List of Doctors Who Knows about POIS and are seeing POIS patients

[Journey]

Does POIS show up on official doctor databases of disorders? Is there a such an unified system?

Many POISers have said some doctors did not even know it exists and even when told about the name they were sceptical

So is there a lack of information in the databases?

[Quantum]

Does POIS show up on official doctor databases of disorders? Is there a such an unified system?

Many POISers have said some doctors did not even know it exists and even when told about the name they were sceptical

So is there a lack of information in the databases?

POIS is officially listed in the Rare Diseases database of the National Insitute for Health (NIH), see https://rarediseases.info.nih.gov/diseases/10809/postorgasmic-illness-syndrome

It is also listed on Orphanet: https://www.orpha.net/consor/cgi-bin/Disease_Search.php?lng=EN&data_id=20421&Disease_Disease_Search_diseaseGroup=pois&Disease_Disease_Search_diseaseType=Pat&Disease%28s%29/group%20of%20diseases=Postorgasmic-illness-syndrome--POIS-&title=Postorgasmic-illness-syndrome--POIS-&search=Disease_Search_Simple

Most doctors do not know about POIS because it is a rare disease, and they do not see cases during their training and career.  But if a doctor take the time to search pubmed for it, he will find a lot of medical articles on POIS: https://pubmed.ncbi.nlm.nih.gov/?term=post-orgasmic+illness+syndrome


Pubmed is freely accessible to all doctors, so it is a question of being willing to take the time to investigate.
There is not much information on POIS up to now, but a simple search on pubmed, a database trusted by doctors, will show that POIS do exist.

I strongly recommend that you give this link to any POIS sufferer planning a visit to a doctor, any doctor: https://poiscenter.com/forums/index.php?topic=2392.msg20182#msg20182  .  It clearly says what to expect, and gives to link that you can send the doctor, which is the best review article so far on POIS ( this article is at https://tau.amegroups.com/article/view/11107/11778 .  Access is free, it is the whole article, complete with references, and it is from Dr. Waldinger).

Of course, any skeptical doctor can be given the link to Muon's POIS archives, listing all POIS articles published in medical journals, by year of publication:  https://poiscenter.com/forums/index.php?topic=3127.msg31515#msg31515 .  This will make it clear to them that POIS is already acknowledged by at least a part of the medical community.

A high-profile POIS study like the one coming up this year will help raise that awareness among doctors, of course.

[healor]

Dr. Raj Singh MD, FACP, FASN
Internal Medicine, Nephrology
HEALOR
www.healor.com
3900 west charleston blvd ste 170
Las Vegas, NV 89102
702-362-2273

https://www.healor.com/post/post-orgasmic-illness-syndrome

[berlin1984]

healor, nice, welcome to the forum!

Quantum can add you to the list in the first post.

[Quantum]

Thanks to Muon, we have a new entry in our POIS Doctors List:

18-Doctor's name:   Dr Zsolt Kopa, MD, PhD, MSc, andrologist/urologist
Contact information: Associate Professor, Semmelweis University, Andrology Centre (Dept. of Urology), Budapest, Hungary
Website:  https://semmelweis.hu/urologia/en/zsolt-kopa/
email:  kopa.zsolt@med.semmelweis-univ.hu
POIS article(s) published: :  https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8392034/ 
Other information :    Even if he is in Hungary, he is perfectly fluent in English

It is the first entry for Hungary.


To see the complete POIS Doctors list,  go to https://poiscenter.com/forums/index.php?topic=2575.msg22338#msg22338

[demografx]

Thanks to Muon, we have a new entry in our POIS Doctors List:

18-Doctor's name:   Dr Zsolt Kopa, MD, PhD, MSc, andrologist/urologist
Contact information: Associate Professor, Semmelweis University, Andrology Centre (Dept. of Urology), Budapest, Hungary
Website:  https://semmelweis.hu/urologia/en/zsolt-kopa/
email:  kopa.zsolt@med.semmelweis-univ.hu
POIS article(s) published: :  https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8392034/ 
Other information :    Even if he is in Hungary, he is perfectly fluent in English

It is the first entry for Hungary.


To see the complete POIS Doctors list,  go to https://poiscenter.com/forums/index.php?topic=2575.msg22338#msg22338

Thanks, Muon & Quantum!

[berlin1984]

Some German guy will apparantly see a doctor in Charité Berlin to talk about POIS.

https://www.reddit.com/r/POIS/comments/14f6p3c/to_all_german_poisers_in_this_sub/

Maybe someone with a Reddit account (Muon?) could reply to this thread and ask him to post more info and also post the results to POIScenter, maybe we'd have a doctor to add to the list.

I'd also be curious, maybe I'd go myself too, even though I have an aversion for doctors  .


EDIT: Thanks Muon!

[Muon]

I emailed the doc but didn’t get any response.

T. S. Sathyanarayana Rao, Department of Psychiatry, JSS Medical College & Hospital, JSS Academy of Higher Education and Research, Mysuru, Karnataka 570004, India.

Article from August, 2023.
https://journals.sagepub.com/doi/10.1177/26318318231194228

[pois_nc]

https://twitter.com/drrachelrubin/status/1407425529309978624

I gave her contact info of Dr. Theoharides and vice versa. We need some experts on this.

I actually contacted Dr. Rubin to make an appointment for this condition because I'm not far from where she is but currently can't afford the fee for even an initial appointment. From what she messaged me, she already had a few patients that have Pois and said that she's learning more and more about the best ways to manage this thing. Hopefully, in the future, I'll be sure to visit her and give you all an update on how things are going *finger crossed*

Even with insurance?

[demografx]

I emailed the doc but didn’t get any response.

T. S. Sathyanarayana Rao, Department of Psychiatry, JSS Medical College & Hospital, JSS Academy of Higher Education and Research, Mysuru, Karnataka 570004, India.

Article from August, 2023.
https://journals.sagepub.com/doi/10.1177/26318318231194228

Muon, thanks for trying.

[Mikasa]

I emailed the doc but didn’t get any response.

T. S. Sathyanarayana Rao, Department of Psychiatry, JSS Medical College & Hospital, JSS Academy of Higher Education and Research, Mysuru, Karnataka 570004, India.

Article from August, 2023.
https://journals.sagepub.com/doi/10.1177/26318318231194228

Muon, thanks for trying.

Hello,. Does anyone know of a doctor who speaks Spanish?

[Muon]

Hello,. Does anyone know of a doctor who speaks Spanish?

https://revistasacademicas.cl/Upload/ArticulosPdf/schu_20210819142132_baa6f065-d151-4644-8c52-af22c8ce431e.pdf

[Andre00556]

Qualcuno conosce un medico che parli italiano??🇮🇹🇮🇹 perfavore

[Quantum]

Hi Andre,

I see from your post at https://poiscenter.com/forums/index.php?topic=4400.msg47288#msg47288 that you have found an Italian doctor in Rome who receives patients with POIS.  If this doctor wants to be listed here on our POIS Doctors list, please send me his name and information. 

Thanks !