Author Topic: Our New RFP ( Request For Proposal) for the new study is out !  (Read 48994 times)

fernab

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Re: Our New RFP ( Request For Proposal) for the new study is out !
« Reply #60 on: April 27, 2018, 06:12:21 AM »
Hi,

I have recently contacted a medicine university in my country, were showed me interest in the NORD fund for researching on POIS. I sended them the RFP as well as the recent reminder about the May 7.

Maybe Medicine Universities is a good place to distribute the RFP.

fernab.

demografx

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Re: Our New RFP ( Request For Proposal) for the new study is out !
« Reply #61 on: April 27, 2018, 07:58:33 AM »
Hi,

I have recently contacted a medicine university in my country, were showed me interest in the NORD fund for researching on POIS. I sended them the RFP as well as the recent reminder about the May 7.

Maybe Medicine Universities is a good place to distribute the RFP.

fernab.


Thank you, fernab, for posting about this.

It is very important.

For all of us.

We crowd-funded amongst ourselves (POISCenter members!): $31,000++ for this project.

Amazing!

So let’s finally get ourselves cured! We can’t do it alone, without competent, POIS-dedicated medical research!

Thanks for letting me whine ;D


ps - send out the RFP! Make our money do MORE!
https://rarediseases.org/wp-content/uploads/2014/11/NORD_RFP_POIS.docx

Or this shorter link/url:
https://tinyurl.com/y96dnkmq

THANK YOU, EVERYONE
demo



« Last Edit: April 27, 2018, 04:47:58 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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« Last Edit: April 27, 2018, 03:35:23 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: Our New RFP ( Request For Proposal) for the new study is out !
« Reply #63 on: April 27, 2018, 03:31:49 PM »
would it be okay to just send messages to random local doctor.


Yes!

Thank you, certainlypois2!


« Last Edit: April 27, 2018, 04:09:21 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: Our New RFP ( Request For Proposal) for the new study is out !
« Reply #64 on: April 27, 2018, 03:55:38 PM »

I think we all can do something to change a bit this
[sluggish POIS researcher recruitment] situation.

It is somehow also our responsibility.

What do you think about this?


Yes it is!!!
« Last Edit: April 27, 2018, 04:05:36 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: Our New RFP ( Request For Proposal) for the new study is out !
« Reply #65 on: April 27, 2018, 03:57:44 PM »
My personal experience is that a researcher can be found successfully by hearing directly from...a POIS sufferer!

Not just from NORD.


« Last Edit: April 27, 2018, 04:03:04 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: Our New RFP ( Request For Proposal) for the new study is out !
« Reply #66 on: April 27, 2018, 06:36:57 PM »
I sent this today to my GP (who is influential. He was the Chief Medical Officer at the US Olympics Games)

Dear Dr G,

I hope you’re well.

I continue to benefit greatly from your treatment plan that I implemented with you about 8 years ago.

Perhaps you can help me with furthering the research on Post-Orgasmic Illness Syndrome?

I’ve attached a $31,000 grant description which I would hope you can pass along to your colleagues.

Any feedback from you, Dr G, to help this along would be GREATLY appreciated!

Best wishes,

[demo]
https://rarediseases.org/wp-content/uploads/2014/11/NORD_RFP_POIS.docx



« Last Edit: April 28, 2018, 12:46:22 AM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: Our New RFP ( Request For Proposal) for the new study is out !
« Reply #67 on: April 28, 2018, 01:45:42 AM »


Maybe Medical Universities are a good place to distribute the RFP.


Yes!

Excellent suggestion!


10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: Our New RFP ( Request For Proposal) for the new study is out !
« Reply #68 on: October 26, 2018, 06:26:47 PM »

IMPORTANT ANNOUNCEMENT


I just checked in with NORD - we're still on track! 


NORD's MAC (Scientific & Medical Advisory Committee) 

https://tinyurl.com/y86fwt4t

is now reviewing the full POIS study proposals from

Research Teams and they hope to announce our $31,000

POIS Research Grant awardee by the end of the year!



Thank you again, magnificent POIS donor$!


« Last Edit: October 26, 2018, 10:38:50 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

certainlypois2

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Re: Our New RFP ( Request For Proposal) for the new study is out !
« Reply #69 on: October 27, 2018, 02:49:44 PM »
Nice news

fernab

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Re: Our New RFP ( Request For Proposal) for the new study is out !
« Reply #70 on: October 27, 2018, 03:07:59 PM »
Yes, very good!

I was recently trying to contact a researcher I have been un contact with before summer. But, unfortunately, I could not contact him again. Neither by phone nor by email.

Very busy? Lack of interest? ... I do not know with certainty which of the two is the problem ... but at least I tryed everything I could.... Again, reading this is very good news. We need it very much!

demografx

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Re: Our New RFP ( Request For Proposal) for the new study is out !
« Reply #71 on: October 27, 2018, 07:55:51 PM »
Thank you, certainlypois2 and fernab!
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: Our New RFP ( Request For Proposal) for the new study is out !
« Reply #72 on: December 04, 2018, 09:05:15 PM »
I visited today an important urologist in my country. And also told him about the NORD RFP. He told me he knows NORD. But unfortunatelly, he also told me he is very occupied to do anything right now. He also knows a few things about POIS. He told me to try a drug to force retrograd ejaculations. That means, seminal liquid don't gets out directlly through the urethra but internally through the bladder. He wants me to test if this way I don't develop the POIS symtoms.

Hi Fernhab.  He must have prescribed you an alpha-1 blocker such as Flomas/tamsulosin.  I would be interested to know what results you get with this, if you try it.

I tried it manually, with a technique promulgated by Mantak Chia.

It didn’t work. My POIS was as bad as ever.
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: Our New RFP ( Request For Proposal) for the new study is out !
« Reply #73 on: December 13, 2018, 11:58:39 AM »
NORD POIS Research Grant news:

NORD is still planning to have the final POIS Research Grant awardee decision by the end of the month, but it is of course possible that the timeline will shift into January. 

We are close!

Best wishes for the Holidays, everyone!
Demo



« Last Edit: December 13, 2018, 12:01:44 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: Our New RFP ( Request For Proposal) for the new study is out !
« Reply #74 on: December 18, 2018, 06:10:03 PM »

Just received

“Congratulations to all of us

from NORD

for reaching 750+ Members!!”


« Last Edit: December 18, 2018, 07:52:03 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business