Author Topic: Free Flow Discussion about POIS  (Read 583260 times)

demografx

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Re: This may seem like a familiar place.
« Reply #210 on: September 10, 2012, 09:53:39 AM »
THANK YOU!!

FOR THE RECENT $50 DONATION!

AND THANK YOU FOR THE (2) $100 DONATIONS!

And one (of the (2) donations above) is in honor of Daveman!!!
« Last Edit: September 12, 2012, 01:28:22 AM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #211 on: September 12, 2012, 12:48:05 AM »
Q. What's the best thing about being an aging POISer?

A. Nocturnal emissions eventually stop.


(at least they finally did for this aging POISer)

« Last Edit: September 12, 2012, 12:53:55 AM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #212 on: September 13, 2012, 11:47:50 PM »
THANK YOU!!

FOR *ANOTHER* $50 DONATION!
« Last Edit: September 14, 2012, 12:06:23 AM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #213 on: September 14, 2012, 11:11:56 PM »
LEVITRA

This has helped my POIS since reporting about it on the POIS Forum in 2007.

It's been a mystery though. At one time, I thought it was my cure, then it stopped working - then combined with testosterone patches that I take 365 days/year for POIS - I know it helps, I just don't know the who where what why of it all. Sometimes it works before sex, sometimes it works after sex!

Looking forward to our research grant possibly exploring this expensive (NO insurance covers this Rx) drug - so if money is an issue, we're stuck with ordering from "foreign pharmacies". Dangerous IMHO .

Anyone have experience with Levitra, Viagra, or Cialis? (similar action drugs).
« Last Edit: September 14, 2012, 11:13:54 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #214 on: September 18, 2012, 09:05:16 PM »
Interesting video

"Male Orgasmic Disorder"

http://www.youtube.com/watch?v=gOAIE7jC8SI&sns=em

Too much "psychological" orientation - but flexible enough about other medical treatments IMO .

« Last Edit: September 18, 2012, 09:14:34 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Prancer

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Re: This may seem like a familiar place.
« Reply #215 on: September 18, 2012, 09:46:49 PM »
Interesting video

"Male Orgasmic Disorder"

http://www.youtube.com/watch?v=gOAIE7jC8SI&sns=em

Too much "psychological" orientation - but flexible enough about other medical treatments IMO .



Interesting video. At first I thought it was a parody. I have zero problem orgasming though, but I get the exact same frustration/melancholiness (if that's a word) after the orgasm, so I can sort of relate.
Symptoms (mostly cognitive): brain fog/difficulty thinking, lack of motivation, fatigue, trouble finding the right words, racing thoughts, possible OCD, anxiety, social withdrawal, extreme frustration and irritability, general discomfort.

Born in 1989, and symptoms since I was 14.

haidcat

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Re: This may seem like a familiar place.
« Reply #216 on: September 20, 2012, 01:19:08 AM »
Demo, in regards to the levitra, my thinking would be that its the vasodilator effects of the drug that helped you. More blood flow to muscles/brain maybe? Kurtosis could probably figure out why it worked

kurtosis

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Re: This may seem like a familiar place.
« Reply #217 on: September 20, 2012, 04:04:14 AM »
Demo, in regards to the levitra, my thinking would be that its the vasodilator effects of the drug that helped you. More blood flow to muscles/brain maybe? Kurtosis could probably figure out why it worked
I'm happy with your answer :)
If POIS is basically hyperadrenergic POTS that's not such a problem that we faint all the time but is a problem around an O then, yeah vasodilation effects are the most likely.

Daveman

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Re: This may seem like a familiar place.
« Reply #218 on: September 20, 2012, 05:40:21 AM »
I´m not sure what Levitra is, would it be a sort of "Viagra"?

I have a question about Viagra. Would Viagra be incompatible with niacin. If one were to take the two together?
WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!

demografx

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Re: This may seem like a familiar place.
« Reply #219 on: September 21, 2012, 11:31:45 AM »
Daveman, as far as I know they're identical. Competing manufacturers.
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #220 on: September 21, 2012, 11:39:44 AM »
My hunch/theory (just speaking for my POIS) is that the refractory period is somehow associated with POIS.

The faster the RATE of replenishment, the LESS POIS - and Levitra perhaps aids the process, thereby ameliorating the POIS - in my case from 80% to 90% and higher, with mood meds boosting me to 100.

Wish I were a clinician! I have no patience for diaries but what I'm telling you about is over many years experience. But not 100% consistent, so I don't plan on writing a book. ;D

I've heard the vasodilation explanation before, it makes sense. Wonder if vasodilation AND refractory rate are somehow both implicated? Not necessarily in tandem.
« Last Edit: September 21, 2012, 11:48:41 AM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #221 on: September 21, 2012, 08:21:33 PM »
THANK YOU!!

FOR THE RECENT $400.00 DONATION!!!!!!!!
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Daveman

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Re: This may seem like a familiar place.
« Reply #222 on: September 22, 2012, 06:48:49 AM »
WOW $400!

That puts us well over $12,000, can you believe it?

That $400 must have hurt. One of us cares enough to go that far out. And I know, almost any amount hurts!

Perhaps not as much as POIS. POIS is continuous, or at best 50, 60% of the time. Even a monthly donation only hurts for a day, maybe 2.

Thank you Mr. Donor, and for all of those who have helped us get to $12,312. Come on, we're getting there! To freedom.

WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!

demografx

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Re: This may seem like a familiar place.
« Reply #223 on: September 22, 2012, 12:58:53 PM »
the praise is great guys but i was just trying to make due on the 700 i prosmise which is small compared to others

THANK YOU, CertainlyPOIS FOR THE $400.00 DONATION!
« Last Edit: September 23, 2012, 12:02:14 AM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #224 on: September 27, 2012, 09:17:51 PM »
My 3 Hour Meeting Today with the celebrity actor, "Squiggy" of "LaVerne and Shirley" TV fame. He is  David L. Lander

Edit: David's website is http://DavidLLander.com/

Thank you CertainlyPOIS, Stefanie/nordnurse, Daveman, and others for encouraging me to do this!




The purpose of our meeting today was to re-acquaint (we were friends in HS days in New York when he was still David Landau.)

And to discuss POIS and similarities with David's experience with MS. He was most encouraging and was impressed that we raised over 1/3 of our goal without ever meeting each other.

IT TOOK DAVID 15 YEARS BEFORE HE WOULD "COME OUT" AND ADMIT HE HAD MS.

SOUND SIMILAR?


As a start, David is making available to you all the free 10 chapter audio book set, called "Fall Down Laughing" - pictured above. If you want a set send me a PM with your name+physical mailing address.

David L. Lander's memoir Fall Down Laughing chronicles his life story hiding multiple sclerosis from the public for 15 years. And it is F U N N Y !!!

Best known for playing "Squiggy" on the television hit "Laverne & Shirley", David L. Lander has appeared in dozens of television shows and feature films including Who Framed Roger Rabbit? and A League Of Their Own. Lander was honored by the National Sclerosis Society as their Ambassador of the Year in 2000.



« Last Edit: September 28, 2012, 10:06:41 AM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business