Author Topic: Desensitization, Fact or Fiction?  (Read 37531 times)

Going less Crazy

  • Sr. Member
  • ****
  • Posts: 422
Re: Desensitization, Fact or Fiction?
« Reply #90 on: January 30, 2015, 09:57:48 PM »
I find it difficult to believe that the POIS I experience is due to sperm mainly because of my main reaction in my brain where you feel orgasm.  How can sperm cause an allergy-type reaction there?  Is your POIS similar Andy? I have no physical symptoms.  Maybe there is more type of POIS's, those with mainly physical reacting to sperm and those with cognitive reacting to a hormone but only god knows.

I also would still like to know if normal men were injected with their own semen would they "swell" up and have a reaction.

I may try my own skin prick test soon.
My POIS 100% managed with modified Paleo Diet (@ diet that 100% manages my pois)Believe my POIS stems from inflammation in the gut. O and stimulation = neuro POIS from inflammation from the gut. Can O freely. Current supplements: tolerase g at times.

FloppyBanana

  • Sr. Member
  • ****
  • Posts: 338
Re: Desensitization, Fact or Fiction?
« Reply #91 on: February 05, 2015, 02:13:55 PM »
Hi Andy451,

Did you test positive for semen allergy skin prick test?
FloppyB
30 years of POIS. Mytelase after O with Iceman breathing technique.

Quantum

  • Administrator
  • Hero Member
  • *****
  • Posts: 1114
Re: Desensitization, Fact or Fiction?
« Reply #92 on: August 24, 2016, 11:31:53 AM »
I think in his latest review article, Dr Waldinger somehow puts the desense idea on the backburner - see my opinion at http://poiscenter.com/forums/index.php?topic=2346.msg19538#msg19538 ( you will also find in this thread the link to this August 2016 Waldinger article)
You are 100% responsible for what you do with anything I post on this forum and of any consequence it could have for you.  Forum rule: ""Do not use POISCenter as a substitute for, or to give, medical advice" Read the remaining part at http://poiscenter.com/forums/index.php?topic=1.msg10259#msg10259

Liyyamurr

  • Newbie
  • *
  • Posts: 13
Re: Desensitization, Fact or Fiction?
« Reply #93 on: September 08, 2016, 10:04:53 AM »
Anyone know of Allergists willing to do desensitization in Georgia, Florida, Colorado, or Texas? If not, where do you guys do desens at?

Quantum

  • Administrator
  • Hero Member
  • *****
  • Posts: 1114
Re: Desensitization, Fact or Fiction?
« Reply #94 on: September 08, 2016, 05:17:31 PM »
Anyone know of Allergists willing to do desensitization in Georgia, Florida, Colorado, or Texas? If not, where do you guys do desens at?

Hi Liyyamurr and welcome to the forum,

POIS is not a syndrome that allergists or any other specialist or physician know about.  It is a rare syndorme, and only a handful of researchers know about POIS.  So, obviously, desensitization with your own semen is something no doctor will know about, and if you want to discuss this with ANY doctor, I strongly suggest you bring along a copy of the scientific paper written by Dr Waldinger on desens.  Otherwise, chances are the doctor will think you are out of your mind, and will refer you to a psychiatrist ;)

As I have mentioned above in this thread, Dr Waldinger himself, who is in Netherlands,  seems to have stopped using desensitization, citing it was too time consuming, and not covered by insurance companies.

Not many members have tried desensitization, let alone showing good results with this technique.  To my knowledge, one member has reported 75% relief after 3 years, which is not very convincing, and it is maybe part of the reason Dr Waldinger has now turned his focus elsewhere. So I am not aware of any physician doing this on this side of the ocean. 

Maybe some other members know more about this.

The current research going on in New Jersey, by Dr Komisaruk, founded by this very forum, is testing a treatment based on vagus nerve stimulation.  Results will be out next year.  Desensitization, for now, seems to be on a downward slope.





« Last Edit: September 08, 2016, 06:07:25 PM by Quantum »
You are 100% responsible for what you do with anything I post on this forum and of any consequence it could have for you.  Forum rule: ""Do not use POISCenter as a substitute for, or to give, medical advice" Read the remaining part at http://poiscenter.com/forums/index.php?topic=1.msg10259#msg10259

FloppyBanana

  • Sr. Member
  • ****
  • Posts: 338
Re: Desensitization, Fact or Fiction?
« Reply #95 on: September 08, 2016, 05:37:04 PM »
Hi Quantum,

Where did you get the information saying the results of the Dr K's research will be out next year?

Thanks - FB
30 years of POIS. Mytelase after O with Iceman breathing technique.

Quantum

  • Administrator
  • Hero Member
  • *****
  • Posts: 1114
Re: Desensitization, Fact or Fiction?
« Reply #96 on: September 08, 2016, 06:42:46 PM »
Hi FB,

It is just my guess based on the study ongoing calendar, and the delays in each part of the study so far.

Somewhere between now and the end of the year, the experimental part of the study will be over ( that is, the tests and measurements with POIS sufferers participating in the study.)  After that will begin the review of the data, the discussion of these data and what can be learned from the results of the study, and the writing of the paper itself.  When this final paper will finally be to their liking, it will be pair reviewed ( probably in this case by a NORD committee?  I don't know about all the details).  When everything will be fine with the final paper, it will be submitted to a scientific journal for publication, and eventually, accepted for publication.  It is hard to know exactly at this time when it will be published, but it should be somewhere in 2017.  It depends on the speed at which each step will be completed:  redaction, revision, acceptation for publication, and any other step I do not know about because I do not work in the research field.   It is hard to tell when the publication itself will happen. Early 2017?  Spring 2017?  Later?  I have no idea, but I do hope it would be in the first months of 2017.

The 4th - and last, I think - interim report will be out maybe in a month or so.  From there, I would be very surprised that all the other steps would be completed in the 10 weeks or so before the holiday break, that is why I expect the results for 2017. 

Sorry if this come as a disappointment for any member, but in the other hand, I am not sure that many are surprised, considering the slow pace for each step of the study, so far.

But I am sure it will have worth the wait.  Valuable knowledge on POIS and its treatment will be detailed in the final paper.  Furthermore, whatever the results, this study will put POIS on the map of medical research, and attract more attention to it, and make more POIS data available in scientific articles for other researchers.  Do not forget that this paper will contain, among other things, the data obtained from the members of this forum through the survey done here last summer ( June and July 2015) by the Rutgers team.  I do not know exactly how many members have answered this extensive survey, but it will be for sure the largest set of data, obtained from the largest number of POIS sufferers, ever to be published so far. 

And this all have been made possible by this forum, so thanks to the poiscenter forums founders !!!  :)

« Last Edit: September 08, 2016, 06:45:21 PM by Quantum »
You are 100% responsible for what you do with anything I post on this forum and of any consequence it could have for you.  Forum rule: ""Do not use POISCenter as a substitute for, or to give, medical advice" Read the remaining part at http://poiscenter.com/forums/index.php?topic=1.msg10259#msg10259

certainlypois2

  • Global Moderator
  • Full Member
  • *****
  • Posts: 171
Re: Desensitization, Fact or Fiction?
« Reply #97 on: March 06, 2017, 06:29:35 PM »
I dont know if anyone posted this article  before. I googled Post orgasmic illness syndrome  and google's top results were scholarly articles. I Looked through those articles and found dr berstein and his colleagues did semen allergy test on healthy men to see if they react. In addition he tested to see if reaction is caused by ige or pgs.  The link is not a full article so i am not 100% about the results.
http://search.proquest.com/openview/6dae699607307350ab0dd29cd0332bfe/1?pq-origsite=gscholar&cbl=2031058

demografx

  • Administrator
  • Hero Member
  • *****
  • Posts: 3782
Re: Desensitization, Fact or Fiction?
« Reply #98 on: March 06, 2017, 07:58:48 PM »
Thanks, CP2!!
10 years of major POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks associated with it.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business.

FloppyBanana

  • Sr. Member
  • ****
  • Posts: 338
Re: Desensitization, Fact or Fiction?
« Reply #99 on: March 17, 2017, 07:11:54 PM »
It would good if someone could get the full article...

FB
30 years of POIS. Mytelase after O with Iceman breathing technique.

demografx

  • Administrator
  • Hero Member
  • *****
  • Posts: 3782
Re: Desensitization, Fact or Fiction?
« Reply #100 on: March 18, 2017, 01:25:48 AM »
It would good if someone could get the full article...

FB

The full article is $31.50

Click & scroll (way) down to gray bar:  "Clinical Communications" -- then see 3rd article down  -- to purchase:
http://www.sciencedirect.com/science/journal/22132198/2

I concur with Quantum: this controversial treatment has apparently been abandoned by Waldinger, its main proponent.


« Last Edit: March 18, 2017, 01:55:40 AM by demografx »
10 years of major POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks associated with it.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business.