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Author Topic: Free Flow Discussion about POIS  (Read 1014673 times)

demografx

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Re: This may seem like a familiar place.
« Reply #1640 on: December 02, 2015, 04:49:56 PM »
Jacqui just now followed up with this:

"I have also asked the PI to pay particular attention to the section I can share with you and be as comprehensive as he possibly can. All the best, Jacqui"
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #1641 on: December 19, 2015, 03:01:24 PM »
Article: "4 Ways Sex Can Make You Sick"
One way, according to the article, is via  "semen allergy", reporting on Dr. Waldinger, who apparently maintains good publicity efforts.

http://www.cheatsheet.com/health-fitness/4-ways-having-sex-can-make-you-sick.html/?a=viewall
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #1642 on: December 23, 2015, 02:37:36 PM »
     



                     BEST WISHES FOR A

HAPPY

HOLIDAY

       FROM DAVEMAN AND

DEMO



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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

mellivora

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Re: This may seem like a familiar place.
« Reply #1643 on: December 24, 2015, 06:35:51 PM »
Wishing everyone here a very happy festive season. I'm proud to stand among you.  This article caught my eye. A different illness but some familiar experiences. http://www.theguardian.com/commentisfree/2015/dec/24/lyme-disease-doctors-dismiss-textbook
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demografx

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Re: This may seem like a familiar place.
« Reply #1644 on: December 24, 2015, 07:17:52 PM »
Quote from: mellivora on December 24, 2015, 06:35:51 PM
Wishing everyone here a very happy festive season. I'm proud to stand among you.  This article caught my eye. A different illness but some familiar experiences. http://www.theguardian.com/commentisfree/2015/dec/24/lyme-disease-doctors-dismiss-textbook

Great article, mellivora! :)
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Quantum

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Re: This may seem like a familiar place.
« Reply #1645 on: December 25, 2015, 11:11:17 AM »
Quote from: mellivora on December 24, 2015, 06:35:51 PM
Wishing everyone here a very happy festive season. I'm proud to stand among you.  This article caught my eye. A different illness but some familiar experiences. http://www.theguardian.com/commentisfree/2015/dec/24/lyme-disease-doctors-dismiss-textbook

Thank you, Mellivora, for both your wishes and for the link.  It is a good reminder to every health practitioner to keep a fresh eye, remembering they do not know everything, and that if they do not see or understand something, that doesn't mean that it does not exist. This reminder is for sure a useful one here, when considering that POIS is a rare and rather unknown syndrome.

I also wish everybody a happy solstice, which, depending of where you are in the world, marks the beginning of winter or of summer, and depending of your cultural affiliation, coincides or not with a major holiday. :)
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You are 100% responsible for what you do with anything I post on this forum and of any consequence it could have for you.  Forum rule: ""Do not use POISCenter as a substitute for, or to give, medical advice" Read the remaining part at http://poiscenter.com/forums/index.php?topic=1.msg10259#msg10259

Quantum

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Re: This may seem like a familiar place.
« Reply #1646 on: December 25, 2015, 11:22:56 AM »
Quote from: demografx on December 23, 2015, 02:37:36 PM
BEST WISHES FOR A

HAPPY HOLIDAY

       FROM DAVEMAN AND DEMO





:) Thank you, Demo and Daveman !

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You are 100% responsible for what you do with anything I post on this forum and of any consequence it could have for you.  Forum rule: ""Do not use POISCenter as a substitute for, or to give, medical advice" Read the remaining part at http://poiscenter.com/forums/index.php?topic=1.msg10259#msg10259

BluesBrother

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Re: This may seem like a familiar place.
« Reply #1647 on: December 25, 2015, 11:25:56 AM »
Thank you all for your contributions to this great forum!

Quote from: Quantum on December 25, 2015, 11:11:17 AM
I also wish everybody a happy solstice, which, depending of where you are in the world, marks the beginning of winter or of summer, and depending of your cultural affiliation, coincides or not with a major holiday. :)

Very well said, Quantum. I second that :)
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Used to have brain fog, flue-like symptoms, un-refreshing sleep, extreme exhaustion, muscle and joint pain, digestive problems, social anxiety, urge to urinate frequently.
Used niacin in the past. Now using nanna1's maintenance stack. Exhaustion and brain fog now main problem. 3-day POIS cycle

demografx

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Re: This may seem like a familiar place.
« Reply #1648 on: December 26, 2015, 01:16:09 AM »
Quote from: BluesBrother on December 25, 2015, 11:25:56 AM
Thank you all for your contributions to this great forum!

Quote from: Quantum on December 25, 2015, 11:11:17 AM
I also wish everybody a happy solstice, which, depending of where you are in the world, marks the beginning of winter or of summer, and depending of your cultural affiliation, coincides or not with a major holiday. :)

Very well said, Quantum. I second that :)


I third that :)
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #1649 on: December 26, 2015, 01:39:18 AM »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #1650 on: December 27, 2015, 02:30:10 PM »





T-shirt we can all wear - or put this on our business cards

- when visiting POIS-skeptical, arrogant doctors!  :)



« Last Edit: December 27, 2015, 02:52:41 PM by demografx »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #1651 on: December 27, 2015, 02:51:19 PM »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #1652 on: December 31, 2015, 06:28:30 PM »
Quote from: Prancer on December 31, 2015, 12:44:23 AM


3..2..1 Happy New


Year!


Thanks, Prancer! :)








« Last Edit: December 31, 2015, 08:36:15 PM by demografx »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #1653 on: January 05, 2016, 12:16:36 AM »

Our POISCenter.com ranks #3 if we
Google-search for "POIS".






« Last Edit: January 05, 2016, 12:54:40 AM by demografx »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

mardi

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Re: This may seem like a familiar place.
« Reply #1654 on: January 05, 2016, 08:56:35 AM »
Hello guys, my name is Mardi, I’m 24, I come from Italy.
I have the syntoms of POIS for almost ten years, like a lot of you I went to a lot of doctors, specialists (nefrologs, andrologs...) but nothing was understood. I tried to search also in the web, but... until yesterday I googled only in italian language!
Yesterday, casually, I wrote some of the syntoms in english, and... Here I am.
I discovered just yesterday that what I am feeling after orgasms is a illness, with a name and there are active studies and a forum about it...
So, I just am writing to say thank you to all of you: I realized that I am not crazy, and that this nightmare is not just my imagination, but a real pathology.
I hope that I’ll can give my contribution to the community.

Mardi
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less_fogged

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Re: This may seem like a familiar place.
« Reply #1655 on: January 05, 2016, 09:36:18 AM »
Quote from: mardi on January 05, 2016, 08:56:35 AM
Hello guys, my name is Mardi, I’m 24, I come from Italy.
I have the syntoms of POIS for almost ten years, like a lot of you I went to a lot of doctors, specialists (nefrologs, andrologs...) but nothing was understood. I tried to search also in the web, but... until yesterday I googled only in italian language!
Yesterday, casually, I wrote some of the syntoms in english, and... Here I am.
I discovered just yesterday that what I am feeling after orgasms is a illness, with a name and there are active studies and a forum about it...
So, I just am writing to say thank you to all of you: I realized that I am not crazy, and that this nightmare is not just my imagination, but a real pathology.
I hope that I’ll can give my contribution to the community.

Mardi

Hello Mardi

Welcome and happy for you that you found this forum. I hope all the resources here can help you reduce your symptoms. I noticed on "Orphanet website"that there are a lot of contacts regarding POIS in Italy (Also in Germany). I've wondered if they can be of any help. If one of these places are near you, perhaps they might be worthwhile getting in touch with. I have no idea if any forum member has ever been to one of these places.

http://www.orpha.net/consor/cgi-bin/OC_Exp.php?lng=IT&Expert=279947
http://www.orpha.net/consor/cgi-bin/Clinics_Search_Simple.php?lng=IT&LnkId=20421&Typ=Pat&CnsGen=n&fdp=y&from=rightMenu
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less_fogged

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Re: This may seem like a familiar place.
« Reply #1656 on: January 05, 2016, 09:45:54 AM »
Quote from: demografx on January 05, 2016, 12:16:36 AM

Our POISCenter.com ranks #3 if we
Google-search for "POIS"

Interesting for those that don't know here you can also see the daily views of POIS on Wikipedia
For some reason there were a lot of views yesterday

http://stats.grok.se/en/latest/Postorgasmic_illness_syndrome
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joelawerence

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Re: This may seem like a familiar place.
« Reply #1657 on: January 05, 2016, 10:36:31 AM »
Hi guys, I am a new poster here, although have been a silent spectator here for over an year. I am 30 years old from the UK and have been having POIS for the last 8 to 10 years. I am typing all this on Day 3 of POIS feeling like crap in my office chair. My POIS seems to be getting worse as years pass by and that?s what is making me crazy to think what lies in future if I am suffering this much at 30 years of age.

I had a recent blood test on Day 2 of POIS which showed very low testosterone, high cholesterol, high Thyroid stimulating hormone and what not. My libido and everything is fine, which is again a problem as I can?t refrain from ejaculation for more than 4 or 5 days. I have felt much better when I have not ejaculated for more than a week which I hae done now and then, but then due to my high libido I am not able to get myself to reduce the frequency.

For your benefit and mine, I hope that there is a cure soon for this dreadful curse. I hope the Rutgers study shows some bright light at the end of the tunnel 
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33 years old, POIS for around 12 years with increasing severity.
Major symptoms - Severe fatigue, back pain, unrefreshed even after 9+ hours sleep, pain behind eyes, very dry face, bald head with inflamed scalp, digestion issues and constipation. Very low testosterone and high glucose in blood tests

Marcusq

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Re: This may seem like a familiar place.
« Reply #1658 on: January 05, 2016, 12:27:58 PM »
Hi everybody, my first post here as well, 28 years from Spain, hard Pois sufferer since 6 years ago, for me pois is a chain that takes you the half or your life, one week you are a normal person and the next one you lack energy to wake up in the morning, I have visited some doctors here but no reponse. I hope this forum and studies in course give us a solution, i have tried niacine, histamine, taurine methods but nothing new. As most of you pois starts one hour later and get the peak two days later.
Sincerely thank you everybody for the information you share here, this is the only way to get a solution.
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demografx

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Re: This may seem like a familiar place.
« Reply #1659 on: January 05, 2016, 05:25:59 PM »
Quote from: less_fogged on January 05, 2016, 09:45:54 AM
Quote from: demografx on January 05, 2016, 12:16:36 AM

Our POISCenter.com ranks #3 if we
Google-search for "POIS"

Interesting for those that don't know here you can also see the daily views of POIS on Wikipedia
For some reason there were a lot of views yesterday

http://stats.grok.se/en/latest/Postorgasmic_illness_syndrome

Very interesting.

Thanks for the link!
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business
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