List of Doctors Who Knows about POIS and are seeing POIS patients

[Quantum]

Here is a list of doctors and specialists ( urologists, neurologists, allergy specialists, etc...) who know about POIS, and are open to see POIS patients  ( "POIS doctors" ).  The MDs in this POIS Doctors list may be from anywhere in the world.  City and country where is the Doctor's clinic is in red in the list below, so you can easily find which Doctor is the nearest from where you live.

So, for members who would like to see a physician who already knows about
POIS, one that will not send them in psychiatry, or try a large list of tests that will come back all normal ( as they did with all members here), or try any meds with no particular experience with it, so here is the place to find a "POIS Doctor". Those "POIS doctors" will not make you feel frustrated because you were not understood at all, will not make you false promises, but will help you the best they can, and are willing to learn more about POIS, and help us more, and they are usually involved in POIS research. 

Be aware that these Doctors do not know yet what causes POIS, and in most cases do not have much to offer in terms of treatment ( However, as of 2024, there are a few case reports of successful treatment of individual cases with specific drugs). But at the least, those doctors know about POIS diagnostic criteria, and can confirm you have POIS, and you will get some understanding from a qualified doctor.  Also, those physicians listed here are aiming at a better understanding of POIS, and at raising awareness of POIS in the medical community.  So, the more POIS patients they will see, the better they will get to know POIS, and the more material they will have for another scientific publication on POIS  ( most of those listed here have already published at least one article on POIS). 

Some of these doctors do offer some treatment alternatives, like NSAIDS or prednisolone, but at this point, they may be called "experimental" treatments. Keep in mind that there is no specific treatment for POIS yet.  Before accepting a treatment offered to you, be sure to be aware of all the potential risks of this experimental treatment. Do not hesitate to ask for a second opinion from your family doctor or from another specialist before going forward with any treatment, which, at this stage, are all experimental. 

So, be aware that POISCenter does not recommend any treatment, and IF YOU HAVE A CONSULTATION WITH A POIS DOCTOR ON THIS LIST AND ACCEPT TO TRY AN EXPERIMENTAL POIS TREATMENT SHE OR HE SUGGESTS, YOU DO IT AT YOUR OWN RISKS.
 

If you think a physician should be added to this list, send me a private message.


POIS Doctors List:


1- Doctor's name:   Dr Wayne Hellstrom   ( Urologist)
Contact information:   Professor of Urology / Chief of Andrology / whellst@tulane.edu / (504) 988-3361 / School of Medicine, University of Tulane, New Orleans,Louisiana, USA / http://medicine.tulane.edu/departments/urology/faculty/wayne-jg-hellstrom-md-facs
POIS article(s) published:
Direct link to appointement webpage  https://medicine.tulane.edu/find-doctor/urology-clinic
Other information: You need a reference from your primary care physician in order to make an appointment with Dr Hellstrom about POIS.

Take note that Dr Hellstrom is the head of the Tulane University team, same team that has made a survey on the forum in 2019 and will eventually publish about it.

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2 - Doctor's name:   Dr Ege Can Serefoglu, MD, FECSM
Contact information : Associate Professor  / www.drserefoglu.com / Uroklinik - Center of Excellence in Urology / Zerrin Sk. No:2  34330 ?ç Levent, Besiktas, Istanbul, Turkey  / egecanserefoglu@hotmail.com 
POIS article(s) published : https://www.ncbi.nlm.nih.gov/pubmed/28499517
Other information : Even if in Turkey, he is perfectly fluent in English


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3 - Doctor's name: Pr Gerard Amarenco  ( Neuro-urologist )
Contact information : , La Sorbonne : gerard.amarenco@aphp.fr
Service de Neuro-Urologie, Hôpital Tenon, Paris
4 Rue de la Chine, 75020, Paris, France
Neuro-Urology Department, Tenon Hospital, Paris
GRC01 GREEN Groupe de Recherche Clinique en Neuro-Urologie
Sorbonne Universités UPMC, Paris, France /
GRC01 GREEN Group of Clinical Research in Neuro-Urology
https://grc01-green.jimdo.com/
Tel : (33)156017500
POIS article(s) published :  https://www.clinicalkey.fr/#!/content/playContent/1-s2.0-S1166708717300696?returnurl=http:%2F%2Flinkinghub.elsevier.com%2Fretrieve%2Fpii%2FS1166708717300696%3Fshowall%3Dtrue&referrer=
Other information :   La Sorbonne University is in Paris, France

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4 - Doctor's name:  Dr Ahmed Mahmoud   ( Endocrinology and metabolic diseases)
Contact information : Scientific coordinator of Andrological center / Male sexual dysfunction (Universiteit Gent) UZ Gent, Corneel Heymanslaan 10, 9000, Entrance 12, route 1450, 9th floor , Gent, Belgium
e-mail :  endocrinologie@uzgent.be
website :  https://www.uzgent.be/patient/zoek-een-arts-of-dienst/endocrinologie-en-stofwisselingsziekten/team/dr-ahmed-mahmoud 
PHONE: 09 332 21 37
POIS article(s) published : -
Other information : You need a reference from your primary care physician in order to make an appointment with Dr Ahmed Mahmoud about POIS but you can also email him a letter with explaining your personal history about POIS, how it effects you, etc.

The Andrology Center of Ghent is a founding member of the “Belgian expert group for semen analysis” which provides ESHRE training every 1 or 2 years in semen analysis under supervision of the Belgian Institute of Public Health (Ahmed Mahmoud, followed by Kelly Tilleman).

Dr Ahmed Mahmoud is a colleague of the medical head of endocrinology Prof Guy T'Sjoen
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5 - Doctor's name: Dr Irwin Goldstein ( urologist, specialized in sexual health)
Contact information : 5555 Reservoir Dr Ste 300 , San Diego, CA, USA
 92120 (619) 286-8804 or 619.265.8865
e-mail: dr.irwingoldstein@gmail.com
website : http://www.sandiegosexualmedicine.com/meet-dr-goldstein
POIS article(s) published : data to be added
Other information : In recent years, it seems that Dr Goldstein has offered an experimental treatment to members of this forum who had a consultation with him:  Transforaminal Epidural Steroid Injection ( TFESI).   Be aware that this procedure has not been evaluated in POIS. See here a comment from a member about this procedure: https://poiscenter.com/forums/index.php?topic=3948.msg41968#msg41968.

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6 - Doctor's name:    Dr Paul-Henri Cesar  ( Neurologist )
Contact information : Keck Hospital of USC
1510 San Pablo St., 5th Floor, Suite 514, Los Angeles, CA, USA 90033
toll free number fr appointements: (800) USC-CARE (800-872-2273)
e-mail : paul-henri.cesar@med.usc.edu
https://providers.keckmedicine.org/provider/Paul-Henri+Cesar/205217
POIS article(s) published : -
Other information : At least one of our forum members had consultations with him.  He is interested in understanding POIS and help find a treatment.

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7- Doctor's name: Dr Serge Carrier ( urologist )
Contact information : Hôp Général Juif - Sir M.B. Davis E-208-3755 ch de La Côte-Sainte-Catherine, Montreal, P.Q., Canada, H3T 1E2
Telephone: 514-340-8222  extension #7558
POIS article(s) published : data to be added
Other information : English and French speaking

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8 - Doctor's name:   Dr Celina Silvia Stafie  ( Specialist in Allergology and Clinical Immunology, Specialist in Internal Medicine )
Contact information : Allergology Private Office, Bd Carol I nr.4, corp A, Habitat Building, Iasi, Romania
Office phone +40232219932
Mobile office phone +40745114074
Email address aret2009@gmail.com
POIS article(s) published :  POST COITAL ALLERGY - A CASE REPORT OF POST ORGASMIC ILLNESS SYNDROME
Other information : website:  http://alergologieiasi.ro/

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9 - Doctor's name: Dr Keity Souza Santos  ( immunologist )

NO LONGER RECEIVING POIS PATIENTS IN CONSULTATION ( 2023-10)


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10 -Doctor's name:    Dr De Boer Mannen Gezondheid   ( urologist)
Contact information : 3723 MB, Bilthoven, Netherlands
Phone: 030 662 8327
e-mail: voorbeeld@domeinnaam.nl
contact page:  https://www.dbmgz.nl/deboer/contactpagina
POIS article(s) published :  - - -
Other information : website:  https://www.dbmgz.nl/  .  Dr de Boers is a Dutch doctor who knew the late Dr Waldinger, so he knows about POIS and accept to see POIS patients.

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11 -Doctor's name:   Dr Yacov (Cobi) Reisman   ( Urologist & Sexologist )
Contact information : Prof. W.H. Keesomlaan 12 , Amstelveen, The Netherlands
Phone: +0031638760984
e-mail: info@flare-health.nl
Website: https://www.flare-health.nl/
POIS article(s) published :  https://www.nature.com/articles/s41443-020-0314-9
Other information : He knew Dr. Waldinger personally. He would like to help POIS patients.

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12 -Doctor's name: Dr Khaleeq ur Rehman   ( Urologist )
Contact information : 14- Abu Baker Block New Garden Town, Lahore, Lahore, Pakistan
Phone: + 042 32500989
e-mail: info@hameedlatifhospital.com
Website: http://www.hameedlatifhospital.com/doctor_departments/urology-lithotripsy/   
POIS article(s) published :   - 
Other information : He speaks English and Urdu. He has treated at least one patient with presumed success ( with 5mg prednisolone 4 hours before O, see https://www.reddit.com/r/POIS/comments/if2ssc/on_the_way_to_recovery_thanks_to_my_brilliant/

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13 -Doctor's name:  Rachel S. Rubin MD, IF (Urologist and Sexual Medicine Specialist)
Assistant Clinical Professor Department of Urology, Georgetown University
Contact information : 6171 Executive Blvd Rockville, MD, Rockville, MD, USA, 20852
office phone: 202-888-6731  fax: 202- 851-5739
email: info@rachelrubinmd.com
website: https://www.rachelrubinmd.com/   
twitter:@drrachelrubin
instagram: @drrachelrubinPOIS article(s) published :   Orzel, J., and R. Rubin. "042 Successful treatment strategies in two patients with Postorgasmic illness syndrome (POIS)." The Journal of Sexual Medicine 18.3 (2021): S23-S24.   (Full version)
Other information : She knows about POIS and is interested in seeing POIS patients and contributing to POIS research

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14-Doctor's name:  Jia Yin, MD, Allergy Doctor/ProfessorPresident of Allergy Department, Peking Union Medical College Hospital. President, Chinese Medical Doctor Association - Allergy Department
Contact information : Peking Union Medical College Hospital,Beijing, China, 100032
Office Phone: +86 10 69156114
Email: doctoryinjia@163.com
Website: http://ims.pumch.cn/doctor/detail/4573.html
POIS article(s) published : Postorgasmic illness syndrome (POIS) in a Chinese man: No proof for IgE-mediated allergy to semen  https://sci-hub.se/10.1111/jsm.12813
Other information : Professor Yin reported the first POIS patient in China and has built up a team to research POIS. She is actively recruiting patients who can go to Beijing to have an appointment with her. Please contact Professor Yin via email or make an appointment via Peking Union Medical College Hospital.

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 15-Doctor's name:  Kam Mann, MD, Physician in Andrology, MBBS MRCP MRCGP
Contact information : BMI Sarum Road Hospital, Sarum Road, Winchester, Hampshire, England  SO22 5HA  and also International Andrology London ,78 Seymour Place, London United Kingdom ,W1H 2EH
Email: unknown
Website(s): https://www.wessexandrology.com/about-the-team ,   https://london-andrology.co.uk/medical-experts/dr-kam-mann/ and https://www.bmihealthcare.co.uk/consultants/kam-mann#aria-panel-1/ ( there is a "Chat with Us" link at the top right of this webpage, in order to get information)
POIS article(s) published : He presented a POIS Case Study at The British Society for Sexual Medicine Annual London Conference, in 2018  http://www.bssm.org.uk/wp-content/uploads/2018/04/PROGRAMME-MAY-11TH-RSM.pdf
Other information : Dr Mann is an experienced Men’s Health Physician with a specialist interest in Sexual Medicine

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16-Doctor's name:  Prof. Piotr Jedrzejczak, MD, PhD, gynecologist/andrologist
Contact information: Division of Reproduction,Poznan University of Medical Sciences, Poznan, Poland
Website(s): https://www.mp.pl/lekarz/piotr.jedrzejczak
phone: +48601820212
POIS article(s) published : Wrotynska-Barczynska, J., Swat, E., Berger, A., Pawelczyk, L., & Jedrzejczak, P. "Intensified Hyposensitization Is an Effective Treatment of Postorgasmic Illness Syndrome (POIS)." Sexual Medicine 10.2 (2022): 100474
Other information :  to be added

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17-Doctor's name: Dr. Martina Ambardjieva , MD, Ph.D, Urology resident,
Contact information: Ss. Cyril and Methodius University in Skopje, Skopje, North Macedonia
Website(s):  - 
email:  martina.ambardzieva@gmail.com
POIS article(s) published : - no published article, but cited in https://www.mdlinx.com/article/new-study-sheds-lights-on-a-rare-condition-that-causes-illness-after-orgasm/7CrdELYiQcGnjFMZOLhQhj
Other information :  to be added

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18-Doctor's name:   Dr Zsolt Kopa, MD, PhD, MSc, andrologist/urologist
Contact information: Associate Professor, Semmelweis University, Andrology Centre (Dept. of Urology), Budapest, Hungary
Website:  https://semmelweis.hu/urologia/en/zsolt-kopa/
email:  kopa.zsolt@med.semmelweis-univ.hu
POIS article(s) published: :  https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8392034/ 
Other information :    Even if he is in Hungary, he is perfectly fluent in English
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[Quantum]

1- Doctor's name:   Dr Wayne Hellstrom   ( Urologist)
Contact information:   Professor of Urology / Chief of Andrology / whellst@tulane.edu / (504) 988-3361 / School of Medicine, University of Tulane, New Orleans, USA / http://medicine.tulane.edu/departments/urology/faculty/wayne-jg-hellstrom-md-facs
POIS article(s) published: http://www.smr.jsexmed.org/article/S2050-0521(17)30116-6/abstract
Direct link to appointement webpage  https://medicine.tulane.edu/find-doctor/urology-clinic
Other information: You need a reference from your primary care physician in order to make an appointment with Dr Hellstrom about POIS.

Take note that Dr Hellstrom is part of the Tulane University team that have expressed the intention to submit, in the coming months, a POIS study project to NORD for our research grant.

[Quantum]

2 - Doctor's name:   Dr Ege Can Serefoglu, MD, FECSM
Contact information : Associate Professor  / www.drserefoglu.com / Uroklinik - Center of Excellence in Urology / Zerrin Sk. No:2  34330 ?ç Levent, Besiktas, Istanbul, Turkey  / egecanserefoglu@hotmail.com 
POIS article(s) published : https://www.ncbi.nlm.nih.gov/pubmed/28499517
Other information : Even if in Turkey, he is perfectly fluent in English

[Quantum]

For those wondering why Dr Marcel Waldinger is not on this list, it is because I did not received yet an answer from him as to whether or not he is still making appointment for POIS sufferers, and if so, what would be the contact information to use.  That doesn't mean he is not making such appointments, but the other Doctors listed here have sent me an e-mail confirmation that they do, and have confirmed the contact information to use.

As soon as I receive confirmation from Dr Waldinger, I will update this thread

[Quantum]

3 - Doctor's name: Pr Gerard Amarenco  Neuro-urologist
Contact information : , La Sorbonne : gerard.amarenco@aphp.fr
Service de Neuro-Urologie, Hôpital Tenon, Paris
4 Rue de la Chine, 75020 Paris, France
Neuro-Urology Department, Tenon Hospital, Paris

GRC01 GREEN Groupe de Recherche Clinique en Neuro-Urologie
Sorbonne Universités UPMC, Paris
GRC01 GREEN Group of Clinical Research in Neuro-Urology
https://grc01-green.jimdo.com/
Tel : (33)156017500
POIS article(s) published :  https://www.clinicalkey.fr/#!/content/playContent/1-s2.0-S1166708717300696?returnurl=http:%2F%2Flinkinghub.elsevier.com%2Fretrieve%2Fpii%2FS1166708717300696%3Fshowall%3Dtrue&referrer=
Other information :   La Sorbonne University is in Paris, France

[demografx]

Quantum, thanks for this fantastic resource!

[joelawerence]

Thanks a lot Quantum. Anyone in UK?

[Habibou]

There was Dr David Goldmeier in St Mary Hospital, London that I met in 2011 and he met several POIS patients. I have just been referred to him by my GP so will have soon an appointment with him.

[melt]

Dr Michael Lowy at The Male Clinic, SUITE 2, LEVEL 6
75 CROWN STREET
WOOLLOOMOOLOO NSW 2011
2023-12 update: Dr Lowy is now retired

[Quantum]

Dr Michael Lowy at The Male Clinic, SUITE 2, LEVEL 6
75 CROWN STREET
WOOLLOOMOOLOO NSW 2011

Thanks melt for the reference.  I am not surprised to have found that he had already made a clinical presentation of a POIS case at a sexual medicine conference.   For those, like me, wondering, this address is in Sydney , Australia.  I have also found an e-mail for him, see below:
Doctor's name:   Dr Michael Lowy
2023-12 update: Dr Lowy is now retired, and asked to be erased form the list

[Quantum]

5 - Doctor's name: Dr Irwin Goldstein ( urologist, specialized in sexual health)
Contact information : 5555 Reservoir Dr Ste 300 , San Diego, CA 92120 (619) 286-8804 or 619.265.8865
e-mail: dr.irwingoldstein@gmail.com
website : http://www.sandiegosexualmedicine.com/meet-dr-goldstein
 
POIS article(s) published : data to be added
Other information : like the other doctors mentioned here, he does not have any definite treatment to offer, but he knows about POIS, and is interested in understanding it and finding a treatment for it.  He has already seen at least one member of this forum, and maybe other POIS cases as well.

[Quantum]

6 - Doctor's name:    Dr Paul-Henri Cesar  (Neurologist)
Contact information : Keck Hospital of USC
1510 San Pablo St., 5th Floor, Suite 514, Los Angeles, CA 90033
toll free number fr appointements: (800) USC-CARE (800-872-2273)
e-mail : paul-henri.cesar@med.usc.edu

https://providers.keckmedicine.org/provider/Paul-Henri+Cesar/205217

POIS article(s) published : -
Other information : At least one of our forum members had consultations with him.  He is interested in understanding POIS and help find a treatment.

[Nas]

Any chance this doctor can help us or the guy who consulted him to get a PET-MRI?

[lycopoulos]

Dr. Serge Carrier Im Montreal, QC, Canada who is a urologist also recognizes the condition.

[demografx]

Thanks, lycopolous!

[demografx]

Dr. Serge Carrier Im Montreal, QC, Canada who is a urologist also recognizes the condition.

lycopolous, please check your inbox for private message from me.

Thanks!
Demo

[drop247]

Dr. Serge Carrier Im Montreal, QC, Canada who is a urologist also recognizes the condition.

lycopolous, please check your inbox for private message from me.

Thanks!
Demo

Did anyone get to see Dr. Carrier? I'm also in Canada and am interested in what form of treatment he can offer if any.

[Muon]

I have sent out some emails to doctors.
Quantum can copy this info to the top post. Suggestion: I would sort the complete list based on country:

Country A

Doctor X

Country B

Doctor Y
Doctor Z

etc

Reserve the first few replies of yours in case you might want to expand the list.

I think this thread should be linked on the front page in the same area where the Tulani survey study link is placed. I would call it something like 'click here for the POIS doctor's list'.

Here is another doctor who shares contact info, big thanks for this! This is especially useful to patients from Romania:

Celina Silvia Stafie
Lecturer, PhD MD
University of Medicine and Pharmacy Gr.T.Popa Iasi, Romania, Department of Preventive Medicine

Specialist in Allergology and Clinical Immunology,
Specialist in Internal Medicine,
HUG Diploma in Therapeutical Education for Chronic Diseases

Adress: Allergology Private Office, Bd Carol I nr.4, corp A, Habitat Building, Iasi, Romania
Office phone +40232219932
Mobile office phone +40745114074
Email adress aret2009@gmail.com
Site www.alergologieiasi.ro

Her paper: POST COITAL ALLERGY - A CASE REPORT OF POST ORGASMIC ILLNESS SYNDROME

[demografx]

Haven’t we moved beyond skin prick test credibility discussions?

[Muon]

Haven’t we moved beyond skin prick test credibility discussions?

I do understand your comment Demo but that's not what this thread is about. Finding doctors who are familiar with POIS and are open to receive POIS patients can be quite difficult.