Author Topic: NORD (National Organization for Rare Disorders) News  (Read 17615 times)

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #100 on: February 28, 2022, 01:20:51 PM »




https://tinyurl.com/39ajwu9u


(NORD - National Organization for Rare Disorders) is the supervising organization for our 2022 POIS Research Study, funded by us at POISCenter:
https://poiscenter.com/forums/index.php?topic=3006.0
« Last Edit: February 28, 2022, 01:29:01 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #101 on: March 01, 2022, 05:48:17 PM »





March 2022
NORD eNews:

https://tinyurl.com/mr3mcs99

(NORD - National Organization for Rare Disorders) is the supervising organization for our 2022 POIS Research Study, funded by us here at POISCenter:
https://poiscenter.com/forums/index.php?topic=3006.0
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #102 on: March 04, 2022, 03:36:08 PM »
Light Up For Rare Disorders Like POIS

Advocates from across the country pledged and successfully illuminated landmarks and buildings in Rare Disease Day colors as part of NORD's #LightUpforRare initiative.





From:

Thank You For Making Rare Disease Day 2022 A Success!
https://tinyurl.com/37d8x7er



(NORD - National Organization for Rare Disorders) is the supervising organization for our 2022 POIS Research Study, funded by us here at POISCenter:
https://poiscenter.com/forums/index.php?topic=3006.0
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #103 on: April 27, 2022, 11:08:06 AM »







Walk in Our Shoes: The Experience of Rare Disease Patients

Date: Tomorrow,
April 28, 2022


Time: 2:00-3:00pm ET

https://tinyurl.com/a3ak9js8


(NORD - National Organization for Rare Disorders) is the supervising organization for our 2022 POIS Research Study, funded by us here at POISCenter:
https://poiscenter.com/forums/index.php?topic=3006.0 )
« Last Edit: April 27, 2022, 11:11:01 AM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #104 on: June 01, 2022, 06:27:29 PM »




June 2022
NORD eNews:

https://tinyurl.com/2d5657w4



(NORD - National Organization for Rare Disorders) is the supervising organization for our
======================================================
2022 POIS Research Study!
======================================================
funded by all of us here at POISCenter:
https://poiscenter.com/forums/index.php?topic=3006.0
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

  • Administrator
  • Hero Member
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  • Posts: 5916
  • All of us working together to defeat POIS!
Re: NORD (National Organization for Rare Disorders) News
« Reply #105 on: June 09, 2022, 05:44:41 PM »
NORD Celebrates Two Wins for Rare Disease Advocacy
https://tinyurl.com/npfxvacm


(NORD - National Organization for Rare Disorders) is the supervising organization for our 2022 POIS Research Study, funded by us here at POISCenter:
https://poiscenter.com/forums/index.php?topic=3006.0

« Last Edit: June 09, 2022, 05:54:32 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business