask the "poiser" to list everything that he noticed to be abnormal with him (for instance I talked once of my slow heart beat) and then let the other poisers confirm if they also have this abnormality. Of course this would require some kind of "dynamic survey" in the sense that the number of questions may increase in time, which requires that "poisers" that already completed the form come again and complete the questions that were added in the meantime.

I am just thinking out loud. Sorry if it's not very intelligible, and probably not implementable :-)

[edit: I removed the last sentence of my original message, which made no sense (published by mistake)]
« Last Edit: March 27, 2015, 03:48:32 AM by superfrancais »
20 years of both mental and physical symptoms after love, chronic fatigue and depression even with abstinence, French (Lyon)

BluesBrother

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Re: Let's help Dr. Wise and the Rutgers Team!
« Reply #42 on: March 26, 2015, 04:43:12 PM »
As I didn't complete the survey I could not go passed the first page. Just to say I don't know if there are more pages.

Thanks for your feedback. For demonstration purposes, I switched off the requirement to fill in the username - you can now check out the entire questionnaire. Also, since there might be additional changes to the questionnaire, please consider the current one as a demonstration version. You can fill it in, but be aware that there will be another, finalized version, which you would have to fill in again. You can now just try stuff out, and click through it.

But, to be honest, I was not convinced by the questions on this first page. Most of them were related to the way we have an orgasm (alone, with a partner, etc). For me, there is absolutely no difference, so I tend to think that it's a "mistake" to focus our attention on this. But maybe I am wrong.

Thanks for your feedback. The first page is (almost) identical to one of the questionnaires used by the Rutgers research team. For objectivity reasons, we stayed to their questionnaires as close as possible. On the second page, you will find questions concerning specific symptoms.

I think an important goal of the survey would be to find the "greatest common divisor" between us. In order to do that we have to ask the "poiser" to list everything that he noticed to be abnormal with him (for instance I talked once of my slow heart beat) and then let the other poisers confirm if they also have this abnormality. Of course this would require some kind of "dynamic survey" in the sense that the number of questions may increase in time, which requires that "poisers" that already completed the form come again and complete the questions that were added in the meantime.

I am just thinking out loud. Sorry if it's not very intelligible, and probably not implementable :-)   
 
Here is an idea for extending the survey : give a list of all particularities

I am not quite sure I understand. Maybe you could explain a bit more what you have in mind?
Used to have brain fog, flue-like symptoms, un-refreshing sleep, extreme exhaustion, muscle and joint pain, digestive problems, social anxiety, urge to urinate frequently.
Used niacin in the past. Now using nanna1's maintenance stack. Exhaustion and brain fog now main problem. 3-day POIS cycle