Author Topic: Summary of Treatments  (Read 63790 times)

Vincent M

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Re: Summary of Treatments
« Reply #75 on: May 25, 2013, 09:32:11 PM »
This where all the treatments tried will be listed so when forum gets much bigger new people can zone in to what helps...These section is not for discussions it is just for adding treatments.

Hey CertainlyPOIS, I compiled some treatment data that I'd like you to add to your summary. If you could add the following links that would be great.

All members' experiences with fenugreek: http://poiscenter.com/forums/index.php?topic=1057.msg9548#msg9548

All members' experiences with Vitamin B Complexes: http://poiscenter.com/forums/index.php?topic=1059.msg9571#msg9571

All members' experiences with antihistamines: http://poiscenter.com/forums/index.php?topic=1060.msg9574#msg9574

And lastly all members' experiences with saw palmetto: http://poiscenter.com/forums/index.php?topic=1061.msg9577#msg9577

Taking ginger tea, no wheat, fenugreek+green tea/garlic, saw palmetto, niacin, boswellia, huperzine, B complex and nutmeg. See my treatment summary post for more info: http://poiscenter.com/forums/index.php?topic=81.msg3513#msg3513

LAPOISSE

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Re: Summary of Treatments
« Reply #76 on: May 26, 2013, 04:20:56 AM »
Very nice job, Vincent ; That's is definitely useful.

The only type of medecine that have an impact on me are NSAIDS ; I can see it because it has a direct (quick) effect. For all the rest, very difficult to say if improovments comes from the medecine or from POIS cycles.(without anything I go from 10% OK to 100% OK, so it's vey difficult to de-correlate the effect of a vit or a plant wich has usually pretty soft effect).
There is also external things to take into consideration like climate, food, stress in life....

demografx

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Re: Summary of Treatments
« Reply #77 on: May 26, 2013, 01:38:37 PM »
This where all the treatments tried will be listed so when forum gets much bigger new people can zone in to what helps...These section is not for discussions it is just for adding treatments.

Hey CertainlyPOIS, I compiled some treatment data that I'd like you to add to your summary. If you could add the following links that would be great.

All members' experiences with fenugreek: http://poiscenter.com/forums/index.php?topic=1057.msg9548#msg9548

All members' experiences with Vitamin B Complexes: http://poiscenter.com/forums/index.php?topic=1059.msg9571#msg9571

All members' experiences with antihistamines: http://poiscenter.com/forums/index.php?topic=1060.msg9574#msg9574

And lastly all members' experiences with saw palmetto: http://poiscenter.com/forums/index.php?topic=1061.msg9577#msg9577



Excellent, Vincent M.!
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Egordon

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Re: Summary of Treatments
« Reply #78 on: May 26, 2013, 07:14:57 PM »
Very nice job, Vincent ; That's is definitely useful.

The only type of medecine that have an impact on me are NSAIDS ; I can see it because it has a direct (quick) effect. For all the rest, very difficult to say if improovments comes from the medecine or from POIS cycles.(without anything I go from 10% OK to 100% OK, so it's vey difficult to de-correlate the effect of a vit or a plant wich has usually pretty soft effect).
There is also external things to take into consideration like climate, food, stress in life....

Agreed Lapoisse! I know people on this board have tried to maintain a hearty skepticism of the autoimmune theory, but NSAIDS simply work. Every member that's tried them has confirmed their effectiveness....
POIS since I was about 15. 1.75 years of desens and I'm now about 80% POIS free. Still working through best practices for maintaining my immunity and administering my injections with my doctor. Email me if you have tips or questions!

Daveman

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Re: Summary of Treatments
« Reply #79 on: June 01, 2013, 06:48:41 PM »
I have one day POIS. On a day with full blown POIS, I ate etoricoxib 90 mg and within 30 minutes, all the symptoms especially muscle weakness , protrusion of eye ball, 90% cognitive impairment were gone.The symptoms abated till the action of the drug lasted. Only once i have eaten etoricoxib because it has life threatening side effects like congestive heart failure as a complication of drastically reduced urine volume. Etoricoxib is an antiinflammatory drug. Prednisolone is a corticosteroid and is a very potent anti inflammatory drug. I strongly support that allergy to reproductive secretions may be the cause for POIS.


Thanks for the warnings. Please be careful.

NSAIDs do help, but as you said, just for the duration of the medication, 4 to 6 hrs.

I took a strong albeit non-prescription NSAID, which helped the POIS, but effected my stomach terribly.

NSAIDs are good occasional and temporary relief. Taken regularly they do harm.
WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!

LAPOISSE

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Re: Summary of Treatments
« Reply #80 on: June 02, 2013, 03:57:20 AM »
What I would like to understand is why Nsaid's and complements with potent anti inflammatory properties help.I'm sure it would be a good start for understanding POIS.

Daveman

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Re: Summary of Treatments
« Reply #81 on: June 02, 2013, 06:18:52 AM »
What ever POIS is, it is inflammatory!

For me I feel as though this inflammation affects joints AND parts of the nervous system.

So in that sense, NSAIDs would help to reduce the inflammation. And for the same reason, only works for the 4 to 6 hrs. that
the medicine is in your system.



WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!

demografx

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Re: Summary of Treatments
« Reply #82 on: June 02, 2013, 11:38:05 PM »
What ever POIS is, it is inflammatory!

Prolly explains some of my TRT success!

Anyone know if Levitra (I also use vs. POIS) affects inflammatory issues?
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Egordon

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Re: Summary of Treatments
« Reply #83 on: June 02, 2013, 11:47:11 PM »

Thanks for the warnings. Please be careful.

NSAIDs do help, but as you said, just for the duration of the medication, 4 to 6 hrs.

I took a strong albeit non-prescription NSAID, which helped the POIS, but effected my stomach terribly.

NSAIDs are good occasional and temporary relief. Taken regularly they do harm.

[/quote]

Daveman,

Thanks for bringing a bit more attention to NSAIDs, a powerful and potentially overlooked treatment.

I'd just like to add my two cents to this, as my experience with them has been very different. I've been taking (prescription) NSAIDs to treat my POIS for just over a year now, and although the dosage i've had to take to achieve results has varied depending upon how far along i was in my desensitization, they have always provided me with complete relief from my symptoms. And that relief has always lasted until my next orgasm (or next bout of arousal).

I'd suggest that anyone that's only obtained temporary relief should try using prescription NSAIDS and try having those drugs administered under the care of a doctor, as it's incredibly difficult to tell what drug/dose will provide effective treatment of a disorder without medical expertise.

When I first started desens, I agree, I needed a superdose of NSAIDs in order to make my symptoms go away. My immune system's response to orgams was SUPER excessive and, as a result, smaller doses of NSAIDs simply weren't enough to provide more than fleeting relief. My doctor, however, was able to identify a safe and effective drug that would allow me to take such a dose without suffering longterm negative effects. Under his instruction I began to take 200mg of Celebrex twice in the 18 hours after orgasm, and found that I was completely symptom-free after I did so. (And I still take Celebrex to eliminate my symptoms, but my dose is greatly reduced.)

I'd strongly recommend that we not dismiss the effectiveness of NSAIDs and instead encourage people to stay away from the over-the-counter drugs (which some have suggested are less potent and, thereby, more dangerous) and test the effectiveness of real and effective NSAIDS as prescribed by a doctor. Lots of potential treatments might seem ineffective if being administered by (otherwise incredibly intelligent) amateurs; there's no adequate substitute for medical expertise.
POIS since I was about 15. 1.75 years of desens and I'm now about 80% POIS free. Still working through best practices for maintaining my immunity and administering my injections with my doctor. Email me if you have tips or questions!

sameer7777

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Re: Summary of Treatments
« Reply #84 on: June 06, 2013, 04:43:36 PM »
I was expecting it also to the anti inflamation thread i have started celebrex !!!!! Today so help me guys !!
pls don't expose me.
AFTER SEX/MASTERBATION (FLU LIKE SYMPTOMS)
1)BACK NECK PAIN GOES TO DOWN SPINE
2)NERVES LIKE SQUEEZED OUT
3)MORNING FEET NERVES PAIN
4)NASAL INFLAMMATION
5)BRAIN FOG
6)DEPRESSION
7)HIGH SUGAR LEVELS (TRIED INSULIN FOR 1 YEAR MAKE ME MORE SICK

Mr Raba

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Re: Summary of Treatments
« Reply #85 on: February 12, 2014, 09:28:58 PM »
Jon

I am helped with imuplus. Start with one pack a day. Can go to  2 in divided dosages after a week.
One  half to full pack after o.  Helps with the Neurotransmitters.

Stops the dull, dead feeling. Concentration increases. Can take too much. You will feel it if that happens. Like too much allergies feeling.
Been using it since. 2000.  Best price I found at Vitaglo.com. No relation.
I also have. CFS.

Take on empty stomach. Do not eat for 30 min after.
I eat after 15 min because I get hungry for protein. So I cheat.  :)
Simultaneous onset of CFS and POIS since Feb 1993. 
Married since 1989.

Helped by Immunocal (I explained how to take in previous posts).  Significant relief day one and day two.  It affects neurotransmitters!

Colm

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Re: Summary of Treatments
« Reply #86 on: June 29, 2014, 10:32:50 AM »
Trying Gluten, Wheat & Dairy Free.

Just updating information here on a recent trial of food and nutrition over 3 months.

As I mentioned in a post back some weeks, a blood test showed that I had intolerances with Milk to a big level and with wheat also.

So, for 12 weeks, I avoided Milk, wheat and gluten. I did not eat any bad foods in this time, cut out most white sugars, but had a nutritionist advising on foods to eat, and good quality Vitamin supplements to take.

I also avoided O for nearly 4 months during this, as a good trial. I was also exercising - cycling and walking every day.  My health had felt a good deal better or at least I felt more healthy on this good diet.

Had my first O yesterday and sadly I report, from straight after the O, all the usual symptoms came straight back, sinus flaring, skin dermatitis, brain fog, depression, social phobia etc etc.

I will use Niacin next time...

Am very down and disappointed after putting so much effort into the nutrition approach. Three days to feel human again !!!

For my POIS, I can say definitely that Gluten or diet is NOT a factor. It may be helpful for your POIS or may be an absorbtion of nutrients may be a problem for some.
« Last Edit: June 29, 2014, 10:59:39 AM by Colm »

sameer7777

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Re: Summary of Treatments
« Reply #87 on: June 29, 2014, 10:38:22 AM »
Which niacin you will use I will do same pls contact
pls don't expose me.
AFTER SEX/MASTERBATION (FLU LIKE SYMPTOMS)
1)BACK NECK PAIN GOES TO DOWN SPINE
2)NERVES LIKE SQUEEZED OUT
3)MORNING FEET NERVES PAIN
4)NASAL INFLAMMATION
5)BRAIN FOG
6)DEPRESSION
7)HIGH SUGAR LEVELS (TRIED INSULIN FOR 1 YEAR MAKE ME MORE SICK

moxit

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Re: Summary of Treatments
« Reply #88 on: August 24, 2014, 08:49:26 AM »
i am suffering from POIS and ADHD. i m just 18yrs . what should i do ?
 plz help me. my parents dont know about it ? what should i do ?

Myers6609

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Re: Summary of Treatments
« Reply #89 on: August 24, 2014, 09:47:25 AM »
Hi Moxit,

I would first tell your parents. As awkward as it may seem, I find that it's much more difficult to deal with POIS when you feel you can't talk to anyone about it.

I also recommend that you completely avoid orgasm for awhile. For me, the major symptoms are gone after the first two weeks and thereafter I can start rebuilding good habits. You can and will get used to it:  it becomes much easier to manage your sex drive, and by the one-month mark life you'll find that you're doing much better.

 Additionally, I have been dealing with ADHD all my life, and I find that abstaining helps with that tremendously.

For what it's worth, abstaining from orgasm has helped me develop my self-discipline. I've also learned that the meaning of life is NOT the big O: when you decide that getting off isn't important, you discover everything else that life has to offer.

Like anyone else, I hope that there will one day be a cure, but until there is know that dealing with POIS can be a character building opportunity. If you can conquer POIS, then you can conquer anything. :)