Author Topic: 7 Years of hell and on going  (Read 6507 times)

alan

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7 Years of hell and on going
« on: March 04, 2014, 06:10:15 AM »
Hello everyone,

My name is Alan, from Australia and I have had quite the rough battle in my life. I have post nasal drip and asthma but I decided tonight to do some research again about what might be wrong with me because
quite frankly I just can't keep going like it has been for me.

I'm going to do what I have never done before because I feel very shy and scared to let the public or even my parents know or my best friend that what I have is something that I can never explain
and is highly embarrassing. I Have had this hunch for a over a year now that maybe what is wrong with me is something to do with having sex. It's a bit complicated for me to come to this conclusion
after suffering for so long, one would think you would simply figure it out sooner. But with me people would need to understand the full story, so I will explain it so please bear with me.

During high school when i was 17 I had a girlfriend, we become very close. We were fairly sexually active but things went bad in the relationship and this was right around the time when My final exams
were on.. I was a nervous wreak, I could not understand why we had to break up and basically this messed up my study and exams. Around the same time i was always active riding my bmx at the local
skate park, It was a good 20 min ride to the skate park.

One day I had my friend over and my mother cooked a large lunch for us. I ate it all like usual because I could always eat a lot. Like two whole pizza's myself. I was thin, never put weight on either. However
this time straight after I vomited everything up. I had no idea why. The same happened from that day onwards for me for the next week, after a meal I was sick to my stomach. I went to the Doctor
I told him everything, he said I looked normal, I seemed healthy. I went back to my doctor again a few weeks later. Things never changed so I told my Doctor this, I told him everything about how I have
been stressed and feeling depressed about the breakup and being sick. He said i am suffering from depression and told me try taking some medication and advised me to go see a psychologists to talk to
someone.

I thought this does not make any sense, this is not me I am not a person to be depressed and get sick and feel this way. I decided to not take the medication and wait to see if this cleared up.
Things never got better in fact it seemed my problems got much worse. I ended up shaking feeling cold one min hot the next I could not hold food down at all, I knew something was terribly
wrong and my mum was very worried. I ended up in hospital because I was so stressed from being sick so much I was really weak and was a nervous break down. The hospital gave me maxalon to calm
my stomach which worked. I ended up living on that for a long time. Because every time I went to a Doctor nobody could work out what was wrong with me. So now after eating smaller meals
and taking anti acids to try keep food down i became anorexic with an eating disorder. I dreaded every time i had to eat because I knew at that exact same time of the day I would be sicker then
I could imagine to the point I was so scared I would not eat much at all.

This went on for 2 years.. During this time I lost all my friends my girlfriend that i loved more then anything in this world and i felt like i lost myself, People thought I was making things up at some
points and it made me cry often at nights because I knew this was not normal that it was not in my head like the Doctor told me. I use to be happy, many friends, always out and about, life was great until that
one day.

So after the 2 years I decided I had enough of hearing the Doctor tell me what i had So i ordered him to get me to a specialist, i wanted answers, my parents wanted answers, this could not go on any longer!
I saw the specialists and he decided to do a gastroscopy. A camera down my neck to see my stomach. He did a biopsy and found I had H pylori bacteria. It had affected my stomach wall and esophagus very bad
and it was very inflamed and my lower esophageal sphincter (LES) was damaged. I had some pretty heavy medicine to remove this bacteria, the symptoms slowly eased but came back shortly after. I had
revisits with my Doctor and specialist and he said i have whats known as G.O.R.D  And that its easy to get the bacteria back again so i had further tests to my surprise proved negative.

At this point I was 21 I really was depressed and should of taken the drugs I was prescribed I realize it was my own fault but I tried to move on and deal with my life the best I could. But it seemed it never
stopped, some days it was worse other times it was ok. It was random I could not figure it out. I had allergy tests done all came back nothing. I seemed to be a bit better when i took anti acid foods
I ended up having bicarb soda mixed up with maple syrup daily to keep my stomach at bay but it has been an uphill struggle a real daily basis of trying to survive. Its been so many years now that I gave up,
I just gave up until lately Things become a lot worse, everyday I am now sick very bad, writing this right now I can barely do it without being sick.

This last year I have thought of something though it seems every time i had masturbated I get all my problems 10x worse, Now I only just read about pois today and it hit me that every single symptom on that
list I have, everything. This really surprised me. I actually broke down reading someones post and had to go for a walk. I feel like I am stupid for not figuring this out sooner. Every time I orgasm soon after I feel
Terrible I feel tired my brain feels hazy my very thoughts are dazed. I have 0 ability to do anything with my life when this hits in. 0 motivation, any work I need to do just shuts down, I just go lay down because
I'm sore tired irritable and depressed I can't even explain it all I just feel so bad Like i want to kill myself I actually have those thoughts often but I'm not that crazy I think that I would do such a thing. But I am
certainlly on a dark path here. I have noticed quite alot about my symptoms that i get often daily.

Headaches
Soreness on body
Red eyes yellowish coloring
red skin on hands often
sweats cold and hot
running nose
feeling sick to my stomach
tiredness
depressed
lack of energy
lack of motivation
shaking
Sore throat
chronic tonsillitis
Feel turned off from woman and anything to do with them after o
anti social

I Need to read up more about POIS obvisouly but i honestly for the first time in 7 years think I have found what is wrong with me, I don't know whether to be happy or sad about this because I can't take this
much more I hate it, it's ruined my life so far.

My first step because I realize it has something to do with orgasm I will stop it. I have never not been without one any week since Ive been 18 I do wonder if anything will clear up after a week of none.

Hope someone finds anything here of interest I will be happy to answer questions or something or looking for help please anybody.


Colm

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Re: 7 Years of hell and on going
« Reply #1 on: March 04, 2014, 03:43:27 PM »
Hi Alan,

Thanks for sharing your story with us. Am sure I speak for others in welcoming you to the board.

I would like to respond to your post, but would not like to do so in a halfhearted manner. I will try to get back to you soon, and I am sure others will also. Am a bit rushed right now.

If you do share similar POIS symptoms with others here, you will also find useful information and support on the board, and some ideas that may help alleviate some of your symptoms or help you feel less alienated or on your own.

There is, through the work of many here, ongoing valid research to help get to the root of POIS.

All the best for now and well done of finding this support forum.
Colm

demografx

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Re: 7 Years of hell and on going
« Reply #2 on: March 04, 2014, 03:44:43 PM »
Welcome, Alan!

Don't feel bad about how long it took you to discover the connection between sex and POIS symptoms: it took most of us A LONG TIME to connect the dots! (It took me YEARS AND YEARS!!)

Make yourself comfortable here and if you haven't yet done so, please visit our Welcome Page for some resources which might help you:

http://poiscenter.com/forums/index.php?topic=1.msg1#msg1

10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

FloppyBanana

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Re: 7 Years of hell and on going
« Reply #3 on: March 04, 2014, 05:29:19 PM »
Thanks for your sharing Alan
30 years of POIS. Mytelase after O with Iceman breathing technique.

Observer

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Re: 7 Years of hell and on going
« Reply #4 on: March 04, 2014, 06:34:54 PM »

Hi Alan, check your PM if you want to contact with me, your story sounds very similar to mine. You should have a look also on the link that Demografx wrote.

Prancer

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Re: 7 Years of hell and on going
« Reply #5 on: March 04, 2014, 06:46:58 PM »
Hey Alan! Thanks for sharing your story. You're definitely not alone!

alan

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Re: 7 Years of hell and on going
« Reply #6 on: March 04, 2014, 07:39:11 PM »
I really appreciate it, thank you everyone so much!

demografx

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Re: 7 Years of hell and on going
« Reply #7 on: March 04, 2014, 09:14:56 PM »
Much of our hope for the future hinges on RUTGERS' POIS RESEARCH.

You'll see several threads on this, including "Familiar Place": http://poiscenter.com/forums/index.php?topic=426.msg11663#msg11663

« Last Edit: March 04, 2014, 10:31:31 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Jmari

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Re: 7 Years of hell and on going
« Reply #8 on: March 05, 2014, 05:00:21 PM »
Alan, hope all is good. we all understand. You mentioned something about H Pylori bacteria. I believe there are a few others who mentioned something about having bacterial imbalances and that relating to "POIS", what ever it is. Anyway, on the alternative causes and theories section on this forum, there is something called SIBO theory, you should check it out. I am curious about the possible relation to bacteria and our symptoms.

alan

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Re: 7 Years of hell and on going
« Reply #9 on: March 05, 2014, 08:57:32 PM »
@Jmari Yes I will certainly check that out, thank you!

MarceloZob

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7 Years of hell and on going
« Reply #10 on: April 03, 2014, 09:28:13 PM »
Part 2: Everything was going well for a month than the parent issue cropped up. We also started planning our life for the next few years predominantly planning for a child. I implored her to meet my parents and she hesitantly agreed. Although both parents disapproved of the relationship, I convinced her that I had an open communication line with my mother and that if she was able to convince my father, they both would support us. What ended up happening was that my mother didnt say more than a few words upon meeting her and my father ended up lashing out at her and verbally abusing her in public for quite some time. While my gf defended both our relationship and her emotions towards me, I in-turn simply told my parents they were wrong. I did quite a poor job in defending her and showcased my lack of courage. She was my first real girlfriend and I feel that I was naive in predicting my parents response to her. Although she is from the same culture as I, my parents being Indian, had some pre-conceived expectations for my future. I regret my lack of action to this day.

alan

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Re: 7 Years of hell and on going
« Reply #11 on: April 10, 2014, 04:27:50 AM »
My parents know I'm always sick daily, My mother was doing some searching the other day and read up a whole bunch of things about having G.E.R.D and linking to
Helicobacter Pylori. This bacteria is fairly common apparently these days. Many have recurrences and continuing symptoms for the rest of their lives like me.
The normal treatment is a concoction of drugs and usually patients end up being on Nexium an acid prohibiter. Now my mother is a smart person but it seems she is trying to put all the pieces to the puzzle together from what other doctors have found about all this.

I've been prescribed to take Nexium and other type of acid prohibiter years ago of which I don't take them because they never help. I use other methods to keep acid levels down. However know I'm not so sure from being told that the 2nd largest selling drug is Nexium. Further research shows that its a multi billion dollar industry and that if they simply cured the problem there would go the money.,

Making a product which only temporarily fixes a problem keeps people on your product. Logically in my mind this makes sense because why would nature make 1 in 3 people have to be on these drugs in the first place.

If anyone is interested go take a read on here http://www.healingnaturallybybee.com/articles/dig10.php

Anyway I guess I will see if doing so helps some of my problems.

LAPOISSE

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Re: 7 Years of hell and on going
« Reply #12 on: April 15, 2014, 04:10:09 AM »
My parents know I'm always sick daily, My mother was doing some searching the other day and read up a whole bunch of things about having G.E.R.D and linking to
Helicobacter Pylori. This bacteria is fairly common apparently these days. Many have recurrences and continuing symptoms for the rest of their lives like me.
The normal treatment is a concoction of drugs and usually patients end up being on Nexium an acid prohibiter. Now my mother is a smart person but it seems she is trying to put all the pieces to the puzzle together from what other doctors have found about all this.

I've been prescribed to take Nexium and other type of acid prohibiter years ago of which I don't take them because they never help. I use other methods to keep acid levels down. However know I'm not so sure from being told that the 2nd largest selling drug is Nexium. Further research shows that its a multi billion dollar industry and that if they simply cured the problem there would go the money.,

Making a product which only temporarily fixes a problem keeps people on your product. Logically in my mind this makes sense because why would nature make 1 in 3 people have to be on these drugs in the first place.

If anyone is interested go take a read on here http://www.healingnaturallybybee.com/articles/dig10.php

Anyway I guess I will see if doing so helps some of my problems.

What if your level of acid was too low and all you do just make you more sick ?

http://www.poliquingroup.com/ArticlesMultimedia/Articles/Article/433/HCLThe_Most_Important_Supplement_Ever.aspx

LegatoMan

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Re: 7 Years of hell and on going
« Reply #13 on: April 20, 2014, 05:09:57 PM »
My parents know I'm always sick daily, My mother was doing some searching the other day and read up a whole bunch of things about having G.E.R.D and linking to
Helicobacter Pylori. This bacteria is fairly common apparently these days. Many have recurrences and continuing symptoms for the rest of their lives like me.
The normal treatment is a concoction of drugs and usually patients end up being on Nexium an acid prohibiter. Now my mother is a smart person but it seems she is trying to put all the pieces to the puzzle together from what other doctors have found about all this.

I've been prescribed to take Nexium and other type of acid prohibiter years ago of which I don't take them because they never help. I use other methods to keep acid levels down. However know I'm not so sure from being told that the 2nd largest selling drug is Nexium. Further research shows that its a multi billion dollar industry and that if they simply cured the problem there would go the money.,

Making a product which only temporarily fixes a problem keeps people on your product. Logically in my mind this makes sense because why would nature make 1 in 3 people have to be on these drugs in the first place.

If anyone is interested go take a read on here http://www.healingnaturallybybee.com/articles/dig10.php

Anyway I guess I will see if doing so helps some of my problems.

What if your level of acid was too low and all you do just make you more sick ?

http://www.poliquingroup.com/ArticlesMultimedia/Articles/Article/433/HCLThe_Most_Important_Supplement_Ever.aspx


Awesome article!! Gotta try that stuff out!!
Affected since Sept 2008. Very gradual onset of symptoms: Testicular atrophy, low libido, brain fog, lethargy, depression, digestion issues. Worsening of all symptoms the 3-4 days post orgasm.