Post Orgasmic Illness Syndrome (P.O.I.S.)
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: Gather and Post Here Your Medical Tests Results - Discussion Thread  ( 10823 )
demografx
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Hero Member
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« #180 : December 04, 2018, 08:13:23 PM »

I was thinking of taking small dosages of epinephrine for POIS but apparently it is not allowed to be sold in pharmacies, and EpiPens are not available in Iraq.
God demn it all!!!!
I've literally tried everything and nothing works for me. My last hope are flavanoids. If not, I don't know.
I think I'm screwed.

Nas, there is always hope. I felt hopeless, too, until I came to this forum, then found some relief. We are all with you to find the help you need.

Best,
Demo

Usually have major POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks associated with it.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business.
Hopeoneday
Sr. Member
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« #181 : December 05, 2018, 09:54:12 AM »

Nas, dont give up!

As more i read from this mast atac link i posted i am more convinced that we
coud hawe hawe difertent tipes of mcas, from COMA SLEAP, like some poiser describe,
to all odher similar symptomeslike brain fog , trigers on hot bath, cold bath,
hot wether, cold weather...
choligeric rebound....
« : December 05, 2018, 10:34:21 AM Hopeoneday »

Dr-pois.
fernab
Jr. Member
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: 70


« #182 : December 05, 2018, 10:08:12 AM »

Yes, I agree. Ir al also suspecting about MCAS. Or something really similar... I already contacted an Mast Cell Disorders specialist. But have to wait at least until Next monday in order he returns to work. He is outside now. I am trying to have a little relief taking 60mg of etoricoxib, and Diazepam 5mg (each night) just before going sleep. My trigger apart any release (preseminal or seminal liquid) it is also pressure. Just by sitting down or laying down on bed to sleep. So I am facing a very dificult situation as well... Every night when going sleep is very difficult moment. Some nights I can only sleep for only 3 or 4 hours. Horrible situation. Hope this MCAS specialist may help as soon as possible.

If he has success with diagnosing me MCAS Maybe we are more near to suspect POIS is anyway linked to MCAS...

Don't give up Nas!!!

Will continue updating on my progress on diagnosing MCAS...
Nas
Sr. Member
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: 402


« #183 : December 05, 2018, 11:09:06 AM »

Thanks everyone for encouragements.
I'm currently looking for a medical alternatives to epinephrine. So I'm thinking of adrenergic agonists; they basically do epinephrine's job of constricting the blood vessels to fight off inflammation.
I'm not sure what to take though there are many types. I've contacted my doctor for prescription but she did not answer yet.
What do you people suggest? I'm looking for commonly sold adrenergic agonists. Especially those that are prescribed for vasoconstriction.
Vandemolen
Hero Member
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« #184 : December 05, 2018, 12:02:20 PM »

Thanks everyone for encouragements.
I'm currently looking for a medical alternatives to epinephrine. So I'm thinking of adrenergic agonists; they basically do epinephrine's job of constricting the blood vessels to fight off inflammation.
I'm not sure what to take though there are many types. I've contacted my doctor for prescription but she did not answer yet.
What do you people suggest? I'm looking for commonly sold adrenergic agonists. Especially those that are prescribed for vasoconstriction.
I do not know if epinephrine will help against POIS. epinephrine makes the blood vessels more narrow. Some guys havd succes with niacin because it makes the blood vessels more wide.

And be carefull of epinephrine addiction.

POIS since 2000. Very bad since 2008. I knew that I have POIS since June 2010. Desensitization since March 2011. I stopped with desens in July 2016. I have 70% less POIS. And only 1 day of POIS. Purified CBD works for me, but I am allergic for CBD.
Nas
Sr. Member
****
: 402


« #185 : December 05, 2018, 12:10:46 PM »

Thanks everyone for encouragements.
I'm currently looking for a medical alternatives to epinephrine. So I'm thinking of adrenergic agonists; they basically do epinephrine's job of constricting the blood vessels to fight off inflammation.
I'm not sure what to take though there are many types. I've contacted my doctor for prescription but she did not answer yet.
What do you people suggest? I'm looking for commonly sold adrenergic agonists. Especially those that are prescribed for vasoconstriction.
I do not know if epinephrine will help against POIS. epinephrine makes the blood vessels more narrow. Some guys havd succes with niacin because it makes the blood vessels more wide.

And be carefull of epinephrine addiction.

It will help the blood vessels become constricted and thus block inflammatory action. That's how epinephrine soothes the alergic reaction. Don't worry though I won't have access to it.
Vandemolen
Hero Member
*****
: 547



« #186 : December 05, 2018, 04:39:14 PM »

Thanks everyone for encouragements.
I'm currently looking for a medical alternatives to epinephrine. So I'm thinking of adrenergic agonists; they basically do epinephrine's job of constricting the blood vessels to fight off inflammation.
I'm not sure what to take though there are many types. I've contacted my doctor for prescription but she did not answer yet.
What do you people suggest? I'm looking for commonly sold adrenergic agonists. Especially those that are prescribed for vasoconstriction.
I do not know if epinephrine will help against POIS. epinephrine makes the blood vessels more narrow. Some guys havd succes with niacin because it makes the blood vessels more wide.

And be carefull of epinephrine addiction.

It will help the blood vessels become constricted and thus block inflammatory action. That's how epinephrine soothes the alergic reaction. Don't worry though I won't have access to it.
What about the rebound? In The Netherlands you have to call the alarm number after using the epipen. So a doctor or nurse can treat you.

POIS since 2000. Very bad since 2008. I knew that I have POIS since June 2010. Desensitization since March 2011. I stopped with desens in July 2016. I have 70% less POIS. And only 1 day of POIS. Purified CBD works for me, but I am allergic for CBD.
Nas
Sr. Member
****
: 402


« #187 : December 05, 2018, 08:15:59 PM »

Thanks everyone for encouragements.
I'm currently looking for a medical alternatives to epinephrine. So I'm thinking of adrenergic agonists; they basically do epinephrine's job of constricting the blood vessels to fight off inflammation.
I'm not sure what to take though there are many types. I've contacted my doctor for prescription but she did not answer yet.
What do you people suggest? I'm looking for commonly sold adrenergic agonists. Especially those that are prescribed for vasoconstriction.
I do not know if epinephrine will help against POIS. epinephrine makes the blood vessels more narrow. Some guys havd succes with niacin because it makes the blood vessels more wide.

And be carefull of epinephrine addiction.

It will help the blood vessels become constricted and thus block inflammatory action. That's how epinephrine soothes the alergic reaction. Don't worry though I won't have access to it.
What about the rebound? In The Netherlands you have to call the alarm number after using the epipen. So a doctor or nurse can treat you.
As I said, I'm not going to use it.
fernab
Jr. Member
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: 70


« #188 : December 06, 2018, 07:47:33 AM »

Hi Nas,

I am not an expert nor specialist.

As far as I know. Epinephrine (or adrenaline) It is used to fight an anaphilactic shock. When having an anaphilactic shock, blood pressure is becoming too low. Epinephrine fights this situation due to vasoconstriction. But, sicencerely don't know if it also fights inflamation.
« : December 06, 2018, 07:52:56 AM fernab »
Nas
Sr. Member
****
: 402


« #189 : December 06, 2018, 11:17:25 AM »

Hi Nas,

I am not an expert nor specialist.

As far as I know. Epinephrine (or adrenaline) It is used to fight an anaphilactic shock. When having an anaphilactic shock, blood pressure is becoming too low. Epinephrine fights this situation due to vasoconstriction. But, sicencerely don't know if it also fights inflamation.
Well vasoconstriction is the method in which Epinephrine fights off inflammation, as the blood vessels vasodilate they enable the Endothelial walls to expand and thus enable white blood cells to deal with the infection. Inflammatory mediators' job is to signal to the Endothelium that there is an infection that needs to be delt with and this way in a sense it is anti-inflammatory.
But as I said Epinephrine is not available in pharmacies and as it turns out I can't even find Ephidrine. So this whole adregenic agonist thing is not going to be available to me.
My last hope for now are flavanoids, if they also don't work then I might not really have an issue with Mast Cells at all.
fernab
Jr. Member
**
: 70


« #190 : December 11, 2018, 06:49:49 PM »

Yesterday I visited an allergologist who had been working for some time with an expert in mast cell disorders. I told her I was talking to him not long ago, and he recommended me to see her. For now, she has asked me to do a blood test to check the blood level of tryptase. And she has also prescribed some disodium cromoglycate capsules. There is a center specialized in mastocyte disorders a few kilometers from my house. But I can only go there if she refers me to that hospital. I do not know very well what it depends on that she ends up referring me to that hospital. Since you can also have a mast cell disorder even if the tryptase level is low or normal. I'll keep you updated. The analytics will be done on December 20 next. And I will see her again on January 10, 2019.

If I am finally diagnosed with some mast cell disorder, we may think that POIS is really linked in some way with mast cell disorders. And maybe it could give us some clues to investigate more about POIS.
Nas
Sr. Member
****
: 402


« #191 : December 11, 2018, 08:30:17 PM »

Yesterday I visited an allergologist who had been working for some time with an expert in mast cell disorders. I told her I was talking to him not long ago, and he recommended me to see her. For now, she has asked me to do a blood test to check the blood level of tryptase. And she has also prescribed some disodium cromoglycate capsules. There is a center specialized in mastocyte disorders a few kilometers from my house. But I can only go there if she refers me to that hospital. I do not know very well what it depends on that she ends up referring me to that hospital. Since you can also have a mast cell disorder even if the tryptase level is low or normal. I'll keep you updated. The analytics will be done on December 20 next. And I will see her again on January 10, 2019.

If I am finally diagnosed with some mast cell disorder, we may think that POIS is really linked in some way with mast cell disorders. And maybe it could give us some clues to investigate more about POIS.

Good luck frenab! All the Mast Cell specialists who I've talked to also think that POIS is liked with MCAS.
Also it's very important to make the tests while you have POIS symptoms, don't take no remedy after orgasm just let all the mediators be released so they are detectable.
« : December 11, 2018, 08:32:37 PM Nas »
demografx
Administrator
Hero Member
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: 3411



« #192 : December 11, 2018, 09:01:52 PM »

This MCAS >><< POIS possibility is getting interesting!
« : December 11, 2018, 09:23:52 PM demografx »

Usually have major POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks associated with it.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business.
Vandemolen
Hero Member
*****
: 547



« #193 : December 12, 2018, 12:17:02 PM »

Yesterday I visited an allergologist who had been working for some time with an expert in mast cell disorders. I told her I was talking to him not long ago, and he recommended me to see her. For now, she has asked me to do a blood test to check the blood level of tryptase. And she has also prescribed some disodium cromoglycate capsules. There is a center specialized in mastocyte disorders a few kilometers from my house. But I can only go there if she refers me to that hospital. I do not know very well what it depends on that she ends up referring me to that hospital. Since you can also have a mast cell disorder even if the tryptase level is low or normal. I'll keep you updated. The analytics will be done on December 20 next. And I will see her again on January 10, 2019.

If I am finally diagnosed with some mast cell disorder, we may think that POIS is really linked in some way with mast cell disorders. And maybe it could give us some clues to investigate more about POIS.
My POIS doctor said that it is possible that POIS has to do something with mast cells. He also thinks that herpes is involved. And he said it is no suprise that some POIS-patients have candida. He said that POIS makes your immune system weak, so that gives candida the chance to grow. He gave me Fluconazole (Diflucan) for my candida. I hope it works.
« : December 12, 2018, 05:15:52 PM Vandemolen »

POIS since 2000. Very bad since 2008. I knew that I have POIS since June 2010. Desensitization since March 2011. I stopped with desens in July 2016. I have 70% less POIS. And only 1 day of POIS. Purified CBD works for me, but I am allergic for CBD.
fernab
Jr. Member
**
: 70


« #194 : December 12, 2018, 05:52:22 PM »

I also hope that MCAS or some other type of mast cell disorder is linked to POIS.

Thanks Nas for wishing me luck and for your advice. Apart from POIS, I also sufer an Activation Syndrome that Muon explained me some time ago here un this thread.

I thank you all. I think that if we fight together this difficult situation we will have many more options to discover something that each one separately.

I hope that soon we will know if indeed MCAS or some other mast cell disorder has or does not relate to POIS. I also think that it is very likely It is linked to POIS.

I will keep you all updated.

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