Author Topic: Colm's 28 Month Trial with Vagus Nerve Stimulation  (Read 37047 times)

COLM_2

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Re: Colm's 28 Month Trial with Vagus Nerve Stimulation
« Reply #80 on: July 17, 2019, 02:40:32 PM »
Hello,

I've received following information for the tens eco2: Following your request, we inform you that we deliver anywhere in the world (delivery times are increased depending on the destination + shipping).
In order to answer your question regarding a quotation, please tell us the details of the order and the country of destination.

Is someone interested in this device?
Please tell me if you want further information or directly acquire the tens.

I can tell you that in my case after 8 weeks of use I feel a clear improvement of my symptoms including brain fog and nervousness in general.

I hope also you understand my poor english. ;-)

Many thanks,
Pharayema :-)
Thanks for updating Pharayema,

Great to hear of your improvements.

Was there also a price on this tens unit?

PS. Your English was fine.

Kind regards,
Colm

Formerly user COLM (previous username accidentally deleted). Few decades with POIS.

demografx

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Re: Colm's 28 Month Trial with Vagus Nerve Stimulation
« Reply #81 on: July 17, 2019, 03:00:30 PM »
Thanks, COLM_2!
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

swell

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Re: Colm's 28 Month Trial with Vagus Nerve Stimulation
« Reply #82 on: July 17, 2019, 03:46:07 PM »
Hello Colm, Vagus Nerve seems very critical.  I am convinced now that 'Growth factor' deficiency is at the heart of POIS.  Vagus nerve is critical to stimulate Growth factors and Thyroid which have systemic implications from digestive tracks, vocal and speech organs, and the Brain.  Our principal problem is energy production/storage impairment.  And this produces cascade of issues for us, one that our epithelium across the body is thin - which predisposes us to allergans like 'semen', to the fact that our body's ability to rapidly replenish following ejaculation is impaired.    

While this tens unit is great, the 1000 dollar question, "how to in a clinically significant ways stimulate Vagus Nerve".  Would you or someone know where these electrodes exactly are placed at??? When I research, I dont see effective ways, other than to implant a stimulator inside your neck (which I dont want to). 
POIS Free, 2+ yrs (occasional/predictive lapses)
Pois symptoms: Peripheral (Skin: Urticaria, dryness, pale blotchy skin), Exasperation of: [Nerve weakness, Muscle weakness + Mental (CNS: Brain Fog, Irritation, Isolation, Speech lethargy, Anxiety)].
Other conditions: ASD, ADD, GA

demografx

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Re: Colm's 28 Month Trial with Vagus Nerve Stimulation
« Reply #83 on: July 17, 2019, 08:32:33 PM »

...our body's ability to rapidly replenish following ejaculation is impaired.    


This had been my main POIS theory for a number of years. I lost interest because I couldn’t back it up. But today not totally denying that it remains a possibility.
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

pharayema

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Re: Colm's 28 Month Trial with Vagus Nerve Stimulation
« Reply #84 on: July 18, 2019, 11:03:28 AM »
Hello,

I've received following information for the tens eco2: Following your request, we inform you that we deliver anywhere in the world (delivery times are increased depending on the destination + shipping).
In order to answer your question regarding a quotation, please tell us the details of the order and the country of destination.

Is someone interested in this device?
Please tell me if you want further information or directly acquire the tens.

I can tell you that in my case after 8 weeks of use I feel a clear improvement of my symptoms including brain fog and nervousness in general.

I hope also you understand my poor english. ;-)

Many thanks,
Pharayema :-)
Thanks for updating Pharayema,

Great to hear of your improvements.

Was there also a price on this tens unit?

PS. Your English was fine.

Kind regards,
Colm

Hello,

you have to count 249? for the tens + 89? for Kit nerf vague tVNS (auricular electrode).

Please feel free to contact me for more information.

Kind regards,
PY

pharayema

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Re: Colm's 28 Month Trial with Vagus Nerve Stimulation
« Reply #85 on: July 18, 2019, 11:08:18 AM »
Hello Colm, Vagus Nerve seems very critical.  I am convinced now that 'Growth factor' deficiency is at the heart of POIS.  Vagus nerve is critical to stimulate Growth factors and Thyroid which have systemic implications from digestive tracks, vocal and speech organs, and the Brain.  Our principal problem is energy production/storage impairment.  And this produces cascade of issues for us, one that our epithelium across the body is thin - which predisposes us to allergans like 'semen', to the fact that our body's ability to rapidly replenish following ejaculation is impaired.    

While this tens unit is great, the 1000 dollar question, "how to in a clinically significant ways stimulate Vagus Nerve".  Would you or someone know where these electrodes exactly are placed at??? When I research, I dont see effective ways, other than to implant a stimulator inside your neck (which I dont want to).

Hello,

i have, with advice from professor Amarenco, to place the electrode in my cymba conchae (left ear).

Hope this help?

PY

swell

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Re: Colm's 28 Month Trial with Vagus Nerve Stimulation
« Reply #86 on: July 18, 2019, 03:26:46 PM »
You are right Demografx, and there is a bit more to it.  I will create a new thread and post this theory in depth I can.  Folks solution is here, we have suffered enough (at least I have a lot).


...our body's ability to rapidly replenish following ejaculation is impaired.    


This had been my main POIS theory for a number of years. I lost interest because I couldn’t back it up. But today not totally denying that it remains a possibility.
POIS Free, 2+ yrs (occasional/predictive lapses)
Pois symptoms: Peripheral (Skin: Urticaria, dryness, pale blotchy skin), Exasperation of: [Nerve weakness, Muscle weakness + Mental (CNS: Brain Fog, Irritation, Isolation, Speech lethargy, Anxiety)].
Other conditions: ASD, ADD, GA

swell

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Re: Colm's 28 Month Trial with Vagus Nerve Stimulation
« Reply #87 on: July 18, 2019, 03:35:34 PM »
Thanks.  The ear electrode is intriguing, I have a Tens unit at home (in pictures it looks identical with pads you place on skin), wonder if these ear electrodes would fit into it.

Hello Colm, Vagus Nerve seems very critical.  I am convinced now that 'Growth factor' deficiency is at the heart of POIS.  Vagus nerve is critical to stimulate Growth factors and Thyroid which have systemic implications from digestive tracks, vocal and speech organs, and the Brain.  Our principal problem is energy production/storage impairment.  And this produces cascade of issues for us, one that our epithelium across the body is thin - which predisposes us to allergans like 'semen', to the fact that our body's ability to rapidly replenish following ejaculation is impaired.    

While this tens unit is great, the 1000 dollar question, "how to in a clinically significant ways stimulate Vagus Nerve".  Would you or someone know where these electrodes exactly are placed at??? When I research, I dont see effective ways, other than to implant a stimulator inside your neck (which I dont want to).

Hello,

i have, with advice from professor Amarenco, to place the electrode in my cymba conchae (left ear).

Hope this help?

PY
POIS Free, 2+ yrs (occasional/predictive lapses)
Pois symptoms: Peripheral (Skin: Urticaria, dryness, pale blotchy skin), Exasperation of: [Nerve weakness, Muscle weakness + Mental (CNS: Brain Fog, Irritation, Isolation, Speech lethargy, Anxiety)].
Other conditions: ASD, ADD, GA

demografx

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Re: Colm's 28 Month Trial with Vagus Nerve Stimulation
« Reply #88 on: July 18, 2019, 03:47:56 PM »
swell, maybe pharayema can find out from Prof Amarenco? I think the ear electrode could be important for POIS.

Everyone: please keep in mind this is all VERY experimental.
« Last Edit: July 18, 2019, 03:49:52 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

pharayema

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Re: Colm's 28 Month Trial with Vagus Nerve Stimulation
« Reply #89 on: August 01, 2019, 07:41:24 AM »
Hello,

I am feeling better and better, i can tell you after nearly 11 weeks of therapy i think the tVNS with the tens Eco2 is a good solution for me.
I am also on week 6 with no O so i think it's correlated with the general good results, what do you think?

I'll receive a second tens device early next week for tests only, if someone is interested, please mp.

Many thanks,
Raphael

demografx

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Re: Colm's 28 Month Trial with Vagus Nerve Stimulation
« Reply #90 on: August 01, 2019, 12:05:42 PM »
Hello,

I am feeling better and better, i can tell you after nearly 11 weeks of therapy i think the tVNS with the tens Eco2 is a good solution for me.
I am also on week 6 with no O so i think it's correlated with the general good results, what do you think?

I'll receive a second tens device early next week for tests only, if someone is interested, please mp.

Many thanks,
Raphael
Great to hear. Thanks for reporting!
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

FernandoPOIS

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Re: Colm's 28 Month Trial with Vagus Nerve Stimulation
« Reply #91 on: August 01, 2019, 03:46:05 PM »
I would like to remind you that it may not be necessary to stimulate the vagus nerve. It may be that just releasing a possible nerve compression in its path or acting to lengthen the nerve is effective. To further improve, perhaps a correction in the chemical imbalance of neurotransmitters may be necessary.

My proposal: https://poiscenter.com/forums/index.php?topic=2714.0

My POIS only happens with masturbation. Normal sex does not generate POIS symptoms. My POIS is related to me mood and the health of my cervical spine. Dopamine/Inflammation/Body constitution (genetics) are factors that contribute to POIS.

demografx

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Re: Colm's 28 Month Trial with Vagus Nerve Stimulation
« Reply #92 on: August 01, 2019, 05:18:43 PM »
Thanks, FernandoPOIS.
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

POISse

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Re: Colm's 28 Month Trial with Vagus Nerve Stimulation
« Reply #93 on: August 21, 2019, 12:29:31 PM »
I met with Dr Amarenco 2 times. The last time was last year and he mentioned this device saying it was being built.

Two 2 weeks ago, I sent him a mail out of nowhere asking about the device and he replied that there were planning a specific study for its use in the context of POIS. Now that I see this post it makes more sense.

I'll try to see him shortly to know more.

Cheers,

POISse

demografx

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Re: Colm's 28 Month Trial with Vagus Nerve Stimulation
« Reply #94 on: August 21, 2019, 01:47:02 PM »
POISse, THANK YOU very much for this update!
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

pharayema

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Re: Colm's 28 Month Trial with Vagus Nerve Stimulation
« Reply #95 on: August 21, 2019, 02:46:18 PM »
Hello,

I am using the tens device nearly 14 Weeks and i can tell all of you it changed my Life in a lot ways.
I feel a lot better with claritin and the therapy but i need a little more time to make a dedicated summary of all changes of my feeling.

Please stay tuned.  :)

A bientot,
PY

demografx

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Re: Colm's 28 Month Trial with Vagus Nerve Stimulation
« Reply #96 on: August 21, 2019, 04:09:22 PM »
pharayema, THANK YOU very much!
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: Colm's 28 Month Trial with Vagus Nerve Stimulation
« Reply #97 on: November 09, 2019, 08:08:57 PM »
To our NORD POIS Research Team 11/9/19

Hi Dr. Lorenz,
Hi Dr. Prause,

The forum has done some exploration of the relationship between POIS and vagal dystonia, with some promising but not yet definitive experiments with tVNS devices.

Is there any room for this type of inclusion or consideration  in your current study?

Best regards,
Demo


Hi Demo;

Yes, we have taken vagal contributions into account.

Cheers
Dr L

« Last Edit: November 23, 2019, 03:53:30 AM by COLM_2 »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

COLM_2

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Re: Colm's 28 Month Trial with Vagus Nerve Stimulation
« Reply #98 on: November 23, 2019, 03:56:49 AM »
Hi All (from Colm here),

Long time no posts - sorry.

Thanks for keeping this thread alive. I think it deserves to sit alongside other helpful threads.

Am now over 3 years of daily use / experimentation with (now two) tVNS devices, since the original research centering on ‘Vagal Dystonia’ inspired me to take a risk and delve in a practical way, deep into the VNS world.

I plan to give a meaningful and honest update of my own experience since my last update, posted here by year end. Pharayema’s experiential holds promise also and is obviously helping his version of POIS also.

It may be of interest to some POISers, but as I know from 45 years with the condition, and the information I have seen here since finding POISforum in 2013, there is a variance of POIS experiences and a still wide set of beliefs around how to manage the myriad of symptoms or finally solve the puzzle.

Am very excited to learn more from the new study this year also, and I believe the focus and process will be complementary to other theories like Vagus nerve. Anything that helps guys who are still struggling is hugely valuable. Fair play to the lads on the team here for getting NORD to source a modern and forward thinking research team on board.

Best regards,
Colm
« Last Edit: November 27, 2019, 03:27:40 PM by demografx »
Formerly user COLM (previous username accidentally deleted). Few decades with POIS.

demografx

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Re: Colm's 28 Month Trial with Vagus Nerve Stimulation
« Reply #99 on: November 23, 2019, 01:49:33 PM »
Thank you, COLM!!
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business