Author Topic: working with Harvard medical center!  (Read 6929 times)

Nightingale

  • Sr. Member
  • ****
  • Posts: 362
Re: working with Harvard medical center!
« Reply #20 on: October 11, 2012, 01:39:10 PM »
I had physicians contact Dr. Bernstein twice, one was an allergist in my community and the other was the head of immunology at the University of Virginia.  He declined to get involved both times =/  I don't spend much time thinking about allergists anymore, I personally don't see the semen allergy theory really going anywhere... it's just my honest feeling.
Turmeric and Rosemary 30-45 minutes before orgasm for anti-inflammatory and immune support has helped me a lot. Faster and easier than niacin approach.

Stef

  • Administrator
  • Sr. Member
  • *****
  • Posts: 377
Re: working with Harvard medical center!
« Reply #21 on: October 11, 2012, 11:27:05 PM »
So.... I've got some bad news. Dr. Long said he heard about my case and wouldn't take me as a patient. My doctor at Harvard then referred me to Dr. John Costa at Brigham and Women's Hospital in Boston (its Harvard affiliated). I made the appointment ... and then they called me back the next day and cancelled it saying "Dr. Costa says he isn't the right physician for you." I can't tell you how pissed off I am!!!

Dr. Costa referred me to http://seminalplasmaallergy.org/ and to a guy named Dr. Jonathan Bernstein. He's done work on semen allergy, but it looks like he's based at the University of Cincinnati.... which is pretty freaking far from Boston!! At any rate, I may reach out to Bernstein and plead my case and see if he has any ideas or knows anyone I can see in Boston.

On a positive note, my doctor at Harvard medical center remains very supportive and is just as frustrated as I am at my string of bad luck. It feels nice to know a doctor that actually wants to make you better. I'll keep you all posted on my progress. Sorry to get your hopes up  :-\

Hi, Hoping,

I'm really sorry about the roadblocks that are being thrown at you by those Harvard experts.

There are two courses of action:

(1) Call Dr. Bernstein and ask if he's got a reputable colleague for you in the Boston/Cambridge area;
(2) Donate to the POIS research grant program.
(That second part is not aimed directly at you, Hoping -- it's aimed at every forum member who reads, lurks, and benefits in some small or big way from the data that is being collected here.)

Guys -- MONEY TALKS!

Fund a grant -- there will be no answer without organized, basic, scientific research.  I know I sound like a broken record -- but it is what it is.

Donate--Donate--Donate!!!  $10/month, automatic, recurrent donations.

You need another 20,500 to get to your goal for your first grant.  NORD's next grant cycle is scheduled for March, 2013, leaving you six months to raise that money. 

300 members X $10/month = $3,000.  With the monthly donations that are already in place, and your October sponsor willing to double your money this month -- you will make it!!!!!

Buy your way to the answers to POIS -- the researchers are out there -- it' the funds that aren't.

If it's going to happen, it's up to you.

I GUARANTEE  that once you've raised money for that first grant, NORD will find you the researchers who are perfect for this undertaking,

As an aside, we have been FORBIDDEN to mention the POIS research fund on the NSF site.  The reason is murky, to say the least. 

So -- for those of you who have comrades over there who are new -- tell them about the research grant AND invite over here. 

This is YOUR site. NSF is run by someone with an arbitrary set of rules and some nebulous agenda (I have no idea what that agenda is -- but it's not in your favor).

Remember -- DONATE!

Stef


Egordon

  • Full Member
  • ***
  • Posts: 132
Re: working with Harvard medical center!
« Reply #22 on: November 04, 2012, 12:01:36 AM »
Hey Hoping!

Any new news?
POIS since I was about 15. 1.75 years of desens and I'm now about 80% POIS free. Still working through best practices for maintaining my immunity and administering my injections with my doctor. Email me if you have tips or questions!

Hoping

  • Jr. Member
  • **
  • Posts: 88
Re: working with Harvard medical center!
« Reply #23 on: November 08, 2012, 09:39:53 PM »
Hey Hoping!

Any new news?

Nothing yet Egordon. School work and travel have gotten the better of me unfortunately. I'll be sure to report back with any news. Thanks for checking in!
Experienced POIS since 2002.
My symptoms include: brain fog, depression, physical and mental fatigue, memory problems, social anxiety, concentration problems, myalgia, inflammation.