Author Topic: POIS 2021-2022 NORD RESEARCH STUDY  (Read 32888 times)

demografx

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Re: POIS 2019-2020 NORD RESEARCH STUDY
« Reply #135 on: November 29, 2019, 02:07:18 PM »
Will there be a way to go to the research team nord or pois to perform tests ?
Perhaps Demo can answer this one, he knows more.

Yes, Elias! We will be doing testing by the POIS Research Team in Los Angeles. Look for the volunteer recruiting ads soon, around December.
« Last Edit: November 29, 2019, 02:30:14 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: POIS 2019-2020 NORD RESEARCH STUDY
« Reply #136 on: December 01, 2019, 03:01:14 AM »
Elias, after re-reading your Q, if you mean the testing you see at this forum, e.g., blood testing for T-levels, vitamin D, etc...no, that can only be done by your private physicians and your own private laboratory.

NORD researchers will be looking for scientific tests to confirm or disprove various POIS hypotheses for *general* scientific inquiry into the nature of POIS.
« Last Edit: December 01, 2019, 03:03:09 AM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Eliasjoelrivera

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Re: POIS 2019-2020 NORD RESEARCH STUDY
« Reply #137 on: December 01, 2019, 07:05:54 AM »
Thanks for your input. Yes, I understand that. Hopefully the research team can make progress on this painful research and we can have quality of life. Do not lose hope.

demografx

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Re: POIS 2019-2020 NORD RESEARCH STUDY
« Reply #138 on: December 02, 2019, 12:30:09 AM »
Hopefully the research team can make progress on this painful research and we can have quality of life...
Forum members here have bet $35,000 of their own hard-earned money that this POIS progress will happen. I believe it will.
« Last Edit: December 02, 2019, 01:12:24 AM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: POIS 2019-2020 NORD RESEARCH STUDY
« Reply #139 on: December 03, 2019, 06:36:37 PM »
Look for the volunteer recruiting ads soon, around December.
There may be slight delays due to POIS-study equipment purchases.

Thanks everyone for your patience!
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: POIS 2019-2020 NORD RESEARCH STUDY
« Reply #140 on: December 15, 2019, 09:07:35 PM »
We will most probably have a status update next week.
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Samir

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Re: POIS 2019-2020 NORD RESEARCH STUDY
« Reply #141 on: December 17, 2019, 02:09:13 AM »
Please post here when the recruiting ads are posted and please provide a link.  I am in the SF area and would drive down for any research testing.

demografx

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Re: POIS 2019-2020 NORD RESEARCH STUDY
« Reply #142 on: December 17, 2019, 05:51:14 PM »
Thanks, Samir.

We don’t know yet where the ads will be posted here, so I ask that you please keep a lookout for them.

There will be some volunteer screening and if you pass, we’re delighted to have your participation!
« Last Edit: December 17, 2019, 06:21:04 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Samir

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Re: POIS 2019-2020 NORD RESEARCH STUDY
« Reply #143 on: December 17, 2019, 09:41:46 PM »
I'll keep my eyes peeled.  Everyone should also check clinicaltrials.gov regularly for any they see (and for any others that may be able to help you).

demografx

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Re: POIS 2019-2020 NORD RESEARCH STUDY
« Reply #144 on: December 19, 2019, 06:15:15 PM »

What? how the heck does [the NORD research anal probe] relate to the symptoms we suffer from?


Unnecessarily negative!

They were very gracious with your reply, but now I’m going to be much more careful what I recommend/pass along.

Try some more conciliatory wording next time.
« Last Edit: December 19, 2019, 06:30:55 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Nas

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Re: POIS 2019-2020 NORD RESEARCH STUDY
« Reply #145 on: December 19, 2019, 07:03:15 PM »

What? how the heck does [the NORD research anal probe] relate to the symptoms we suffer from?


Unnecessarily negative!

They were very gracious with your reply, but now I’m going to be much more careful what I recommend/pass along.

Try some more conciliatory wording next time.

Yeah you're right. Obviously I'm very frustrated with how POIS is ruining our lives and I want researchers to be as dead accurate as possible. I appreciate their efforts regardless.

demografx

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Re: POIS 2019-2020 NORD RESEARCH STUDY
« Reply #146 on: December 19, 2019, 07:10:51 PM »
Thanks. Let’s keep the spirit at “appreciated efforts” for now! They are working far beyond “the clock”! They BELIEVE in our pain and want to help!

Thanks again.
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: POIS 2019-2020 NORD RESEARCH STUDY
« Reply #147 on: January 03, 2020, 08:45:58 PM »

ISHA SLAVIN
POIS Scientific Research Assistant

POISCenter-funded NORD POIS Study

Ms. Slavin will be a research assistant for the National Organization of Rare Disorders (NORD) grant to study Post Orgasmic Illness Syndrome (POIS) with Dr. Lorenz and Dr. Prause. Isha is currently an undergraduate student at the University of California – Los Angeles, studying Psychology. She has worked on psychophysiological research since 2018 and is eager to gain more research experience working with Dr. Prause. Isha is also passionate about mathematics and music as well, and is a certified Audio Engineer at the recording studios of UCLA.


« Last Edit: June 06, 2020, 06:56:22 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: POIS 2019-2020 NORD RESEARCH STUDY
« Reply #148 on: January 29, 2020, 10:10:57 PM »



Crowdfunded grant will help UNL researcher

     study sex-related condition [POIS]


By Chris Dunker                            Jun 26, 2019



For newcomers and/or for those who haven’t seen last
year’s news article on our self-funded POIS Research Study:

https://tinyurl.com/y48syzo6


« Last Edit: January 30, 2020, 03:02:54 AM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Clues

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Re: POIS 2019-2020 NORD RESEARCH STUDY
« Reply #149 on: January 30, 2020, 03:14:22 AM »
The article is blocked in Europe due to GDPR. Can someone post the text?

EDIT: Was able to access it with Opera browser's built-in VPN.
« Last Edit: January 30, 2020, 03:43:41 AM by Clues »