Author Topic: Free Flow Discussion about POIS  (Read 578020 times)

Vincent M

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Re: This may seem like a familiar place.
« Reply #360 on: October 31, 2012, 05:39:36 PM »
Thanks for the wobenzym suggestion, CertainlyPOIS. I'll look into it.
Taking ginger tea, no wheat, fenugreek+green tea/garlic, saw palmetto, niacin, boswellia, huperzine, B complex and nutmeg. See my treatment summary post for more info: http://poiscenter.com/forums/index.php?topic=81.msg3513#msg3513

Vincent M

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Re: This may seem like a familiar place.
« Reply #361 on: November 02, 2012, 10:24:47 AM »
I updated my treatment summary (here) http://poiscenter.com/forums/index.php?topic=81.msg3513#msg3513 to include home-remedy type methods I've found helpful to lessen fatigue, induce sleep at night, relieve other POIS symptoms, and solve another problem I had with pulling my hair out of my head (side effect from prozac). I'll paste the updated section here as well:

Carrots: Eating one carrot a day improves my cognitive function & eye burning a barely noticeable amount. Doesn't work as well as the other supplements.

Salt Water: Relieves a tiny bit of my eye pain and may improve cognitive function. A teaspoon of iodized salt mixed into a glass of water.

Vaseline, tiger balm, pain relieving creams, olive oil- Helps joint pain and eye burning (via moisturization)

Leave-in-Conditioner- Helps scalp irritation and hair pulling.

Mid-day Nap/ Meditation- Helps fatigue later in day.

Avoiding electronic entertainment or any activities that cause high pleasure spikes: Helps balance my emotions. For example if I watch a movie early in the day I will be less motivated to perform chores or less pleasurable productive activities because those activities will seem much less enjoyable compared to the movie.

Avoiding computer screen 2 hrs before bed: Helps induce sleep. Reading over boring material during these 2 hrs also helps induce sleep.

Bread & butter: Right before bed, helps induce sleep.

Milk: Right before bed, helps induce sleep.

Walking/Light exercise: If done early or mid-day helps induce sleep later that night.

Brief Cold exposure: Walking outside in winter in a t-shirt for 10-15min or taking a cold shower can induce alertness and reduce libido. It might also reduce inflammation cuz alternating hot/cold is known to have that effect.

Method used to stop pulling hair out of head: Stretching my toes apart & massaging my feet is equally pleasurable to pulling hair out of my head and keeps my hands busy.

I realize several of these are common sense and others are personal problems of mine, but the silent readers might also have those problems. Also I think we tend to get so focused on magic cure-all type things that we sometimes forget the smaller healthy natural steps we can take to relieve our symptoms. Hang in there guys.

Also I updated some of the treatments that weren't helpful for me:

Unhelpful Treatments:
Fluoxetine(Prozac): Just made me tired and lose hair. Increased all POIS symptoms slightly.
Venlafaxine(Effexor): Caused fatigue, bone pain, heart pain, and knee pain. The other side effects resolved, but my knees still hurt months later. Residual slight knee pain continues to this day (almost a year later) and is likely permanent.
Neem: Took one capsule for almost 2 months with no effect.
SLIT: Lazy version in which I just held pure semen under tongue for 5 min and swallowed. About 3 months almost every night. No effect.
NSAIDS/Tylenol: Zero effect.
Valerian: Didn't decrease my anxiety or help me sleep. No effect.
Kava: No effect
L-theanine: No effect.
Gaba: No effect, but only tried a few pills.
Zinc: Cheap store version. No effect.
« Last Edit: November 02, 2012, 11:12:20 AM by Vincent M. »
Taking ginger tea, no wheat, fenugreek+green tea/garlic, saw palmetto, niacin, boswellia, huperzine, B complex and nutmeg. See my treatment summary post for more info: http://poiscenter.com/forums/index.php?topic=81.msg3513#msg3513

Daveman

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Re: This may seem like a familiar place.
« Reply #362 on: November 02, 2012, 11:37:52 AM »
Hi Vincent M. Good to hear from you.

And thanks for the updates!

Seem like common sense things, but when combined every little bit helps. Sometimes the nose in front of the face
is not seen!! :)

thx
WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!

Prancer

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Re: This may seem like a familiar place.
« Reply #363 on: November 02, 2012, 01:19:56 PM »
Yes, thanks for the update Vincent M. Those are very good tips!
Symptoms (mostly cognitive): brain fog/difficulty thinking, lack of motivation, fatigue, trouble finding the right words, racing thoughts, possible OCD, anxiety, social withdrawal, extreme frustration and irritability, general discomfort.

Born in 1989, and symptoms since I was 14.

demografx

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Re: This may seem like a familiar place.
« Reply #364 on: November 02, 2012, 04:05:47 PM »
Thank you, Vincent M!
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Stef

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Re: This may seem like a familiar place.
« Reply #365 on: November 02, 2012, 09:20:26 PM »
Thanks for clarifying, Stef!

My endocrinologist says "supraphysiologic doses" of testosterone are often taken by athletes. Dangerously. Stress? Sure! With 5x the normal dose!!!

Please let me clarify my story. My T levels were LOW initially. When they got to normal range with TRT - I felt better. But I was greedy after suffering POIS so miserably for 30++ years, so I asked for and was approved for a 50% higher dose (from 10mg daily Androderm to 15mg).

That worked! (For ME, I am not promoting TRT for anyone but myself. We are all different.)

After 2+ years of this, I reduced to 8mg daily. Unlike my other "cures", TRT kept improving my POIS steadily. I felt confident enough after 2+ years to experiment with a lower dose.

I credit my success to a desperate phone call I made to Dr Petr Weiss, a sexologist in the Czech Republic, recommended by Kate Thomas, from Johns Hopkins University in 2003.

Dr Weiss *firmly* insisted that TRT was my solution for POIS.

Kate Thomas was recommended by a Sexual Medicine doctor I saw on Larry King Live CNN, who was yet another one of MANY desperate phone calls from me shouting and screaming for help with my POIS! ;D





Thanks for clarifying, Demo.  I really did think that you started with a low normal testosteone level!

As an aside -- while I have momentary access to a computer this evening -- we were HAMMERED by Hurricane Sandy here in Connecticut.  Huge oaks and poplar trees -- many a few hundred years old -- are now down on the ground in various places.  There's no electricity at our home (no heat, hot water, water, lights, etc).

I've always hated camping -- but my husband and I are camping out at home!!!! Using flash lights, candles, and the fire place.
 
NO -- it's not romantic.

I hope none of you experienced Mother Nature's fury -- this was mean!

Stef

demografx

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Re: This may seem like a familiar place.
« Reply #366 on: November 06, 2012, 06:08:25 PM »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #367 on: November 06, 2012, 06:11:48 PM »
If $50 to $100 or more seems like too much money to give for now, how about committing $5, $10, $20 or more per MONTH?

Select as many months as you want! 2 months, 3 months, 4 months, 6 months, 12 months, whatever!  :)



Simply click above and scroll down till you see, "Make this a recurring donation"...

THANK YOU, EVERYONE - YOUR AUTOMATIC MONTHLY DONATIONS WILL HASTEN OUR "FINAL STRETCH!"


« Last Edit: November 06, 2012, 06:16:06 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

lauracostis

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Re: This may seem like a familiar place.
« Reply #368 on: November 08, 2012, 12:42:23 AM »
Recent studies on the anti-inflammatory properties of prostaglandin D2 (PGD2) show that high levels are associated with the end or finalization of the inflammatory process.  PGD2 is the cytokine that causes the flush from niacin.  Studies show that low levels of PGD2 are present at the initiation of the inflammatory process and high levels are present at the termination of the inflammatory process.  It is believed that increased levels of PGD2 metabolites block the production of "nuclear factor kappa B", which is a protien that initiates and maintains the entire inflammatory process.  It is possible that some of the POIS patients who get relief from niacin may be pre-blocking the inflammatory process via this process.

kurtosis

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Re: This may seem like a familiar place.
« Reply #369 on: November 08, 2012, 04:47:11 AM »
Recent studies on the anti-inflammatory properties of prostaglandin D2 (PGD2) show that high levels are associated with the end or finalization of the inflammatory process.  PGD2 is the cytokine that causes the flush from niacin.  Studies show that low levels of PGD2 are present at the initiation of the inflammatory process and high levels are present at the termination of the inflammatory process.  It is believed that increased levels of PGD2 metabolites block the production of "nuclear factor kappa B", which is a protien that initiates and maintains the entire inflammatory process.  It is possible that some of the POIS patients who get relief from niacin may be pre-blocking the inflammatory process via this process.

There are also some papers which say that high levels of PGD2 may inhibit histamine release. That may be part of PGD2's role in the inflammation process. A rate limiter on histamine release. There's some discussion about this elsewhere on the site. A niacin flush may prepare the way for a safer O.

demografx

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Re: This may seem like a familiar place.
« Reply #370 on: November 08, 2012, 11:22:57 AM »
Levitra has worked for me at times. It is a PDE 5 inhibitor. Any ideas here why this has mysteriously (intermittently) helped my POIS?
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #371 on: November 08, 2012, 11:25:00 AM »
In states where medical marijuana is legal, I have heard it praised for it's anti-inflammatory action.
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

kurtosis

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Re: This may seem like a familiar place.
« Reply #372 on: November 08, 2012, 04:40:07 PM »
In states where medical marijuana is legal, I have heard it praised for it's anti-inflammatory action.

This is not advocacy, merely information.
http://www.sciencedaily.com/releases/2008/07/080720222549.htm

poisioq

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Re: This may seem like a familiar place.
« Reply #373 on: November 08, 2012, 06:29:53 PM »
i tried it before and after O but didn't help

lauracostis

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Re: This may seem like a familiar place.
« Reply #374 on: November 08, 2012, 08:12:04 PM »
In states where medical marijuana is legal, I have heard it praised for it's anti-inflammatory action.
here in washington state medical marijuana is already legal, but on tuesday a new marijuana law was passed in washington making marijauna legal for recreational use.  It will be sold by the state to any individual 21 years and older.  However, we will probably be sued or attacked by the federal government for this.