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“For the study of post-orgasmic illness syndrome, with funding from
Tierney Lorenz, Ph.D., University of Nebraska-Lincoln (Lincoln, NE); Autonomic, endocrine, and immune mediators of post-orgasmic illness syndrome”

From Dr Nicole Prause
POIS co-Investigator

Hi Demo,

Dr. Lorenz and I received the pre-review from
the IRB [defined in post below - Demo] just yesterday. We read the comments, and they appear very reasonable. That is, we expect that we can fully satisfy all of the questions. We have a meeting scheduled between the two of us next week to generate our response.

The full review remains scheduled for May 30th. The pre-review is just a chance to catch anything that the reviewer feels would have been likely to create questions during the full review to speed up the process.

Feel free to share this information.


--- Quote from: demografx ---VERY EXCITING POIS RESEARCH NEWS!

“Hey Demo,

My name's Eric and I've been a member of the forum for a while now.  I only learned about the UNL [NORD] study recently and decided to investigate.  After learning of a few deficiencies as a result of limited funding (they weren't going to look into delayed onset symptoms and other autoimmune/inflammatory biomarkers) I decided to get in contact with them to see how much funding they would require to expand their study to cover the things I thought were important.

I asked them to give me numbers for how much they would need for the basic additions I requested along with any other ones they could think of for their "dream" study.  They came back to me with some ideas which I thought were good.

I and my family's foundation have decided to fully fund the "dream" study!  Before I gave them the go ahead, I had asked Quantum if he knew any medical researchers in the forum I could contact.  That's why I'd gotten in touch with him prior.  Thanks again Quantum! 

I also reached out to an autoimmune researcher friend of mine for suggested expansions to the study and she gave me a few that Tierney and Nicole hadn't thought of so those might be added too.

The study will be tracking more inflammatory biomarkers, including delayed onset people, adding research assistants, larger sample size, etc.  I've been asked not to share their hypotheses or the study proposal so I can't share those details.  Suffice it to say, the study should be more comprehensive than before and hopefully allow for some real progress.

I'm personally deeply motivated to increase visibility and research for POIS (since it's taken away a lot of joy from my life).  This study seems like a great start.

Thanks for all your hard work organizing this study!  The funding is almost the easy part, I think what you did was incredible.  Hope you keep up your good work!


Thank you, Eric!
Best wishes!

--- End quote ---

The Institutional Review Board (IRB) is an administrative body established to protect the rights and welfare of human research subjects recruited to participate in research activities conducted under the auspices of the institution with which it is affiliated.

In our case, they are the UNL (University of Nebraska - Lincoln) and UCLA (University of California Los Angeles)  IRB’s.

Thank you Demo for updating us!

fernab, you’re quite welcome.

May 13 article: interview with Dr Nicole Prause, our POIS Study co-investigator:

Mentions our POIS Grant:
“We (Tierney Lorenz, PhD and I) also just received a grant to study post-orgasmic illness syndrome (POIS) from the non-profit National Organisation of Rare Disorders.”


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