Dear fellow 'lads'with P.O.I.S.Lauracostis,Vandemolen, John21, Daveman, Demografx,
THANK YOU FOR HE WARM WELKOM, and the tips to jump to alternatives
Like to introduce myself here as new 'Dutch languaged' member. Did only read a view posts since 2006, but will be here now on weekly basis. Like to help document p.o.i.s treatment, monitor the psychological aspects of integrating the syndrome in social live, sharing insight in progress as well back-fall. Radiate a critical eye over my own process as well the opinion of others that will ask or tell here whatever comes up.
My P.o.i.s. was Official diagnosed in 2004 by its 'inventor' prof M. Waldinger. I am one of the about 40 patients that is described in Waldingers article in 2011, that undergo the subcutaneous test. [to test/prove if its an allergy or just a newage neurosis
] If you are new to the allergy hypothesis [which I still approve,but
*....], see also his article written 2011 in witch he describer 2 patients who go successfully a desensitization therapy
http://www.thenakedscientists.com/forum/Smileys/default/icon_smile_shy.giftp://www.tandfonline.com/doi/abs/10.1080/009262302760328280I did undergo the desentization also, and am almost at the end of it ....[and with it ;>) ]
Treated with desentization, partially progressed but still in therapy. My therapy takes now about 4 years. Not finished yet. Later on I will describe the effects of the therapy and its side effects during time between the injections. Content with actual state of progress? Sorry, NO
**. Of course much lesser days sick and lesser outlaw of society but still 1 or 2 days frustratingly under influence of cognition symptoms and therefore wiser hiding for certain social contacts those days. The progress is also floating
***The treatment policy was to keep treatment quiet for the world until first results were published. Also the goal was not to interfere with other treatments, to keep results objective. Now the end of desensitization cums near [I went from 1 to 40.000 tot 1 to 3], I like to consider adding some help of complementary therapy. Of course I cannot read backwards all 367 posts here before I say /ask needless things, but I hope not to miss alternative healing methods or tips to help my body accept his own sperm. Need your help to inform me postpone what i can do.
you know already (see my post on naked scientist 24/6/2012) my sidekick to
progesteron became a disappointment .
postpone addition:I just removed my former post in which I described the exerience , it would be to much for you to read, wil add an other day....... Whether 2x 5 mg was to less to work, or even enough to interfere negative if of later discussion, If the skin itches so badly for 3 days it worked in any case!! ...my advise keep your hands of it till all experienced are bundled here later. I did read here before already and in Wiki that a patient was cured!?? with progesteron supletion. Others on pois fora about 6 ? do experiments with it. At the moment i dont have info how the patients react on the progesterone. My first opinion is that the claims are dangerously vague and paradox. but have to read everything over again to 'shoot on it' successfully.
Have no clue if there are complimentary treatment methods. At the moment I get vitamin D supletion, since that is done for now on for all sufferers of all kinds of allergies. My specialist will monitor progress with the already started vit D supletion.
My allergist ( keep him anonymous), tested hormones etc
for further future use/research
Vit D [normal nmol/l >50] ?........= 25.6. wich is to low, testosteron, [nmol/l 12-35] ?..?.=19.0) is ok
progesteron, [nmol/l 0.89-3.88] = <0.64)......[this result made me giving the progesteron the benefit of the doubt ]......so its intresting it did not help but even 'harm' to get it on normal level (0.89)
FSH U/l 3-15 =7.0
sex HBG, nmol/l 20-70 ?............=42
LH, U/l 1-8...................................=5,8blood.....
Hemoglobine , nmol/l 8.5-11.......=8.8
Ige ku/l <114....... ?.....................=9
My Ige before desensblstn Was 12 now 9 this looks intresting , but does not ?say? a lot.
****since patients can experience strong reactions with Ige levels that indicate opposites.Thats exactly so interesting with our allergy. It does not follow the usual Ige interpretation strategy. For exact explanation of this paradox ask your own specialist.
again about progesterone:> WIKI ?Dexters patient was completely treated (COMPLETELY TREATED ??!!) By 5 to 10 miligrames norethisterone Well?.: treated for sex related headaches or pois?? And in witch intervals the tablets are taken. And also in the days without sex? What is the effect on the organism on the long term? Is there anybody that has spoken to dr. Dexter or his patient, and how! the present situation is of that patient. Is there any administrator of any poisforum that keeps monitoring the others progesteron adepts.
> ?Certainly POIS Sr. member of poiscenter writes in
poiscenter.com/forums/index.php?topic=74.msg476#msg476 Dosage 5-15 mg about 1.5. Hours before orgasm but no longer as 12 hrs.
Others, (cant remember the source, sorry)?.do take a tablet also after the sex, but how long after is not mentioned.
Dear pois fellows?Please let us document this experiments more precise from now on. I and you and we are walking complete in the dark now.
Pois and isolation even in the own group: I like to take advantage to come in contact with other dutch patients . In 2004 I was promised to be united with the others, but during the cure never an attempt is done to unite the ones who wanted this.
Dus jongens, mannen meldt je [weer] bij me . Kan iemand mijn herinnering dat we een keer samen uitgenodigd zouden wordeN bevestigen? Zie mijn diplomatieke antword op een vraag hierover op naakte wetenschappers,..
...about this forum ......
disapointingly, to me being on this site is almost nobody did effort to ad a biography part in his/her profile. May I invite you to change this, and add some info who you are , why not even your hobbies, and the way you got the clue about your pois, single or not, books who helped you sublimate, what keeps you happy against all odds. Our cause to be here could do it with some prettier info too to digest the serious subject better, and makes us feel recogniced also in nicer side of live.
^
my own biography: Dutch,Virgo (25 august),age >45, profession paramedical, study philosophy, Pois diagnosed with links to recurrent herpes hs2. I am set free from job obligation, so all time for hobby's: pipe organ (
www.Hauptwerk.com) massage, hi end, Bach, esspresso making, parfume,cosmology ,facebook, I am Dutch NVVE (exit) member, accepted for assisted fulfilled live,I like friendly irony, my hero's...Voltaire, David hume, Dame Edna, movy's: Bad day at black rock, Lemming, Arteficial intelligence, the Virgin Queen, I am single, for those it matters I am gay, and had 2 relationships which were nightmares for my partners, the last partner 'engaged' me with prof Waldingers theory, and immediately emigrated far away;>)reading/writing ironic tekst/literature is my mental food, speak german , my escape from pois is the typical Freudian, enjoy food like German pasty. Favoured place: the Alps, work as volunteer for people that had a stroke, my favorite friends: emphatic aspergers.....honest people you never get a chance to get bored.
* start to doubt if an allergy itself could not again be a result of other precursor [ design errors in our dna,genes,might we have 2 dna profiles like is already proven in other cases in the the forensic science....but that is only my intuition/wild guess
(will work out the other asterisks in later posts)
