Author Topic: POIS Paper Archive - a list of scientific articles about POIS  (Read 24699 times)

Muon

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Re: POIS Paper Archive
« Reply #80 on: February 27, 2020, 07:19:19 AM »
That is media coverage based on paper #26. I can create a new header with media articles on page 1 and put it there. You have posted media articles througout the years on this forum. If you can find more of them I will copy paste them to the front page. Just place them in this comment section.

demografx

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Re: POIS Paper Archive
« Reply #81 on: February 27, 2020, 07:38:43 AM »
Thank you, Muon!
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Quantum

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Re: POIS Paper Archive
« Reply #82 on: February 27, 2020, 07:28:34 PM »
A short case-report, not sure we have it yet in the archive:

https://sci-hub.se/10.1016/j.jsxm.2019.11.089
You are 100% responsible for what you do with anything I post on this forum and of any consequence it could have for you.  Forum rule: ""Do not use POISCenter as a substitute for, or to give, medical advice" Read the remaining part at http://poiscenter.com/forums/index.php?topic=1.msg10259#msg10259

Quantum

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Re: POIS Paper Archive
« Reply #83 on: February 27, 2020, 07:40:51 PM »
And Here is the first results I see from the Tulane Survey that had been advertize on our home page for many months last year:

https://sci-hub.se/10.1016/j.jsxm.2019.11.085


This is the abstract of a conference ( 2019-11) by the Tulane team at an Urology congress.
You are 100% responsible for what you do with anything I post on this forum and of any consequence it could have for you.  Forum rule: ""Do not use POISCenter as a substitute for, or to give, medical advice" Read the remaining part at http://poiscenter.com/forums/index.php?topic=1.msg10259#msg10259

demografx

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Re: POIS Paper Archive
« Reply #84 on: February 27, 2020, 09:15:58 PM »
Quantum, Great Work you did with Tulane!
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Muon

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Re: POIS Paper Archive
« Reply #85 on: February 28, 2020, 11:05:13 AM »
A short case-report, not sure we have it yet in the archive:

https://sci-hub.se/10.1016/j.jsxm.2019.11.089

I think this one is the shorter version of #25. I will replace the hyperlinks by sci-hub links for convenience.

Mushnikk

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Re: POIS Paper Archive
« Reply #86 on: February 28, 2020, 11:09:37 AM »
A short case-report, not sure we have it yet in the archive:

https://sci-hub.se/10.1016/j.jsxm.2019.11.089

I think this one is the shorter version of #25. I will replace the hyperlinks by sci-hub links for convenience.

Interestingly the short summary mentions a complete remission following probiotic treatment, whereas the actual paper is less specific: "The patient subsequently self-started a probiotic containing Bacillus coagulans and fructooligosaccharide, which he reported improved his symptoms further." Perhaps the later published short summary includes a follow-up check with the patient underscoring the effectiveness of the probiotic.
« Last Edit: February 28, 2020, 11:24:26 AM by Mushnikk »

Muon

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Re: POIS Paper Archive
« Reply #87 on: February 28, 2020, 11:14:56 AM »
They should do a lactulose (not to be confused with lactose) hydrogen+methane breath test in these patients.

Small Intestinal Bacterial Overgrowth Is Common in Mast Cell Activation Syndrome
« Last Edit: February 28, 2020, 11:17:29 AM by Muon »

Muon

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Re: POIS Paper Archive
« Reply #88 on: March 30, 2020, 10:26:51 AM »
Sci-hub.se appears to be down. Anyone else got this problem or is it me?

Mushnikk

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Re: POIS Paper Archive
« Reply #89 on: March 30, 2020, 10:34:46 AM »
Sci-hub.se appears to be down. Anyone else got this problem or is it me?

Up and working for me, they often change their domain though.

Journey

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Re: POIS Paper Archive
« Reply #90 on: March 30, 2020, 02:25:27 PM »
Sci-hub.se appears to be down. Anyone else got this problem or is it me?

Error 504 for me

Muon

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Re: POIS Paper Archive
« Reply #91 on: March 30, 2020, 03:11:35 PM »
Sci-hub.se appears to be down. Anyone else got this problem or is it me?

Error 504 for me

Error 502 for me. That means many articles posted on this forum are inaccessible. Replace .se by .tw in the URL and it will work again. I have changed the hyperlinks on page 1.
« Last Edit: March 30, 2020, 03:21:05 PM by Muon »

Muon

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Re: POIS Paper Archive
« Reply #92 on: April 11, 2020, 04:33:45 PM »
Almost 30 POIS papers exist at this point and not a single one discusses mast cell activation disease theory...mind blowing!

demografx

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Re: POIS Paper Archive
« Reply #93 on: April 12, 2020, 02:43:07 AM »

Almost 30 POIS papers exist at this point and not a single one discusses mast cell activation disease theory...mind blowing!

It’s just your own personal, unproven theory. Why should they study it?

But don’t get me wrong. I admire your exhaustive investigation.

10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: POIS Paper Archive
« Reply #94 on: April 12, 2020, 11:25:13 AM »

Almost 30 POIS papers exist at this point and not a single one discusses mast cell activation disease theory...mind blowing!

Why should they study it?

Because it is capable of generating the same type of symptoms seen in POIS patients. Why would they study allergic activation of the mast cell but don't even mention antibody indepedent activation of the mast cell aside from mastocytosis? They ignore it or they lack knowledge. I think it's the latter.


Then go convince someone to study it!! Thats where I put my energy these last 13 years. Writing only  to forum members - - as much as I love them - - got us nowhere.

« Last Edit: April 12, 2020, 01:53:24 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Muon

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Re: POIS Paper Archive
« Reply #95 on: April 12, 2020, 11:56:21 AM »
Hmm you are right this quite pointless. I have spoken to a dozen of researchers and specialists behind the scenes but to no avail. Time to hang up the gloves.

demografx

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Re: POIS Paper Archive
« Reply #96 on: April 12, 2020, 12:00:27 PM »

Time to hang up the gloves.


I hope not.

Over my last 13 years,  I wanted to quit - - a million times - - just to get POIS on a tiny medical map. But I persevered and we now have a shot at it!

Rare disorder medical research is not for the faint hearted!
« Last Edit: April 12, 2020, 01:24:21 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Nas

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Re: POIS Paper Archive
« Reply #97 on: April 12, 2020, 02:42:09 PM »
Almost 30 POIS papers exist at this point and not a single one discusses mast cell activation disease theory...mind blowing!
It's just the reality of the situation; research is painstakingly slow, and for such a rare disease? You're lucky we even have 30 papers. Expect perhaps 15 more years of stumbling in the dark until we can have a better understanding of what POIS is.
Speaking of your theory though, have you tried Chormolyn Sodium yet? I heard it's pretty cheap in Germany.

demografx

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Re: POIS Paper Archive
« Reply #98 on: April 12, 2020, 05:22:57 PM »

Expect perhaps 15 more years of stumbling in the dark until we can have a better understanding of what POIS is.


I totally reject this incredibly pessimistic notion.
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Limejuice

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Re: POIS Paper Archive
« Reply #99 on: April 12, 2020, 09:00:38 PM »
I agree that research on some diseases has appeared slow, like cancer, which is an extremely complex disease. But that's one end of the spectrum that not many diseases fall into. The other end are new diseases that haven't been researched properly, which root causes could be quickly determined by professionals. And even more exciting is the potential for existing therapies/drugs not originally designed for the new disease, to actually treat it! For example, think about the possible drugs available to treat the NEW corona virus.

The special sauce in speeding up the operation is having professionals work on it. It's so much slower (10x slower) having us generate theories without proper testing, etc.
« Last Edit: April 12, 2020, 10:21:35 PM by Limejuice »