Research Paper for P.O.I.S. in Germany (Questionnaire)

[b0nu5]

Fellow members of the Poiscenter and also dear passive readers,

my Name is Karsten and I am member of the German P.O.I.S. Telegram Group. I have been lurking in the forum for some time now and this is my first post. Since last August 2023 I am in a treatment for P.O.I.S. by Prof. Dr. Beier (sexual medicine) at Charit? in Berlin. Even though the german P.O.I.S. group is small we managed to create a questionnaire to collect data for a paper that will be published by Prof. Dr. Beier to help increase scientifical interest in Germany towards our illness. We would like to have more data / participants to have a bigger knowledge base, because until now 11 people filled out the questionnaire.

All participation is appriciated while the focus is on german participants. The questionnaire has a german and an english version (see below). It will take around 10mins and is anonymous. If you participate, you agree to that your data can be used in above named research paper.


English version:  https://forms.office.com/r/dP14e0rg9e


German version: https://forms.office.com/r/TNRVKZ5KGb


You can also scan the attached QR-Codes to gain access with your cellphone.


If you have any questions, just write an answer to this post. I appriciate every participation and question. We are all in this together.

[Quantum]

Fellow members of the Poiscenter and also dear passive readers,

my Name is Karsten and I am member of the German P.O.I.S. Telegram Group (https://t.me/+GAv40eGOB1FhYzY6). I have been lurking in the forum for some time now and this is my first post. Since last August 2023 I am in a treatment for P.O.I.S. by Prof. Dr. Beier (sexual medicine) at Charit? in Berlin. Even though the german P.O.I.S. group is small we managed to create a questionnaire to collect data for a paper that will be published by Prof. Dr. Beier to help increase scientifical interest in Germany towards our illness. We would like to have more data / participants to have a bigger knowledge base, because until now 11 people filled out the questionnaire.

All participation is appriciated while the focus is on german participants. The questionnaire has a german and an english version (see below). It will take around 10mins and is anonymous. If you participate, you agree to that your data can be used in above named research paper.


English version:  https://forms.office.com/r/dP14e0rg9e


German version: https://forms.office.com/r/TNRVKZ5KGb


You can also scan the attached QR-Codes to gain access with your cellphone.


If you have any questions, just write an answer to this post. I appriciate every participation and question. We are all in this together.

Hi Bonus !

Thank you for this initiative, it will help raise POIS awareness for doctors and researchers.

We have a POIS Doctors List here on the forum, to help members find a doctor that, at the least, knows about POIS, and is interested in POIS research, and won't refer us  in psychiatry     It would be interesting to add that contact information of Dr. Beier on this list.  Do you think he would be interested to be added on the list ?   If so, could you send me the contact info he would like to appear on the list ? 

See our POIS Doctors list at https://poiscenter.com/forums/index.php?topic=2575.msg22338#msg22338

[b0nu5]

Hey Quantum,

I need to ask him first, if he is fine with being listed in the forum. For the members of the german Telegram Group he was fine being contacted, but this forum is on a bigger scale.

Wish you a great week.

greetings

b0nu5

[Quantum]

Hey Quantum,

I need to ask him first, if he is fine with being listed in the forum. For the members of the german Telegram Group he was fine being contacted, but this forum is on a bigger scale.

Wish you a great week.

greetings

b0nu5

Thanks, Bonus !  Yes, sure, all doctors listed on our POIS Doctor list gave their consent, and have expressed their desire to see POIS patients    

Have a great week too !

[phoenix1]

Being someone who specializes in AI and data science, I can develop a solution or an application based on the data provided in the symptom form. Could you please provide me with that data?

[Aladin]

Thanks for sharing this! 
I filled it out.
Is it possible to somehow be kept updated on what is happening with this research?

I would recommend sending a PM to
b0nu5 - - he is the forum member posting it
https://poiscenter.com/forums/index.php?action=pm;sa=send
Demo

[Samir]

Thank you for posting this--I've filled it out.  Please do post the paper here when it is complete.  It is always good to read research on our condition.

[berlin1984]

b0nu5, is this questionnaire still open and being processed by Dr Beier?
Just wondering how long we should keep the announcement here on top right of poiscenter.com in...