Author Topic: Free Flow Discussion about POIS  (Read 661479 times)

Ccconfucius

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Re: This may seem like a familar place.
« Reply #60 on: July 03, 2012, 02:48:26 PM »
The dreams  have been there before dessensitizations, they happen when i dont ejaculated for more than one week.
I dont get symptoms because of anxiety about dessensitizations the dreams actually give me pois.
I went back twice in my dessensitization from overreaction.  I do have a diary it is just in a different section of forum.

Right now i go every week, when did you start  going once a month.  


Hi, thank you for your trust to share more. I puzzled a lot about your words. "the dreams actually give me pois"

So, now we come to my big hangup here[ no biographies to refer to]

I do not know your age, but if you are much younger as me   (I am >45), I suppose , you have not only more dreams , but even more wet dreams as me.  I believe this is more likely to give you pois. I can Imagen this is a big problem, because we have no control about that.  

 Resisting doing  'it'. Will bring you more fantasies of course, if this is for me the case, this must for a younger person much more.
I have learned to ban all porno out of my house to not get in temptation.  The stimulus that makes me  shoot, is getting less and less the more  delay to have sex. This might be for all of us.   i have to be very careful not to supress it to much, otherwise It drives me crazy and than I go to quick.

yes i needed to  get 3 times one or two steps back in desentiz.

I did go every week 4 times every 14 days a half year every 3 weeks 2 years. rest 4 weekly . sometimes we repaeted the same dillution. there isnobody yet that has been treated so long and in such long distances. As i did write elsewhere they had a good reason in my case.  

 I did like to answer you asap. But I think I did not say much.

I am to tired now to go on writing. dont feel satisfied with my answers . Ii will continue and re edit this tonight.





you answered a lot by giving me your schedule, am right now every two weeks, i will stick with that for a while now.

When did you start noticing big improvements, is it the two year mark like in dr waldingers paper.

tantalus

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Re: This may seem like a familar place.
« Reply #61 on: July 03, 2012, 03:47:49 PM »
Hi family,  It is maybe good news  for us all to know when senior p.o.i.s. specialists show regular  interest in the forums too. We can only guess if they  would come here in disguise by their own initiative..

Yesterday evening I asked one of Waldingers staff  specialists (which I needed to confess my sneeky  progesteron excursion, and to know how to proceed desensitization)
to scan and screen this forum and naked scientists too.

 This to prevent informationgaps.  Also to prevent  a too big nomansland between patients with and whithout university trained  therapists Although this highly specialized people have almost no live after work, he/she  did read a part of his evening here . I will not be his/her  postman. But may bye I hear indirect  impressions, question marks later on which I am supported  to share.    I suggested he/she  could also maybe share here anyway  some advice, or correct to high expectations regarding self medication, the fact he can do this by choice as 'user' will give him protection for to much attention. Otherwise curiosity could kill the cat.  Since I did write myself here I might get his/her/their positive/negative feedback about my own content here too. I wait, shiver, and drink thea,  :-X Gynostemma in my case.     http://en.wikipedia.org/wiki/Gynostemma_pentaphyllum

« Last Edit: July 04, 2012, 02:29:37 AM by tantalus »
4 years desensitized, health progr. average 70%  top 90%, ,overreaction stops 3X (herpes+meningeal irritation, sideeffects towards end ( hyperacusis), stopped at 4to1, retrograde after stop,re-entry soon. negative progesterone effect pois. . (new supervised med. trial planned soon) Niacin not tried

tantalus

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Re: This may seem like a familar place.
« Reply #62 on: July 04, 2012, 08:45:43 AM »
GERMAN visitor here?         NEDERLANDER?         English?


Komme gerne mit dich in telefonischer verbindung. Zweks  pois unterhaltung einfuehrung.

Ik mis een nederlands maatje,  om door te spreken, wat in engels te moeilijk is. En voor wederzijdse ondersteuning.
woon in Amsterdam. Ben al sinds 2004 patient van prof Waldinger.


Like to have and to be apois related  telephone buddy. english writing (handicapt) is exremely tiring and can say things better in Words
We could skipe or telephone

« Last Edit: July 05, 2012, 03:00:02 PM by tantalus »
4 years desensitized, health progr. average 70%  top 90%, ,overreaction stops 3X (herpes+meningeal irritation, sideeffects towards end ( hyperacusis), stopped at 4to1, retrograde after stop,re-entry soon. negative progesterone effect pois. . (new supervised med. trial planned soon) Niacin not tried

Starsky

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Re: This may seem like a familar place.
« Reply #63 on: July 04, 2012, 01:34:56 PM »
Tantalus, ich würde gerne mit dir skypen. Schreib mir einfach dann eine PM.

demografx

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Re: This may seem like a familar place.
« Reply #64 on: July 04, 2012, 03:17:12 PM »
« Last Edit: August 26, 2012, 04:18:34 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familar place.
« Reply #65 on: July 04, 2012, 03:18:40 PM »






10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Prancer

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Re: This may seem like a familar place.
« Reply #66 on: July 05, 2012, 11:40:18 PM »
Hi all - GoingCrazy, Vincent, observercenter, Daveman, nordnurse, all other POIS sufferers here, and a special hello to demografx,

My name is Ryan. I've had POIS since I was about 14; I'm 23 now. (Before that I did notice after each orgasm that I felt some fatigue, but my symptoms were not nearly severe enough that I could call it POIS.) My POIS is 90% cognitive, and the rest is mostly strong fatigue. My symptoms are: difficulty thinking, memory problems, trouble finding the right words, itchy scalp corresponding to foggy thinking, insomnia, occasional severe headache, racing thoughts, possible OCD, anxiety, social withdrawal, extreme frustration and irritability, general discomfort.  I've lived in South Florida my whole life (though it's possible I could be moving out of FL and north at the end of the year). I did receive an accidental electrical shock in August '03, and for a long time I thought that is what was causing my symptoms. The shock was not strong enough to seriously injure me. I have since concluded that my POIS was not caused by the jolt, and I think that my POIS might have developed anyway.

Even though I'm new here, I've been following the forums for over a year now. I read through a lot of the information (not all 700+ pages word for word yet though). Perhaps what fascinates me the most is Animus' posts about his cure. I share so many symptoms with what he had before his cure, and even though I do not know what causes POIS, I also have a slight feeling that it has to do with the ejaculation of semen (regeneration theory). I can recall the very few times in the past I had a dry ejaculation for whatever reason, and I had very little POIS symptoms. I do not know if this is because of an allergy or something else, but I, like a few people, think it might have something to do with the body not liking the fact that semen has just been lost. Maybe, like others have said, the act of replenishing the semen is too taxing on the body. A few things that help my POIS are: 1) GOOD NIGHT'S SLEEP, 2) not ejaculating for a long while , 3) physical pain (I know it sounds really strange, but when I am injured in POIS, such as from a small skin burn or insect bite, I can usually think a little more clearly, almost like it "wakes me up"). 4) staying well hydrated. Using niacin seems to help me a little bit, but I'm still unsure, and it's definitely not a 100% cure for me whether it works or not. One interesting thing I've tried and had some nice results from is actually applying strong pressure to the area couple inches behind the testicles while ejaculating. This has given me completely DRY orgasms and seems to help a lot in many instances, although a few times I still had POIS later on (maybe because of retrograde ejaculation). Also, I'm not sure if this is necessarily the healthiest thing to be trying, but it seemed to work for me, albeit with varying effectiveness. My guess is that this action squeezes the prostate, not allowing much semen to be ejaculated. That's one more reason why I also believe ejaculation of semen causes POIS, and not the orgasm itself.

By the way, I remember reading several months ago on these forums about a member stating that hot showers made his POIS worse. Well for me, this is also definitely a big YES! Hot showers feel awesome and make me so relaxed DURING the shower, but several minutes after I get out, my POIS usually becomes much worse, especially if I was in strong POIS to begin with. Mainly severe cognitive symptoms result from this. After a good night's sleep, the next morning I feel much better.

[sigh] So in summary, POIS is a heck of a thing to have! But I think it can and will be cured one day soon. I think this not only because of the few people that actually had theirs cured, but because of the strange transient nature of POIS. I even had a hunch my POIS could be cured before I knew about the word POIS, so much that one of my main goals I kept telling myself back then was to "cure this "imbalance" I thought I had. I thought my symptoms were the result of some kind of chemical imbalance in my head. Luckily, I found out that my earlier guess about it being able to be cured was correct.  That was a huge relief to me, and by far my favorite point that was made to me by reading through the forums. Thank you everyone!

Sorry for the long post. Hope to post again soon.

Observer

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Re: This may seem like a familar place.
« Reply #67 on: July 06, 2012, 11:43:59 AM »
A few things that help my POIS are: 1) GOOD NIGHT'S SLEEP, 2) not ejaculating for a long while , 3) physical pain (I know it sounds really strange, but when I am injured in POIS, such as from a small skin burn or insect bite, I can usually think a little more clearly, almost like it "wakes me up"). 4) staying well hydrated. Using niacin seems to help me a little bit, but I'm still unsure, and it's definitely not a 100% cure for me whether it works or not. 

Hi Prancer!. You are not the first one to report that physical pain improves POIS symptoms, i am sure that i´ve read in the other forum someone who was hardly hit in the big toe and he experienced an incredible relief. I believe this could be very well related to some neurotransmitters... It would be interesting to find this quote.

Welcome to the forum  :)

tantalus

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Re: This may seem like a familar place.
« Reply #68 on: July 06, 2012, 02:46:29 PM »
wow its weekend. Indulge yourselve and pamper yourself with flowers , choclate or compliments​...your worth it! We cannot share .e. between the selve and pois, but we can share LOVE.
« Last Edit: July 06, 2012, 03:58:44 PM by tantalus »
4 years desensitized, health progr. average 70%  top 90%, ,overreaction stops 3X (herpes+meningeal irritation, sideeffects towards end ( hyperacusis), stopped at 4to1, retrograde after stop,re-entry soon. negative progesterone effect pois. . (new supervised med. trial planned soon) Niacin not tried

demografx

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Re: This may seem like a familar place.
« Reply #69 on: July 06, 2012, 07:32:28 PM »
Prancer, welcome to the POIS Familiar Place! We believe that 2012 is POIS' Breakthrough Year. We hope to launch serious POIS Medical Research. A great time to be here!
  


Please check your mail inbox for a complete list of POIS resources.


Welcome aboard!
Demografx and Daveman
Your Forum Moderators
« Last Edit: July 06, 2012, 07:51:36 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Daveman

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Re: This may seem like a familar place.
« Reply #70 on: July 07, 2012, 07:09:40 AM »
Thanks! Hmm, that's very interesting. My girlfriend's dad is a doctor and she told him about my POIS a couple years ago (lol didn't want her to) and he said he has never heard of POIS before. But I also remember him mentioning something about the fact that pain makes my symptoms less severe as something worth looking into more. Maybe it is neurotransmitter-related somehow.

I think the body generates its own pain killers,, although maybe not as good as morphine (LOL).

I've noticed too if I have or get a cold during POIS, it sort of "takes over" the POIS somewhat. Instead of haveing a cold AND POIS, your just not sure which is which.

Don't get me wrong, I still insist that POIS is far worse than a cold. They don't compare on that level.

WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!

demografx

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Re: This may seem like a familar place.
« Reply #71 on: July 07, 2012, 08:16:38 AM »
I learned in my early POIS years, that I would catch cold if I ran around doing the same level of work as out-of-POIS.

I learned to slow down as soon as POIS started.
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Daveman

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Re: This may seem like a familar place.
« Reply #72 on: July 07, 2012, 10:07:18 AM »
Come on everybody. Just because NSF wants to close us down is no reason to stop donating!!!


Our research grant program is as strong and meaningfull as always.

We've still got POIS. We still don't have a solution. We still need to have a definitive definition for POIS, no matter how we feel we might be
closing in on a cause. We are laypeople, even if we find the cure, we won't have medical support until it comes officially through research.

We are frozen at $10,162. Do we not care?

WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!

demografx

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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Prancer

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Re: This may seem like a familar place.
« Reply #75 on: July 08, 2012, 01:36:09 PM »
Thank you demografx! I have a few questions for you if you don't mind.

Longterm, I believe that accumulated damage can easily occur. With over 30 years of POIS, I'm sure I would be a different person

That was back a few years ago before your cure. Do you now think POIS has left any permanent damage with you, or do you now feel like you did before POIS ever since your testosterone cure?
This might be a silly question, but if you were to completely stop taking testosterone do you think your POIS would come back? And lastly, does taking hot showers still affect you since your cure?

Thanks!

demografx

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Re: This may seem like a familar place.
« Reply #76 on: July 08, 2012, 03:30:32 PM »

Thank you demografx! I have a few questions for you if you don't mind.


Not at all.


Longterm, I believe that accumulated damage can easily occur. With over 30 years of POIS, I'm sure I would be a different person



That was back a few years ago before your cure. Do you now think POIS has left any permanent damage with you, or do you now feel like you did before POIS ever since your testosterone cure?


Excellent question, difficult answer. My guess is that some disturbance remains in cognitive performance (concentration, memory).


This might be a silly question, but if you were to completely stop taking testosterone do you think your POIS would come back?

 

I don't know and I am afraid to find out so I will not :)


And lastly, does taking hot showers still affect you since your cure?


Yes.


Thanks!


You're most welcome!
« Last Edit: July 08, 2012, 03:35:32 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Hoping

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Re: This may seem like a familar place.
« Reply #77 on: July 08, 2012, 04:12:50 PM »
Hi everybody,
While I appreciate the purpose of this thread as a transition from NSF, I instead encourage people to use the "View the most recent posts on the forum" feature. By using this, you can simultaneously view all the most recent posts throughout the forum. It looks similar to NSF, but is broken up by thread titles.

To access this feature:
(1) enter the main page of the forum (where you see "General Category," "POIS Life Style," etc.).
(2) scroll to the bottom of this page where you will see a heading that reads "Forum Stats"
(3) under this heading, there is a link that reads "view the most recent posts on the forum." click it. you can now view and respond to the most recent posts from one location.

(see attached screen shot if you need additional direction)

Although I think that the "This may seem like a familar place" thread is well-intentioned, I also feel like it detracts from the purpose of the new forum. We don't want a new NSF that's 700 pages long. Let's create individual threads and really use this new forum to its full potential!   :)
Experienced POIS since 2002.
My symptoms include: brain fog, depression, physical and mental fatigue, memory problems, social anxiety, concentration problems, myalgia, inflammation.

Stef

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Re: This may seem like a familar place.
« Reply #78 on: July 08, 2012, 04:56:41 PM »
Hi everybody,
While I appreciate the purpose of this thread as a transition from NSF, I instead encourage people to use the "View the most recent posts on the forum" feature. By using this, you can simultaneously view all the most recent posts throughout the forum. It looks similar to NSF, but is broken up by thread titles.

To access this feature:
(1) enter the main page of the forum (where you see "General Category," "POIS Life Style," etc.).
(2) scroll to the bottom of this page where you will see a heading that reads "Forum Stats"
(3) under this heading, there is a link that reads "view the most recent posts on the forum." click it. you can now view and respond to the most recent posts from one location.

(see attached screen shot if you need additional direction)

Although I think that the "This may seem like a familar place" thread is well-intentioned, I also feel like it detracts from the purpose of the new forum. We don't want a new NSF that's 700 pages long. Let's create individual threads and really use this new forum to its full potential!   :)

Hoping,

Excellent suggestion!  I already have the "View the most recent posts on the forum" link bookmarked, and also rely on the RSS feed.

Of course, Daveman also set up several individual threads that can be added to or where new topics can be started.  (Ironically, I just started a new topic!)

Soon the entire poiscenter.com will be "a familiar place."

And it will likely become THE PLACE! :-)



Stef

Daveman

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Re: This may seem like a familar place.
« Reply #79 on: July 08, 2012, 06:39:12 PM »
Hi everybody,
While I appreciate the purpose of this thread as a transition from NSF, I instead encourage people to use the "View the most recent posts on the forum" feature. By using this, you can simultaneously view all the most recent posts throughout the forum. It looks similar to NSF, but is broken up by thread titles.

To access this feature:
(1) enter the main page of the forum (where you see "General Category," "POIS Life Style," etc.).
(2) scroll to the bottom of this page where you will see a heading that reads "Forum Stats"
(3) under this heading, there is a link that reads "view the most recent posts on the forum." click it. you can now view and respond to the most recent posts from one location.

(see attached screen shot if you need additional direction)

Although I think that the "This may seem like a familar place" thread is well-intentioned, I also feel like it detracts from the purpose of the new forum. We don't want a new NSF that's 700 pages long. Let's create individual threads and really use this new forum to its full potential!   :)

Thank you Hoping. Also another feature we have is an RSS link:
http://poiscenter.com/forums/?action=.xml;type=atom

If you copy this link into any RSS reader (Outlook and many EMail programs have RSS readers too), you will get all the latest posts sent to you just like EMails with an link included to the forums post's link.

It's real handy!
WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!