Free Flow Discussion about POIS

[demografx]

Thank you, Shinjiro!

     

[Andy451]

Interesting theory.

i have had acute pain right along the vegus nerve before and it is the most bizarre intense pain I have ever encountered. I was hospitalized, they thought I had an ulcer or pancreatic issues. The pain was immense.

I wonder why it it overactive or hypersensitive in my case though. I am starting to think there is pinched nerve or multiple from an old injury in my lower back which may force the vegus to along with others to be hypersensitive due to long term inflammation..?

I really don't know. But I do know I am in physical therapy right now for pelvic floor pain which I now know for a fact is connected to some of my more odd symptoms, which leads me to believe the immune response in pois is possible just due to long term inflammation in the nerves in an area where immunofactors are rampant (seminal fluid attacks other males sperm to secure reproduction in female, yet also attacks her immune system to fertilize). i bellive everyone is capable of a pois type reaction given the correct circumstances for an immune response to inflammation.


Years back when I had that vegus nerve trouble (acute), I was scuba diving before and had a 40lb tank on my lower back for two hrs, plus a 20lb weight belt pushing on my sacrum (lower back near tailbone). I went numb underwater w/ the combo of cold and what seemed like a back injury. At the same time i experienced hypothermia. My pois symptoms shot through the roof after this event. 

The first year I had pois i almost broke my sacrum or tail bone. So I really do wonder how much of this may be physical causing an immune response....

Good stuff demo!

[Andy451]

An aside worth mentioning with the info I provided.

I cannot move my lower back flexing forward right now with inducing mild to sever pois symptoms. So whether it's a pinched nerve or whatever; nerves are certainly involved in this mess.

I am standing as I type this and hope it makes sense, cuz I can barely see the screen being that I am 6ft 3 lol

[Daveman]

An aside worth mentioning with the info I provided.

I cannot move my lower back flexing forward right now with inducing mild to sever pois symptoms. So whether it's a pinched nerve or whatever; nerves are certainly involved in this mess.

I am standing as I type this and hope it makes sense, cuz I can barely see the screen being that I am 6ft 3 lol

Hi Andy,

I had taken to a change in my "treatment" as a result of necessity. Since I am "getting up there" 65, I have increasing erectile problems. So I needed to see how viagra would fit in with my niacin treatment. The two are not very compatible. The short story is that the change has had it's ups and downs.

The ups were that when it worked it was very little short of 100%. The downs, were several really, when it didn't work, it made it worse, and the viagra/niacin combo is very hard on the system.

During some of the down times, my POIS symptoms changed. I could see an underlying POIS feel, but with some symptoms stronger, others lighter, and almost like some new. But I began to recognize that the seeming new ones were just grand exaggerations of existing ones.

Recently I have been having increasing gastric problems, and I can see where the gastric problems feed-back to unbalance other systems, even affecting brain-fog and loss of concentration.

Today is an interesting example. I accidently had "unprotected sex" yesterday (No niacin, viagra or anything, first time in about 3 yrs). And my POIS is just as it used to be. But with all the recent gastric problems, there's a distinct reminiscence that had recently been exaggerated in my heightened gastric problems.

So I am increasingly becoming convinced that, although the vagus may or may not be causal, it's certainly central. I am certain that something will come of all of this.

[demografx]

Daveman, thank you for your great confirmation that we're heading...SOMEWHERE!

[Nightingale]

I cannot move my lower back flexing forward right now with inducing mild to sever pois symptoms. So whether it's a pinched nerve or whatever; nerves are certainly involved in this mess.

Very, very curious. Very interesting. Think it adds to the nerve dystonia theory

[Prancer]

Daveman, thank you for your great confirmation that we're heading...SOMEWHERE!

THANK YOU DAVEMAN!

[Andy451]

Guys ty for the input!

I have been doing some research and certainly have POTS along with POIS. Do u have symptoms of this, if so please describe


For myself, i think the two must be related. It is an autonomic-syndrome where blood pools in diff areas of the body depending on gravity, which may explain the pain with a blood pressure change and spasm experienced during orgasm, which whould overload a compromised autonomic system on multiple levels.

Look up POTS post tachacardial syndrome (spelling) and tell me what u guys think...

[Andy451]

My POTS-POIS theory may explain why beta blockers NSAID helps.

Its a POTS treameat and POIS. ALSO most wear panty hose or under armor pants with the syndome. Try it and see if it helps. I am trying the underarmor standing now and it seems to help at least a little.

Try not to change positions to fast (standing/ sitting... so on)

Niacin is a vasodialater and force your blood everwhere instead of pooling in cerain areas.  Yoga and very specific exercise help. If we do not have the proper blood flow to our brain when aroused the effects can be jus as bizarre as pois.

Orgasms can be more or less intense with reduced or increased blood flow. Yet i wonder whether repeated low oxygen orgasms create POIS.

happy trails guys.. I hope Im onto something... Thx to u guys

[Andy451]

What would happen if you combined the effects of thes two states together over an extented time period? Perhaps some POIS? Im thinkin out loud and think there may be credence...

Check out the first link before you consider what i am infering in relation to the second one..


 http://en.m.wikipedia.org/wiki/Postural_orthostatic_tachycardia_syndrome


http://en.m.wikipedia.org/wiki/Erotic_asphyxiaion

[Andy451]

I'm now experiencing pois symptoms upon standing and sitting especially when I lay on my belly and blood rushes to my ventricle side.  At this point, I know it's been hours since my last post, and I have seen some of the past posts on POTS, I am certain POIS is a form of PoTS. Understand, what we experience is akin to an extended form of mild hypoxia.   This can alter your thoughts and mess with everything, physical and pyschological, but it is not in our head. Soon, I will be seeing a POTS specialist and will explain POIS to him.  Earlier, my under armor compression pants helped.  Try and experiment guys - do you become aroused from simply laying on your belly? Because I do; it forces the blood to rush to your penis. If it is POTS, you're likely to experience an erections or arousal.  This would also explain our delayed immunological/autonomic symtomology.  Guys, try something else for me. Read about POTS, and try treating your symptoms like so.  Don't stop the niacin, it probably works for that vwry reason. And yes, hormones are a big part of an autonomic response. #winning ;-) Guys, unless you're sleeping try not to stay still for so long it will surely help. Do breathing exercises when you change positions and it should surely help. Hang loose, stay relaxed, we got this guy's - I'm confident about this at this point.

[sameer7777]

andy what spray you using ?

[sameer7777]

Yes please clear this on standing up???

[Andy451]

Yes pois symptoms upon standing, but especially sitting in the car.

U guys should read everything i wrote and take it into consideration. This has been mentioned on the forum by stef and
observer before and POIS IS LIKELY A FORM OF POTS in my not so humble opinion- in my case.

No supplements now- D made things very bad because it can bind to calcium making u ver inflexible; id stay away from d and magnisum supplemens. Niacin only if u have sufficient salt in u diet.

Carefully read everything i said in my numerous posts before and consider. Try my experiments and don't judge without taking it all in.

POIS=POTS they are part of the same thing.

Happy trails and be good.

We will do this together. I am now more confident than ever.

[Andy451]

Like i said u cannot do that without sufficient salt in ur bloostream and can damage u liver making recovery irreversable for someone as deep in as myself.

I am coordinating with doc now and mine are confident the two are tied together.

I fill keep u updated.

Remember nicacin is a treatment not a cure and ur pois can and will come back if u stop it. But 250mg can damage ur liver over long periods of time. I am too fragile right now it is not an option.

Like i said carefully read everything i said before.

Bee good

[Nightingale]

Andy, I agree with you,

POIS and POTS share something in common. One of my best friends, a girl, was diagnosed with POTS last year, and I was struck at how similarly we felt when we were having symptoms. Thing is, she is doing fine after treatment with beta blockers, and making sure her electrolyte balance is in order.

I don't get symptoms from pressure, standing or sitting. Only from ejaculation. Manupulating the lumbar spine (lower spine) may aggravate your POIS, further lending support to the nerve dystonia theory.

POTS is a kind of nerve dystonia. POIS may very well be the same.

Hope you feel better! I wonder, do you do much exercise or stretching/yoga? I would think that whatever you could do to improve nerve tone (exercise) and reduce inflammation around your problem areas (stretching, anti-inflammatories) could help!

[demografx]

2 more snapshots:

Entrance to Dr Komisaruk's office building:




Outside Dr. Komisaruk's office is a first-of-it's-kind chart!

"Men's Genital Structures Mapped On The Sensory Cortex: fMRI Evidence"
(Rutgers-POIS Team Members)



This was my DREAM -- to sit down with a medical-professional outsider who could explain POIS -- since February, 2007...when the forum only consisted of me, b_jim, and John21!

[Defsync]

ive been around since 2007 lol. not all that active at times, for sure.

anyways I am extremely positive about their approach, but perhaps only because of my individual physical maladies that exist when not POISed that leads me to believe I have a disturbed vagus nerve.

since i was a kid, ive always had spasms in my left neck area. they exist to this day. if i sit too long, eventually a left neck muscle will strain and i will be unable to look left for a period of 2-3 days. Lotsa of pain too. Ive learned to exercise in order to combat this very annoying issue, since exercise of the neck area seems to help prevent this.

in addition, as this pressure and tension in my neck builds,  i tend to get nauseous the longer i sit.

i have had a cervical MRI but i dont think they looked at compression of the vagus nerve specifically? I may have my MRI resubmitted to a diagnostics lab to have the vagus nerve roots looked at. Besides nausea, the neck tension (which is always there on the left) causes migraines on a CONSTANT basis.

plus, i cannot @#$@#ing sleep for the life of me without sleep medication, and I am also unable to sleep on any one side for the entire duration of the night.

ive come home exhausted from work, totally exhausted, and after laying down, within minutes i cannot feel the exhaustion anymore and my muscles over my entire body will NOT relax, and i feel somewhat numbness throughout my entire body. without relaxing of the muscles, and the FEELING of that relaxing, NO SLEEP.

the neck issues have always been there. also when really tired or in extreme cases of alcohol or other things, my left pupil will dilate to a diff size than my right.

 i normally feel a bit of numbness and tingling on the left side of my face, emanating from the middle of the neck to the front. like as in right now sitting here.

in addition, I have relatives who have had severe syndromes (one had severe and constant nausea for no reason) that resulted in part of their vagus nerve being removed from their body.

recently in my researching ive noticed some insight has been garnered from Atlas vertebra subluxation (misallignment) in how it relates to vagus nerve compression. Notice how many of the symptoms listed are similar to ones experienced POIS: http://atlassubluxation.wordpress.com/2011/06/30/symptoms-and-signs-of-atlas-subluxation/

I think when you look at the myriad symptoms, look for a single causality, the vagus nerve would certainly be at the top of that list.

Also an interesting read http://mindblog.dericbownds.net/2011/10/how-vagus-nerve-links-our-brains-to-our.html

[demografx]

Fascinating detective work and reporting, Defsync!

Thanks for the encouragement about vagus nerve implications.

[Nightingale]

Didn't realize you had these neck issues Defsync. I don't have something similar exactly, but I have had chronic soreness of the neck and lower back. At an early age, maybe 15,  my neck grew enormously as did my back. They became very muscular, and many people remark that I have the neck of an (American) football player. But it is tight very often (This was after I started having POIS, that was 12-13 years of age). I have to constantly be stretching my neck to make sure I dont pull it painfully. This is also the case with my hamstrings and calves, they are actually the most sore muscle groups after I wake up in the morning post ejaculation