Hi guys, like you say nomore2013, it is a BIG topic!
I've had a couple of things going on in my "health life" recently which have lit up a few lightbulbs recently. Not to the extent that I understand things any better, perhaps the reverse, made things more complicated. Like Einstein said, "the more you find out, the less you know"! Genious!
Let's see, first I've been to have a general check up, and for basically how I feel, I was surprised that most things turned out pretty well. Doc says that I'm basically healthy, but should check a couple of things that are getting touchy, like Glicemia of 110. I think the upper limit is 99 but diabetes starts at 126. So I have to take a test and start "dieting".
However, I tend to have a light hypochondriac side, and I made the mistake of looking up diabetes on the internet. All of a sudden, I have some of the symptoms!
I've learned however that we all have symptoms of just about anything if you look hard enough! Still, one of the symptoms that I thought I had, was diabetic nerve damage. So I looked THAT up. and MAN I was surprised to see how many similarities there are to a LOT of POIS symptoms, and even the remedies suggested (more for relief than anything, they say it can't be reversed) had SO much to do with many of the things discussed here. Mentions of serotinine, and neurotransmitter imbalance, and several of the remedies that we try here, even B12 etc. etc.
I said WTF!!
One interesting thing is that POIS induces this neuropathy, yet it doesn't seem to be as permanent as diabetic neuropathy. Well, not sure if I can really say that. For me it doesn't.... or maybe I can't say that either. I've been having POIS like pains outside of POIS.... I think. About 4 wks ago I had an "O" with niacin, and felt fantastic for several weeks after, clean as a whistle... then for some reason, I began to have pains, in the neck and joints, very similar to those I have with POIS or those that come with a weather front (problem is that the weather is clear as a bell) I HAVE been looking at a new porno page on and off, but never leading to anything other than heightened excitement and I have been taking B-Complex (regular doses).
I'm not one to have reactions to excitement without "O".... although now I am wondering. I don't get the immediate results, but coincidentally, 2 days later I have these pains.
So WTF again? What really IS going on. I feel like I don't know anything anymore.These days with artificial agents and pesticides, all this going on for 5 decades, it's a wonder we don't all have gene damage. Cancer is more prevalent hundreds of afflictions have methylation related problems, and we most likely do too. But What is the cause, and more importantly what is the solution?
But to resume things and get to the point!
Permanent nerve damage. You get it from diabetes. It's possible you get it from POIS, (although it seems to take quite a while... although I think the same holds true for diabetes) and you can get it from excess B-Complex (B12 isn't it, or B-6). And this permanent damage can happen with excesses of these vitamins in a much shorter order than POIS or diabetes.
Personally I think the DTC (Direct to Customer) testing could be a God send for us, since it is often difficult to convince doctors to send you for a simple test!!Then we'd just have to find a doctor to evaluate them!! A bit complicated, but there are more and more POIS doctors showing up daily.
However, with all this, I am seeing that as much as we like to believe that we ourselves know what's happening, we are more likely leading ourselves down the garden path. (With all respect to those who put a lot of effort into this). We just CAN't do a reasonable evaluation without highly specialized experts controlling the tests.
Just for instance, How would a "normal person" test for genetic defects!!?? We perhaps imagine that they would test normally, but COULD be surprised.
I don't want to burst any bubbles, but we really DO want to cure POIS.
We could compare it to a "fair trial". Everyone is innocent until proven guilty. This is to protect against lynching the first one that "seems to be " guilty. So you lynch him and later find out that the real criminal is free to repeat his crime.
The same with medicine. No theory with respect to treatment is permitted until it is proven to be safe. This is to assure that we are not taking things that in the end could make us worse.
Could we be doing that? I don't know why in hell I have these POIS like pains completely outside of POIS. Because of B-Complex? I know that everybody takes B-Complex without problems, but maybe I can't, because I have POIS. Is is because I looked at a little porn? I guess I'll have to prove that.
I know that we are trying to be as logical and careful as we can. I know that we try to apply medical theory to the process. But, unfortunately it's like you say nomore2013, it is VERY complex, and we are not trained or experienced enough to do a complete and thorough research by ourselves. This is why we have paid, with a lot of sweat and tears, almost $25,000 up till now.
If we don't reach the $33,500 by March, we will have to go another year, another year testing things that could be damaging us.
So far, we have come A LONG WAY! I think we have probably gathered enough information (the researchers ARE reading us), that the final investigation will take a very positive direction.
But I am sure they are screaming inside for their concern that we get to the testing soon before we do oursleves some serious damage. One I know has expressed the very same to me.
Our information is a lot more valuable if it leads to a positive direction, than if it leads to some apparent failure.
"Apparent failure", may not necessarily be a real failure, rather an inability to understand the results.
We have to do what we have to do. We are all desperate to find a solution, and I'm sure our only hope is to get to the bottom of this.
We may succeed. That would be wonderful. But we are now in year 6, going on 7. This has to end. March would be great!!
