General Category > POIS Research

NORD (National Organization for Rare Disorders) News

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Here is the July NORD News:

Includes the announcement of NORD’s POIS Research Study Grant! Crowdfunded by the Great Forum Members of ! ( )

***NORD is the organization that manages our current (2019-2020) POIS Research - - via a Grant totally funded by us at***

Complete July News:


How can you be a better advocate for yourself in a healthcare setting? Are you curious about how care coordination fits into a successful treatment plan?
We will cover these topics and more in tomorrow's free webinar. Join us as our speakers explain self-advocacy and how you can develop skills to become a more effective self-advocate.We will also discuss using advocacy skills to coordinate care and how care coordination can influence outcomes for patients.
This webinar is perfect for patients, caregivers and advocates.
Register for the FREE Webinar
Tomorrow, Wednesday, July 24
2:00p.m. - 3:00p.m. EDT


Here is the August NORD News:

Complete August News:

Let's make sure we recruit as many as possible, making this the most relevant research on POIS to date.

Nas, thanks for your enthusiasm for the upcoming POIS  Research.


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