Author Topic: Should I tell my parents about POIS?  (Read 1089 times)

IWontGiveUp

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Should I tell my parents about POIS?
« on: February 20, 2019, 08:01:17 AM »
I'm 17 and have been suffering from POIS for around 2.5 years now. It ruined my highschool experience and grades.

Lately my school performance has been the worst it's ever been and because of that my parents are on my ass ( I dont blame them since this last year is very important).

Now I am really considering telling them about it but I don't know if I should and how to go about it...

Up until now I've only told them about my fatigue problems and they took me to take bloods and they came back fine, Ive been to acupuncture aswell but didnt help.

I'm worried they are going to write it off as an excuse for my bad grades or not even believe me since it's such a rare/unknown disease.

But on the other hand if it goes well I could show them the forum and they could help me buy some of the supplements that are supposed to help maybe. Also it would explain why I look like a drug addict while in POIS hahah.

What do you guys think?

Muon

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Re: Should I tell my parents about POIS?
« Reply #1 on: February 20, 2019, 09:07:24 AM »
I think you should tell them. Let them read this paper first for a better understanding https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5001999/
When they show interest after reading this article you may let them know about the forum.


« Last Edit: February 20, 2019, 04:04:52 PM by certainlypois2 »

certainlypois2

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Re: Should I tell my parents about POIS?
« Reply #2 on: February 20, 2019, 04:05:08 PM »
I think you should tell them. Let them read this paper first for a better understanding https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5001999/
When they show interest after reading this article you may let them know about the forum.

And if they are still skeptical, there are about 6 more papers about patients from around the world you can show them. There also two videos you can show them( one done by TLC in the us and the other by an Australian channel)
You can find links to those papers in the books,articles and references section on the main page.
« Last Edit: February 20, 2019, 04:11:16 PM by certainlypois2 »

Muon

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Re: Should I tell my parents about POIS?
« Reply #3 on: February 26, 2019, 03:41:28 PM »
Have you already told them?

IWontGiveUp

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Re: Should I tell my parents about POIS?
« Reply #4 on: February 27, 2019, 03:20:44 AM »
Have you already told them?

No, I will post an update if I tell them.

Journey

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Re: Should I tell my parents about POIS?
« Reply #5 on: August 28, 2020, 11:36:41 AM »
Have you already told them?

No, I will post an update if I tell them.
Update
INTP, 19 y.o. aware of POIS since 2019 when realized by abstaining that O/WD gives POIS, likely had it since puberty, fatigue, brainfog, clumsier, slower thinking/processing, voice volume goes down, sometimes harder to look in eyes, lower stamina/strength

BoneBroth

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Re: Should I tell my parents about POIS?
« Reply #6 on: November 07, 2020, 05:47:56 PM »
At that age, when I started to experience POIS, I pretty soon understood that it was triggered by orgasm but I was too shy to bring up sexual issues to my parents so kept it only about the symptoms (hot flashes, zits etc). They didn't have to be doctors or rocket scientist to see that I was in agony, but I guess they "diagnosed" me as somewhat lazy or ambitionless. That was tough. Parents should be like Sherlock Holmes when it comes to their kids health and not smooth over such things.

Years and decades passed and just by exhaustion I finally got into the details with my dad (and a family related doctor). The outcome? Unfortunatly zero understanding but very needful echomonical support. The understanding came from my own research and handpicked therapists.

Tell your parents and see what happens! Just explain the symptoms if you like and reference to others in this group. Maybe you should have some other POISer here to talk with your parents in the phone to explain the seriousity of this. They need to know the seriousity, to hear about what it can lead to later in life. It's very hard to "preach in your own town". You might try to convince your family or girlfriend something 1 000 times, but when they hear the exacly same words from an outsider (specificallly someone qualified) they just need to hear it once to believe it... sooooo frustrating...

One thing I learned is; when it comes to your personal health issues (or probably everything in life) there is noone else resposible than yourself. Noone else out there will ride in like a knight in your life and fix all your problems. Usually, to get the wheel starts spinning, you have to get down to it and get the job done yourself! My best advice is: Become your own amateur health detective and try to find new little pieces of the puzzle every day. Many in this forum has found ways to controll their POIS to 90%! Start organize POIS-information and what people to contact. If one therapist or doctor fails to help you, get another, and another, and another... Giving up is simply just not an option. The one who sais "I've tryed it all", hasn't in fact tryed much at all.

Oh, I see now that this post was from a year ago, well if not the author than maybe someone else would benefit. It's an important question. :)
« Last Edit: November 07, 2020, 06:15:38 PM by BoneBroth »