POISCENTER
POIS Cause/Treatment Discussions => General Alternative Causes and Treatments of POIS => Topic started by: relaxeverything on January 21, 2015, 04:57:13 PM
-
Hi Everyone,
I've had POIS since I'm 20 and recently found out after extensive testing that I have Lyme disease. The tick bite which preceded the onset of symptoms such as fatigue, insomnia, and digestion issues which I never (and still don't) correlate with POIS also preceded the beginning of my POIS (5 years ago). The reason I don't connect them exclusively is the particular flavor of POIS, which would only happen after an orgasm as opposed to the omnipresence of the aforementioned symptoms. That flavor was/is an intense emotional sensitivity and social anxiety. I'm getting intensive treatment for Lyme from a Lyme specialist at the moment and can still distinguish between the symptoms of Lyme and POIS. As difficult as Lyme is, combined with POIS it's utter hell.
Anyways, it seems like there MIGHT be a connection between them as my POIS started around the same time as Lyme. Curious if anyone here had Lyme disease. Its epidemic in the U.S.A. and has been found all over the world. 300,000 new cases a year in the U.S. and very few of them are diagnosed and even rarer treated properly.
So my dear POISers, let me know!!
Cheers,
RelaxEverything
-
I have been tested for it, but not the extensive Igenex testing which I will like to have in the near future. I'm not totally sure of the connection of POIS and lyme disease but recently I read how lyme bugs may use magnesium and zinc within the body for its own purposes and this is why we may feel bad after sex.
Check: http://www.tiredoflyme.com/11-things-that-can-make-a-person-with-lyme-disease-feel-worse-besides-treatment.html#.VMBx15U3OUk
In fact that is almost a list of what bothers me. Especially lack of sleep, sex, food/chemicals, exercise and high stress.
Still I am not totally sure of the connection but I may ask the doctor to go on doxycycline for a couple weeks because of possible lyme and bad back acne. I don't think it would hurt as long as I supplement with probiotics during/after the treatment.
-
Going Less Crazy (hope that pattern continues ;-) )
Doing Doxyciicline for a few weeks would be a waste of time and probably make matters worse bringing the bug out of hiding. If you test positive or are clinically diagnosed by a Lyme Literate Doctor that you trust then go for the whole treatment. Partial treatment (a month or so) won't do anything unless you just got the Lyme bacteria within weeks or months. ILADS refers Lyme literate doctors.
http://ilads.org/ilads_media/physician-referral/
The standard testing (Elisa, western blot etc.) have been show to be highly inaccurate. Like many diseases it is extremely hard to test for and the tests shouldn't be the only data used in the diagnosis.
-
On second thought, I really do not think that Lyme has anything to do with POIS. The reaction I get is wayyy more severe than lyme would ever cause on its own. It just doesn't make any sense for lyme having anything to do with POIS. Most people with lyme have joint/neurologic issues but no MAIN issues with having an orgasm. Plus if I wait a week or more without "O", I feel pretty good. As soon as I "O", back to square one.
-
The days i didnt know about pois, my symptome almost always lead me to lyme deasse. I hawe almost all of thease symptomes.
https://canlyme.com/lyme-basics/symptoms/
-
Guys, is this sound formiliyar?
http://www.tiredoflyme.com/11-things-that-can-make-a-person-with-lyme-disease-feel-worse-besides-treatment.html
-
Hopeoneday,
Interesting article.
What I gathered as very similar with Lyme disease is that inflammation causes both physical and mental symptoms.
A Herxheimer reaction is very similar to a state of POIS which indicates that there's an immune response that is happening in the blood that is similiar to the case of Herxheimer reaction.
-
I must put this here.
Kurtosis is well known member.
He is living prove that his pois is cured with pure luck by ANTIBIOTICS!
All his food intolerancis is "wanished over night".
That mean that his pois is couse by somekind of bacteria.
He told that he cured SIBO infections and he think that this was it.
Later, helty diet and suplements etc...
Reed and do concluzions by your self:
https://www.reddit.com/r/POIS/comments/35rh8o/kurtosis_explains_to_the_best_of_his_knowledge/
-
New brain scans methods for lyme.
https://www.youtube.com/watch?v=z7O2geDoIgQ
-
On second thought, I really do not think that Lyme has anything to do with POIS. The reaction I get is wayyy more severe than lyme would ever cause on its own. It just doesn't make any sense for lyme having anything to do with POIS. Most people with lyme have joint/neurologic issues but no MAIN issues with having an orgasm. Plus if I wait a week or more without "O", I feel pretty good. As soon as I "O", back to square one.
I think that this is also interesting for all of us to consider from Going less Crazy, an “Old Timer” Member since the early (TNS) days of this forum.
(https://fehac.nl/wp-content/uploads/2013/07/Oldtimer-Club-De-Hondsrug.png)
-
It is possible I never had Pois. It's a shoking revelation for me but my bloodtest showed a positive reaction to Lyme's antibodies. The first test must be confirmed by 2nd and 3rd. Then antibiotic injection. We 'll see what will happen then.
-
Well if you folowed my posts,
a lot of poisers could hawe pois from lyme disiese.
Symptoms are different from person to person, some symptomes is the same.
What did i learn till now:
Peoples get lyme because they are imunocompromised!
Oficial medcine dont admit that chronic late stage of lyme exist.
They call chronic lyme:
"post lyme something" but they do not know what.
I am seeing a posible root couse of
all this, i will make a post abot this
soon.
I am tired , but soon.
-
Me too, i have been twice diagnosed and treated for lyme...
-
For the moment I only concentrate my energy on Lyme. Since september my health goes down and I can't do my job. I have no idea if it will help my Pois symptoms too.
I have to say I made the mistake to under estimate the power of lyme. I tought it doen's match with my symptoms.
-
Hi. for lyme disease you should try "mms". They are cured with this treatment. I leave a link for you to study.
https://translate.googleusercontent.com/translate_c?depth=2&hl=es&ie=UTF8&nv=1&prev=_t&rurl=translate.google.com&sl=en&sp=nmt4&tl=es&u=http://www.youtube.com/not2bforgot10&xid=17259,15700023,15700124,15700149,15700168,15700186,15700190,15700201,15700208&usg=ALkJrhgu5Po_fgjYY9t45nX3RNP1COXdDA
-
Thanks for the link !
MMS seems to be an effective alternative cure for Lyme.
If normal cure doesn't work I will consider this.
It seems I have a form of Lyme easy to cure (only 1 injection of antibiotic and good % of succes). I need to wait the 2nd and 3rd test to be sure.
-
Article on potential Lyme triggers:
"Here, we report that the host neuroendocrine stress hormones, epinephrine and norepinephrine, are specifically bound by B. burgdorferi and result in increased expression of OspA. This recognition is specific and blocked by competitive inhibitors of human adrenergic receptors. To determine whether recognition of catecholamines, which are likely to be present at the site of a tick bite, may play a role in preparing the organism for reentry into a tick from a mammalian host, we administered a beta-adrenergic blocker, propranolol, to infected mice. Propranolol significantly reduced uptake of B. burgdorferi by feeding ticks and decreased expression of OspA in B. burgdorferi recovered from ticks that fed on propranolol-treated mice. Our studies suggest that B. burgdorferi may co-opt host neuroendocrine signals to inform the organism of local changes that predict the presence of its next host and allow it to prepare for transition to a new environment." -Borrelia burgdorferi intercepts host hormonal signals to regulate expression of outer surface protein A (https://www.ncbi.nlm.nih.gov/pubmed/17438273)
-
Thanks for the link :)
My second test for Lyme is clearly positive. I have some other parameters not very good :-\
Keep crossed fingers for me :)
-
You could get your CD57+ NK cells checked.
Natural Killer Cells in Chronic Lyme Disease (https://cvi.asm.org/content/16/11/1704.short)
Functional significance of CD57 expression on human NK cells and relevance to disease (https://www.frontiersin.org/articles/10.3389/fimmu.2013.00422/full)
-
Thanks for the link :)
My second test for Lyme is clearly positive. I have some other parameters not very good :-\
Keep crossed fingers for me :)
Hold on B_jim ... fingers crossed.
-
Could you ask for copies of your labdata b_jim and post it in the medical results thread?
-
Keep crossed fingers for me :)
(https://media.tenor.com/images/7721f93d6ae79181940655eaf1abf324/tenor.gif)
-
Thanks !
I will post my datas if it may helps some others. For the moment I have simply lyme Elisa and Western Blot tests positive. But it doesn't prove anything. It give me 25% to 50% to have Lyme disease.
Lyme disease is so complicated.
Several choices : we go to the antibiotic therapy : it may cure my lyme or not (and then polluate my liver/kidneys for nothing).
We wait and if lyme is real my symptoms will be worst....
-
Or you had an infection in the past and the body is still reacting while Borrelia is gone.
-
My neurologist takes the decision quickly : antibiotic therapy now !
Maybe I had the disease in my veins but it woke up after excessive stress.
-
Please keep informed about your progress. Maybe I can start treatment too.
Since entering the poiscenter site, I have taken nanna 1 treatments and also several others. They have been a lot of improvement for me. I have reduced the symptoms by half. I am also increasing my testosterone. Anyway, according to your results I will take this treatment for layme disease. I will consult with my doctor.
-
I just learnt an important information 10 minutes ago !
Now, I'm 99% sure to have Lyme Disease.
And now I can say my Lyme started when my Pois started.
It is very possible that I never had Pois but Lyme.
Lyme was probably my Pois.
I don't say it is case for all other Pois sufferers. I only consider myself. Clearly some guys here has "hormonal Pois form" because they feel better with Testosterone, DHEA...
Now, what is this information ?
Erythema migrans is a 100% sure proof you have Lyme.
But according french professor Christian Perrone, Borrelial lymphocytoma of the earlobe is another 100% sure proof.
I get this at 15 years old more or less 6 months after my Pois start. Remember my Pois was gradual dispite lot of Poisers.
-
Most of my blood exams are normal.
The important tests are
the ELISA (very positive 200++ [5-15] )
and WESTERN-BLOT ( 8++, 2+,6- )
I've started antibiotic therapy Ceftriaxone (Rocéphine®) 2000mg by injection (first was painful :'( now it's ok).
I want to use "natural antibiotic" to help a little more: garlic, thym.... but not "crazy remedies".
I want to add good food for microbiota : yoghurts, choucroute, olives, cornichons/pickles maybe tampeh and miso soup....
-
The woman POISer I talked to also had Lyme.
-
Lyme can activate mast cells.
The woman POISer I talked to also had Lyme.
Which woman POISer?
-
Lyme can activate mast cells.
The woman POISer I talked to also had Lyme.
Which woman POISer?
I mentioned a year ago a woman having bad reactions to orgasm, I thought it was a big deal and you also commented on it.
Not surprisingly she also had a MCAS, in fact I met her in the MCAS group on FB.
-
Oh yes I do remember her. Totally forgot about it.
-
As i suspected, beacuse of we are immunocompromissed,
many of us might have layme disease and coinfections.
Lyme disiese usualy been follow coinfections like bartonela, babesia...
late chronic stages of this "bacteria" will be wery dificult to diagnose.
borrelia burgdorferi
https://www.google.com/search?client=firefox-b-d&ei=kmb5XbLeIojisAfxipaQAw&q=borrelia+burgdorferi&oq=boreliela&gs_l=psy-ab.1.1.0i13j0i13i10l2j0i13j0i13i10i30l6.200325.206144..209566...0.9..0.166.1304.1j9....2..0....1..gws-wiz.....0..0i71j0i273j0j0i10.YTsHRxUFi5Y
Borrelia burgdorferi is a bacterial species of the spirochete class of the genus Borrelia. B. burgdorferi exists in North America and Europe and until 2016 was the only known cause of Lyme disease in North America (Borrelia mayonii, found in the midwestern US, is also known to cause the disease).
Babesia
https://www.google.com/search?client=firefox-b-d&q=babesia
late chrinic stages of this parasite will be wery dificult to diagnose.
Obviously , here anti-parasiticsc could play a role.
Babesia is a tiny parasite that infects your red blood cells. Infection with Babesia is called babesiosis. The parasitic infection is usually transmitted by a tick bite. Babesiosis often occurs at the same time as Lyme disease. The tick that carries the Lyme bacteria can also be infected with the Babesia parasite.
Bartonela
https://www.google.com/search?client=firefox-b-d&q=bartonela
Bartonellosis is a group of emerging infectious diseases caused by bacteria belonging to the Bartonella genus. Bartonella includes at least 22 named species of bacteria that are mainly transmitted by carriers (vectors), including fleas, lice, or sandflies.
-
Are we immunodepressed or lyme immunodepressed we ? Maybe both.
It's possible my bacteria stays under controle from 14 to 40 years old. After a severe stress, my immune system goes down and bacteria takes the controle.
Now I will try to kill it with antibios. But it"s not sure 100% of borrelias will be eliminated.
I need to have a good immunity and then less stress and good diet (no sugar no toxics and no acid foods)
-
Yes , thats why lyme and coinfection is hard to treat, we been infected because
we had bad imunity, then chronic lyme
supress ours imunity .
Yes it is posible to hawe infection more than 20 years.
-
Hi Guys,
it?s a pleasure to intervene on this post,
this morning I just did the lyme test (present and past infections),
I will update you as soon as I receive the results.
My pois doesn?t get better with taurine,
worsens strongly with the intake of dairy products and coffee.
Thanks for the shared info.
Regards
-
Barba89, best wishes!
-
Hi Guys,
it?s a pleasure to intervene on this post,
this morning I just did the lyme test (present and past infections),
I will update you as soon as I receive the results.
My pois doesn?t get better with taurine,
worsens strongly with the intake of dairy products and coffee.
Thanks for the shared info.
Regards
Hi. Do you have muscle twitching (fasciculations)?
-
yes,
only when i drink too coffee,
usually on my back.
-
I sensible to coffee too. Magnesium and Vitamine D reduce my tremors.
Dairy products might unbalance calcium/magnesium levels for some people.
I stopped cow dairy products for now and I try goat/sheep cheese in moderate quantity.
-
I've finished my rocephine injections. I continue to take alternative remedies to complete the cure.
My lyme symptoms are better. (75% I would say) It seems not to imrpove my Pois symptoms.
I can"t conclude anything else for the moment.
-
Thanks for reporting, b_jim, wishing you the best! Demo
-
Thanks a lot ! I need to gain weight for now.
-
Thanks a lot ! I need to gain weight for now.
Careful, b_jim!
(https://friendlystock.com/wp-content/uploads/2018/06/6-fat-man-jogging-to-lose-weight-cartoon-clipart.jpg)
Too many pounds and you will need to exercise them off!
-
Such a midriff my dream !
I even count the calories ! 2500 to 3000 a day !
A whole chocolate tablet today ! :P
-
Such a midriff my dream !
I even count the calories ! 2500 to 3000 a day !
A whole chocolate tablet today ! :P
;D
-
https://www.facebook.com/notes/enfance-lyme-québec/un-antibiotique-qui-tue-les-bactéries-qui-causent-la-maladie-de-lyme/1540243819463706/
-
Disulfiram: a true lyme disease cure?
Disulfiram (Tetraethylthiuram Disulfide) in the Treatment of Lyme Disease and Babesiosis: Report of Experience in Three Cases (2019) (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6627205/)
-
I must put this here.
Kurtosis is well known member.
He is living prove that his pois is cured with pure luck by ANTIBIOTICS!
All his food intolerancis is "wanished over night".
That mean that his pois is couse by somekind of bacteria.
He told that he cured SIBO infections and he think that this was it.
Later, helty diet and suplements etc...
Reed and do concluzions by your self:
https://www.reddit.com/r/POIS/comments/35rh8o/kurtosis_explains_to_the_best_of_his_knowledge/
I'll private message him and ask him to post details here...
-
Hmm could be dysfunctional mast cells as well. SIBO is common in MCAS. He also used a flavonoid cocktail..which is known for mast cell stabilized properties and payed attention to histamine related foods. Perhaps it wasn't the antibiotic alone but the combo of FODMAP + antibiotics. Gut-brain axis manipulation?
-
Post-Lyme Syndrome–Associated Polyneuropathy Treated With Immune Immunoglobulin and a Luteolin-Containing Formulation (https://sci-hub.se/10.1097/JCP.0000000000000504)