Colm's 28 Month Trial with Vagus Nerve Stimulation

[demografx]

My pleasure!

[demografx]

Bonjour pharayema    ( I am also French speaking)

The doctors you saw were aware of what POIS is ?   Where they from Dr Amarenco clinic at La Sorbonne ?

Hello monsieur,

yes, they were not only aware, they know several patients that have POIS. I met Professor Amarenco twice and i'll see him again in the next months.

@Colm: can you please tell me something about the mA you use?

Merci beaucoup a vous tous. :-)

Very interesting development!

[COLM_2]

Bonjour pharayema    ( I am also French speaking)

The doctors you saw were aware of what POIS is ?   Where they from Dr Amarenco clinic at La Sorbonne ?

Hello monsieur,

yes, they were not only aware, they know several patients that have POIS. I met Professor Amarenco twice and i'll see him again in the next months.

@Colm: can you please tell me something about the mA you use?

Merci beaucoup a vous tous. :-)

Hello Bonjour Pharayema,

In late 2016, I purchased (then new) Nervana tVNS (ear canal) Vagus nerve stimulator. Have used at least twice per day since. I purchased an updated version in early 2018. I don’t think they make / sell it or if they do, it is not updated and they are not manufacturing any more. It is/was a general, not specific tens type machine. I have not tried a tens machine.

I have written to Demo and the mods directly, on other Cerbomed idea.

Regards, Au revoir,
Colm

[pharayema]

Bonjour pharayema    ( I am also French speaking)

The doctors you saw were aware of what POIS is ?   Where they from Dr Amarenco clinic at La Sorbonne ?

Hello monsieur,

yes, they were not only aware, they know several patients that have POIS. I met Professor Amarenco twice and i'll see him again in the next months.

@Colm: can you please tell me something about the mA you use?

Merci beaucoup a vous tous. :-)

Hello Bonjour Pharayema,

In late 2016, I purchased (then new) Nervana tVNS (ear canal) Vagus nerve stimulator. Have used at least twice per day since. I purchased an updated version in early 2018. I don’t think they make / sell it or if they do, it is not updated and they are not manufacturing any more. It is/was a general, not specific tens type machine. I have not tried a tens machine.

I have written to Demo and the mods directly, on other Cerbomed idea.

Regards, Au revoir,
Colm

Bonsoir monsieur,

I understand, i use my tens eco2 only once a day for 60 minutes with 25Hz 50us at 25mA like Professor Amarenco told me.
And you? I am only on day 3 but i think i feel a lot better. I also have to Say i am on claritin 10mg once a day since september 2017, and toviaz 4mg every second day since Summer 2018.

I've tried a lot of drugs and Supplements, Made hundred of tests over more than 2 decades with no positiv Results, but i think i am on the right way yet. I discover my pois relatively late on my way early 2015 with your superbe informativ forum and it took me 3 years to meet Dr. Bignami, an Assistent of the Professor Amarenco on the Sorbonne, in Paris and i Can Say they understand and know everything about pois and how about to treat some Patients like me with tvns for exemple.

Feel free to contact me on Skype or wa, je suis pr?t a discuter avec vous si vous ?tes int?ress? !?

Many thanks. ;-)

[Quantum]

Bonjour pharayema    ( I am also French speaking)

The doctors you saw were aware of what POIS is ?   Where they from Dr Amarenco clinic at La Sorbonne ?

Hello monsieur,

yes, they were not only aware, they know several patients that have POIS. I met Professor Amarenco twice and i'll see him again in the next months.

@Colm: can you please tell me something about the mA you use?

Merci beaucoup a vous tous. :-)

Hello Bonjour Pharayema,

In late 2016, I purchased (then new) Nervana tVNS (ear canal) Vagus nerve stimulator. Have used at least twice per day since. I purchased an updated version in early 2018. I don’t think they make / sell it or if they do, it is not updated and they are not manufacturing any more. It is/was a general, not specific tens type machine. I have not tried a tens machine.

I have written to Demo and the mods directly, on other Cerbomed idea.

Regards, Au revoir,
Colm

Bonsoir monsieur,

I understand, i use my tens eco2 only once a day for 60 minutes with 25Hz 50us at 25mA like Professor Amarenco told me.
And you? I am only on day 3 but i think i feel a lot better. I also have to Say i am on claritin 10mg once a day since september 2017, and toviaz 4mg every second day since Summer 2018.

I've tried a lot of drugs and Supplements, Made hundred of tests over more than 2 decades with no positiv Results, but i think i am on the right way yet. I discover my pois relatively late on my way early 2015 with your superbe informativ forum and it took me 3 years to meet Dr. Bignami, an Assistent of the Professor Amarenco on the Sorbonne, in Paris and i Can Say they understand and know everything about pois and how about to treat some Patients like me with tvns for exemple.

Feel free to contact me on Skype or wa, je suis pr?t a discuter avec vous si vous ?tes int?ress? !?

Many thanks. ;-)

Bonjour Pharayema,

I was quite sure your doctor was from La Sorbonne neuro-urology research team, because I pretty much had contacted all medical teams that know about POIS . Dr Amarenco is already on my POIS Doctors list, too ( http://poiscenter.com/forums/index.php?topic=2575.msg22338#msg22338  )

For the benefit of the members here, I would have a few questions for you:

- Does the tens you are using have 2 or 4 pads ?

- where do you, exaclty,  place the pads ?   Did Dr Amarenco tell you where to place the pads ?


Merci, and keep us updated on your progress   

[pharayema]

Bonjour pharayema    ( I am also French speaking)

The doctors you saw were aware of what POIS is ?   Where they from Dr Amarenco clinic at La Sorbonne ?

Hello monsieur,

yes, they were not only aware, they know several patients that have POIS. I met Professor Amarenco twice and i'll see him again in the next months.

@Colm: can you please tell me something about the mA you use?

Merci beaucoup a vous tous. :-)

Hello Bonjour Pharayema,

In late 2016, I purchased (then new) Nervana tVNS (ear canal) Vagus nerve stimulator. Have used at least twice per day since. I purchased an updated version in early 2018. I don’t think they make / sell it or if they do, it is not updated and they are not manufacturing any more. It is/was a general, not specific tens type machine. I have not tried a tens machine.

I have written to Demo and the mods directly, on other Cerbomed idea.

Regards, Au revoir,
Colm

Bonsoir monsieur,

I understand, i use my tens eco2 only once a day for 60 minutes with 25Hz 50us at 25mA like Professor Amarenco told me.
And you? I am only on day 3 but i think i feel a lot better. I also have to Say i am on claritin 10mg once a day since september 2017, and toviaz 4mg every second day since Summer 2018.

I've tried a lot of drugs and Supplements, Made hundred of tests over more than 2 decades with no positiv Results, but i think i am on the right way yet. I discover my pois relatively late on my way early 2015 with your superbe informativ forum and it took me 3 years to meet Dr. Bignami, an Assistent of the Professor Amarenco on the Sorbonne, in Paris and i Can Say they understand and know everything about pois and how about to treat some Patients like me with tvns for exemple.

Feel free to contact me on Skype or wa, je suis pr?t a discuter avec vous si vous ?tes int?ress? !?

Many thanks. ;-)

Bonjour Pharayema,

I was quite sure your doctor was from La Sorbonne neuro-urology research team, because I pretty much had contacted all medical teams that know about POIS . Dr Amarenco is already on my POIS Doctors list, too ( http://poiscenter.com/forums/index.php?topic=2575.msg22338#msg22338  )

For the benefit of the members here, I would have a few questions for you:

- Does the tens you are using have 2 or 4 pads ?

- where do you, exaclty,  place the pads ?   Did Dr Amarenco tell you where to place the pads ?


Merci, and keep us updated on your progress   

Bonjour Quantum,

- the tens eco 2 has 2 pads
- i already use an ear electrode for vaginal stimulation in the cymbal Concha in my left ear Yes, i met him on 26/04/19 and he tell me to use it like this

But he advised me to test what the best for me with the mA i use and i started the first time at 13 mA and yesterday i was testing 24 mA and it was all ok for me, that's because i ask colm about his feeling and number he uses for his therapy!?

Many thanks and a bientot. :-)

[demografx]

Dr Komisaruk’s
NEMOS tVNS device
Now sold by
tVNS Technologies GmbH
(They took over Cerbomed last year and are continuing Cerbomed’s research and scientific development of transcutaneous vagus nerve stimulation

COLM, I just realized that this $5,000 device is now available for RENTAL. I will ask POISCenter’s Anonymous Donor if he would like to split the monthly charge to try it out on our POIS!

You’re welcome to join us!

Best
Demo


pps -      Found it!

             $334.21 one-time rental charge
             $88.09   monthly

CORRECTION: Colm thankfully pointed out my error: the above tVNS ***rental***
device is for epilepsy settings only. We can explore the $3,000 device to test for POIS settings.

Thanks, Colm!

[pharayema]

Dr Komisaruk’s
NEMOS tVNS device
Now sold by
tVNS Technologies GmbH
(They took over Cerbomed last year and are continuing Cerbomed’s research and scientific development of transcutaneous vagus nerve stimulation

COLM, I just realized that this $5,000 device is now available for RENTAL. I will ask POISCenter’s Anonymous Donor if he would like to split the monthly charge to try it out on our POIS!

You’re welcome to join us!

Best
Demo


pps -      Found it!

             $334.21 one-time rental charge
             $88.09   monthly

CORRECTION: Colm thankfully pointed out my error: the above tVNS ***rental***
device is for epilepsy settings only. We can explore the $3,000 device to test for POIS settings.

Thanks, Colm!

Why do you need this device? I have one and it really worked well and cost nearly 1/10 from it.
I am also advised how to use it like I described before, feel free to ask me what you need to know exactly. I have met Professor Amarenco, I think he understands it very good and know what to do :-)

Many thanks,
RM

[demografx]

RM, thank you! You’re right, we don’t have to use this device (I edited “need” to “can explore”). Some of us are exploring several different devices, recommended and/or used by different researchers. Wonderful to know your experience!

[demografx]

Just like everything else at this forum, tVNS is not a “proven” methodology for POIS.

We are all exploring POIS therapy,  often in very different and seemingly contradictory ways.

Unfortunately, POIS is still in a “primitive” stage of medical understanding.

Until our POIS research efforts definitively mature, my best wishes to everyone for finding something that works...for YOU!

[Nas]

I think I've reached a conclusion that we shouldn't even try to make sense of POIS out side of academic research efforts. I think what we need to do is explore as much treatments ans tests as possible and see where that leads us. Otherwise nothing in this forum throughout it's history seems concrete or consistent, but there are commonalities. Yet I don't feel we have what it takes to formulate a POIS theory that is applicable to all.

[fernab]

Why do you need this device? I have one and it really worked well and cost nearly 1/10 from it.
I am also advised how to use it like I described before, feel free to ask me what you need to know exactly. I have met Professor Amarenco, I think he understands it very good and know what to do :-)

Many thanks,
RM

Hi RM,

I have read the explanation of the device that you use and I have to confess that it has impressed me ...

And besides that, are you noticing improvement?

RM, how much this device cost?
Do you know if it's for sale throughout Europe?

The explanation given on how the device works, makes a lot of sense for me, to think what could be the relationship between the hormonal, nervous and immune system!!

Regardless of that, the result is the most important and you are telling us it's working for you!....

For me it's great news!!! Even if for the moment we are not sure that this device could work for every Poiser.....

Amazing....!

[demografx]

Thanks, fernab. Interesting post!

[pharayema]

Why do you need this device? I have one and it really worked well and cost nearly 1/10 from it.
I am also advised how to use it like I described before, feel free to ask me what you need to know exactly. I have met Professor Amarenco, I think he understands it very good and know what to do :-)

Many thanks,
RM

Hi RM,

I have read the explanation of the device that you use and I have to confess that it has impressed me ...

And besides that, are you noticing improvement?

RM, how much this device cost?
Do you know if it's for sale throughout Europe?

The explanation given on how the device works, makes a lot of sense for me, to think what could be the relationship between the hormonal, nervous and immune system!!

Regardless of that, the result is the most important and you are telling us it's working for you!....

For me it's great news!!! Even if for the moment we are not sure that this device could work for every Poiser.....

Amazing....!

Hi Fernab,

like I told it these days I can tell you that I have a mild effect of my first sessions. I feel relaxed, my brain fog is lower, but I took also claritin since nearly 21 months and it also helped me a lot to manage my global situation.

I ask my store where they can send it, the costs for the tens eco2 + ear kit are nearly 380$ without any shipping costs.

Once I have the answers I came back to you.

But feel free to contact me for further information. :-)

Thx.

[fernab]

Thank you Quantum for that information!

Hope Pharayema is able to see It!

[demografx]

I second fernab’s thanks, Quantum!

[pharayema]

Thank you Quantum for that information!

Hope Pharayema is able to see It!

Ive Read this and will try it next monday  !

Merci.

[pharayema]

Hello,

I deleted my cookies all and also tried it with the google chrome browser, unfortunately with the same result. :-/

Another ideas?

Many thanks,
Pharayema

[Quantum]

Hello,

I deleted my cookies all and also tried it with the google chrome browser, unfortunately with the same result. :-/

Another ideas?

Many thanks,
Pharayema

Hi Pharayema,

Then, send me in PM the IP of the device on which you receive the ban message, and I will check if this IP is in the ban list, from a previous ban ( this forum, because of the recurring presence of word like orgasm, ejaculation, semen, and the like, has a massive history of spamming).  I am about to leave for work for the day, but will check this tonight.

The IP of the device from which you wrote your latest message is not, of course, on the ban list.

[Quantum]

Hello,

I deleted my cookies all and also tried it with the google chrome browser, unfortunately with the same result. :-/

Another ideas?

Many thanks,
Pharayema

Also, be sure you have also empty the cache of your browsers (not only deleting the cookies)