NORD Research Donation Direct On-Line Link

[Daveman]

The direct link to the NORD On-Line International Donations page is:

https://rarediseases.org/about/support/research-donations/fg_base_view_p3

In the spot for "Research Fund," hit "Please Select a Research Fund."  It's an alphabetical drop down -- go to P and find your fund.

[demografx]

 Please Click H E R E

[Pianist]

Tell, somebody knows when research ends, approximately, who as thinks? This year or not (assumptions)?
By the way, I here read recently that there is Gates's fund, and this fund allocates huge money for development of condoms of "new generation". And so, to what I it, can send the letter to this Gates and ask that he "found" a little money for studying of POIS? To it it isn't difficult, at it there is a lot of money. Here people suffer, and he wastes money!

[Stef]

Hello Pianist,

Dr. Komisaruk's study is for one year.  He had some normal delays in getting the Rutgers IRB approval and we don't know the exact start date of this study. So, we don't know when the year will be up. He'll be able to obtain extensions if needed.

Sorry I can't be more specific in answering this question.

Re: Bill Gates Foundation -- those grants are global in nature, affecting large populations (i.e. HIV prevention, which is the reason he's awarded funds for improved condoms), and are mostly geared toward developing countries. Also, the organizations that apply must have their own staff to carry out the research. For these reasons, the Gates Foundation grants wouldn't be appropriate for POIS research at this time.

I know this is disappointing (about the Gates Foundation) -- but there are other more realistic foundations to check out. The difficulty as I see it, at this point, is that no one knows what POIS is, making a choice of research very difficult at this point.

Best wishes,
Stef