Author Topic: Immunophenotypical Characterization of a Brazilian POIS Patient (15 oct 2019)  (Read 2367 times)

fidalgo

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The reported failure of psychological test is positive too, in a sense.  This is a way to say that there is, really, a biological, neurological, hormonal or immune cause, and it has to be found.    It is not "all in our head" ( even if it can be to some extent, and more in some cases than others), and if we find the physical/physiological aspects of the illness, we will ba able to get some relief for POIS sufferers.



The problem I have with this, is clumsiness. I think most of us have a bad experience with psychologists since they always write us off as not ill, or it's "all in your head".
A good psychological assessment should compare psychological/neurological symptoms with potential neurological factors.
For example when you have depression a psychiatrist would prescribe you an SSRI; assuming that you have low serotonin.
If you have ADHD he will prescribe you a DRI or a NRI. Assuming that these are also low.
In fact psychologists sometimes take genetic and serum tests to treat rare cases of treatment resisting depression.
In short a psychiatrist is not a therapist. He should always have a more accurate etiological assessment that should definitely give a better insight of the situation.
That's why I have a hard time believing he was assessed by the psychiatrist properly.

I am not sure, Nas, that the patient was evaluated by a psychiatrist.  The abstract talks about a psychologist  ( so not a MD that has specialized in psychiatry, but a psychotherapist.)

My guess is that they have tried a short term, behavioral therapy, with 10 to 20 sessions, probably one to two session a week for a few months.   It is not possible that the patient went through a 3 to 5 years analytic therapy, considering the scope of the article.


In fact, my therapy was a few months, I think six, one day per week. It was a gerat therapy, with a psychoanalytic aproach. I like it a lot and I think the therapy helps me to accept POIS like it is; we don't have a choice, so we have to live with it.... But the therapy is not a Pois treatment, only a help...

demografx

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Hi, fidalgo :)
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Quantum

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The reported failure of psychological test is positive too, in a sense.  This is a way to say that there is, really, a biological, neurological, hormonal or immune cause, and it has to be found.    It is not "all in our head" ( even if it can be to some extent, and more in some cases than others), and if we find the physical/physiological aspects of the illness, we will ba able to get some relief for POIS sufferers.



The problem I have with this, is clumsiness. I think most of us have a bad experience with psychologists since they always write us off as not ill, or it's "all in your head".
A good psychological assessment should compare psychological/neurological symptoms with potential neurological factors.
For example when you have depression a psychiatrist would prescribe you an SSRI; assuming that you have low serotonin.
If you have ADHD he will prescribe you a DRI or a NRI. Assuming that these are also low.
In fact psychologists sometimes take genetic and serum tests to treat rare cases of treatment resisting depression.
In short a psychiatrist is not a therapist. He should always have a more accurate etiological assessment that should definitely give a better insight of the situation.
That's why I have a hard time believing he was assessed by the psychiatrist properly.

I am not sure, Nas, that the patient was evaluated by a psychiatrist.  The abstract talks about a psychologist  ( so not a MD that has specialized in psychiatry, but a psychotherapist.)

My guess is that they have tried a short term, behavioral therapy, with 10 to 20 sessions, probably one to two session a week for a few months.   It is not possible that the patient went through a 3 to 5 years analytic therapy, considering the scope of the article.


In fact, my therapy was a few months, I think six, one day per week. It was a gerat therapy, with a psychoanalytic aproach. I like it a lot and I think the therapy helps me to accept POIS like it is; we don't have a choice, so we have to live with it.... But the therapy is not a Pois treatment, only a help...


Thanks for the information, Fidalgo !
You are 100% responsible for what you do with anything I post on this forum and of any consequence it could have for you.  Forum rule: ""Do not use POISCenter as a substitute for, or to give, medical advice" Read the remaining part at http://poiscenter.com/forums/index.php?topic=1.msg10259#msg10259

Nas

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Thanks for the insight Fidalgo.
Can you update us on your condition? Are you POIS free at the moment? What regiment are you still taking to alleviate POIS? 

demografx

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fidalgo: he is a Great example of our *early*
homegrown POIS Research donor/contributors!

Hi, fidalgo :)


I just gave $100.00 for the POIS fund and I will still be donating this amount for each of the next 12 months. I expect that I could give more in the next months, but this amount I guarantee.

I´m giving for POIS because this disease screw up my life and I know that, even that we have chance to descover a cure for our own, our chances will be a lot more with especialist researchs and methods.

I know that a lot of people here don´t have a lot of money but the situation isn't easy for no one. For me, in particular, is more expensive because brasilian coin has a half the value of dolar. Let´s go people, let´s donate.






THANK YOU, FIDALGO!!

fidalgo, your generosity is sloooooooooowly paying off!!
:) :)

NIH is spending $41.46 billion in 2020 on medical research. And once we’ve published the current POIS study, our hope is to get funded by NIH!

And our current POIS scientific researchers are totally committed to help us get as far along as possible on this path TO A CURE.

Many thanks again!!
Demo
« Last Edit: May 15, 2020, 01:19:41 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

fidalgo

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Thanks for the insight Fidalgo.
Can you update us on your condition? Are you POIS free at the moment? What regiment are you still taking to alleviate POIS?

No, I'm not POIS free.  I had a great improve in my symptons in the first year of the threatment but,  I dont know why,  the symptons come back.
The imunothetapy is the best improve I ever had with Pois,  but was temporary. I think there is something in imunotherapy related with POIS and must be studied.

For aleviate my POIS I use Nasonex and I make gargle with Water and Salt. I only have cold showers,  dont drink coffee,  and I avoid things that makes my POIS worst.

One thing that is not writen in that study is that my imunotherapy was made years ago. I dont remind the exact year, but, in the study say that was 25, and Iam now with 33, s? it must be 8 years...

So,  I dont indicate for anybody,  but,  what I've done in this years was imunotherapy by my self. I have the same results of the research: it works for some time, and then the symptons come back.... what I do is immunotheapy for an year, more and less,  when symptons turn back I stop the threatment. When the symptons turn back equal in the beginning of the threatment,  in 2 years, more less, I start the imunotherapy again...

This, what I do, it's too risky and I dont indicate for anybody. I only do it because I already know how my body answer the first threatment and,  even so, is risky.

berlin1984

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No, I'm not POIS free.  I had a great improve in my symptons in the first year of the threatment but,  I dont know why,  the symptons come back.
The imunothetapy is the best improve I ever had with Pois,  but was temporary. I think there is something in imunotherapy related with POIS and must be studied.

So it is you who is mentioned in this thread here?

If yes maybe you could read that thread and give your input there :-)
Please vote on: https://poiscenter.com/forums/index.php?topic=3386.0
(There's real science behind it, not Astrology..)

My Protocol

Muon

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No, I'm not POIS free.  I had a great improve in my symptons in the first year of the threatment but,  I dont know why,  the symptons come back.

Reminds me of MCAD patients who lose their response to their previous successful therapy.

I think there is something in imunotherapy related with POIS and must be studied.

I agree. Very difficult to find out, there are tons of immunomodulators in seminal fluid.

For aleviate my POIS I use Nasonex and I make gargle with Water and Salt. I only have cold showers,  dont drink coffee,  and I avoid things that makes my POIS worst.

It contains mometasone https://en.m.wikipedia.org/wiki/Mometasone

Fidalgo, did you ever had moments where you felt great shortly after a subcutaneous injection for a short time window but the effect didn't persist?
« Last Edit: May 16, 2020, 07:53:36 AM by Muon »

fidalgo

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fidalgo: he is a Great example of our *early*
homegrown POIS Research donor/contributors!

Hi, fidalgo :)


I just gave $100.00 for the POIS fund and I will still be donating this amount for each of the next 12 months. I expect that I could give more in the next months, but this amount I guarantee.

I´m giving for POIS because this disease screw up my life and I know that, even that we have chance to descover a cure for our own, our chances will be a lot more with especialist researchs and methods.

I know that a lot of people here don´t have a lot of money but the situation isn't easy for no one. For me, in particular, is more expensive because brasilian coin has a half the value of dolar. Let´s go people, let´s donate.






THANK YOU, FIDALGO!!

fidalgo, your generosity is sloooooooooowly paying off!!
:) :)

NIH is spending $41.46 billion in 2020 on medical research. And once we’ve published the current POIS study, our hope is to get funded by NIH!

And our current POIS scientific researchers are totally committed to help us get as far along as possible on this path TO A CURE.

Many thanks again!!
Demo

8 years ago... A lot of time!!!
Yes, it's very good t? have more researchs t? find a cure. It's very unlikely that we find a cure by ourselves. We need more POIS researchs...

fidalgo

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No, I'm not POIS free.  I had a great improve in my symptons in the first year of the threatment but,  I dont know why,  the symptons come back.
The imunothetapy is the best improve I ever had with Pois,  but was temporary. I think there is something in imunotherapy related with POIS and must be studied.

So it is you who is mentioned in this thread here?

If yes maybe you could read that thread and give your input there :-)

I going to read, but I don't think I can give inputs about... I don't have knowleage about the subjetct... And, in fact, ether the professor who made the research with me have clues about that exams... We need t? know if all Pois patients have the same distortion i have...

fidalgo

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No, I'm not POIS free.  I had a great improve in my symptons in the first year of the threatment but,  I dont know why,  the symptons come back.

Reminds me of MCAD patients who lose their response to their previous successful therapy.

I think there is something in imunotherapy related with POIS and must be studied.

I agree. Very difficult to find out, there are tons of immunomodulators in seminal fluid.

For aleviate my POIS I use Nasonex and I make gargle with Water and Salt. I only have cold showers,  dont drink coffee,  and I avoid things that makes my POIS worst.

It contains mometasone https://en.m.wikipedia.org/wiki/Mometasone

Fidalgo, did you ever had moments where you felt great shortly after a subcutaneous injection for a short time window but the effect didn't persist?

"Fidalgo, did you ever had moments where you felt great shortly after a subcutaneous injection for a short time window but the effect didn't persist?"

I don't understand your question. I have a progressive improvement in my symptons until one year of the threatment. After that, my symptons start a progressively come back. Bu the subcutaneous injections of diluted semen never make me felt great,,, In reality, after the injections I have POIS symptoms an get tired for about five days, The improvement are progressively, not imediataly after the injections.... Is this answer your question?

Muon

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Yes this does answer my question.

demografx

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8 years ago... A lot of time!!!
Yes, it's very good t? have more researchs t? find a cure. It's very unlikely that we find a cure by ourselves. We need more POIS researchs...


fidalgo, we are waiting for the coronavirus restrictions to lift, then we will commence with our first major POIS scientific research study! In Los Angeles. Soon! One that you, fidalgo, helped to fund!




Please visit & explore!
https://tinyurl.com/ttffxz4


Also an article about the 2020 study and
who are the primary POIS researchers:
https://tinyurl.com/yb4dmjxr
« Last Edit: May 16, 2020, 11:10:49 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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  • All of us working together to defeat POIS!
8 years ago... A lot of time!!!
Yes, it's very good t? have more researchs t? find a cure. It's very unlikely that we find a cure by ourselves. We need more POIS researchs...


fidalgo, now you can add our new MAJOR contributor (link below) to our scientific POIS research efforts.

See, fidalgo? 8 years ago, you started a “snowball” effect! :) :)
https://tinyurl.com/y85suu2p
« Last Edit: May 17, 2020, 11:05:50 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Spartak

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No, I'm not POIS free.  I had a great improve in my symptons in the first year of the threatment but,  I dont know why,  the symptons come back.

Reminds me of MCAD patients who lose their response to their previous successful therapy.

I think there is something in imunotherapy related with POIS and must be studied.

I agree. Very difficult to find out, there are tons of immunomodulators in seminal fluid.

For aleviate my POIS I use Nasonex and I make gargle with Water and Salt. I only have cold showers,  dont drink coffee,  and I avoid things that makes my POIS worst.

It contains mometasone https://en.m.wikipedia.org/wiki/Mometasone

Fidalgo, did you ever had moments where you felt great shortly after a subcutaneous injection for a short time window but the effect didn't persist?

"Fidalgo, did you ever had moments where you felt great shortly after a subcutaneous injection for a short time window but the effect didn't persist?"

I don't understand your question. I have a progressive improvement in my symptons until one year of the threatment. After that, my symptons start a progressively come back. Bu the subcutaneous injections of diluted semen never make me felt great,,, In reality, after the injections I have POIS symptoms an get tired for about five days, The improvement are progressively, not imediataly after the injections.... Is this answer your question?
For general POIS understanding, I think that this is an important fact that in your case injections of diluted semen in the blood caused you symptoms.
no sugar diet helps me a tiny bit, also makes my mind much calmer in general. Sugar is definitely something my body does not handle well. Also I noticed that other inflammations like a hangover are better since I quit sugar. I avoid sweet fruits as well.