Author Topic: Members' Compilation and Suggestions for POIS Summary (Read 111135 times)

Clycos · « **Reply #120 on:** December 01, 2013, 09:23:43 PM »

Hey Guys,

For about a year now I?ve thought of the idea of meeting a fellow POIS sufferer in person, I thought it would be really interesting sharing our experiences with his disorder in person; I asked this in the forum last year, and I apologize for asking again, I just want to give it another shot since we probably have a few new members in the forum since then. I would like to know if there?s a POISer around the region of Montreal, Canada that would me interesting in chatting, if so feel free to contact me!

And Floppy Banana thanks for insight, I guess the major conclusion we come to with every theory is that ?More research is needed!?'. What frustrates me, and I really don?t mean to be negative is the fact that they?ve been trying to find cures for food intolerances such as Celiac disease for years and are still unsuccessful makes me feel hopeless about finding cures for POIS..

FloppyBanana · « **Reply #121 on:** December 02, 2013, 03:26:17 PM »

Hi Lycopoulos,

I would like to know which members are UK based as it would be good to share positive experiences with the medical profession based in the UK.

The UK based doctors I have spoken to that have written POIS papers are:

David Goldmeier
Selwyn Dexter

Dr Dexter has a guess that POIS which is alleviated with Progesterone is caused by some sort of chemical cascade. Pretty vague but at least he is honest about it. He advised me last week that the person documented in his paper has taken progesterone for 2.5 years now. During this time his partner got pregnant again. This seems to indicate that at least in the short term that progesterone does not make you infertile. However no one know the long terms effects on males (females more is know). FYI - The primary use of the progesterone drug is for delaying women's periods. Woman can take up to 3 tablets per day for 17 days which is 52 tablets in total. For one ejaculation I need to take 7 tablets over 5 days. I am taking this cautiously. After a year of take it on and off I recently went from 6 to 7, 5mg tablets and the results have been much improved.

Dr Dexter is currently doing some tests on me. It will take a long time because I only have sex once a month. I will urge him to write a paper about the results as I believe there needs to be something documented about the effects on the body and semen when taking progesterone

Yes we do need more research! Let's hope that POIS is less tricky than Celiac to cure. I feel quietly confident it will be.
FB

POISrival · « **Reply #122 on:** January 21, 2014, 03:58:48 AM »

Since everybody mentioned his location.
you can add Egypt to the list.

FloppyBanana · « **Reply #123 on:** January 21, 2014, 06:51:16 AM »

Hi drmmeha,

I not sure if you are aware but there are doctors in Egypt who wrote a medical paper on PIOS. I would recommend reading all the POIS medical papers anyhow. You can obtain them from the forum administrators Daveman or Demogrfx.

I am curious; does your forum name indicate you are a Doctor?
All the best - FloppyB

POISrival · « **Reply #124 on:** January 21, 2014, 08:40:00 AM »

Quote from: FloppyBanana on January 21, 2014, 06:51:16 AM

Hi drmmeha,

I not sure if you are aware but there are doctors in Egypt who wrote a medical paper on PIOS. I would recommend reading all the POIS medical papers anyhow. You can obtain them from the forum administrators Daveman or Demogrfx.

I am curious; does your forum name indicate you are a Doctor?
All the best - FloppyB

Hi,

Thanks for your Concern. I have just read it. I think there are similar cases in Egypt who are embarrassed to speak up because of the conservative society.
Is there a direct Link to the other medical papers or should I write to the administrators?

I'm still a medical student (Fifth grade)

Thanks FB

demografx · « **Reply #125 on:** January 21, 2014, 11:21:06 AM »

drmmeha, I sent you via your EMAIL 5 papers. Let me know if any problems opening.
Welcome to POISCenter!
Demo

Also, please visit our Welcome Page:
http://poiscenter.com/forums/index.php?topic=1.msg1#msg1

POISrival · « **Reply #126 on:** January 21, 2014, 05:29:08 PM »

Quote from: demografx on January 21, 2014, 11:21:06 AM

drmmeha, I sent you via your EMAIL 5 papers. Let me know if any problems opening.
Welcome to POISCenter!
Demo

Also, please visit our Welcome Page:
http://poiscenter.com/forums/index.php?topic=1.msg1#msg1

Thanks a lot, There is no problems going. I found those papers very useful.

one paper referred that diclofenac worked out for one case. it reminded me of Voltaren (Diclofenac Sodium), I used to use it after Orgasm in the form of suppository and It helped(Mainly on the somatic aspect) , but its very dangerous to the Kidneys if used a lot, so I had to discontinue.

lineman · « **Reply #127 on:** January 31, 2014, 12:26:53 PM »

FloppyBanana
50 years a sufferer. Somerset,UK , Ive seen Urology specialist at Musgrove Park hospital over the years, and they have tweeked differant things such as a vascectamy,antibiotics ect, they agree more research is needed ,i am willing to be a Guine Pig for those Instituions who would like to do more research. It may be genetic, Ive got two Grandsons and i dont want there life taking the same path. Im a Lefty left footed and left handed , may be confused brain signals play a part in Pois .
Doctors say i have an unusal shaped Prostate ,plus i think the endocryne system plays a key role in Pios.

FloppyBanana · « **Reply #128 on:** January 31, 2014, 03:06:17 PM »

Welcome lineman,

I hope you can find a remedy on this forum that works. I am cautious about being "Geine Pig" as I had had Dr Goldmeier (POIS paper author) try and sit me down with a behavioural specialist. I declined, I have not got time to speak to a shrink about this. I will go to the US for the new study to get an fMRI scan if possible.
For me Progesterone works to relieve 90% of symptoms. You may have a hard time getting doctors to prescribe it not the NHS. I have been turned down three times. Dr Dexter (POIS paper author) has a surgery which is not too far from where I live in London so I can get it there. I would contact him if you want to try it. However, it doesn't seem to work for that many people.
FB

Towndown · « **Reply #129 on:** February 05, 2014, 10:25:11 AM »

Also I'd like to remind everyone to post your pois summary, which should at least ... Many ideas and much speculation on the cause of POIS has taken place on this thread and at our main forum.

lineman · « **Reply #130 on:** February 06, 2014, 01:29:26 PM »

FloppyBanana+ All,
Being in my late sixties i had( Benign Prostate Hyprotophy) you will all get it as you get older,where the Prostate expands and blocks the pee tube.had the standard operation to cut away part of the prostate to reduce the size of it and now can pee normaly, but the Urolgy guys found a very high level of Inflamation present in the prostate. This opperation has made no difference to Pois, i am now taking antinflamatorys before and after Pois as suggested by specialist, they help as did testoterone patches precribed by my local Dr,but are not the answer. I may now try Progesterone and Niacin,
M.R.I. scan of the brain seems to be the way forward ,a scan before Pois and one day after Pois enableing Doctors to work backwords from the brain.
Regards to all . Lineman

FloppyBanana · « **Reply #131 on:** February 08, 2014, 04:37:51 AM »

Hi Lineman,
Thanks for your post. I find Niacin a tricky one because sometimes I flush and sometimes not. Once I took 400mg of flush type Niacin on an empty stomach and still did not a flush. Other times I could take a hundred and have a flush. As we know you need the flush to get the POIS protection. With the Progesterone I always take the same amount and it provides 100% consistent relief without fail.

What makes you think that we will all get Benign Prostate Hyprotophy?
FloppyB

FloppyBanana · « **Reply #132 on:** February 27, 2014, 01:39:00 PM »

FSession,

What website are you talking about and why do you have a link of a fashion website in your footer? It looks suspisious like you are some kind of ambush marketeer.
FloppyB

demografx · « **Reply #133 on:** February 27, 2014, 11:35:46 PM »

Thanks, FB, for your Spam Alert!

POISER · « **Reply #134 on:** April 21, 2014, 08:02:28 AM »

France

madmax · « **Reply #135 on:** May 02, 2014, 06:45:45 PM »

Belgium

june31kilo · « **Reply #136 on:** May 15, 2014, 08:24:03 AM »

Where can I get help.

demografx · « **Reply #137 on:** May 15, 2014, 08:59:46 AM »

june31kilo, welcome to POISCenter!

Please check our Welcome Page for resources:
http://poiscenter.com/forums/index.php?topic=1.msg1#msg1

Clycos · « **Reply #138 on:** May 19, 2014, 06:31:10 PM »

Hey Guys,

Sorry I haven?t posted in a while, been very busy with school exams, POIS and life; to start off I want to mention that I am closely working with a doctor and professor that specializes in rare sexual disorder and who also teacher at one of the top med schools in the world (McGill University). Him and his associates thought it would be a good idea to test by cortisol level throughout my cycles, so now I am currently doing saliva tests all day long for a period of 9 days (3 pre-O, 1 on day of O, and 5 post-O). Once I get results I?d be more than glad to share them with you guys.

I also want to add that I am going on a student exchange for 5 months, and I?m debating whether it would be better to get an apartment on my own or share one with other students. If anyone has experience on this topic or would like to share their thoughts please feel free to do so. Thanks!

mat780 · « **Reply #139 on:** May 20, 2014, 06:48:53 PM »

Lycopoulos, excellent news!
Please, keep us updated with the results!
It's great to know there are other doctors investigating POIS!

Good luck with your student exchange!

Quote from: Lycopoulos on May 19, 2014, 06:31:10 PM

Hey Guys,

Sorry I haven?t posted in a while, been very busy with school exams, POIS and life; to start off I want to mention that I am closely working with a doctor and professor that specializes in rare sexual disorder and who also teacher at one of the top med schools in the world (McGill University). Him and his associates thought it would be a good idea to test by cortisol level throughout my cycles, so now I am currently doing saliva tests all day long for a period of 9 days (3 pre-O, 1 on day of O, and 5 post-O). Once I get results I?d be more than glad to share them with you guys.

I also want to add that I am going on a student exchange for 5 months, and I?m debating whether it would be better to get an apartment on my own or share one with other students. If anyone has experience on this topic or would like to share their thoughts please feel free to do so. Thanks!

News:

Author Topic: Members' Compilation and Suggestions for POIS Summary (Read 111135 times)

Clycos

Clycos