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Author Topic: California POIS  (Read 3098 times)

vonstermommy

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California POIS
« on: July 29, 2012, 01:48:13 AM »
Hello,

I was wondering if there are any sufferers and partners of POIS who live in California?  It would be nice to meet face to face to support each other. 

It also would be a good time to combine our brains on the many forums, doctors, groups, articles and videos (which Im so thankful for because 10 years ago there was nothing!). Maybe a one day power meeting to organized everything we have each learned to help ourselves and others. Interested?
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Im the wife of a man suffering from POIS. 300 Niacin. Feel free to give your wife my email address!

Egordon

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Re: California POIS
« Reply #1 on: July 29, 2012, 01:53:36 PM »
There seem to be a number of us! I live in the Bay Area and would be happy to attend a meeting, if someone else would put it together. But I'd also be happy to share the information I have regarding this disease in other ways.
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POIS since I was about 15. 1.75 years of desens and I'm now about 80% POIS free. Still working through best practices for maintaining my immunity and administering my injections with my doctor. Email me if you have tips or questions!
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