Author Topic: NORD (National Organization for Rare Disorders) News  (Read 12715 times)

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #80 on: February 27, 2021, 05:36:36 PM »



Getting Involved With Rare Disease Day
February 28  Is Easy

https://tinyurl.com/y3ctvpu2


     Days              Hours              Minutes      Seconds




(NORD - National Organization for Rare Disorders) is the supervising organization for our 2021 POIS Research Study, funded by all of us here at POISCenter:
https://tinyurl.com/ybph4fh7 )

10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #81 on: March 01, 2021, 04:34:01 PM »


March 2021 NORD news:

https://nationalorganizationforraredisorders.cmail20.com/t/ViewEmail/j/603D60E0ED1CA5992540EF23F30FEDED/1A0C0FBB09C36DC0405DC10595964AA8



(NORD - National Organization for Rare Disorders) is the supervising organization for our 2021 POIS Research Study, funded by us at POISCenter:
https://tinyurl.com/ybph4fh7 )

10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #82 on: March 04, 2021, 04:40:31 PM »
Report Finds Treatments for Rare Diseases Account for Only 11% of US Drug Spending
https://tinyurl.com/4hn6wt9e
« Last Edit: March 05, 2021, 12:18:41 AM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #83 on: March 18, 2021, 03:59:38 PM »


https://tinyurl.com/3bnfm4fe


(NORD - National Organization for Rare Disorders) is the supervising organization for our 2021 POIS Research Study, funded by us at POISCenter:
https://tinyurl.com/ybph4fh7 )
« Last Edit: March 18, 2021, 06:37:34 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #84 on: April 09, 2021, 06:02:01 PM »


April 2021 NORD news:

https://tinyurl.com/5f3ysvfe

(NORD - National Organization for Rare Disorders) is the supervising organization for our 2021-2022 POIS Research Study, funded by us at POISCenter:
https://tinyurl.com/ybph4fh7 )
« Last Edit: April 10, 2021, 01:39:39 AM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #85 on: May 03, 2021, 04:14:32 PM »


May 2021 NORD news:

https://tinyurl.com/4puxz4cm

(NORD - National Organization for Rare Disorders) is the supervising organization for our 2021-2022 POIS Research Study, funded by us at POISCenter:
https://tinyurl.com/ybph4fh7 )
« Last Edit: May 03, 2021, 04:16:50 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #86 on: May 25, 2021, 10:47:44 AM »
Oral Health and Rare Disorders - Webinar
Date:
May 26, 2021
Time:
2:00 - 3:00pm ET


https://tinyurl.com/vzj2ev95

(NORD - National Organization for Rare Disorders) is the supervising organization for our 2021-2022 POIS Research Study, funded by us at POISCenter:
https://tinyurl.com/ybph4fh7 )
« Last Edit: May 25, 2021, 02:23:11 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #87 on: June 01, 2021, 10:16:21 AM »





FDA and CDC Leaders Discuss:
COVID-19 Pandemic, Vaccines, and Special Considerations for the
Rare Disease Community

Date: June 16, 2021
Time: 2:00 - 3:00pm ET
https://tinyurl.com/4kcvk8y4

(NORD - National Organization for Rare Disorders) is the supervising organization for our 2021-2022 POIS Research Study, funded by us here at POISCenter:
https://tinyurl.com/ybph4fh7 )
« Last Edit: June 01, 2021, 12:25:44 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #88 on: June 01, 2021, 02:10:30 PM »


June 2021 NORD news:

https://tinyurl.com/2wb6wxne

(NORD - National Organization for Rare Disorders) is the supervising organization for our 2021-2022 POIS Research Study, funded by us at POISCenter:
https://tinyurl.com/ybph4fh7 )


« Last Edit: June 01, 2021, 02:15:04 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #89 on: July 01, 2021, 02:30:04 PM »



May 2021 NORD news:

https://tinyurl.com/4puxz4cm

(NORD - National Organization for Rare Disorders) is the supervising organization for our 2021-2022 POIS Research Study, funded by us at POISCenter:
https://tinyurl.com/y98c2tja
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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  • Posts: 5621
  • All of us working together to defeat POIS!
Re: NORD (National Organization for Rare Disorders) News
« Reply #90 on: July 01, 2021, 02:40:36 PM »


July 2021 NORD news:

https://tinyurl.com/y98c2tja

(NORD - National Organization for Rare Disorders) is the supervising organization for our 2021-2022 POIS Research Study, funded by us at POISCenter:
https://poiscenter.com/forums/index.php?topic=3006.0
« Last Edit: July 01, 2021, 05:01:52 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #91 on: July 27, 2021, 09:44:13 AM »
NORD
RARECARE
QUARTERLY




https://nationalorganizationforraredisorders.cmail20.com/t/ViewEmail/j/40F95F2D86F2DF882540EF23F30FEDED/0FFCC37254CD13884415EB25BE999822


(NORD - National Organization for Rare Disorders) is the supervising organization for our 2021-2022 POIS Research Study, funded by us at POISCenter:
https://poiscenter.com/forums/index.php?topic=3006.0
« Last Edit: July 27, 2021, 09:46:18 AM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #92 on: August 02, 2021, 04:34:36 PM »


August 2021 NORD News:

https://tinyurl.com/y97h9szw

(NORD - National Organization for Rare Disorders) is the supervising organization for our 2021-2022 POIS Research Study, funded by us at POISCenter:
https://poiscenter.com/forums/index.php?topic=3006.0
« Last Edit: August 02, 2021, 06:54:38 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #93 on: August 19, 2021, 12:15:35 PM »



Breakthrough Summit 2021: The Most Important Rare Disease Conference of the Year

https://tinyurl.com/7f95wu8v













(NORD - National Organization for Rare Disorders) is the supervising organization for our 2021-2022 POIS Research Study, funded by us here at POISCenter:
https://tinyurl.com/ybph4fh7 )
« Last Edit: August 22, 2021, 06:56:22 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #94 on: September 01, 2021, 06:29:11 PM »



September 2021 NORD News:

https://tinyurl.com/46fnf9c5

(NORD - National Organization for Rare Disorders) is the supervising organization for our 2021-2022 POIS Research Study, funded by us at POISCenter:
https://poiscenter.com/forums/index.php?topic=3006.0

10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business