Author Topic: there is no pois in the world that's all mast cell activation syndrome  (Read 1246 times)

Reve

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doctor diagnosis MCAS for me i am suffer from bipolar2 ocd general anxiety disorder and iam die less than 2 years it's not fair im just 22 iam sure there is no god iam so sad

Journey

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  • INTP, 19 y.o. aware of POIS since 2019
Who said you are going to die in 2 years and why? How would MCAS create such a dim possibility?

What tests you had that confirmed that you have MCAS? And what have you tried if anything for MCAS/POIS and has that worked or not?

Reve

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Who said you are going to die in 2 years and why? How would MCAS create such a dim possibility?

What tests you had that confirmed that you have MCAS? And what have you tried if anything for MCAS/POIS and has that worked or not?
my doctor said
I've got a severe stroke like Seizure last night with some kind of red spots on my hands he took some blood sample from me in the hospital

Journey

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Re: there is no pois in the world that's all mast cell activation syndrome
« Reply #3 on: August 09, 2021, 11:07:22 AM »
Who said you are going to die in 2 years and why? How would MCAS create such a dim possibility?

What tests you had that confirmed that you have MCAS? And what have you tried if anything for MCAS/POIS and has that worked or not?
my doctor said
I've got a severe stroke like Seizure last night with some kind of red spots on my hands he took some blood sample from me in the hospital
Why does this mean you are going to die?

I have never had strong visually noticeable symptoms like those such as red spots etc. during POIS, most if not all of my symptoms are completely cognitive/neurological/energy levels and muscle and nerve related

Reve

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MCAS
« Reply #4 on: September 05, 2021, 02:23:06 PM »
I am taking 12mg ketotifen per day, 2 shot's of xolair per month and 3x550mg rifaximin for SIBO i will update this post soon as possible