Author Topic: Free Flow Discussion about POIS  (Read 958183 times)

demografx

  • Administrator
  • Hero Member
  • *****
  • Posts: 6326
  • All of us working together to defeat POIS!
Re: Free Flow Discussion about POIS
« Reply #2380 on: September 07, 2023, 12:23:33 PM »



University of Chicago
POIS Research Study!


We are now working with the organizers of this POIS Study team who will be administering a survey asking patients with POIS various questions about their experience(s), such as how long they have had it, what treatments they have tried, how distressing it is, and much, much more so that the University of Chicago will have more categorical data about POIS. And the POIS Study will be published, hopefully in a prestigious medical journal!

You will be receiving a questionnaire in your email soon and notices will be posted here in a new University of Chicago/ POISCenter.com thread.

The more that forum members respond the better it is for statistical validity and POIS population projections.
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

  • Administrator
  • Hero Member
  • *****
  • Posts: 6326
  • All of us working together to defeat POIS!
Re: Free Flow Discussion about POIS
« Reply #2381 on: September 08, 2023, 12:59:54 PM »



University of Chicago
POIS Research Study!


We are now working with the organizers of this POIS Study team who will be administering a survey asking patients with POIS various questions about their experience(s), such as how long they have had it, what treatments they have tried, how distressing it is, and much, much more so that the University of Chicago will have more categorical data about POIS. And the POIS Study will be published, hopefully in a prestigious medical journal!

You will be receiving a questionnaire in your email soon and notices will be posted here in a new University of Chicago/ POISCenter.com thread.

The more that forum members respond the better it is for statistical validity and POIS population projections.





2023 POIS Research Survey!


Administrator Quantum has sent an email to all registered POISCenter.com forum members.

Message:
There is a new POIS survey online now! We strongly encourage you to take a few minutes to fill it out.  The data collected will lead to a published article in a medical journal, so it will heighten the visibility and understanding of POIS among the medical community.
The link to the survey is:

*****PLEASE CLICK HERE:*****
https://redcap.uchicago.edu/surveys/?s=NAC9A38LJLA9HW4E

Here is a personal note from Olivia Paulsen, the main survey project manager:
“Tackling POIS has quickly become a passion project of mine. In the last year I have had the opportunity to speak with several POIS patients in an effort to help brainstorm solutions to this poorly recognized disorder. Talking to patients like yourselves has been an invaluable experience in helping me and other medical professionals better understand how POIS impacts your lives. By completing this survey you are helping expand healthcare providers’ knowledge on the etiology of this condition which will help us come up with more useful treatment options.

We sincerely appreciate your authenticity when filling out this survey; your contribution is making a positive difference!

Olivia Paulsen, third-year US medical student”


Olivia works with Dr Omer Raheem and
Dr Rachel Rubin, two distinguished medical experts who study POIS!

From Dr Rachel Rubin on Twitter:





               
University of Chicago

2023 POIS Research Survey!

https://tinyurl.com/4fys8uh7

=============================
Our POIS Coordinator,
Olivia Paulsen, reports
that we now have
295 306 370 || 395 || respondents!!
=============================

370! I hope we can get to 400!”
wrote Olivia Paulsen in an email to me.

This is the largest focus-group ever in POIS history!

Keep them coming in, everybody!

Come be a part of this *historical* POIS Survey!




« Last Edit: November 04, 2023, 09:13:08 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Luciferaspois

  • Newbie
  • *
  • Posts: 5
Re: Free Flow Discussion about POIS
« Reply #2382 on: September 24, 2023, 06:26:41 AM »
I have a question guys.
Is this Pois like life threatening or dangerous?
Finally made an account here though. Happy to be the part of community. 😊

Limejuice

  • Administrator
  • Full Member
  • *****
  • Posts: 225
Re: Free Flow Discussion about POIS
« Reply #2383 on: September 26, 2023, 08:30:27 AM »
Up!

mike_sweden

  • Sr. Member
  • ****
  • Posts: 277
Re: Free Flow Discussion about POIS
« Reply #2384 on: September 28, 2023, 06:26:49 AM »
               
University of Chicago
POIS Research Survey!

https://tinyurl.com/4fys8uh7


Nice to hear some doctors dedicating time for POIS
« Last Edit: September 30, 2023, 01:56:57 PM by demografx »

Quantum

  • Administrator
  • Hero Member
  • *****
  • Posts: 1759
Re: Free Flow Discussion about POIS
« Reply #2385 on: October 19, 2023, 10:55:28 PM »
I have a question guys.
Is this Pois like life threatening or dangerous?
Finally made an account here though. Happy to be the part of community. ????
Welcome to the forum, Luciferaspois !

No, POIS is not life-threatening, but it is "quality-of -life threatening".  Living with POIS can have a heavy toll on your quality of life.  Also, for some, it causes them to drop out of college because of the brain fog or memory problems they have when in POIS.
Some members may have depression, secondary to POIS.  If left untreated, and if suicidal thoughts are present, then in this case, it can be dangerous.  But not POIS itself, because symptoms disappear by themselves in about one week, on average.
You are 100% responsible for what you do with anything I post on this forum and of any consequence it could have for you.  Forum rule: ""Do not use POISCenter as a substitute for, or to give, medical advice" Read the remaining part at http://poiscenter.com/forums/index.php?topic=1.msg10259#msg10259

demografx

  • Administrator
  • Hero Member
  • *****
  • Posts: 6326
  • All of us working together to defeat POIS!
Re: Free Flow Discussion about POIS
« Reply #2386 on: October 26, 2023, 05:41:21 PM »



***PLEASE CLICK HERE TO PARTICIPATE! ***
POIS Survey:
https://tinyurl.com/4fys8uh7


Thanks, Limejuice, for this gif!

Best,
Demo
« Last Edit: October 27, 2023, 08:18:10 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

  • Administrator
  • Hero Member
  • *****
  • Posts: 6326
  • All of us working together to defeat POIS!
Re: Free Flow Discussion about POIS
« Reply #2387 on: October 31, 2023, 03:22:37 PM »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

  • Administrator
  • Hero Member
  • *****
  • Posts: 6326
  • All of us working together to defeat POIS!
Re: Free Flow Discussion about POIS
« Reply #2388 on: November 04, 2023, 09:22:09 PM »
               
University of Chicago
2023 POIS Research Survey!

Thank you everyone for your patience in our keeping the announcements up and for your solid participation!
« Last Edit: November 04, 2023, 09:26:20 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

  • Administrator
  • Hero Member
  • *****
  • Posts: 6326
  • All of us working together to defeat POIS!
Re: Free Flow Discussion about POIS
« Reply #2389 on: November 24, 2023, 05:44:36 PM »



10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

  • Administrator
  • Hero Member
  • *****
  • Posts: 6326
  • All of us working together to defeat POIS!
Re: Free Flow Discussion about POIS
« Reply #2390 on: November 26, 2023, 06:01:16 PM »


Thank you all for being Wonderful & Great Forum partners since February, 2007!

Nearly 17 years of slow but solid progress in defeating POIS!



cc: also sent to all outside researchers who have helped.
« Last Edit: November 26, 2023, 06:31:37 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Hopeoneday

  • Hero Member
  • *****
  • Posts: 942
Re: Free Flow Discussion about POIS
« Reply #2391 on: December 18, 2023, 10:19:02 AM »
Thanks for the support.

Happy holydays to all.
Dr-pois.

demografx

  • Administrator
  • Hero Member
  • *****
  • Posts: 6326
  • All of us working together to defeat POIS!
Re: Free Flow Discussion about POIS
« Reply #2392 on: December 25, 2023, 04:47:59 PM »



…in making the 2023 University Of Chicago POIS Study the largest repository *ever* of POIS Research cases!






Best wishes from your
                                 Admin Team!

Quantum
      Limejuice
          Berlin1984
                demografx
« Last Edit: December 27, 2023, 12:34:48 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

b_jim

  • Hero Member
  • *****
  • Posts: 1066
Re: Free Flow Discussion about POIS
« Reply #2393 on: December 28, 2023, 05:55:36 AM »
Best wishes for 2024  8)
Taurine = Anti-Pois
Lyme disease "cured" in 2020.

demografx

  • Administrator
  • Hero Member
  • *****
  • Posts: 6326
  • All of us working together to defeat POIS!
Re: Free Flow Discussion about POIS
« Reply #2394 on: December 28, 2023, 09:01:25 AM »


…in making the 2023 University Of Chicago POIS Study the largest repository *ever* of POIS Research cases!

« Last Edit: December 28, 2023, 09:03:26 AM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

  • Administrator
  • Hero Member
  • *****
  • Posts: 6326
  • All of us working together to defeat POIS!
Re: Free Flow Discussion about POIS
« Reply #2395 on: December 28, 2023, 09:38:44 AM »

Best wishes for 2024  8)


Thank you and best wishes back, b_jim!

And thank you for your teriffic contributions here
since 2007
, starting with our POISCenter predecessor @ Naked Science Forum - -
almost close to 20 years ago!!!
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

b_jim

  • Hero Member
  • *****
  • Posts: 1066
Re: Free Flow Discussion about POIS
« Reply #2396 on: December 28, 2023, 09:59:25 AM »
Yeah it's a satisfaction that we created a community dispite we didn't succeed to solve the problem yet.
Im' happy to see that lot of members are still very active here  ;D
« Last Edit: December 28, 2023, 10:15:25 AM by b_jim »
Taurine = Anti-Pois
Lyme disease "cured" in 2020.

demografx

  • Administrator
  • Hero Member
  • *****
  • Posts: 6326
  • All of us working together to defeat POIS!
Re: Free Flow Discussion about POIS
« Reply #2397 on: December 28, 2023, 10:18:41 AM »

Thanks for the support.

Happy holydays to all.


Belated thank you, Hopeoneday! :)
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

  • Administrator
  • Hero Member
  • *****
  • Posts: 6326
  • All of us working together to defeat POIS!
Re: Free Flow Discussion about POIS
« Reply #2398 on: December 29, 2023, 01:46:35 AM »
Thank you very much for your reply, this new [POIS] study represents a ray of hope for our community, and we'll be following it closely. It's also great news that the University of California at Los Angeles is a major scientific partner.

Have a nice day

Gogo, also - -  in case you don’t know about this recent POIS Study, just begun - - with 500+ POISer participants!

[for more info on U of Chicago POIS Study, see above posts in THIS thread]



…in making the 2023 University Of Chicago POIS Study the largest repository *ever* of POIS Research cases!

« Last Edit: December 29, 2023, 01:53:13 AM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

  • Administrator
  • Hero Member
  • *****
  • Posts: 6326
  • All of us working together to defeat POIS!
Re: Free Flow Discussion about POIS
« Reply #2399 on: December 30, 2023, 04:13:53 PM »


…in making the 2023 University Of Chicago POIS Study the largest repository *ever* of POIS Research cases!
« Last Edit: December 30, 2023, 04:19:31 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business