Nas, thank you for all that information.
I see that you have read and inquired a lot about MCAS and the different types of related tests. I will take it into account if necessary. But if I've learned anything since I've been to so many doctors, it's that they do not like you to give them instructions on what to do and how to do it. I have learned that this can be very counterproductive. And get just the opposite of what we need.
At least at the beginning I think I should let them direct the process of what tests and how to do them.
I've been said that the doctor I will visit on January 8th is someone with experience and good knowledge about mast cell disorders. Will see if this is the case.
In spite of everything I believe that the information that you have given me is very valuable and I will take it into account in case of need.
I also have documents from a Dr called Theoharis Theoharides. This Dr is from Yale Universitaria If I am not wrong. Muon gave us a link of him taking about MCAS around 2 hours. Really interesting.
Here is a little fragment of his writings about Mast Cells (abreviated as MCs) and some of the problems they are able to cause:
MCs are best known for their role
in immediate IgE-mediated, allergic
responses in anaphylaxis, food allergy,
venom allergy, and asthma. Recent
reports have also implicated MCs in
nonallergic disorders, including head-
ache syndromes, irritable bowel syn-
drome, non-celiac gluten enteropathy,
osteoporosis, autoimmune syndromes,
neuropsychiatric disorders, and intersti-
tial cystitis [Theoharides et al., 2015].
Apart of what I already explained yesterday I am suffering. coincidentally, I also suffer non-celiac gluten enteropathy. And have a lot of skin manifestations. Redness that appear and disappear in a short time. Itchings sometimes in many different parts of all my body, eczemas, peelings, etc.
I have been diagnosed curiously of dermographism. Something that it is also associated to Mast Cell Disorders. But despite so many things that suggest that it may be some kind of mast cell disorder. it's not worth thinking about. You have to prove it. And in that sense I think it's best to put yourself in the hands of professionals in the field.
HOD, It is true, we have a lot of similar symptoms. Strong palpitations ( I've been said that histamine could be causing it).
respiratory distress (Something similar to asthma) and even chest pain if symptoms become very strong. Most of the time I have been told (by so many doctors) that this is because of anxiety. Instead of a high level of histamine. But recently, a doctor, told me that effectively histamine can also cause that effect. I have always refused to admit that it is a cause for anxiety. I have asked if this is something that can be proved in any way. Unfortunately, I have always been told that no. But I know it almost certainly is not due to anxiety. I have several reasons that I could explain in detail. but I practically never have enough time to be able to explain well something so complex. With doctors you have to be very concise.
In order to stabilize the mast cells, I am taking the drug that the specialists have indicated to me: Disodium cromoglycate. Quantum told me that he takes on his prepack since some time ago some natural Mast Cell stabilizers. I will consider for later in case. At first I did feel that I noticed some improvement but also It is said that the effect can take between one to two weeks. For now only one week has passed. And I'm not sure if It is doing anything. I will continue taking it anyway. I also know that I was testing quercetin a long time ago. but I do not know if I spent a little time taking it or what. but I did not notice much. For now, what I do notice that helps me say to 40 or 50% is a powerful inhibitor of Cox 2, called etoricoxib. Which indicates to me in some way that some inflammation I have to have, even though it is mysteriously not detected. As many times we have commented in this forum.
