My journey *please help!*

[Reimer2608]

First of all, i want to start and thank the founders of this forum, because man it is good to finally know you?re not alone.

Im 17 years old and most of my youth i felt bad for some unknown reason. But eventually i saw a pattern. I felt bad after every time i O?d. I will get extreme anxiety/fear for almost everything, things that wouldnt bother me before the o. I cant hold a normal conversation with people and my motor skills will get so stiff.

People always called me vague when i was in this state. It wil last for 3 days and then its randomly gone.

I have noticed that not o?ing makes me feel normal. But it is so hard and i dont wanna live like this. So i tried to observe which things help me. I noticed that exercising makes me feel alot better, especially running and lifting weights. Eating food like eggs and beans also helps.

But i cant live likes this! I have a girlfriend!!!! If i get h0rny i also experience the symptoms but slightly lighter. So practicly i ALWAYS FEEL BAD AROUND HER. Theres nothing i can do about that.


I read that raw garlic and fenugreek helps and i tried that and it worked. But today it randomly didnt. I also tried niacin but that didnt work, and i think even made my symptoms worse.

Can someone help me what else i can do? especially The h0rny problem because of THAT i always feel so weird around her. And i cant exercise every minute when around her or eat eggs every second.



I also wanna say even thinking about porn or seeing a video that makes me think about it triggers the symptoms.

[young poiser]

I also wanna thank the founders of this forum, it made me feel very comfortable that I wasn't the only one experiencing this and it kinda gave me a some hope.

Im 15 years old and live in Arizona, I started getting my pois symptoms with my first O at around age 12. It did'nt take me long to realize that my symptoms were directly linked to O I honestly thought it was normal to feel sick after an O.

 The first thing I started seeing was POIS having an impact in my social life. Before pois i was a really social person, now I'm anti social and really struggle in conversations. When I talk to people its really socially akward and my mind is just blank. I really need to dig into my mind to find something to say, so my responses in a conversation are usually pretty simple and short. It doesn't help that my voice is really low and hard to understand because of my overall fatigue, weakness, and tiredness.

I started to see a pattern of when I would get my symptoms and saw they were directly linked to O. So I would try not to E when I had like a test or a hang out the next day.

My Pois symptoms usually only last around two days with the headache being the only symptom lasting for two days, My POIS symptoms are general feeling of being ill, fatigue, brain fog, speech difficulties (pretty much all the cognitive issues that come with POIS), muscle weakness ( especially feeling heavy legs and weak facial muscles), muscle pain (especially on my neck which is why I have a bad posture) dizziness, motor disturbances, sensitive to noise and light sometimes, pressure in eyes, abnormity of the eyes, depression, anxiety, personality changes during POIS period.

I think my immune system is now more sensitive than it used to be because now I get POIS symptoms from arousal as of earlier this year so now its very difficult to get out of a POIS episode. I'll even get POIS symptoms from my morning erection, this makes POIS so much worse and inescapable.

I then told my dad (who's a gastroenterologist) about my symptoms and how i thought they were directly linked to O and he told me that it wasn't normal to get those symptoms after O, I then started doing research online and that's where I found POIS and I immediately new I had it.

 My dad then took me to the doctor and we told him about my symptoms and how I thought they were directly linked to O. My doctor then gave me antihistamines and they were useless, the next appointment we worked on out ruling other health conditions and gave me SSRI's which really helped with my depression but not with any of my other symptoms. My third appointment was when my doctor gave me a real treatment option, Hyposensitivity immunotherapy. He told me how he talked to an allergist that weekend who can give me immunotherapy who's had similar cases were the woman is allergic to the man's semen, so it kinda falls in a similar category with POIS, but not exactly the same because POIS is autoimmune. So i don't really know how effective Hyposensitivity can be in treating Pois or if its a good idea to take it so i kinda wanna know y'alls opinion? I did read that Dr waldinger did immunotherapy on two dutch men with one seeing 60% improvement over 15 months and the other one seeing 90% improvment over 31 months. My allergist might even be able to do intensified protocol to speed up the process.

I believe that POIS is autoimmune and involves cytokines
https://poiscenter.com/forums/index.php?topic=2456.msg20886#msg20886

[Quantum]

First of all, i want to start and thank the founders of this forum, because man it is good to finally know you?re not alone.

Im 17 years old and most of my youth i felt bad for some unknown reason. But eventually i saw a pattern. I felt bad after every time i O?d. I will get extreme anxiety/fear for almost everything, things that wouldnt bother me before the o. I cant hold a normal conversation with people and my motor skills will get so stiff.

People always called me vague when i was in this state. It wil last for 3 days and then its randomly gone.

I have noticed that not o?ing makes me feel normal. But it is so hard and i dont wanna live like this. So i tried to observe which things help me. I noticed that exercising makes me feel alot better, especially running and lifting weights. Eating food like eggs and beans also helps.

But i cant live likes this! I have a girlfriend!!!! If i get h0rny i also experience the symptoms but slightly lighter. So practicly i ALWAYS FEEL BAD AROUND HER. Theres nothing i can do about that.


I read that raw garlic and fenugreek helps and i tried that and it worked. But today it randomly didnt. I also tried niacin but that didnt work, and i think even made my symptoms worse.

Can someone help me what else i can do? especially The h0rny problem because of THAT i always feel so weird around her. And i cant exercise every minute when around her or eat eggs every second.



I also wanna say even thinking about porn or seeing a video that makes me think about it triggers the symptoms.

Welcome to the forum, Reimer.
You can browse my chart at https://poiscenter.com/forums/index.php?topic=2338.msg19448#msg19448 .  You will find many idea of methods that can potentially help with your POIS.  No on method is effective for everyone, so you will have some testing to do. 

[Warrior]

I also wanna thank the founders of this forum, it made me feel very comfortable that I wasn't the only one experiencing this and it kinda gave me a some hope.

Im 15 years old and live in Arizona, I started getting my pois symptoms with my first O at around age 12. It did'nt take me long to realize that my symptoms were directly linked to O I honestly thought it was normal to feel sick after an O.

 The first thing I started seeing was POIS having an impact in my social life. Before pois i was a really social person, now I'm anti social and really struggle in conversations. When I talk to people its really socially akward and my mind is just blank. I really need to dig into my mind to find something to say, so my responses in a conversation are usually pretty simple and short. It doesn't help that my voice is really low and hard to understand because of my overall fatigue, weakness, and tiredness.

I started to see a pattern of when I would get my symptoms and saw they were directly linked to O. So I would try not to E when I had like a test or a hang out the next day.

My Pois symptoms usually only last around two days with the headache being the only symptom lasting for two days, My POIS symptoms are general feeling of being ill, fatigue, brain fog, speech difficulties (pretty much all the cognitive issues that come with POIS), muscle weakness ( especially feeling heavy legs and weak facial muscles), muscle pain (especially on my neck which is why I have a bad posture) dizziness, motor disturbances, sensitive to noise and light sometimes, pressure in eyes, abnormity of the eyes, depression, anxiety, personality changes during POIS period.

I think my immune system is now more sensitive than it used to be because now I get POIS symptoms from arousal as of earlier this year so now its very difficult to get out of a POIS episode. I'll even get POIS symptoms from my morning erection, this makes POIS so much worse and inescapable.

I then told my dad (who's a gastroenterologist) about my symptoms and how i thought they were directly linked to O and he told me that it wasn't normal to get those symptoms after O, I then started doing research online and that's where I found POIS and I immediately new I had it.

 My dad then took me to the doctor and we told him about my symptoms and how I thought they were directly linked to O. My doctor then gave me antihistamines and they were useless, the next appointment we worked on out ruling other health conditions and gave me SSRI's which really helped with my depression but not with any of my other symptoms. My third appointment was when my doctor gave me a real treatment option, Hyposensitivity immunotherapy. He told me how he talked to an allergist that weekend who can give me immunotherapy who's had similar cases were the woman is allergic to the man's semen, so it kinda falls in a similar category with POIS, but not exactly the same because POIS is autoimmune. So i don't really know how effective Hyposensitivity can be in treating Pois or if its a good idea to take it so i kinda wanna know y'alls opinion? I did read that Dr waldinger did immunotherapy on two dutch men with one seeing 60% improvement over 15 months and the other one seeing 90% improvment over 31 months. My allergist might even be able to do intensified protocol to speed up the process.

I believe that POIS is autoimmune and involves cytokines
https://poiscenter.com/forums/index.php?topic=2456.msg20886#msg20886

Hi mate and welcome. It's great that you've realised you have POIS at 15, even better that you've discovered the community. Many don't even realise they have POIS until later. Lot's never find the forum. You're also lucky you have someone close to you (your father) who has a medical background (gastrointestinologist).

The best thing you can do is to test all of the anecdotal treatments available here on the forum and on the subredit. Do so with the advise and guidance of your father and other medical professionals. Always have common sense and be informed about what you choose to try.

There are hundreds of theories on POIS. The truth is that the term "POIS" covers many unique clusters/types of POIS. Different clusters/types have different symptoms and subsequently respond to different treatments, as laid out in the link Quantum shared with you.

Learn to listen to your body (like you already have with the eggs, beans, etc). This is the way forward for you to heal a mystery chronic disease. Do as much bloodwork testing as possible. In addition to modern medicine and science (which is currently limited for POIS), look into the areas of functional medicine. They cover a lot of interesting factors that are hypothesised lead to chronic diseases like POIS i.e., chronic infections, toxins, gut dysbiosis, etc.

Good luck.

[demografx]

First of all, i want to start and thank the founders of this forum…

I also wanna thank the founders of this forum…

You’re quite welcome!

POIS is very difficult for all of us. Try to search these boards for commonalities with your own experiences, and I hope you can find some more relief for your particular situation.