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NORD (National Organization for Rare Disorders) News

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demografx:
Here is the July NORD News:

Includes the announcement of NORD’s POIS Research Study Grant! Crowdfunded by the Great Forum Members of POISCenter.com ! (https://tinyurl.com/yxswgv86 )

***NORD is the organization that manages our current (2019-2020) POIS Research - - via a Grant totally funded by us at POISCenter.com***

Complete July News:
http://createsend.com/t/j-2C9ACC0400AC64FD2540EF23F30FEDED

demografx:





How can you be a better advocate for yourself in a healthcare setting? Are you curious about how care coordination fits into a successful treatment plan?
 
We will cover these topics and more in tomorrow's free webinar. Join us as our speakers explain self-advocacy and how you can develop skills to become a more effective self-advocate.We will also discuss using advocacy skills to coordinate care and how care coordination can influence outcomes for patients.
 
This webinar is perfect for patients, caregivers and advocates.
Register for the FREE Webinar
Tomorrow, Wednesday, July 24
2:00p.m. - 3:00p.m. EDT

https://nationalorganizationforraredisorders.cmail20.com/t/ViewEmail/j/052B60EAEFA550992540EF23F30FEDED/FFA142944D02FA97A29558A201773426

demografx:

Here is the August NORD News:


Complete August News:
https://nationalorganizationforraredisorders.cmail20.com/t/ViewEmail/j/EF9A7E6F9BD6995E2540EF23F30FEDED

Nas:
Let's make sure we recruit as many as possible, making this the most relevant research on POIS to date.

demografx:
Nas, thanks for your enthusiasm for the upcoming POIS  Research.

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