Author Topic: POIS NORD RESEARCH STUDY  (Read 132529 times)

Samir

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Re: POIS NORD RESEARCH STUDY
« Reply #580 on: December 11, 2023, 02:53:51 PM »
A tough holiday for many of us still dealing with this condition. :(

demografx

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Re: POIS NORD RESEARCH STUDY
« Reply #581 on: December 12, 2023, 05:11:47 PM »

A tough holiday for many of us still dealing with this condition. :(


Most definitely, Samir!!
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: NORD/POIS RESEARCH STUDY
« Reply #582 on: December 13, 2023, 06:28:10 PM »
From:



“Data do not support sex as addictive“




Dr Nicole Prause, co-investigator of our upcoming NORD/POIS Research Study, is one of the authors of this article.

We have had many POIS discussions here involving the effects of pornography and addictive sex on our condition. So much of the information on the internet regarding porn and sex is biased, emotional & unscientific.

This article takes a much more sober, scientific view that I think is worth considering seriously!

https://www.thelancet.com/journals/lanpsy/article/PIIS2215-0366(17)30441-8/fulltext

« Last Edit: December 14, 2023, 11:50:08 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

mike_sweden

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Re: POIS 2023 NORD RESEARCH STUDY
« Reply #583 on: December 15, 2023, 04:11:54 PM »
Guys the delay on this study is unreal.

Yes it's way beyond acceptable.

demografx

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Re: NORD/POIS RESEARCH STUDY
« Reply #584 on: December 15, 2023, 04:41:03 PM »

Guys the delay on this study is unreal.


Yes it's way beyond acceptable.



You are right…the delay is unreal. 

But, there is no money to gain with a POIS medication or cure.   That's the way it works. You should see all the new, very effective drugs that come out each year for cancer or for diabetes!   You sure have heard of the new class of wonder drugs for diabetes, the GLP1, like semaglutide ( Wegovy/Ozempic), and the new Moonjaro, which will be the "new star", dethroning Wegovy/Ozempic within a year or so.  And it is not all, you also have the iSGLT1, like Forxiga, Invokana and Jardiance,, which are not only very good for diabetes/blood sugar level, but also help for the kidneys and the heart as well, preventing long-term bad effects.  Those "miracles" happen because there is much, much profit to do, tens of billions of dollars a year

How much return would there be with a POIS drug or treatment ?  Not even 1 million, and surely not billions.

Humans are humans, driven by obvious motivations. Pure, detached, medical research is a "side dish" that may appeal to researchers who would like to see their name associated with a breakthrough.

The pill may be hard to swallow ( pun intended) for people like us who are stuck with a rare condition.
Have you ever seen the movie "Lorenzo's Oil"? ( https://en.wikipedia.org/wiki/Lorenzo's_Oil ) I suggest you watch it, to get some perspective about medical research for rare diseases.
« Last Edit: December 18, 2023, 08:08:33 AM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: NORD/POIS RESEARCH STUDY
« Reply #585 on: December 25, 2023, 04:46:11 PM »


From NORD



(NORD - National Organization for Rare Disorders) is the supervising organization for our upcoming
NORD/POIS Research Study, funded by all of us here at POISCenter!
https://poiscenter.com/forums/index.php?topic=3006.0
« Last Edit: December 26, 2023, 10:36:11 AM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

devastated

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Re: POIS NORD RESEARCH STUDY
« Reply #586 on: April 06, 2024, 09:07:40 AM »
Any news?

Quantum

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Re: POIS NORD RESEARCH STUDY
« Reply #587 on: April 07, 2024, 07:56:17 PM »
Any news?
One of the researchers changed institution last year, and this has called for new approvals, new negotiations between institutions, new rounds of approval by boards, and so on.
I sure hope the recruitment ad will be released somewhere in 2024.  But who knows, medical research is so heavily burdened by regulations and boards and all, so it is hard to say.
« Last Edit: April 07, 2024, 08:12:18 PM by Quantum »
You are 100% responsible for what you do with anything I post on this forum and of any consequence it could have for you.  Forum rule: ""Do not use POISCenter as a substitute for, or to give, medical advice" Read the remaining part at http://poiscenter.com/forums/index.php?topic=1.msg10259#msg10259

demografx

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Re: POIS NORD RESEARCH STUDY
« Reply #588 on: April 22, 2024, 11:25:05 AM »


https://doi.org/10.1016/j.jsxm.2022.05.019



Dr. Tierney Lorenz is the Principal Investigator of our upcoming *POIS Research Study (see link below).

While the above JSM article she co-authored might not have significance to all forum members, it demonstrates the power of her ability to write in a most highly respected, prestigious scientific journal. This will put POIS “on the map”. Worldwide. For both physicians and POISers!

Dr. Lorenz: thank you for being a major part of our future success in combating POIS!




*More info on our upcoming POIS Research Study, funded by all of us here at POISCenter:
https://poiscenter.com/forums/index.php?topic=3006.0
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: POIS NORD RESEARCH STUDY
« Reply #589 on: April 27, 2024, 07:39:31 PM »


Dr. Nicole Prause, co-investigator of our
upcoming *POIS Research Study (see link below - bottom of the page) got a chance to talk a little POIS in this podcast!
https://youtu.be/ImsB_q-5IIM?feature=shared&t=2100



Dr. Susie Gronski

Licensed Sexuality Counselor/Educator


*More info on our
upcoming POIS Research Study, funded by all of us here at POISCenter:
https://poiscenter.com/forums/index.php?topic=3006.0
« Last Edit: May 26, 2024, 03:26:06 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: POIS NORD RESEARCH STUDY
« Reply #590 on: April 29, 2024, 03:01:25 PM »


https://doi.org/10.1016/j.jsxm.2022.05.019



Dr. Tierney Lorenz is the Principal Investigator of our upcoming *POIS Research Study (see link below).

While the above JSM article she co-authored might not have significance to all forum members, it demonstrates the power of her ability to write in a most highly respected, prestigious scientific journal. This will put POIS “on the map”. Worldwide. For both physicians and POISers!

Dr. Lorenz: thank you for being a major part of our future success in combating POIS!




*More info on our
upcoming POIS Research Study
, funded by all of us here at POISCenter:
https://poiscenter.com/forums/index.php?topic=3006.0
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: POIS NORD RESEARCH STUDY
« Reply #591 on: May 07, 2024, 08:49:17 PM »


Dr. Nicole Prause, co-investigator of our
upcoming POIS Research Study got a chance to talk a little POIS in this podcast!

https://youtu.be/ImsB_q-5IIM?feature=shared&t=2100

10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

JayDeeSee

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Re: POIS NORD RESEARCH STUDY
« Reply #592 on: May 08, 2024, 01:04:29 AM »


Dr. Nicole Prause, co-investigator of our
upcoming POIS Research Study got a chance to talk a little POIS in this podcast!

https://youtu.be/ImsB_q-5IIM?feature=shared&t=2100


This sounds promising. Now when are you gonna a real update?

demografx

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Re: POIS NORD RESEARCH STUDY
« Reply #593 on: May 16, 2024, 11:44:48 PM »
MAJOR NORD POIS STUDY APPROVED!

The Board responsible for protecting the rights, welfare and safety of human subjects that will participate in the POIS study have finally, after months of review, accepted the study protocol, as all their modifications, demands and criteria have been met !

This is a HUGE step, and means that soon, we may see a recruitment ad for the 2024 POIS study!!!!







Dr. Tierney Lorenz is the Principal Investigator of our 2024 POIS Research Study (see link below).




Dr. Nicole Prause, is the co-investigator of our
2024 POIS Research Study







*More info on our 2024 POIS Research Study, funded by all of us here at POISCenter:
https://poiscenter.com/forums/index.php?topic=3006.0
« Last Edit: May 26, 2024, 03:23:44 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

devastated

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Re: POIS NORD RESEARCH STUDY
« Reply #594 on: May 17, 2024, 08:12:00 AM »
At last a glimpse of hope. Let's hope for the best!

Quantum

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Re: POIS NORD RESEARCH STUDY
« Reply #595 on: May 17, 2024, 09:08:31 AM »

MAJOR NORD POIS STUDY APPROVED!

The Board responsible for protecting the rights, welfare and safety of human subjects that will participate in the POIS study have finally, after months of review, accepted the study protocol, as all their modifications, demands and criteria have been met !

This is a HUGE step, and means that soon, we may see a recruitment ad for the 2024 POIS study!!!!



*More info on our 2024 POIS Research Study, funded by all of us here at POISCenter:
https://poiscenter.com/forums/index.php?topic=3006.0
Great news for all members, today !    :)   
Thanks for sharing, Demo !
You are 100% responsible for what you do with anything I post on this forum and of any consequence it could have for you.  Forum rule: ""Do not use POISCenter as a substitute for, or to give, medical advice" Read the remaining part at http://poiscenter.com/forums/index.php?topic=1.msg10259#msg10259

demografx

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Re: POIS NORD RESEARCH STUDY
« Reply #596 on: May 17, 2024, 11:17:40 AM »

MAJOR NORD POIS STUDY APPROVED!

The Board responsible for protecting the rights, welfare and safety of human subjects that will participate in the POIS study have finally, after months of review, accepted the study protocol, as all their modifications, demands and criteria have been met !

This is a HUGE step, and means that soon, we may see a recruitment ad for the 2024 POIS study!!!!



*More info on our 2024 POIS Research Study, funded by all of us here at POISCenter:
https://poiscenter.com/forums/index.php?topic=3006.0
Great news for all members, today !    :)   
Thanks for sharing, Demo !

And thank you, Quantum, and Limejuice & Berlin (our Admin team) for all your teriffic support - - over some mighty rocky terrain!!!

I’ve been waiting 17 years for this day - -since February, 2007 - - right from the beginnings of this forum!
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Limejuice

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Re: POIS NORD RESEARCH STUDY
« Reply #597 on: May 17, 2024, 12:06:44 PM »

MAJOR NORD POIS STUDY APPROVED!

The Board responsible for protecting the rights, welfare and safety of human subjects that will participate in the POIS study have finally, after months of review, accepted the study protocol, as all their modifications, demands and criteria have been met !

This is a HUGE step, and means that soon, we may see a recruitment ad for the 2024 POIS study!!!!




Dr. Tierney Lorenz is the Principal Investigator of our 2024 POIS Research Study (see link below).




Dr. Nicole Prause, is the co-investigator of our
2024 POIS Research Study

*More info on our 2024 POIS Research Study, funded by all of us here at POISCenter:
https://poiscenter.com/forums/index.php?topic=3006.0


Great news for all members, today !    :)   
Thanks for sharing, Demo !

And thank you, Quantum, and Limejuice & Berlin (our Admin team) for all your teriffic support - - over some mighty rocky terrain!!!

I’ve been waiting 17 years for this day - -since February, 2007 - - right from the beginnings of this forum!

17 years is 6,200 days of tireless leadership, vision, and support! Quantum's medical and emotion guidance, Berlin's integrity, and the patience and perseverance every member of our community during difficult times (amongst symptomatic days and frustratingly slow research) has brought about the beginning of these exciting times. It is a beginning, and we'll likely need to continue our all of our efforts to see this through.
« Last Edit: May 17, 2024, 12:56:20 PM by demografx »

demografx

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Re: POIS NORD RESEARCH STUDY
« Reply #598 on: May 18, 2024, 09:36:04 PM »



Dr. Nicole Prause, co-investigator of our
2024 POIS Research Study got a chance to talk a little POIS in this podcast!
https://youtu.be/ImsB_q-5IIM?feature=shared&t=2100




Please watch the above video to get a better idea of what’s coming soon with our 2024 POIS Research Study

Demo
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: POIS NORD RESEARCH STUDY
« Reply #599 on: May 18, 2024, 09:36:36 PM »
MAJOR NORD POIS STUDY APPROVED!
The Board responsible for protecting the rights, welfare and safety of human subjects that will participate in the POIS study have finally, after months of review, accepted the study protocol, as all their modifications, demands and criteria have been met !

This is a HUGE step, and means that soon, we may see a recruitment ad for the 2024 POIS study!!!!


Dr. Tierney Lorenz is the Principal Investigator of our 2024 POIS Research Study (see link below).

Dr. Nicole Prause, is the co-investigator of our
2024 POIS Research Study

*More info on our 2024 POIS Research Study, funded by all of us here at POISCenter:
https://poiscenter.com/forums/index.php?topic=3006.0

”This is so fabulous!!!”

Rachel S. Rubin MD
Urologist and Sexual Medicine Specialist
Assistant clinical professor in Urology at
Georgetown University Hospital


Rachel Rubin, MD is a serious POIS researcher.
Dr. Rubin completed a fellowship under Dr. Irwin Goldstein in San Diego, another important researcher of POIS.
She is a clinician, researcher, and passionate educator in the field of sexual medicine.
« Last Edit: May 26, 2024, 03:29:15 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business