Author Topic: The Indiegogo campaign  (Read 87872 times)

demografx

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Re: The Indiegogo campaign
« Reply #60 on: August 24, 2012, 08:05:20 PM »
Hey, guys, here's an EASY way to participate:

Observercenter posted a coment on TOPIX-dot-com, a HUMAN SEXUALITY NEWS SITE:
http://m.topix.com/forum/health/depression/TJFPAV7PB9PRAO6FC

JUST ADD YOUR OWN COMMENT AT THE LINK ABOVE AND YOU MIGHT HELP REACH A WHOLE NEW AUDIENCE OF NEWBIES = DONORS! Invite them to POIScenter.com !

Thanks very much for trying!

« Last Edit: August 26, 2012, 05:50:24 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Ccconfucius

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Re: The Indiegogo campaign
« Reply #61 on: August 25, 2012, 11:58:58 PM »
Hey, guys, here's an EASY way to participate:

Observercenter posted a coment on TOPIX-dot-com, a HUMAN SEXUALITY NEWS SITE:
http://www.topix.com/health/depression/2012/08/poiscenter-com-announces-fundraising-effort-to-combat-rare-severely-debilitating-sexual-disorder

JUST ADD YOUR OWN COMMENT AT THE LINK ABOVE AND YOU MIGHT HELP REACH A WHOLE NEW AUDIENCE OF NEWBIES = DONORS! Invite them to POIScenter.com !

Thanks very much for trying!



i was just thinking we can add to that by also posting on comment section on yahoo articles. People do it all the time for dumb advirstisment.  It is trolling but it can help.

Stef

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Re: The Indiegogo campaign
« Reply #62 on: August 26, 2012, 10:43:46 AM »
Hey, guys, here's an EASY way to participate:

Observercenter posted a coment on TOPIX-dot-com, a HUMAN SEXUALITY NEWS SITE:
http://www.topix.com/health/depression/2012/08/poiscenter-com-announces-fundraising-effort-to-combat-rare-severely-debilitating-sexual-disorder

JUST ADD YOUR OWN COMMENT AT THE LINK ABOVE AND YOU MIGHT HELP REACH A WHOLE NEW AUDIENCE OF NEWBIES = DONORS! Invite them to POIScenter.com !

Thanks very much for trying!



Hi Demo!

I just saw this post of yours.  Great idea - I'm doing it! Didn't know that Topix was a human sexuality news site.

Also, I just tweeted the International Society of Sexual Medicine --> their annual conference starts tomorrow, in Chicago.  

You men should bombard the ISSM with tweets!!! -->       @ISSM_INFO

***Mention research funding in your tweets!

 
Example -- my first tweet to the ISSM is, "Please read igg.me/p/172083?a=858630 ? Horrible sexually-related disorder.  Research-funding available!!  Please RT."



MONEY TALKS! :)

Stef
« Last Edit: August 26, 2012, 11:03:36 AM by nordnurse »

demografx

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Re: The Indiegogo campaign
« Reply #63 on: August 26, 2012, 12:07:07 PM »
Hey, guys, here's an EASY way to participate:

Observercenter posted a coment on TOPIX-dot-com, a HUMAN SEXUALITY NEWS SITE:
http://www.topix.com/health/depression/2012/08/poiscenter-com-announces-fundraising-effort-to-combat-rare-severely-debilitating-sexual-disorder

JUST ADD YOUR OWN COMMENT AT THE LINK ABOVE AND YOU MIGHT HELP REACH A WHOLE NEW AUDIENCE OF NEWBIES = DONORS! Invite them to POIScenter.com !

Thanks very much for trying!



i was just thinking we can add to that by also posting on comment section on yahoo articles. People do it all the time for dumb advirstisment.  It is trolling but it can help.

Great idea, Cert!
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: The Indiegogo campaign
« Reply #64 on: August 26, 2012, 12:54:29 PM »
Hey, guys, here's an EASY way to participate:

Observercenter posted a coment on TOPIX-dot-com, a HUMAN SEXUALITY NEWS SITE:
http://www.topix.com/health/depression/2012/08/poiscenter-com-announces-fundraising-effort-to-combat-rare-severely-debilitating-sexual-disorder

JUST ADD YOUR OWN COMMENT AT THE LINK ABOVE AND YOU MIGHT HELP REACH A WHOLE NEW AUDIENCE OF NEWBIES = DONORS! Invite them to POIScenter.com !

Thanks very much for trying!



Hi Demo!

I just saw this post of yours.  Great idea - I'm doing it! Didn't know that Topix was a human sexuality news site.

Also, I just tweeted the International Society of Sexual Medicine --> their annual conference starts tomorrow, in Chicago.  

You men should bombard the ISSM with tweets!!! -->       @ISSM_INFO

***Mention research funding in your tweets!

 
Example -- my first tweet to the ISSM is, "Please read igg.me/p/172083?a=858630 ? Horrible sexually-related disorder.  Research-funding available!!  Please RT."



MONEY TALKS! :)

Stef

Stef, your funding available!! Idea is BRILLIANT!!
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Observer

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Re: The Indiegogo campaign
« Reply #65 on: August 26, 2012, 01:15:42 PM »

I am sending tweets to everyone I could think about. Some of them have RT me, so the people is actually reading it, but we should just hit the nail on the head and hope that a big celebrity, newspaper, etc RT and spread the word effectively. Please feel free to give more ideas of how could we spread the word !!!

demografx

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Re: The Indiegogo campaign
« Reply #66 on: August 26, 2012, 03:23:57 PM »


THANKS, OBSERVER!!!!!!

Demo
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: The Indiegogo campaign
« Reply #67 on: August 26, 2012, 03:55:15 PM »
TO ALL OUR NEWCOMERS AND FRIENDS:
Let's Cure POIS. Now.




Make "POIS Cured!"
the Feature Presentation - not Arnold!




Skip the movie and click here to please donate instead.

Or click here to read more about The POIS Medical Fund
« Last Edit: August 27, 2012, 01:15:41 AM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Hoping

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Re: The Indiegogo campaign
« Reply #68 on: August 26, 2012, 11:04:37 PM »
Hey, guys, here's an EASY way to participate:

Observercenter posted a coment on TOPIX-dot-com, a HUMAN SEXUALITY NEWS SITE:
http://www.topix.com/health/depression/2012/08/poiscenter-com-announces-fundraising-effort-to-combat-rare-severely-debilitating-sexual-disorder

JUST ADD YOUR OWN COMMENT AT THE LINK ABOVE AND YOU MIGHT HELP REACH A WHOLE NEW AUDIENCE OF NEWBIES = DONORS! Invite them to POIScenter.com !

Thanks very much for trying!



i was just thinking we can add to that by also posting on comment section on yahoo articles. People do it all the time for dumb advirstisment.  It is trolling but it can help.

Great idea, Cert!

Just posted!
Experienced POIS since 2002.
My symptoms include: brain fog, depression, physical and mental fatigue, memory problems, social anxiety, concentration problems, myalgia, inflammation.

Hoping

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Re: The Indiegogo campaign
« Reply #69 on: August 26, 2012, 11:14:05 PM »


Hi Demo!

I just saw this post of yours.  Great idea - I'm doing it! Didn't know that Topix was a human sexuality news site.

Also, I just tweeted the International Society of Sexual Medicine --> their annual conference starts tomorrow, in Chicago.  

You men should bombard the ISSM with tweets!!! -->       @ISSM_INFO

***Mention research funding in your tweets!

 
Example -- my first tweet to the ISSM is, "Please read igg.me/p/172083?a=858630 ? Horrible sexually-related disorder.  Research-funding available!!  Please RT."


MONEY TALKS! :)

Stef

Great idea stef. I just tweeted them. I know embarrassingly little about Twitter (even though I'm 27 years old and have no excuse), so I hope I did it right.

ATTENTION FORUM MEMBERS: Bombard @ISSM_INFO with Tweets (International Society of Sexual Medicine Conference, currently underway in Chicago!)
Experienced POIS since 2002.
My symptoms include: brain fog, depression, physical and mental fatigue, memory problems, social anxiety, concentration problems, myalgia, inflammation.

demografx

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Re: The Indiegogo campaign
« Reply #70 on: August 27, 2012, 12:58:10 AM »
Brilliant idea, Hoping and Stef!!!!
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: The Indiegogo campaign
« Reply #71 on: August 27, 2012, 01:00:23 AM »
Hey, guys, here's an EASY way to participate:

Observercenter posted a coment on TOPIX-dot-com, a HUMAN SEXUALITY NEWS SITE:
http://m.topix.com/forum/health/depression/TJFPAV7PB9PRAO6FC

JUST ADD YOUR OWN COMMENT AT THE LINK ABOVE AND YOU MIGHT HELP REACH A WHOLE NEW AUDIENCE OF NEWBIES = DONORS! Invite them to POIScenter.com !

Thanks very much for trying!



Thanks again Observer for leading the way!

And thank you so much to lauracostis, ridgefieldmom aka Our Very Own Stefanie - aka nordnurse, and Nightingale, Hoping, Kurtosis, and Fidalgo!!



« Last Edit: August 29, 2012, 01:24:45 AM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: The Indiegogo campaign
« Reply #72 on: August 29, 2012, 02:14:28 AM »
Topix.com statistics and demographics




WEB TRAFFIC FOR JUL 29, 2012 - AUG 27, 2012

People per Month            12,876,211
Visits per Month             21,247,293
Online                             15,821,589   
Mobile Web                       5,425,703   
Page Views per Month   129,448,448
Online                              75,799,196   
Mobile Web                      53,649,252   
 
Mobile Web traffic is measured from web browsers on mobile devices, but not mobile applications.


Source: http://widget.quantcast.com/topix.com/traffic/mobileweb?country=US


« Last Edit: August 29, 2012, 02:17:36 AM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: The Indiegogo campaign
« Reply #73 on: August 29, 2012, 02:21:42 AM »

TO ALL OUR NEWCOMERS AND FRIENDS:
Let's Cure POIS. Now.




Make "POIS Cured!"
the Feature Presentation - not Arnold!




Skip the movie and click here to please donate instead.

Or click here to read more about The POIS Medical Fund

10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Daveman

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Re: The Indiegogo campaign
« Reply #74 on: September 08, 2012, 01:14:22 PM »
Well Demo. Zero movement on Indiegogo. So that was a flop.

No support, no interest. 5 people just can't do it alone.

Sigh!

WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!

demografx

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Re: The Indiegogo campaign
« Reply #75 on: September 09, 2012, 12:20:04 AM »
Well Demo. Zero movement on Indiegogo. So that was a flop.

No support, no interest. 5 people just can't do it alone.

Sigh!



Daveman: I think that an extraordinarily brave pioneering effort was made!

As ***many*** (but not all!)  fundraisers find ( in my 1,378 years experience), funds MUST be raised internally.

If 3 out of 4 doctors don't understand POIS,  how are we supposed to achieve results in the *****general***** population? They are clueless.

Unfortunately, our message to non-POISers:  we don't have hundreds of cuddly little POIS babies dying of our disease daily in Biafra! But give anyway even though you're sure this is psychological!

Our $415 PR effort - which I thought would succeed - was a flop as well. A consumer product developer once told me (around 1800) that most new attempts (new products) fail. But she only needed a small fraction of products to succeed at the ever-growing multibllion dollar business she worked for.

But we learned mightily and we now move on. "That which does not kill us makes us stronger" - Nietzsche

We have already achieved a miraculous 1/3 goal amongst a group of sufferers who never met each other!

DAVEMAN - - AND ALL POISERS: Thank you!!!!

Stay tuned. There are more miracles ahead!
« Last Edit: September 09, 2012, 12:54:04 AM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Daveman

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Re: The Indiegogo campaign
« Reply #76 on: September 09, 2012, 06:31:32 AM »
Well Demo. Zero movement on Indiegogo. So that was a flop.

No support, no interest. 5 people just can't do it alone.

Sigh!



Daveman: I think that an extraordinarily brave pioneering effort was made!

As ***many*** (but not all!)  fundraisers find ( in my 1,378 years experience), funds MUST be raised internally.

If 3 out of 4 doctors don't understand POIS,  how are we supposed to achieve results in the *****general***** population? They are clueless.

Unfortunately, our message to non-POISers:  we don't have hundreds of cuddly little POIS babies dying of our disease daily in Biafra! But give anyway even though you're sure this is psychological!

Our $415 PR effort - which I thought would succeed - was a flop as well. A consumer product developer once told me (around 1800) that most new attempts (new products) fail. But she only needed a small fraction of products to succeed at the ever-growing multibllion dollar business she worked for.

But we learned mightily and we now move on. "That which does not kill us makes us stronger" - Nietzsche

We have already achieved a miraculous 1/3 goal amongst a group of sufferers who never met each other!

DAVEMAN - - AND ALL POISERS: Thank you!!!!

Stay tuned. There are more miracles ahead!

Thanks, I needed that..... I get frustrated!
WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!

Observer

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Re: The Indiegogo campaign
« Reply #77 on: September 09, 2012, 12:47:02 PM »
Well Demo. Zero movement on Indiegogo. So that was a flop.

No support, no interest. 5 people just can't do it alone.

Sigh!



Daveman: I think that an extraordinarily brave pioneering effort was made!

As ***many*** (but not all!)  fundraisers find ( in my 1,378 years experience), funds MUST be raised internally.

If 3 out of 4 doctors don't understand POIS,  how are we supposed to achieve results in the *****general***** population? They are clueless.

Unfortunately, our message to non-POISers:  we don't have hundreds of cuddly little POIS babies dying of our disease daily in Biafra! But give anyway even though you're sure this is psychological!



But we learned mightily and we now move on. "That which does not kill us makes us stronger" - Nietzsche

We have already achieved a miraculous 1/3 goal amongst a group of sufferers who never met each other!

DAVEMAN - - AND ALL POISERS: Thank you!!!!

Stay tuned. There are more miracles ahead!

Yep, that´s true. Our hardest burden is the invisibility of the condition. I think we only can be understood by the rest of the people if we are willing to explain it -whenever, wherever- by ourselves. I have done it several times by now. It cost me the first times, but now I am openly discussing the effects and the fact that is a chronic condition with the people I care about  - that are the ones to seem to care about me- My parents donated 70$, my "mother-in-law" donated 60$ and I donated another 25$ -pledged another 75$-. If everyone is willing to do this- share our "problem" with the inner circle- we could raise all of our objective in less than a year!

Stef

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Re: The Indiegogo campaign
« Reply #78 on: September 09, 2012, 05:50:42 PM »
Well Demo. Zero movement on Indiegogo. So that was a flop.

No support, no interest. 5 people just can't do it alone.

Sigh!



Daveman: I think that an extraordinarily brave pioneering effort was made!

As ***many*** (but not all!)  fundraisers find ( in my 1,378 years experience), funds MUST be raised internally.

If 3 out of 4 doctors don't understand POIS,  how are we supposed to achieve results in the *****general***** population? They are clueless.

Unfortunately, our message to non-POISers:  we don't have hundreds of cuddly little POIS babies dying of our disease daily in Biafra! But give anyway even though you're sure this is psychological!



But we learned mightily and we now move on. "That which does not kill us makes us stronger" - Nietzsche

We have already achieved a miraculous 1/3 goal amongst a group of sufferers who never met each other!

DAVEMAN - - AND ALL POISERS: Thank you!!!!

Stay tuned. There are more miracles ahead!

Yep, that´s true. Our hardest burden is the invisibility of the condition. I think we only can be understood by the rest of the people if we are willing to explain it -whenever, wherever- by ourselves. I have done it several times by now. It cost me the first times, but now I am openly discussing the effects and the fact that is a chronic condition with the people I care about  - that are the ones to seem to care about me- My parents donated 70$, my "mother-in-law" donated 60$ and I donated another 25$ -pledged another 75$-. If everyone is willing to do this- share our "problem" with the inner circle- we could raise all of our objective in less than a year!

Demo wrote:

"Stay tuned. There are more miracles ahead!"

Great and true words, Demo!!! 

You're all really in the middle of a miracle -- and it's not only reflected in raising $11,862!!! 

You men have united -- you've morphed into a group that really supports each other! That's a major miracle!!!! I remember when this was not the situation.

And Observer, you are at the top of the list for courage and fortitude!! You've gone public and have done whatever you can to raise funds!!! No one knows yet what the REAL result of your efforts will be (the El Mundo story, the indiegogo campaign, the ABC Australia TV piece). There will be a cumulative effect -- you'll see!

I wish the cloud of shame surrounding POIS could somehow disappear.  POIS is just NOT shame-worthy! When I've told non-medical friends about POIS, they're always (1) surprised because they've never heard of POIS, and (2) sympathetic, saying something like, "Those poor men -- how awful for them!"  One close male friend of ours cannot imagine celibacy as a consideration, despite understanding the misery that POIS induces!!

Never -- not once -- have I heard, "Yuck! That's disgusting! They should be ashamed of themselves."  Not even close!

So -- you're all in the middle of a miracle! It's just going to take continuing effort on everyone's part to keep it going -- like all miracles.


Stef


demografx

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Re: The Indiegogo campaign
« Reply #79 on: September 10, 2012, 12:16:09 AM »
Why couldn't Gerald Ford have had POIS?

 Then Betty could have opened a clinic for Alcoholism and POIS Treatment!!!
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business