Author Topic: Free Flow Discussion about POIS  (Read 970878 times)

demografx

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Re: Free Flow Discussion about POIS
« Reply #2400 on: January 03, 2024, 04:53:54 PM »



And best wishes to all of us for concrete advancements for
POIS in 2024!!
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: Free Flow Discussion about POIS
« Reply #2401 on: January 24, 2024, 10:13:04 PM »



”Can autoimmune diseases be cured? Scientists see hope at last”
http://tinyurl.com/2dzdszrn
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: Free Flow Discussion about POIS
« Reply #2402 on: February 01, 2024, 04:21:18 PM »
I submitted this question:
“What is a treatment for [POIS]
post-orgasmic illness syndrome?”



The AI answer was:

https://www.perplexity.ai/search/e437379c-c953-465c-aa6e-f992ccb549e5
« Last Edit: February 01, 2024, 06:12:28 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Quantum

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Re: Free Flow Discussion about POIS
« Reply #2403 on: February 01, 2024, 10:50:22 PM »
I submitted this question:
“What is a treatment for [POIS]
post-orgasmic illness syndrome?”



The AI answer was:

https://www.perplexity.ai/search/e437379c-c953-465c-aa6e-f992ccb549e5


This is exaclty the kind of answer to expect from AI chatbots at this point - they sum up what they can find on the internet.

I did not know about Perplexity - it seems that many new chatbots are out there, now .
You are 100% responsible for what you do with anything I post on this forum and of any consequence it could have for you.  Forum rule: ""Do not use POISCenter as a substitute for, or to give, medical advice" Read the remaining part at http://poiscenter.com/forums/index.php?topic=1.msg10259#msg10259

demografx

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Re: Free Flow Discussion about POIS
« Reply #2404 on: February 02, 2024, 01:36:45 AM »
I submitted this question:
“What is a treatment for [POIS]
post-orgasmic illness syndrome?”



The AI answer was:

https://www.perplexity.ai/search/e437379c-c953-465c-aa6e-f992ccb549e5

This is exactly the kind of answer to expect from AI chatbots at this point - they sum up what they can find on the internet.

I did not know about Perplexity - it seems that many new chatbots are out there, now .

Yes, proves your point that medical issues are not ideal candidates.

But “summing up internet finds” as you describe - - is beneficial to me.
« Last Edit: February 02, 2024, 12:49:38 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Limejuice

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Re: Free Flow Discussion about POIS
« Reply #2405 on: February 05, 2024, 01:21:13 PM »
Thank you Demo!

demografx

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Re: Free Flow Discussion about POIS
« Reply #2406 on: February 05, 2024, 02:51:59 PM »

Thank you Demo!


My pleasure, Limejuice!
« Last Edit: February 05, 2024, 02:54:07 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: Free Flow Discussion about POIS
« Reply #2407 on: February 11, 2024, 12:50:09 AM »
For your reference - -

POIS Research Study Teams
(POISCenter forum post links)

NORD researchers:
https://tinyurl.com/4a5jvz7s

Univ of Chicago researchers:
http://tinyurl.com/nau35dcy
« Last Edit: February 11, 2024, 07:09:52 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: Free Flow Discussion about POIS
« Reply #2408 on: February 15, 2024, 11:29:39 AM »
1st video: POST-ORGASMIC ILLNESS SYNDROME (POIS)



https://youtu.be/Esfs4MIH1j0?si=TIVHdExpfDwa5VV4



2nd video: TREATMENT FOR POIS

https://youtu.be/iwWOa-EO8hI?si=2Wx5U-8QKmoHwvbQ

Here’s Olivia Paulsen, with two [2] videos (above). Olivia is the Coordinator of University of Chicago’s POIS Research Study.

——————————-———————-————————-——
Thank you again, EVERYONE, for cooperating with her!
Demo
—————————-———————-—————————-——

UPDATE: several scientific POIS Study papers will be published by the distinguished panel of the University of Chicago School of Medicine - - in prestigious medical journals.

This panel is a very impressive array of international medical scholars and physicians.

I was very fortunate to attend and contribute to their most recent ZOOM conference discussing POIS in-depth.

The soon-to-be-published articles will use the POIS-related information
that you all provided!

We are POISed to soon be on
The Medical Map!!


T h a n k   Y o u :)
Demo
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: Free Flow Discussion about POIS
« Reply #2409 on: February 18, 2024, 04:17:24 PM »


It’s here! It all started on February 18th, 2007, when forum member John21 posted at our predecessor forum, the Naked Science Forum’s POIS thread.
https://tinyurl.com/3wpxsa6e

Soon to arrive in 2007 was b_jim, with numerous contributions to aid the progress of POIS Research!

Then forum member Animus arrived, with the
most courageous journey ever in the history of POIS - - he concluded that surgically undergoing self-castration would cure his POIS.

And it did!

Animus, who underwent multiple surgeries so he would stop producing semen- which included oriechtomy (castration), TURP (shrinking the prostate) , and removal of the seminal vesicles. So now he has “dry ejaculation”, and no longer suffers from POIS after orgasm.

The Learning Channel's (TLC) did a feature TV presentation on Animus’ POIS:
https://m.youtube.com/watch?v=6sdaR18vw1s

You can also search “Animus” here at POISCenter or Naked Science Forum for more detailed information. Warning: this is a dangerous procedure, and scientifically unproven beyond the solitary experience of one member, Animus - - surgeons here wouldn’t do it, so he had to fly to India for the operation. At POISCenter, we have also looked at non-surgical ways to facilitate “dry orgasm”, which Animus attributes to his success.

We would all still be there at our old forum today, but the owner of the Naked Science Forum’s POIS thread would not allow us to conduct internal member fundrai$ing for what is now the
NORD/POIS Research Study:
https://poiscenter.com/forums/index.php?topic=3006.0

Million thanks, everyone - - old and new - - for making this the #1 forum on the internet for POIS!

I especially want to thank Quantum, my co-administrator, for being tremendously valuable and instrumental in raising greatly the level of scientific accomplishment - - including outreach to the medical community at large - in finding a solution to this misery we all call POIS!

And many, many thanks to our fellow administrators, Limejuice, and Berlin1984 for contributing their time - - and financial resources - - to this great commitment of ours: to stop POIS suffering!

Best wishes everyone for a
Great Future in POIS discovery through forum teamwork!

« Last Edit: February 18, 2024, 07:23:16 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: Free Flow Discussion about POIS
« Reply #2410 on: February 28, 2024, 01:44:18 PM »

“Women with Postorgasmic Illness Syndrome: Data From an International Prospective Registry”

Presented at a recent Conference by Olivia Paulsen, our University of Chicago School of Medicine POIS Research Study Coordinator

This data includes information you all provided here. More to come!



Paulsen, O1; Banton, J2; Ikedionwu, I3; Sun, J3; Bronson, I4; Raheem, O5; Pearlman, A6; Duran, MB7; Serefoglu, EC8; Rubin, R9

1 - Idaho College of Osteopathic Medicine
2 - New York Institute of Technology College of Osteopathic Medicine at Arkansas State University
3 - University of Chicago Biological Sciences Division Pritzker School of Medicine
4 - UMass Chan Medical School
5 - University of Chicago, Department of Urology
6 - Iowa State University, Department of Urology
7 - Pamukkale University, Department of Urology
8 - Biruni University, Department of Urology
9 - Georgetown University, Department of Urology

Introduction:
Postorgasmic Illness Syndrome (POIS) describes a debilitating collection of flu-like or allergy-like symptoms experienced post-orgasm. The disorder can be divided into primary or secondary subtypes, and even further into seven clusters. POIS is considered a rare, poorly understood condition that largely affects people with penises.

Objective:
To assess females’ experiences with POIS, including symptomology, treatments trialed, and sexual function via the Female Sexual Function Index-6 (FSFI-6). To also compare their experiences with men who have POIS.

Methods:
An IRB-approved RedCAP survey was created and administered in September of 2023. The anonymous survey was distributed to the following online platforms: Twitter, Instagram, email, Reddit to include r/POIS and r/SampleSize, and the POISCenter forum. The survey was closed on November 5th, 2023 and descriptive statistics were performed.

Results:
Of 424 records, nineteen indicated they have a vulva and vagina. Authors individually and thoroughly assessed all nineteen records and eliminated duplicate responses, records that did not meet any of the established symptom criteria, and incomplete responses. After this, ten records were included in the statistical analysis. Participants identified as white/caucasian (7), Hispanic/Latina (2), and Iranian/Persian (1). One of the ten respondents has been diagnosed by a medical professional. Five participants indicated that they experience a “sensation of a flu-like state.” Three experience “extreme fatigue or exhaustion.” One experiences “feverishness or perspiration.” One experiences “mood instability and/or irritability.” Providers visited for their symptoms included primary care, endocrinologist, obstetrician/gynecologist, and mental health. Treatments trialed include allergy medications, anti-depressants, prednisolone, pelvic floor physical therapy, and pain relievers (i.e., NSAIDs). Seven participants completed the FSFI-6; three had a score of less than or equal to 19 (the cutoff for female sexual dysfunction(FSD)) and four had a score of greater than 20.

Conclusions:
POIS has been viewed as a “male-only” condition. While it largely impacts men, this data suggests that women are not immune to it and when compared to men, their experiences vary. From this prospective registry, the most common symptoms experienced by women were “flu-like.” Additionally, none of the participants visited a urologist compared to 65% of men who have. While nearly 60% of the FSFI-6 respondents are not classified as having FSD, it is important to note that only one participant stated they were “very satisfied” with their sex life. More data is needed on this understudied population affected by POIS.
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: Free Flow Discussion about POIS
« Reply #2411 on: February 29, 2024, 04:58:35 PM »


TODAY, February 29, 2024 is:





http://tinyurl.com/2t5cun66






(NORD - National Organization for Rare Disorders) is the supervising organization for our NORD/POIS Research Study, funded by us here at POISCenter:
https://poiscenter.com/forums/index.php?topic=3006.0
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

less_fogged

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Re: Free Flow Discussion about POIS
« Reply #2412 on: March 01, 2024, 08:16:30 AM »
Came across this by coincidence.
They seem to provide free phone consultation for POIS

https://www.mazemenshealth.com/blog/pois-syndrome/

I have no idea if something behind it as normally nothing is really for free!

Video on facebook also from mazemenshealth --->   https://www.facebook.com/reel/364437099851902
« Last Edit: March 01, 2024, 12:59:25 PM by less_fogged »

demografx

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Re: Free Flow Discussion about POIS
« Reply #2413 on: April 01, 2024, 07:41:12 PM »



10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: Free Flow Discussion about POIS
« Reply #2414 on: May 15, 2024, 03:42:22 PM »
Olivia Paulsen, our coordinator for the 2023 University of Chicago POIS Research Survey, works with Dr Omer Raheem and Dr Rachel Rubin, two distinguished medical experts who study POIS.

Previously posted (2023) by Dr Rachel Rubin on Twitter (X):


POIS Google Alert
October 13, 2024

Medical News
Perspectives

What We Heard This Week
'A Fascinating Medical Mystery': What We Heard This Week
— Quotable quotes heard by MedPage Today's reporters
https://www.medpagetoday.com/opinion/what-we-heard/110077

"It's really a fascinating medical mystery." -- Rachel Rubin, MD, a sexual medicine specialist in Washington, D.C., discussing POIS, post-orgasmic illness syndrome
« Last Edit: May 15, 2024, 04:31:59 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: Free Flow Discussion about POIS
« Reply #2415 on: May 16, 2024, 12:38:40 PM »


Stay tuned! University of Massachusetts Medical School is now also working with us on a very exciting POIS project!

Hopefully, more news to come next week.
« Last Edit: May 16, 2024, 07:23:53 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: Free Flow Discussion about POIS
« Reply #2416 on: May 25, 2024, 06:33:08 PM »



TO ALL: Note from Isaac @ UMass Medical - -

Dear POISers/Twitter-users: I just shared on Twitter the POIS Study invitation - -

https://twitter.com/ithebronson/status/1793655958142603288

but I have a small following, will need some re-shares

Thank you!

Isaac Bronson, MS
MD Candidate, Class of 2025”


10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: Free Flow Discussion about POIS
« Reply #2417 on: May 27, 2024, 06:27:16 PM »

Thanks to your participation, we are well on our way to a very meaningful POIS survey. I am already excited to share these results with you all and with the medical community.

================
Keep up the great work!
================

Isaac Bronson, MS
MD Candidate, Class of 2025






Hi all,
 
I’m excited to announce a new POIS survey and focus group study being launched out of UMass Chan School of Medicine! I’d like to introduce the study’s principal investigator, Isaac Bronson, who is a 4th year medical student at UMass Chan.

He discovered he himself was a POIS patient about a decade ago and went to medical school in hopes of finding a solution to the disease!

Since Isaac suffers from The Psychosocial Burden of POIS like the rest of us, his first study on this topic aims to shed light on the burden of this disease, and to share the results with the medical community.
 
Without further ado, please see Isaac’s message below for this study titled “The Psychosocial Burden of Post-Orgasmic Illness Syndrome”!
https://redcap.link/xvwt6ijc

Best,
Demo



From Isaac Bronson:
“Hello all,
 
I am a medical student at UMass Chan Medical School in Massachusetts who hopes to improve awareness of Post-orgasmic Illness Syndrome (POIS) to discover effective treatments for the disease.
 
A significant part of this disease being so burdensome is its effect on your lives as a whole. We aim to publish our results to show the medical research community that POIS is not just a problem with ejaculation, it can be debilitating across many domains of life. This study offers you the opportunity to share your stories.
 
Please complete the survey below and please consider opting into the Zoom focus group session, which you will be offered to do at the end of the survey:
 
SURVEY LINK: https://redcap.link/xvwt6ijc
 
To meet the inclusion criteria, subjects must be born with male anatomy, and either have been diagnosed with POIS or believe themselves to have POIS. You must be a current resident of the United States to participate in the focus group portion of this study. The study team will record focus group sessions for analysis.

This survey will be posted on POISCenter.com, Reddit.com, and Facebook.com and will be open for 6 weeks. Please feel free to share it wherever you believe it will reach sufferers of POIS. Please reach out to Isaac.bronson@umassmed.edu with any questions.”
 

« Last Edit: May 29, 2024, 04:03:51 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

less_fogged

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Re: Free Flow Discussion about POIS
« Reply #2418 on: June 04, 2024, 07:47:50 PM »

TO ALL: Note from Isaac @ UMass Medical

“Survey by UMass Med School:
The Psychosocial Burden of POIS
Click here to complete the survey – It will lead to a scientific publication!
 
SURVEY LINK: https://redcap.link/xvwt6ijc


Btw, 70+ responses, let's get to 150!
 
Thanks again for all the help, Demo, Admins,
& Forum Members!

Isaac Bronson, MS
MD Candidate, Class of 2025”





I encourage all to also do this survey; a bit different to the usual survey.

demografx

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Re: Free Flow Discussion about POIS
« Reply #2419 on: June 05, 2024, 11:56:20 AM »

TO ALL: Note from Isaac @ UMass Medical

“Survey by UMass Med School:
The Psychosocial Burden of POIS
Click here to complete the survey – It will lead to a scientific publication!
 
SURVEY LINK: https://redcap.link/xvwt6ijc


Btw, 70+ responses, let's get to 150!
 
Thanks again for all the help, Demo, Admins,
& Forum Members!

Isaac Bronson, MS
MD Candidate, Class of 2025”





I encourage all to also do this survey; a bit different to the usual survey.

Thank you, less_fogged!
Demo
« Last Edit: June 05, 2024, 01:14:50 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business