Members' Compilation and Suggestions for POIS Summary

[Stef]

Hey Guys,

Have anyone ever looked in to auto-immune encephalitis ? This is a fancy name of an auto-immune disorder that causes inflammation in the brain. Some effects of this inflammation include the following:

http://www.encephalitis.info/images/iRecovery/jigsawHead.gif

I have a feeling that Encephalitis and POIS are somehow related... I am interested to hear your thoughts

Hi Lycos!

Autoimmune encephalitis is a horrendous disorder that has only recently been identified.  We're very familiar with this rare and absolutely terrible disorder at NORD, and have heard from many overwhelmed families who are coping with it -- or something like it -- and trying to find answers.  People have spent years on psychiatric wards, heavily medicated, because of autoimmune encephalitis.

There's a specific auto-antibody that is implicated in autoimmune encephalitis -- "anti-NMDA-receptor"  -- which causes hallucinations and seizure-like activity.  It's not related to ejaculation in any way,  and is not found in men more than in women.  If that auto-antibody is discovered -- there is a treatment and a cure! The terrible truth is that it's often not diagnosed -- the patients (children and adults) are considered psychiatric patients -- and end up languishing on psych wards.

Here's a link to a book that was written by a young reporter for the NY Post -- Susannah Cahalan. It describes her experience with autoimmune encephalitis.  She was very fortunate to have parents who had money to call in the best neurologists available. (Ultimaterly, Dr. Souhel Najaar -- from New York University Medical Center -- saved this young woman from a truly horrible fate.) http://www.newsadvance.com/the_burg/features/books/article_dacc8b8a-f2fc-11e2-bd07-001a4bcf6878.html

I seriously doubt that any of you has this type of autoimmune encephalitis.  But -- there might be a specific "POIS antibody"  -- or perhaps even more than one POIS antibody -- that could be causing all the absolute misery of POIS.

Some very fine researchers have applied for your forum's POIS grant -- autoimmunity studies are in that mix. 

POIS is still a big mystery -- but you are all on the way to finding answers through solid research.

~Stef

[Limejuice]

It might be important to note that I had encephalitis as a child (3 yrs old) but I might not represent the majority.

[demografx]

Some very fine researchers have applied for your forum's POIS grant -- autoimmunity studies are in that mix. 

POIS is still a big mystery -- but you are all on the way to finding answers through solid research.

~Stef

Thrilling to hear that, Stef!!

[Colm]

Yes, excellent news on the researcher front. Well done all involved !

[joe]

USA

[Clycos]

Hey guys, does anyone know any ways to prevent nocturnal emissions?

[Chris]

Hey guys, does anyone know any ways to prevent nocturnal emissions?

As far as i know there is not a certain way that will prevent 100% nocturnal emissions..But there are some small tips that you can follow if you search in google.
I have a question for you.Do nocturnal emissions cause you symptoms ? If yes, are there in the same intensity as orgasm ?

[Observer]

Hey guys, does anyone know any ways to prevent nocturnal emissions?

As far as i know there is not a certain way that will prevent 100% nocturnal emissions..But there are some small tips that you can follow if you search in google.
I have a question for you.Do nocturnal emissions cause you symptoms ? If yes, are there in the same intensity as orgasm ?

Members usually describe a mild POIS version when having a NE. But I have to say that this is not a general rule, the degree of intensity can vary depending on the person.

[FloppyBanana]

Hey guys, does anyone know any ways to prevent nocturnal emissions?

As far as i know there is not a certain way that will prevent 100% nocturnal emissions..But there are some small tips that you can follow if you search in google.
I have a question for you.Do nocturnal emissions cause you symptoms ? If yes, are there in the same intensity as orgasm ?

I literally tie a not in it. No Joke. Get a very thick shoe lace make 3 loops of a suitable size out of it. Put all the loops around your penis. Go to sleep. If you get an erection you will wake up. I find sleeping more than 8 hours will more likely trigger NE.
FB

[Clycos]

Interesting.. and as for Chris18?s question, yes NE cause few symptoms for me.. its quite strange..

[Clycos]

Hey guys, is there any hope that POIS might miraculously disappear one day for one reason or another like all other allergies do? I heard that allergies might appear and disappear randomly and so I was wondering if its any way possible that that might me the same case with POIS.

[Clycos]

Hey guys,

I just want to note to every fellow POIS sufferer out there; if you guys really want to find a cure to this, we will get nothing done by sitting in this forum and just sharing our personal experiences. We live in a time where getting in touch with someone thousands of miles away has become extremely easy; what I?m suggesting here is that we need to get out there, raise awareness, e-mail, phone, and do whatever it takes to get in touch with doctors, naturopaths and whoever might be able to help. The reason there?s very little progress with POIS is because no one knows about it! And I know what many of you are probably thinking, and that is that well probably waste our time contacting doctors since they won?t bother with a disorder that is considered fairly new and under-researched; but at least by getting in touch with people we might find that one doctor out of 100 that might be willing to help and that will be a breakthrough moment for all of us. In addition to finding this one motivated doctor, we will also raise some awareness, get people talking about this and so maybe more people will come out and say that they are POIS-sufferers as well. Lastly, maybe I am living in an imaginary fantasy, but I DO know that pharmaceutical companies want to make money, bringing awarness to people might catch the pharmaceutical companies? eyes and believe me, if that happens that will be the biggest breakthrough moment for us ever. There can be nothing better for us than to have a multi-billion dollar pharmaceutical company spending a ton of money on Research and Development for the sole purpose of making a profit out of us; which Im sure none of you will mind because I know for a fact that I would give my left nut for a drug that cure POIS. If we get them on our side we are essentially laughing at POIS, I pray to see this one day....

Before I close, I just want to say that so far I have made my way in to getting in touch with a Neuopsychologist and McGill University who is also a professor; in addition I just e-mailed Dr. Hyman about the POIS situation; he seems to believe in autimmune disorders and so I?m hoping that POIS might interest him. Take care guys, good luck to all of you, and by the way I?m in Day 2 of the cycle so I apologize in advance if some of my writing is unclear.

[Daveman]

Hey guys,

I just want to note to every fellow POIS sufferer out there; if you guys really want to find a cure to this, we will get nothing done by sitting in this forum and just sharing our personal experiences. We live in a time where getting in touch with someone thousands of miles away has become extremely easy; what I?m suggesting here is that we need to get out there, raise awareness, e-mail, phone, and do whatever it takes to get in touch with doctors, naturopaths and whoever might be able to help. The reason there?s very little progress with POIS is because no one knows about it! And I know what many of you are probably thinking, and that is that well probably waste our time contacting doctors since they won?t bother with a disorder that is considered fairly new and under-researched; but at least by getting in touch with people we might find that one doctor out of 100 that might be willing to help and that will be a breakthrough moment for all of us. In addition to finding this one motivated doctor, we will also raise some awareness, get people talking about this and so maybe more people will come out and say that they are POIS-sufferers as well. Lastly, maybe I am living in an imaginary fantasy, but I DO know that pharmaceutical companies want to make money, bringing awarness to people might catch the pharmaceutical companies? eyes and believe me, if that happens that will be the biggest breakthrough moment for us ever. There can be nothing better for us than to have a multi-billion dollar pharmaceutical company spending a ton of money on Research and Development for the sole purpose of making a profit out of us; which Im sure none of you will mind because I know for a fact that I would give my left nut for a drug that cure POIS. If we get them on our side we are essentially laughing at POIS, I pray to see this one day....

Before I close, I just want to say that so far I have made my way in to getting in touch with a Neuopsychologist and McGill University who is also a professor; in addition I just e-mailed Dr. Hyman about the POIS situation; he seems to believe in autimmune disorders and so I?m hoping that POIS might interest him. Take care guys, good luck to all of you, and by the way I?m in Day 2 of the cycle so I apologize in advance if some of my writing is unclear.

Lycos,

That's exactly what we think. And that's why, in less than a month we will be starting a professional research program through NORD. With real very qualified and expereinced POIS researchers.

At "the other forum", we got tired of going around in circles. Verbal masturbation is all it is.

Right this forum is dull right now because we don't buy into the idle chat. But this medical research program, which you all paid for with very hard earned cash, $33,500 worth, is going to break the cycle.

The research conducted by know specialists, will bring the topic into REAL medical view. It in itself will attract more experts, and begin the path to THE REAL SOLUTION.

We hope that by mid December we will know who the final researcher will be.

[sameer7777]

I totally agree with lycos

[sameer7777]

I think we should not be ashamed to give out personal numbers here at least start with a group on Whatsapp or Facebook
every one have smart phones so please connect
we need cure I m 45 have suffered a lot now
pls connect
Thankyou

[Clycos]

?lgG? is called the new type of allergies that many doctors are still not aware about; research shows that these type of allergies are autoimmune and are harder to detect what causing the allergic reaction given that the reaction usually takes place 1-2 days after the person gets in contact with the allergen. HINT HINT, is it just me or does the definition of ?lgG? allergies have POIS written all over it? I found this to be quite interesting, please share your thoughts.

[Clycos]

I also want to add to my previous message, how many of you do you believe in POIS being an auto-immune disorder as Dr. Waldinger had originally suggested?

[FloppyBanana]

In mt very limited understanding: IgG is not a allergy marker (immune system attacks the body because it suspects it as a foreign agent). IgG is a healthy immune response which can increase tolerance of a particular substance (this is basically inversely true for IgE). An example would be people who have strong IgG response to the contents of milk are in the group least likely to develop allergies to milk. It may be that IgG (lack of) is related to food intolerance but there is no clear evidence to elucidate this. It seems the medical professional is far off measuring food intolerances. In the absence of this there are lists of alternative views and businesses to take your cash. I myself have wheat intolerance for the last two years. Food intolerances are often mocked at by media as a fad diets. I have experienced this stigma in real life. Food intolerances are a serious things. My experience has been very painful and made my POIS much worse. After sex I would pass blood and POIS symptoms would be crippling. That's gone now (bleeding). Wheat free has been a positive life change experience for me. There are many good reasons for not eating wheat. Not just because your are intolerant to it. Many doctors do not support the world health organisations view that whole grains are healthy. Eating wheat increases your blood sugar quicker than eating pure sucrose. Wheat can cause diabetes. Perhaps low IgG response to semen could indicate something not happening when it should be.

FB

[Clycos]

Hey FloppyBanana, thank for your reply and cool name by the way,

So are you suggesting that POIS is not related to IgG allergies given that POIS is not food related? And about regarding food intolerance's, I have heard and read that people with gluten/wheat intolerance have identical symptoms to POIS with the only difference being that their reaction is from gluten/wheat while us being orgasm/sperm/semen; what do you make of this, do you think they?re at all related?

[FloppyBanana]

Hi Lycos,

IgG could be related to POIS (in my very limited understanding) but given the fact that there is so much inconclusive methods of testing at the moment it seems hard to see how investigating this avenue could produce quality results and help and POIS work.

I would say the symptoms of POIS and wheat intolerance are quite different. The only similarity in symptoms I have experienced was just before I discovered wheat was causing me a problem I did have noticeable cognitive impairment and fogging headedness. The symptoms of wheat intolerance and POIS and quite different overall. It may worth noting that the small intestines is often considered the centre of the immune system which is also very close to the reproductive organs. So if you have both conditions it is easy to see why the impact could be quite severe.

Thanks FB