Author Topic: Iwillbeatthis treatment and case diary  (Read 647 times)

Muon

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Re: Iwillbeatthis treatment and case diary
« Reply #15 on: March 17, 2021, 08:05:38 AM »
Kidney hypoperfusion? I had a flare of pain in the right-side kidney once for a few seconds, it was extremely painful. Ref

« Last Edit: March 17, 2021, 08:40:06 AM by Muon »

Iwillbeatthis

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Re: Iwillbeatthis treatment and case diary
« Reply #16 on: March 17, 2021, 08:28:59 AM »
Whatever is going wrong in the kidneys is causing me problems in my brain eg: find it hard to speak and function. When I was taking Sam e the kidney pain in the mornings was bad but got a bit better after I urinated.

I'm thinking to do a methylation panel test in the future.

Iwillbeatthis

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Re: Iwillbeatthis treatment and case diary
« Reply #17 on: March 17, 2021, 08:39:54 AM »
Epsom Salt (magnesium sulfate) baths are beneficial to me, I think because of the sulphites and not the magnesium.

I've found some brands don't have any effect: the ones that are food/ pharmaceutical grade have flakes rather than grains and look manufactured don't really have any effect on me.

The ones that look like grains of sand do give me benefits. I think the hotter the bath the more benefits you get from them but this is a problem for me as hotter baths give me issues.

I saw someone online saying the epsom salts for gardening are way stronger and give way stronger effects in the sense of wellbeing. I really want to try these but I'm not sure if they're safe lol, they are yellow in colour rather than white.

Iwillbeatthis

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Re: Iwillbeatthis treatment and case diary
« Reply #18 on: March 17, 2021, 01:42:16 PM »
I ordered some nicotinamide riboside today as I've heard good things about it, it's good for boosting NAD+. Hopefully the effects are a lot better than standard Nicotinamide.

You might as well try to block CD38 at the same time.

Good suggestion I bought some high quality matcha tea (like Gino said) today and now I feel this stuff really working.

Iwillbeatthis

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Re: Iwillbeatthis treatment and case diary
« Reply #19 on: March 20, 2021, 09:28:27 AM »
Currently using : Byron white A FNG formula for mold/candida - Byron white formulas have the strongest natural detox supplements for lyme, mould and other infections. Using charcoal as a binder for the toxins.

https://www.gordonmedical.com/byron-white-formulas-a-fng-and-chronic-fungal-infections/

https://forums.phoenixrising.me/threads/dr-neil-nathans-new-book-toxic-heal-your-body-from-mold-toxicity-lyme-disease-mcas-and.61303/#post-1007619 You can search byron white formulas on here they do help people with these chronic conditions

Now that I've upped the dose to four drops I am starting to see detox reactions , brain fog ,slight  nausea, diarrhoea, social anxiety.

I've tried oregano oil, liposomal glutathione, nystatin and benotnite + charcoal as binders but they weren't strong enough to have any permanent fix.
« Last Edit: March 20, 2021, 09:55:30 AM by Iwillbeatthis »

Iwillbeatthis

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Re: Iwillbeatthis treatment and case diary
« Reply #20 on: March 20, 2021, 09:46:00 AM »
The week before my POIS started I had a fever from going out and drinking too many nights in a row, The fever I did have bad back pain and leg pain and headache.

While I was recovering from the fever I had a fleshlight, the only problem was is the last time I had used it I forgot to wash it properly and went on holiday for a few weeks. When I opened it after a few weeks it stunk and there was yellow mould/fungus floating in the bottom, I was disgusted and washed it with hot water in the shower but I never used any disinfectant/alcohol like you're supposed to do, I didn't use soap either as apparently that damages it. I then stupidly used it after washing it (this was while I was nearly recovered from the fever) then 2 days later I had suddenly developed POIS.

The POIS symptoms the first few months were extremely severe: severe lower back/upper back pain, leg pain/leg weakness, headaches, sore throats, chest pain, low grade fever, abdominal pain, nerve pain, like my whole body was shutting down. I had nothing going on in my personal life which would have caused any of this, in fact it was a good time in my life when the POIS started

This got a a lot better after a few months but I was still left with brain symptoms, some back stiffness, bladder pain, some nerve pain in feet.

I told the Mast cell research Professor this story and he said it's definitely had something to do with my POIS starting, I told normal drs this embarrassing story and they had nothing to say and didn't think it was linked.

I did post about this ages ago but no one had anything to say, I haven't seen someone on here with such a clear possible cause as this and the timing of the event and POIS starting was too close for it not to be related.

Unfortunately for years I tried to tell mainstream drs to check for candida/mold or give me antifungals but they don't get taught about this topic in medical school and apparently there are no reliable tests for candida Muon said.


« Last Edit: March 20, 2021, 09:52:49 AM by Iwillbeatthis »

Iwillbeatthis

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Re: Iwillbeatthis treatment and case diary
« Reply #21 on: March 20, 2021, 10:08:42 AM »
One more thing happened one year before my POIS started: I took the drug ketamine at a rave, in the past I had tried it with no issues at all(maybe had taken around 7 times before). This time it caused some permanent damage to my bladder I found that ever since then I would get pain in the bladder region if I smoked weed or drank alcohol. Smoking weed would be worse and it caused bladder pain lower back pain and leg pain, it also would give me a cold (runny nose the next day) I would also find it hard to urinate if I smoked weed. One time I smoked weed and I could barely urinate for three days.

I guess there were probably some heavy metals/bad stuff in the ketamine which caused this damage as I got it from a unreliable source, or it may have just been too strong for me.

Cystoscopy showed nothing: but I do remember seeing a red inflamed patch on the camera screen which looked the same as IC ulcers. I now know that if it was a cystoscopy under general anesthesia then they would be able fill the bladder with liquid and check for hemorrhages, and also some doctors are taking biopsies of the bladder vessels to check for mast cells.

6 months after this ketamine thing happened I had normal vaginal penetrative  sex with a girl and after the sex I had diarrhea with lots of blood in my stools??!!

Iwillbeatthis

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Re: Iwillbeatthis treatment and case diary
« Reply #22 on: March 20, 2021, 10:24:38 AM »
One more thing my urine was also very cloudy when POIS started, in urine samples you could see tons of mucus. Testicles were also red and itchy.
Bacterial infection urine tests came back negative but they never checked for candida like I asked for.

Muon

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Re: Iwillbeatthis treatment and case diary
« Reply #23 on: March 20, 2021, 12:29:18 PM »
In addition to the symptoms i sometimes have what you call 'the chalky stuff' in my urine, but ive only been noticing that the last few years. Two years ago it was so bad that for months it was in every pee (i call it 'dust clouds') and had it tested by my doctor, but they said it wasnt anything to worry about (didnt tell me what it was).
Last year i had 2 UTI's for the first time in my life. Another possible POIS related thing is i've been having tremendous sharp pains in my prostate in the middle of the night, but only a couple of times a year. The pain lasts about half an hour, it started when i was about 30.  I have not experienced these pains for 2 years now however.

Today i read something interesting on the NSF:
"Sexual dysfunction: Postorgasmic illness syndrome, Suzanne J. Farley
Abstract: New evidence supports the hypothesis that postorgasmic illness syndrome (POIS) in men involves a hyper-reactive immune response of the mucosal epithelium that lines the urinary tract to seminal fluid."

In 2010 my feces was tested on several things among which beta-defensin 2.
- beta-defensin 2: 139,20 ++ (ref < 23, so 6 times the maximum value)
I understand that BD2 is an anti microbial peptide made in mucosal epithelium cells and a high level indicates a hyper-reactive IS (the IS part you are born with). I wonder though if BD2 from the mucosa near the urinary tract would show up in a fecal test.
Anyway, i wouldn't be surprised if the white stuff comes the reaction in this mucosa, but i don't believe it's semen.

berlin1984

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Re: Iwillbeatthis treatment and case diary
« Reply #24 on: March 20, 2021, 03:55:12 PM »
The week before my POIS started I had a fever from going out and drinking too many nights in a row, The fever I did have bad back pain and leg pain and headache.
...

Wow, interesting story. I hope you manage to treat this somehow even without doctors, just with supplements or non-prescription stuff for bladder issues (My go to is Angocin).

A diagnosis would still be good though, maybe you can pay privately for it somewhere.

I also took K a few times but that was already after POIS started I think...
I don't have your bladder related physical symptoms except itchy groin area..
« Last Edit: March 20, 2021, 04:03:59 PM by berlin1984 »
My Protocol with adaoptogens, neurotransmitter precursors, energy production supplements helps with 80% of the symptoms with intercourse, 50% with masturbation.

Hopeoneday

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Re: Iwillbeatthis treatment and case diary
« Reply #25 on: March 20, 2021, 04:31:04 PM »
Hi, Berlin, off topic - What job can a man with POIS and CFS do in Germany? From your point of view?
Do doctors in Germany accept the treatment of CFS syndrome
patients?
Dr-pois.

Hopeoneday

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Re: Iwillbeatthis treatment and case diary
« Reply #26 on: March 20, 2021, 04:39:43 PM »
https://poiscenter.com/forums/index.php?topic=915.msg8818#msg8818
White chalky urine...  some reported recovery after get rid of chalky staff
from body in urine...

White stuff https://poiscenter.com/forums/index.php?topic=108.0

https://poiscenter.com/forums/index.php?topic=104.msg800#msg800
Chalky sutff??? Is this related to calcium???


https://poiscenter.com/forums/index.php?topic=965.msg8767#msg8767
Intresting post from member -UnderstandingPois...
Chalky stuff, circulation etc

NSD chalky stuff out.
https://poiscenter.com/forums/index.php?topic=54.msg880#msg880
« Last Edit: March 20, 2021, 04:57:34 PM by Hopeoneday »
Dr-pois.

berlin1984

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Re: Iwillbeatthis treatment and case diary
« Reply #27 on: March 21, 2021, 02:14:01 PM »
Hi, Berlin, off topic - What job can a man with POIS and CFS do in Germany? From your point of view?
Do doctors in Germany accept the treatment of CFS syndrome
patients?

Thanks Hopeoneday, you finally nudged me into creating a thread about myself...
(Yes Muon you asked about this for everybody  ;D )

https://poiscenter.com/forums/index.php?topic=3760.0
My Protocol with adaoptogens, neurotransmitter precursors, energy production supplements helps with 80% of the symptoms with intercourse, 50% with masturbation.

Iwillbeatthis

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Re: Iwillbeatthis treatment and case diary
« Reply #28 on: March 22, 2021, 05:35:19 PM »
Had 2 Os yesterday and my symptoms today have been much better than they have been in the last two months.

Heres what I've been taking/doing nicotinamide riboside, matcha tea, nicotinamide extended release, NAC, epsom salt baths, byron white a fng, lymphatic drainage massage from groin lymph nodes (perrin technique), psilocybin micro dose, eating less/smaller meals, drinking alkaline water, epa oil, mediation with grounding pillow and band.

I've only been taking the nicotinamide riboside for a week but my skin looks so much better and younger on my face.

A month ago I had a really bad O where I didn't use porn so I had to use coconut oil to get hard and do it, well this resulted a really unsatisfactory O and it felt like my prostate didn't empty properly which then caused really bad POIS.

The Os I had yesterday were much stronger and satisfactory because I used porn and I think this also contributed a lot to having a better reaction. So porn is good for me lol....

Iwillbeatthis

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Re: Iwillbeatthis treatment and case diary
« Reply #29 on: March 22, 2021, 06:03:32 PM »

This made me remember my OAT test results that said I had  high 2-Hydroxyisovaleric acid which suggested mild maple syrup urine disease. This means you’re unable to break down branched chain amino acids.

Lol I looked at the sample report for the same OAT test and the sample also had  high 2-Hydroxyisovaleric acid, so I guess its bs and I don't have any mild MSUD.

Pretty sure it's Phenylalanine in meat causing me issues.