Author Topic: Diet/Supplements that 98% manages my POIS  (Read 5294 times)

BuckarooBanzai88

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Diet/Supplements that 98% manages my POIS
« on: September 30, 2018, 03:05:53 PM »
Diet
Most Important
No Gluten
No Nightshade
No Corn
No Nuts

Helpful for Me
No Eggs
No Dairy

Supplements
Most Important
10,000 IU Vitamin D
500mg Magnesium

Helpful for Me
Multivitamin
Fish Oil
Salt/Zinc/Calcium/Potassium --> Important for Vitamin D/Magnesium balance

Latest Update
I've added a substantial dose of Vitamin D to my supplements, and it's as if the light switch to my world has been turned on.  It cut my POIS symptoms down to a very mild sense of congestion in my head, and a mild fatigue for about half a day.  In general, my energy levels are WAY up and my mood has improved dramatically.

For reference, my blood tests said I was at 40 ng/ml and that is technically within reference range.  Obviously it wasn't enough.  Different doctors have different ranges.  The vitamin D council says 60-80.  I'm shooting for 80, and will continue having my blood tested until I get there.

One test that was very helpful for me is called the Spectracell vitamin test.  It's a very precise vitamin deficiency test which highlighted Vitamin D for me when the normal blood test didn't.

About Me
I've struggled with bouts of severe depression/anxiety/mental fog all of my adult life.  It was only six years ago that I started seeking help. 

I saw an array of doctors, mental health professionals, and even a therapist.  I tried many different anti-depressants, supplements, and nootropics.  While the SSRI's actually did make me feel great, they made me a bit manic and disrupted my working memory to such a degree that I stopped taking them.  I can send a list of all that I took if anyone is interested.  Lexapro and Brintellix were the most helpful with the fewest side effects for ME.  However, I couldn't tolerate the mental blunting from either.

When I had exhausted as many doctors as I cared to, I still didn't want to give up on life.  I searched endlessly online for similar stories and possible "fixes."  What I encountered that resonated most closely with my symptoms was Celiac disease or non-celiac gluten sensitivity.  I tried going on a gluten free diet and felt better than I had since I went through puberty.  I was elated. 

As time went by, I slowly started feeling down.  I'd get light headed after every meal, my energy levels were nil, and I'd still have inexplicable bouts of depression/anxiety/brainfog that lasted over a week.  At first I thought I wasn't being careful enough with gluten, so I limited my diet down to only whole foods.  Right now I only eat:
Sweet potato
garlic
onion
chicken
tofu
salad
carrot
celery
cauliflower
broccoli
olive oil
coconut water
peanut butter
rice
strawberry/raspberry jam
maple syrup
vanilla
cinnamon
pepper salt

I limited myself to this diet with the discipline of a Shaolin monk. 

After doing lots more research, I decided to try taking magnesium because the exhaustion, lightheadedness after meals, and depressed mood all seemed to fit.  The first three days of taking it, I was EXHAUSTED.  I was so, so tired.  On the fourth day, I suddenly had tons of energy, my mood was way up, and I was no longer getting light headed after meals.  I still take magnesium (and calcium so I don't become hypocalcemic).  My understanding is that when you have an deficit of magnesium, your body sees the new magnesium and wants to use it all up immediately, even though your reserves are not back to a healthy level.  You spend it all, then feel utterly exhausted.  It took about a week (I know I said four days) to fully accommodate to having magnesium in my body again.

You may have noticed I haven't once mentioned POIS.  That's because I still didn't know about it at this point.  After all of these magnificent revelations that increased my quality of life dramatically, I STILL had inexplicable bouts of extreme depression/anxiety/brain fog/exhaustion (sensitivity to noise too).  I had begun recording my meals and feelings in a "gut diary" soon after I discovered my sensitivity to gluten.  I can't recommend doing this enough.  I realized that every time I had an ejaculation, a bout of depression would follow for a week afterwards. I continued googling since that had availed me greatly.  This is when I discovered POIS.

I went to my GP, a urologist, a gastroenterologist.  None of them had heard about it except the urologist. 

My GP had simply never heard of it.

The gastroenterologist had never heard of it, but she also had me do some blood tests.  (The timeline here is all wacky, but I'm just including salient details).  The blood tests came back saying I had elevated liver enzymes which I ignored for a year.

One year later, I saw the urologist about POIS.  She had me do a dexamethasone suppression test to measure my testosterone, prolactin, and a few other things.  The night I took dexamethasone, I had a wet dream.  The following day I had NO symptoms!  At that point I was reasonably certain the gluten thing was an auto-immune thing, but after this test, I felt certain the POIS thing was also auto-immune related, most likely the very same illness that makes it horrible for me to eat gluten.

At any rate, she suggested I start taking NSAIDs whenever I have an orgasm.  I told her, I probably shouldn't because I have elevated liver enzymes.  She checked my chart (I'm still in awe of the incompetence) and had me get my liver checked again.  This time, the tests came in twice as high so I had even more tests done.  As it turns out, I have heterozygous genetic disorder that causes antitrypsin deficiency.  This is used to moderate immune system response in the lungs to foreign particulate.  It can cause liver disorder.  So I saw a hepetologist.  He wasn't concerned since i'm only heterozygous, but he wanted to do a liver biopsy.  He didn't even ask about my diet or anything so I said no.

I did more reaseach and came up with five different things I could try to make my liver enzymes go down.  The very first idea I had was to stop eating nightshade.  I ran my ideas by yet another doctor and my GP, they both agreed my 4-5 step experiment would be worth while.

One week after stopping nightshade, I had a wet dream (I don't masturbate, or have sex or anything because of how horrible POIS is.  I'm sure y'all can relate).  The symptoms were about 50% as bad as they'd been a week before when I was still eating nightshade.  Moreover, the joints in my hands suddenly felt fluid.  They had been stiff for years, and I never even noticed until the stiffness was gone. 

I was reluctant to jump to conclusions about nightshade, so I just kept going.  After a month of no nightshade, my POIS symptoms (if I had a wet dream), were as follows:
Slight difficulty thinking in the morning
Slightly subdued mood until noon
normal by around 4:00pm.

It's been a week longs than a month now, and my symptoms are about half as bad as I just described.  I will say that if I become sick (with a cold or something), my immune system flares up and the symptoms return slightly, albeit much more mild than before.  Today, my symptoms are 98% resolved.

Apparently nightshade takes more than a month to completely exit you system so if you try this diet, give it time, be disciplined.



Anyways, that's my long winded story.  I had many food sensitivity tests (IgG, mediator release test, genetic tests).  The IgG said I was sensitive to banana/gluten/dairy/egg.  The mediator release test said I was sensitive to pork most of all (go figure).


I'm leaving lots out because there is so much data, and I've tried so many things.  I'm at a point now where I'm not afraid of trying to date, and i'm able to keep my mood consistent indefinitely.  I wouldn't say I'm cured, because I'm not.  I simply have a diet that can keep my immune system quiet to the point where I don't experience POIS symptoms.  We need research, but in the meantime, this is really helping me out, and I super hope it can help some of you guys too.

If you have any questions for me, please feel free to ask.  I'm not on here often, but I'll do my best.  This community has been very helpful for me, and if I can give back I will.


What I plan to do now is systematically reintroduce some of the foods I cut out back into my diet.  My hope is that one day I can start going to restaurants today, even if only sushi or something simple like that (no soy sauce though obviously).  I've had my blood taken two days ago to see if I'm deficient in any other vitamins/minerals and other odd things like choline and inositol (this is all to see if I can help my liver out some).  I also have more ALT/AST liver enzyme test results coming to me next week to see if nightshade helped with that too.
« Last Edit: March 31, 2019, 06:47:33 PM by BuckarooBanzai88 »

Hopeoneday

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Re: Diet/Supplements that 98% manages my POIS
« Reply #1 on: October 02, 2018, 05:42:27 AM »
Quote
As it turns out, I have heterozygous genetic disorder that causes antitrypsin deficiency.  This is used to moderate immune system response in the lungs to foreign particulate.  It can cause liver disorder.  So I saw a hepetologist.  He wasn't concerned since i'm only heterozygous, but he wanted to do a liver biopsy.  He didn't even ask about my diet or anything so I said no.

Hi, did you hawe breathing isues in coleration to this and odher symptomes, cemicals or smoke induced brake down of lung tisue etc...??

Can you post this medical test results in medcal tes results tread?
Dr-pois.

BuckarooBanzai88

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Re: Diet/Supplements that 98% manages my POIS
« Reply #2 on: October 06, 2018, 03:54:35 PM »
Hey there, the only two relevant tests I have are the following:

Alpha-1-Antitrypsin, Quant
67 mg/dL (Low)
Reference Range:100 - 190

and

Alpha-1-Antitrypsin Phenotype
MZ band(s)
Heterozygous for M and Z isoforms. This phenotype may be associated with modestly reduced alpha-1-antitrypsin concentrations.

I've never experienced lung problems.

Nas

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Re: Diet/Supplements that 98% manages my POIS
« Reply #3 on: October 06, 2018, 04:23:00 PM »
Hey there, the only two relevant tests I have are the following:

Alpha-1-Antitrypsin, Quant
67 mg/dL (Low)
Reference Range:100 - 190

and

Alpha-1-Antitrypsin Phenotype
MZ band(s)

Heterozygous for M and Z isoforms. This phenotype may be associated with modestly reduced alpha-1-antitrypsin concentrations.

I've never experienced lung problems.

Thanks Buckaroo this is a very important test.
You might not experience lung problems yet but in the future you will. You should definitely get treated.
Every one in this forum I believe should make this test just in case. 

Going less Crazy

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Re: Diet/Supplements that 98% manages my POIS
« Reply #4 on: November 03, 2018, 02:24:37 AM »
This topic gave me a chuckle.  Interesting I'm similar to you in the gluten, nightshade, egg area.  I'm getting better with dairy.  Nice to see someone also improving by diet.
My POIS managed with Diet (@ diet that 100% manages my pois)Believe my POIS stems from inflammation in the gut. O = neuro POIS from inflammation from the gut

Current supps: microdose of zyrtec and gaia liquid olive leaf extract for sleep. Micro astragalus and 1tsp ev olive oil for energy .

Observer

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Re: Diet/Supplements that 98% manages my POIS
« Reply #5 on: November 03, 2018, 05:20:59 AM »
All your diet seems to be low carbs/low sugar content. It is normally something that has helped other fellow POISers.

BuckarooBanzai88

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Re: Diet/Supplements that 98% manages my POIS
« Reply #6 on: December 02, 2018, 03:08:53 AM »
Just a quick update 2 months later.

I'm still sitting at 98% better so I think the strict removal of nightshade and gluten were what helped me the most.  I, as a result of eating gluten for years, was also diagnosed with "leaky gut" which caused me to become dizzy after eating, and fogged my mind.  I also led to several nutritional deficiencies that i've since remedied by taking several other different vitamins.

When I ejaculate now, I spend about a day feeling more anxious than normal.  The next day, I'm usually mostly back to normal.  It's 98% better than what it was, but still not 100% perfect.  I don't think I'm going to be able to do better.  I've been contemplating experimenting with NSAIDS and antidepressants once my liver tests are back to normal (hoping that happens, they're pretty close now).

Antidepressants are sometimes prescribed to people with IBS because it somehow helps mitigate symptoms.  NSAIDS would help with the inflammation I believe causes the anxiety/depression.  If I do those things I'll report back. 

I took antidepressants way back when I didn't know I was sensitive to gluten/nightshade and have POIS.  I thought it was affecting my memory at the time, and going off them did improve my memory.  It may still be the case, and I may give up on SSRI's, but I think it might be worth a shot since my mind was kind of blasted by POIS/gluten at the time anyways.

Limejuice

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Re: Diet/Supplements that 98% manages my POIS
« Reply #7 on: December 02, 2018, 04:26:24 AM »
BB, do you think you have leaky gut? Look at its healing diet and compare to yourself.

Quantum

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Re: Diet/Supplements that 98% manages my POIS
« Reply #8 on: December 02, 2018, 10:24:38 AM »
Just a quick update 2 months later.

I'm still sitting at 98% better so I think the strict removal of nightshade and gluten were what helped me the most.  I, as a result of eating gluten for years, was also diagnosed with "leaky gut" which caused me to become dizzy after eating, and fogged my mind.  I also led to several nutritional deficiencies that i've since remedied by taking several other different vitamins.

When I ejaculate now, I spend about a day feeling more anxious than normal.  The next day, I'm usually mostly back to normal.  It's 98% better than what it was, but still not 100% perfect.  I don't think I'm going to be able to do better.  I've been contemplating experimenting with NSAIDS and antidepressants once my liver tests are back to normal (hoping that happens, they're pretty close now).

Antidepressants are sometimes prescribed to people with IBS because it somehow helps mitigate symptoms.  NSAIDS would help with the inflammation I believe causes the anxiety/depression.  If I do those things I'll report back. 

I took antidepressants way back when I didn't know I was sensitive to gluten/nightshade and have POIS.  I thought it was affecting my memory at the time, and going off them did improve my memory.  It may still be the case, and I may give up on SSRI's, but I think it might be worth a shot since my mind was kind of blasted by POIS/gluten at the time anyways.

Hi Buckaroo,

I am glad that you have found a way to control your POIS symptoms.

Considering that you have a very significant level of relief with your method, and for over 2 months now, I have added you as a reference member, in my POIS Types chart, in section 7, the section about POIS type responding to gluten-free diet and other diets ( see at https://poiscenter.com/forums/index.php?topic=2338.msg19448#msg19448 ).
You are 100% responsible for what you do with anything I post on this forum and of any consequence it could have for you.  Forum rule: ""Do not use POISCenter as a substitute for, or to give, medical advice" Read the remaining part at http://poiscenter.com/forums/index.php?topic=1.msg10259#msg10259

Nas

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Re: Diet/Supplements that 98% manages my POIS
« Reply #9 on: December 02, 2018, 04:19:56 PM »
Just a quick update 2 months later.

I'm still sitting at 98% better so I think the strict removal of nightshade and gluten were what helped me the most.  I, as a result of eating gluten for years, was also diagnosed with "leaky gut" which caused me to become dizzy after eating, and fogged my mind.  I also led to several nutritional deficiencies that i've since remedied by taking several other different vitamins.

When I ejaculate now, I spend about a day feeling more anxious than normal.  The next day, I'm usually mostly back to normal.  It's 98% better than what it was, but still not 100% perfect.  I don't think I'm going to be able to do better.  I've been contemplating experimenting with NSAIDS and antidepressants once my liver tests are back to normal (hoping that happens, they're pretty close now).

Antidepressants are sometimes prescribed to people with IBS because it somehow helps mitigate symptoms.  NSAIDS would help with the inflammation I believe causes the anxiety/depression.  If I do those things I'll report back. 

I took antidepressants way back when I didn't know I was sensitive to gluten/nightshade and have POIS.  I thought it was affecting my memory at the time, and going off them did improve my memory.  It may still be the case, and I may give up on SSRI's, but I think it might be worth a shot since my mind was kind of blasted by POIS/gluten at the time anyways.
Glad it's working out for you, Buckaroo.
So a small question, is leaky gut syndrome an already existing issue, or is it a result of allergy to food?

BuckarooBanzai88

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Re: Diet/Supplements that 98% manages my POIS
« Reply #10 on: December 16, 2018, 02:33:54 AM »
@Quantum thanks!

@Limejuice/@Nas I was tested for and diagnosed with leaky gut using a gut permeability test of some sort.  I associate a lightheadedness/lack of focus after eating with leaky gut.  I've found that gluten/corn/(walnuts strangely) are the main foods that cause me to relapse those symptoms for upwards of a month.  I don't know if I'm correct attributing those symptoms that way, but it's sort of how I reason about my experience.

I'd assume my leaky gut is primarily caused my my food sensitivities, but I actually don't know.  I wish I had more answers. 


Another little update.  I recently had a setback with my POIS symptoms.  It's because of either vitamin c, vitamin b5, NAC, or pecans since I introduced them all without waiting to see if they affected POIS.  I only wanted to see if they caused a gluten reaction (which is sort of like POIS reaction for me).  After going back off the supplements and not eating pecans, I'm slowly going back to my baseline.  I'll have to re-introduce the vitamins much more slowly.  I'm thinking it was the pecans though since I have such trouble with walnuts.  One other symptom I failed to mention is acne.  I start getting acne whenever my immune system starts acting up.  Anyways, that's my little update.  I'll add more once I actually get to try NSAIDs or SSRI's.


Limejuice

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Re: Diet/Supplements that 98% manages my POIS
« Reply #11 on: December 16, 2018, 12:03:08 PM »
I'd assume my leaky gut is primarily caused my my food sensitivities, but I actually don't know.  I wish I had more answers. 

Answers are out there, and be non-relenting in pursuit of your health. I'd taken a food sensitivity panel of 180 foods to see precisely what my issues are.  Tests are expenses but my health doesn't have a price tag (I budget and work hard to save up for screening my health).   

BuckarooBanzai88

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Re: Diet/Supplements that 98% manages my POIS
« Reply #12 on: January 10, 2019, 01:34:05 AM »
Just a quick update:

I started my trial using NSAID immediately after orgasm (I can't anticipate wet dreams so it has to be after).

For reference, my current symptoms on my diet are:
Physical exhaustion
Impaired recall and ability to form memories
anxiety/depression/irritability
constipation
sensitivity to sound
headache/trouble focusing eyes


That lasts for a day.  When I take the NSAID, the impaired recall is drastically reduced.  I can do my job tolerably well (I'm a software engineer), but I still found the next day I couldn't remember all of what I'd done and had to go over my work to make sure I didn't do anything stupid (which I did in my POIS state).

So for me NSAIDs do seem to help.  I'm going to the doctor tomorrow to talk about:
SSRIs - I've read they can help with gut sensitivity reduction
More NSAIDS
Prednisone - probably not a good solution in the long run
Cannabis - this is me grasping at straws
Vagus Nerve Stimulators - this seems promising


I've also stopped eating meat entirely.  I found I was becoming tired after every meal with meat.  I guess I have a hard time digesting it.  My gut is messed up.  I noticed that my very mild forehead acne that I have off and on went away entirely after I did this.  Acne is for me a signal I've eaten something that has set my immune system off.  I'm hoping my vegetarian diet will help with POIS symptoms, but i need more time to see.

Limejuice

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Re: Diet/Supplements that 98% manages my POIS
« Reply #13 on: January 10, 2019, 07:56:22 PM »
Be careful with NSAIDs as their temporary relief may cause long term digestion issues (hard on intestines and prevents healing).

demografx

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Re: Diet/Supplements that 98% manages my POIS
« Reply #14 on: January 10, 2019, 10:57:01 PM »
Limejuice, thanks for the reminder! (I’m taking too much Aleve).
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: Diet/Supplements that 98% manages my POIS
« Reply #15 on: January 10, 2019, 11:00:41 PM »
All your diet seems to be low carbs/low sugar content. It is normally something that has helped other fellow POISers.
I’m just the opposite. High carbs/sugar. Maybe I should re-evaluate. Old habits die hard :(


« Last Edit: January 10, 2019, 11:59:10 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

b_jim

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Re: Diet/Supplements that 98% manages my POIS
« Reply #16 on: January 11, 2019, 02:59:33 PM »
Sugar kills me too. But i eat a lot of nighshades.
Amazing testimony of BuckarooBanzai88.
Taurine = Anti-Pois
Suffering from lyme disease