(Further response to our Wikipedia assistance requests)
On Mar 29, 2016, at 6:15 AM, Jacqueline Kraska <jkraska@rarediseases.org> wrote:
Thank you Demo, I'm going to be meeting with [NORD] communications next week regarding how to best circulate our reports.... [Wikipedia] will be part of the conversation. I'll let you know the outcome and I'll eventually be posting our policy. The complication comes in with ensuring we adhere to our contracts with the research sponsors as well....
Have a good one!
Jacqui
NORD