Author Topic: Laboratories, online pharmacies & parameter discussion  (Read 3078 times)

Muon

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Re: Laboratories, online pharmacies & parameter discussion
« Reply #30 on: December 04, 2020, 04:45:00 PM »
Do you have any parameters on your mind Iwillbeatthis?

Iwillbeatthis

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Re: Laboratories, online pharmacies & parameter discussion
« Reply #31 on: December 04, 2020, 04:51:36 PM »
Do you have any parameters on your mind Iwillbeatthis?

Not really, I'm not sure what to do atm as things have been better than usual.

I'm thinking to do some rounds of rifaximin to fix my remaining gut issues, I'm hoping the gastro I'm seeing will prescribe but it if not then I will order some from online.

Iwillbeatthis

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Re: Laboratories, online pharmacies & parameter discussion
« Reply #32 on: December 04, 2020, 04:52:47 PM »
Do you have any parameters on your mind Iwillbeatthis?

If I decide to go to berlin I will get all the tests that Dr suggested plus probably some extra ones

Muon

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Re: Laboratories, online pharmacies & parameter discussion
« Reply #33 on: January 01, 2021, 12:55:25 PM »
Celltrend offers a new test for autoantibodies involved in Small fiber neuropathy:

Small Fiber Neuropathy (SFN)
Small Fiber Neuropathy (SFN) is a subtype of neuropathy that is characterized by the selective involvement of non-myelinated or thinly-myelinated sensory fibers is marked. Its pathogenesis includes a wide range of immune-mediated, metabolic, toxic, hereditary and genetic disorders. SFN has been described in connection with Sjögren’s syndrome, celiac disease, systemic lupus erythematosus, rheumatoid arthritis, diabetes mellitus type 1, inflammatory bowel disease, sarcoidosis and paraneoplastic syndrome. Some data also suggest an association with Hashimoto’s thyroiditis. Clinical symptoms of SFN can manifest as isolated sensory disorders as well as isolated autonomic disorders.

Intravenous immunoglobulin therapy (IVIG) showed a significant effect in treating patients with autoimmune mediated SFN in two large retrospective studies with comparable response rates (77% and 83% of patients).

Autoantibodies against fibroblast growth factor receptor-3 (FGFR3-IgG) and tri-sulfate heparin di-saccharide (TSHDS-IgM) are elevated in SFN. A clinical study is currently evaluating the efficacy of IVIG administration in FGFR3-Ab and TSHDS-Ab positive patients.

FGFR3 auto-antibodies
TSHDS auto-antibodies

POISers should investigate their own individual immune/hormone profile in my opinion.

Muon

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Re: Laboratories, online pharmacies & parameter discussion
« Reply #34 on: January 13, 2021, 04:08:00 PM »
If anyone is interested in the antioxidant profile I took, here is a link to the test and also documentation:

https://biolab.co.uk/index.php/cmsid__biolab_test/Antioxidant_Profile
https://www.biolab.co.uk/docs/antoxpr.pdf

Iwillbeatthis

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Re: Laboratories, online pharmacies & parameter discussion
« Reply #35 on: January 13, 2021, 05:41:29 PM »
I'm homozygous for the sod2 rs4880 gene, (super oxide).

When I had this chronic infection from 2018-2019, I would wake up feeling like death in the mornings, the worst brain fog, autistic symptoms, feeling brain dead and l arginine cleared it so that indicates it was some type of nitric oxide/oxidative stress disorder. I still have this going on sometimes outside of POIS but much less severe.

I've tried lots of things to combat oxidative stress: NAC, liposomal glutathione, exercise, agmatine sulfate, l arginine and in the end most weren't very helpful.

However Sulforaphane doesn't compare to any of these things above and it is a game changer for me so far.

Muon

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Re: Laboratories, online pharmacies & parameter discussion
« Reply #36 on: February 04, 2021, 10:02:45 AM »
A new lab has been added for the USA; DirectLabs. Thanks to the folks of the phoenix rising forum.

Redlabs got new parameters like IL-33:
USA: https://drive.google.com/file/d/16rFnpPwKLiiXufaTeZkh2vN62SoOCOnh/view
Belgium: https://drive.google.com/file/d/1YBnZhO7yWYWHf17H23SimWHUOTzD_DA-/view

Edit: Added a hyperlink to the lab list from phoenix rising to the top of the thread on page 1:
https://mecfsroadmap.altervista.org/#testing-laboratories
« Last Edit: February 04, 2021, 11:55:01 AM by Muon »


Muon

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Re: Laboratories, online pharmacies & parameter discussion
« Reply #38 on: February 10, 2021, 02:04:59 PM »
Dr Theoharides suggested checking folate auto antibodies for me considering I react to all forms of folate and have a folate deficiency
What lab provides this test?
http://iliadneuro.com/ he said it was the only lab in the world that does this test.

Paywall...
Chapter 184 - Vitamin-responsive disorders: cobalamin, folate, biotin, vitamins B1 and E

Folate binding protein?
Studies of the role of a particulate folate-binding protein in the uptake of 5-methyltetrahydrofolate by cultured human KB cells

Are The Levels Of Antibodies Stable Over Time?:
"Antibodies tend to fluctuate over time. The causes are not always known. In some cases the increased intake of cow's milk elevates the levels of the antibodies and removal of milk from diet tends to lower the levels in some children."
« Last Edit: February 10, 2021, 02:13:52 PM by Muon »