Author Topic: Free Flow Discussion about POIS  (Read 577490 times)

demografx

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Re: This may seem like a familiar place.
« Reply #930 on: August 04, 2013, 02:12:48 AM »
Fire this doc!





"You say you have POIS? You know it's all in your head, right?...so I'm referring you to Dr Probeyourpsycheforever. Oh! And remind him that he owes me a POIS finder's fee!"
« Last Edit: August 04, 2013, 10:06:40 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #931 on: August 04, 2013, 08:33:02 PM »

10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #932 on: August 05, 2013, 03:52:36 PM »
In addition to serving our own informational interests, the resources listed at our Welcome Page
http://poiscenter.com/forums/index.php?topic=1.msg1#msg1
can be useful for you to show our credibility to the medical world - which often shows little understanding and is sometimes skeptical of our condition: POIS has scientific underpinnings and POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapeutic community. All of this information can greatly help you to fight the immediate reaction of some doctors: so just tell them, "IT'S NOT 'ALL IN YOUR HEAD'! "
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #933 on: August 09, 2013, 09:49:45 AM »
Daveman and I have been advised the following about our POIS grant.

The initial abstracts have been reviewed and scored by NORD's MAC.

There are some very strong finalists for the POIS grant. They will be submitting lengthy, in-depth proposals.

No news will be available until the final decision in late November/early December.
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #934 on: August 10, 2013, 12:17:30 PM »
Quote from: Daveman on August 04, 2013, 08:22:46 AM




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« Last Edit: August 11, 2013, 12:31:27 AM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #935 on: August 10, 2013, 03:22:03 PM »
Thanks, Prancer! :)
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Daveman

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Re: This may seem like a familiar place.
« Reply #936 on: August 18, 2013, 06:59:46 AM »
I wanted to ask Colm how his trials with niacin have gone?

Have you tried it again with the "adjusted approach"?

WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!

Colm

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Re: This may seem like a familiar place.
« Reply #937 on: August 18, 2013, 11:14:13 AM »
I wanted to ask Colm how his trials with niacin have gone?

Have you tried it again with the "adjusted approach"?


Daveman,

As work has been a priority recently, along with a few days family vacation,  I have just avoided all matters "O" related, as I can't take risk of the 3 day plus negative health impacts post Orgasm.

I will get around to trying this, in the smaller dosage and with the approach you shared, to avoid the scary physiological response I got first time I took too much Niacin flush.

Will report back when I have tried.

demografx

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Re: This may seem like a familiar place.
« Reply #938 on: August 18, 2013, 08:35:15 PM »
Seems like the only _consistent_  (works for almost everybody) POIS remedy reported since 2007 is...short-term celibacy.

I can't wait for NORD's selected researcher to get underway !!
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

LAPOISSE

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Re: This may seem like a familiar place.
« Reply #939 on: August 21, 2013, 04:00:33 AM »
You are all cured ...or maybe just all in vacation ?

Not a word in this forum for 3 days...

I've been in vacation for a week...worse vacation ever..POIS hit every single day...It's globally getting worse...No way to have relief after at least a week after O...and kinda constant POIS after....deseparating...

What about creating a section of succes story(with the rule of the 2 weeks...and even for people that have a permanent improvment of the global healh) in here...I have the feeling that when people get better, they just leave...

Daveman

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Re: This may seem like a familiar place.
« Reply #940 on: August 21, 2013, 08:06:31 AM »
You are all cured ...or maybe just all in vacation ?

Not a word in this forum for 3 days...

I've been in vacation for a week...worse vacation ever..POIS hit every single day...It's globally getting worse...No way to have relief after at least a week after O...and kinda constant POIS after....deseparating...

What about creating a section of succes story(with the rule of the 2 weeks...and even for people that have a permanent improvment of the global healh) in here...I have the feeling that when people get better, they just leave...

Yes, well,, summer is a pretty lazy time, and many have less symptoms as well in summer. I think it's as you say, the better people feel, the less they are involved.

Checking the numbers though (visits per day), we are close to normal, down in general during summer, maybe 20% but some days, even though there is no posting, people still come to have a look.

It's unfortunate that so many just watch, and don't share, but many are shy, and especially with POIS, motiviation is a problem.

But it is a very exciting time. We have some excellent options for research (I am told... don't have a clue who or what their approach is even, but I am told that we should ALL be pleased)

So hang in there!
WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!

demografx

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Re: This may seem like a familiar place.
« Reply #941 on: August 21, 2013, 03:19:33 PM »
Thousands of doctors practicing despite errors, misconduct:

http://m.usatoday.com/article/news/2655513

« Last Edit: August 21, 2013, 08:24:04 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Stef

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Re: This may seem like a familiar place.
« Reply #942 on: August 21, 2013, 06:37:27 PM »
Thousands of doctors practicing despite errors, misconduct:

http://m.usatoday.com/article/news/2655513



Thank you for posting this important message, demo.

I don't understand how any physician could prescribe Oxycontin (a slow-release 12-hour morphine compound) and oxycodone (Percocet) for someone with neck pain.  Someone with that type of severe pain belongs in the Emergency Department -- being evaluated while being medicated.  

What a tragic case (young mother, three children)!

I wonder if there are websites in Europe -- or in other countries overseas -- that divulge this type of information about physicians harming patients through medical malpractice -- repeatedly.  In Europe (and possibly other countries) one can't sue a physician for malpractice.  

Does anyone know if this type of reporting takes place in Europe or other countries outside the US?

We've all got to trust our gut feelings about physicians -- even if the physician has "great credentials."  If the treatment seems too good to be true -- leave! Your life and future health could be at stake.

(I've heard from many, many patients at NORD who were inappropriately treated by physicians who should never have been trying to treat them. We featured the story about one woman who survived only because she was lucky.)

Stef
« Last Edit: August 21, 2013, 08:24:35 PM by demografx »

demografx

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Re: This may seem like a familiar place.
« Reply #943 on: August 21, 2013, 09:45:48 PM »

We've all got to trust our gut feelings about physicians -- even if the physician has "great credentials."  If the treatment seems too good to be true -- *leave! Your life and future health could be at stake.

*emphasis mine - demo


A published comment from a reader of the USA Today article:
("Thousands of doctors practicing despite errors, misconduct"):
http://m.usatoday.com/article/news/2655513



"And if you see your doctor and he/she seems too busy to listen... *Run away."
*emphasis mine - demo









« Last Edit: August 22, 2013, 01:21:36 AM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Colm

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Re: This may seem like a familiar place.
« Reply #944 on: August 27, 2013, 05:55:22 AM »
I wanted to ask Colm how his trials with niacin have gone?

Have you tried it again with the "adjusted approach"?


An update on my live trial with Niacin, here goes.

I did approach this with positive hopes and am pretty sure I followed the approaches recommended.

As I had a serious flush on the previous occasion I tried Niacin three weeks back with 200MG initial dose of flush Niacin, I was being careful. (I didn't realise last time, it was a protection during Orgasm at that point), so this was a real trial.

On Sunday, I took about 100 Mg Niacin 3.5 hrs away from food. Had no flush after 30 mins, so gradually added smaller 50 Mg amounts over each next 15 mins and began to have a flush, light to medium flush, rather than full flush.

About 30-40 mins after flush, did the deed, and unfortunately, for the last two days, I have experienced my worst POIS in a long time.

No disrespect to anyone here, as I think it is great and encouraging to see that Niacin and other things are working for others as a shield.

I have been pretty shattered last couple of days, emotionally and physically (with symptoms as described in my signature).

I will start feeling a bit better from tomorrow, but have to carry on with life as normal, but could not work yesterday.

My thoughts at this point.
-----------------------------------
- Maybe I did something incorrect here with my Niacin dose. Maybe I needed more of a flush first?
- Maybe I need to go through a "pain barrier" with Niacin a few times to get the effect?
- Maybe my system will initially fight the effect, but then give in to it's positive impact?
- Should I persevere or try something else?

Another thought and please excuse the graphic details here...

I even started to think, as I was aware this was a trial, and as I am 54 yrs old, I did not have a full erection so therefore didn't ejaculate fully, so was thinking (at root of the problem) maybe remaining semen is poisonous to me in some way, and was wondering is this actually an allergy, an Auto-immune reaction, to my own semen, as some have spoken of.

Anyway, I am disappointed and a bit disillusioned at the moment, as this has been happening to me for so long.

Roll on some genuine research and clarity with NORD. Have been on the NSF recently and what they are discussing looks so complex, one could end up suffering from neurosis trying all that stuff, even though there is probably some value there, if I could make sense of it.

Appreciate any suggestions on the Niacin experiments. Thanks for the forum supports, as ever.