Author Topic: POIS 2021-2022 NORD RESEARCH STUDY  (Read 54979 times)

demografx

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Re: POIS 2020-2021 NORD RESEARCH STUDY
« Reply #280 on: August 18, 2020, 06:26:47 PM »
Thanks, hurray!

I appreciate your explaining IRB, not everyone knows about it.
« Last Edit: August 18, 2020, 10:23:54 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

hurray

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Re: POIS 2020-2021 NORD RESEARCH STUDY
« Reply #281 on: August 18, 2020, 06:46:18 PM »
Thanks, hurray!

I appreciate your explaining IRB, not everyone knows about it.

I didn't know about it either until you mentioned it  :)

With your knowledge of the POIS Research Team, you know a lot of things that most of us don't, but you always share your knowledge with everybody :)
« Last Edit: August 19, 2020, 02:45:19 AM by hurray »

demografx

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Re: POIS 2020-2021 NORD RESEARCH STUDY
« Reply #282 on: August 18, 2020, 10:15:01 PM »
Many thanks, again! :)
« Last Edit: August 18, 2020, 10:24:24 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Clues

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Re: POIS 2020-2021 NORD RESEARCH STUDY
« Reply #283 on: August 19, 2020, 09:10:06 AM »
Thanks for the update, demo! Exciting to hear that things are progressing despite the pandemic!
« Last Edit: August 19, 2020, 12:49:30 PM by demografx »

demografx

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Re: POIS 2020-2021 NORD RESEARCH STUDY
« Reply #284 on: August 19, 2020, 12:50:37 PM »
Clues, thanks for showing support!
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

mellivora

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Re: POIS 2020-2021 NORD RESEARCH STUDY
« Reply #285 on: August 21, 2020, 04:26:23 AM »
Quote


From The POIS Research Team:

“Thanks for bringing this to our attention. The study recruitment is still on hold while we wait on our IRB to finalize their approval for the expanded project that was made possible by the family donation. Once that is completed, we have some small administrative details to work out on getting those funds into an account we can access. In the meantime, however, we do want the website to allow folks to register so we can contact them as soon as we are able to start scheduling – so we will look into what’s happening with the scheduling app.”

Thanks. It?s great to see this research team is open and communicative where they can be - reassuring and so important for our morale and trust. 
I hope they have a record of my answers to the online questionnaire even if the scheduling app at the end did not work for me. I can re-enter my answers if they do not have them. However, I am in the UK so I don?t know when travel to the U.S. would be feasible in this time of COVID-19. Thanks for everyone?s efforts and for Eric and his family?s further funding.

demografx

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Re: POIS 2020-2021 NORD RESEARCH STUDY
« Reply #286 on: August 29, 2020, 07:25:11 AM »
mellivora, thank you, I sent your post above to the POIS Research Team.
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: POIS 2020-2021 NORD RESEARCH STUDY
« Reply #287 on: September 09, 2020, 08:52:32 AM »

Drew1312 asked a good question about
2020-2021 POIS Research Study: brain measurement of POISers, so I’m reprinting the POIS Research Team reply below.


“Hi Demo,

There are many ways to measure brain responses. We use electroencephalography, abbreviated EEG. EEG is excellent for monitoring events that happen very quickly in time, whereas fMRI is better for identifying where in the brain events are having an impact. EEG relies on electrical changes, while fMRI relies on changes in blood oxygenation. This means that EEG will pretty much always be better for time and fMRI will pretty much always be better for location. We use EEG because the events surrounding climax are (1) thought to occur very rapidly, and (2) I have a large body of EEG data that is useful/published for comparison.

NP
Dr. Nicole Prause, PhD
Co-investigator
POIS 2020-2021 Research Study”

10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: POIS 2020-2021 NORD RESEARCH STUDY
« Reply #288 on: September 09, 2020, 09:00:13 AM »
Dr. Nicole Prause, our 2020-2021 POIS Research Study  Co-Investigator spoke with the Kinsey Institute's Dr. Lehmiller about her path to study sexuality, why sexual response is important in basic theories of emotion, and why you need a broad skill set to play in this space!
https://blogs.iu.edu/kinseyinstitute/2020/07/16/the-kinsey-interview-series-a-conversation-with-nicole-prause/
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: POIS 2020-2021 NORD RESEARCH STUDY
« Reply #289 on: September 09, 2020, 09:09:09 AM »
Dr. Nicole Prause’s laboratory study with Dr. Tierney Lorenz funded by the National Organization for Rare Diseases [NORD] on post-orgasmic illness syndrome [POIS] is obviously on hold for COVID-19. HealthLine interviewed a number of lab scientists about how we are dealing with these delays, why the research is important, and how we protect our research participants.
https://www.healthline.com/health-news/covid-19-hurting-research-on-diabetes-cancer-parkinsons-disease
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

hurray

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Re: POIS 2020-2021 NORD RESEARCH STUDY
« Reply #290 on: September 09, 2020, 12:15:07 PM »

Drew1312 asked a good question about
2020-2021 POIS Research Study: brain measurement of POISers, so I’m reprinting the POIS Research Team reply below.


“Hi Demo,

There are many ways to measure brain responses. We use electroencephalography, abbreviated EEG. EEG is excellent for monitoring events that happen very quickly in time, whereas fMRI is better for identifying where in the brain events are having an impact. EEG relies on electrical changes, while fMRI relies on changes in blood oxygenation. This means that EEG will pretty much always be better for time and fMRI will pretty much always be better for location. We use EEG because the events surrounding climax are (1) thought to occur very rapidly, and (2) I have a large body of EEG data that is useful/published for comparison.

NP
Dr. Nicole Prause, PhD
Co-investigator
POIS 2020-2021 Research Study”

Thanks Demo, it's fascinating to hear what methodologies our scientists are using  :)

demografx

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Re: POIS 2020-2021 NORD RESEARCH STUDY
« Reply #291 on: September 09, 2020, 09:17:19 PM »
Thanks, hurray!
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: POIS 2020-2021 NORD RESEARCH STUDY
« Reply #292 on: September 19, 2020, 09:52:34 PM »
Dr. Nicole Prause, Founder, Liberos, LLC

POIS Scientific Researcher


POISCenter-funded NORD researcher/co-Investigator
Dr. Nicole Prause on “Good Sex Doesn’t Always Mean an Orgasm“
https://tinyurl.com/sot588g
« Last Edit: September 19, 2020, 09:56:40 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: POIS 2020-2021 NORD RESEARCH STUDY
« Reply #293 on: September 21, 2020, 02:25:42 PM »
Cross-posted from Drew1312 separate thread/question.

https://clinicaltrials.gov/

If you look for POIS you won't find anything..

Hi, Drew1312,

Good question.

The POIS study is not a clinical trial as our POIS Research Team are not intervening on the illness itself, just measuring the symptoms and what happens in the body around those symptoms. Also, clinicaltrials.gov tends to be for research that is either federally funded (e.g., by the NIH) or for drugs/treatments that are intended to be reviewed by the FDA – not for smaller, independently funded research like ours.
« Last Edit: September 23, 2020, 07:27:34 AM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: POIS 2020-2021 NORD RESEARCH STUDY
« Reply #294 on: September 26, 2020, 02:51:27 PM »

POIS Volunteers:

*****   Click here for the link !   *****
Help make this the best scientific study possible to understand POIS!


Please fill out this  form to see if you qualify!
YOU CAN DISCUSS FUTURE LAB APPOINTMENTS WITH POIS RESEARCHERS - - - NOW
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: POIS 2020-2021 NORD RESEARCH STUDY
« Reply #295 on: September 26, 2020, 02:55:13 PM »


Dr. Nicole Prause, Founder, Liberos, LLC

POIS Scientific Researcher


POISCenter-funded NORD
researcher/co-Investigator
Dr. Nicole Prause
(Dr. Tierney Lorenz, Principal Investigator)

On a new Science Vs. podcast,
discusses orgasm physiology and controversies.

https://gimletmedia.com/shows/science-vs/z3h63vr

10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: POIS 2019-2020 NORD RESEARCH STUDY
« Reply #296 on: September 26, 2020, 10:00:12 PM »
[Scholarly Articles from our 2 POIS Scientific Researchers]

Articles from Dr. Tierney Lorenz

Articles from Dr. Nicole Prause

Many thanks, Muon!
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Clues

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Re: POIS 2020-2021 NORD RESEARCH STUDY
« Reply #297 on: September 27, 2020, 02:35:01 AM »
Demo, do we know what it takes in terms of Covid-19 numbers in order for the study to proceed? When the situation improves, are they depending on a green light from any sort of central authority, medical or otherwise?

demografx

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Re: POIS 2020-2021 NORD RESEARCH STUDY
« Reply #298 on: September 27, 2020, 08:45:35 AM »
Clues, it will all be based on Los Angeles city guidelines.
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: POIS 2020-2021 NORD RESEARCH STUDY
« Reply #299 on: September 29, 2020, 01:12:18 PM »
Demo, do we know what it takes in terms of Covid-19 numbers in order for the study to proceed? When the situation improves, are they depending on a green light from any sort of central authority, medical or otherwise?
Clues, it will all be based on Los Angeles city guidelines.
Clues, I just heard back from the researchers that adds to my above reply. They are taking into account the situation on the ground in Los Angeles, as well as any guidance they receive from the various groups that provide oversight to the project (e.g., the UNL IRB).
 
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business