Author Topic: Diet that 100% manages my POIS! (Changed from:Diet that CURED my POIS!)  (Read 43052 times)

caveeater

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Re: Diet that CURED my POIS!
« Reply #30 on: May 05, 2016, 02:49:04 PM »
Yeah I can't have Bananas either for some reason.  Glucose syrups bother you?  Shouldn't they have no wheat/corn protein in them?

I'm also baffled by why I can't have skittles but other sugar is fine, maybe corn?  Food coloring?  I have no idea.

Apart from just feeling bad, my mouth ulcers were a major physical sign of food/gluten sensitivity.  The only other question I have is if something else is causing this sensitivity like Lyme or something.
  I doubt it but still I am not sure.

Yes, but some people are still sensitive, I've read of bad reactions to glucose syrup from celiac sufferers. It may be more of an issue in the uk as we use wheat glucose syrup more, whereas I believe in the US they use corn glucose syrup.

Skittles contain maltodextrin, I believe? That's also often derived from wheat.

Personally my diet resembles an autoimmune paleo style diet, I avoid nuts, spices, cocoa, grains as much as I can, and it's improved things a lot for me.

caveeater

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Re: Diet that CURED my POIS!
« Reply #31 on: May 05, 2016, 02:50:50 PM »
Another interesting thing I've noticed while on this diet.  I can now tolerate vitamin c much better.  Before I got so sensitive to it that I couldn't even take 200 mg without being up all night.  Now I've been taking 1000 mg the past couple days without much issue.  I do get a little "hyper" feeling but it is much better than before.  I read vitamin c is supposed to help convert dopamine into noradrenaline so that may be why.

Also I may not have celiac.  It more or less seems I just have special food intolerances, not necessarily just related to grains.  Although maybe celiac/ncgs caused other food intolerances I'm not sure.

I had the same issues with vitamin c. It Used go make me really wired!

less_fogged

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Re: Diet that CURED my POIS!
« Reply #32 on: May 06, 2016, 01:48:14 PM »
Also food intolerances here that traditionally probably don't get detected by standard food allergy tests. I'm talking about added food additives with my suspicion looking at glucose or corn syrup. Ready cooked meats from hypermarket such as ribs or chicken catch me out when naive.

After all, in one of Waldinger's papers as mentioned previously it's a known thing that the greater majority of POISers have allergy issues.

Going less Crazy

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Re: Diet that CURED my POIS!
« Reply #33 on: May 06, 2016, 08:16:33 PM »
Another interesting thing I've noticed while on this diet.  I can now tolerate vitamin c much better.  Before I got so sensitive to it that I couldn't even take 200 mg without being up all night.  Now I've been taking 1000 mg the past couple days without much issue.  I do get a little "hyper" feeling but it is much better than before.  I read vitamin c is supposed to help convert dopamine into noradrenaline so that may be why.

Also I may not have celiac.  It more or less seems I just have special food intolerances, not necessarily just related to grains.  Although maybe celiac/ncgs caused other food intolerances I'm not sure.

I had the same issues with vitamin c. It Used go make me really wired!

Same.  I actually ended up getting a mouth ulcer when I ate a vitamin c pill recently so I since have stopped.  I actually do feel a lot better not on any vitamins at all.  I simply don't need them now.

But my diet has to be super specific for me to be 100%.  It's great tho since pois is no longer a problem for me.  Still can o freely.  Just very specific foods can upset me, brain fog and all.  Seems like I have many many food intolerances or hypersensitivities that I have to be so strict in my diet, not to veer off the path of proven tolerable foods.  Still as long as I'm on this diet I am without pois.

Creating your own personal food list is very very helpful and it's been my lifesaver.

Again, if I am not feeling 100%, I know for a fact it is something I ate.
« Last Edit: May 06, 2016, 08:19:00 PM by Going less Crazy »
My POIS 100% managed with modified Paleo Diet (@ diet that 100% manages my pois)Believe my POIS stems from inflammation in the gut. O and stimulation = neuro POIS from inflammation from the gut. Can O freely. Current supplements: tolerase g, ground ginger (microdosing)

Going less Crazy

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Re: Diet that CURED my POIS!
« Reply #34 on: May 06, 2016, 08:25:44 PM »
Also food intolerances here that traditionally probably don't get detected by standard food allergy tests. I'm talking about added food additives with my suspicion looking at glucose or corn syrup. Ready cooked meats from hypermarket such as ribs or chicken catch me out when naive.

After all, in one of Waldinger's papers as mentioned previously it's a known thing that the greater majority of POISers have allergy issues.

Yes, I was tested for all food allergies.  The tests didn't show any allergies to anything.  Buy that is a totally different immune response they are measuring, like life threatening, actual allergy symptoms.  These food intolerances/sensitivities are a totally different aspect of the immune system, possibly even t-cell mediated responses as opposed to histamine related with completely different symptoms.

And there may be a specific protein in the syrups that you are intolerant to.  Gotta love maintaining a food list.
My POIS 100% managed with modified Paleo Diet (@ diet that 100% manages my pois)Believe my POIS stems from inflammation in the gut. O and stimulation = neuro POIS from inflammation from the gut. Can O freely. Current supplements: tolerase g, ground ginger (microdosing)

COLM_2

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Re: Diet that CURED my POIS!
« Reply #35 on: May 15, 2016, 02:50:09 AM »
No gluten or LOW gluten.

Article to reflect on.
Gluten-free diet could damage health of people without coeliac disease, expert claims !

http://www.telegraph.co.uk/science/2016/05/13/gluten-free-diet-could-damage-health-of-people-without-coeliac-d/
Formerly user COLM (previous username accidentally deleted). Few decades with POIS.

less_fogged

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Re: Diet that CURED my POIS!
« Reply #36 on: May 17, 2016, 06:27:25 AM »
I've also given it some thoughts of what might be long term effects living on a "wheat- gluten-free diet". I've come across articles mentioning that you'd be missing some vitamins... But at the end of the day I still feel much better off without it, as it partly cured most of my cognitive issues. I still find it strange there are only a % of people coming forward saying this technique has helped them.

According to a quote near the very bottom of this old article (2008) most "autoimmune specialists agree that patients should avoid wheat and gluten products and highly processed foods".

http://www.alternet.org/story/80129/the_autoimmune_epidemic%3A_bodies_gone_haywire_in_a_world_out_of_balance

This is still exactly what has helped me the most over time.

less_fogged

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Re: Diet that partly CURED my POIS!
« Reply #37 on: May 17, 2016, 06:42:55 AM »
Just to reply on a trial I did on avocado oil. It did not help me, even when having extra during POIS but it sure did not make me feel worse.

Note: I changed Subject title from: "Diet that Cured my POIS" too: "Diet that partly cured my POIS".....there is no official cure for pois


Quantum

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Re: Diet that CURED my POIS!
« Reply #38 on: May 17, 2016, 08:45:55 AM »
I've also given it some thoughts of what might be long term effects living on a "wheat- gluten-free diet". I've come across articles mentioning that you'd be missing some vitamins... But at the end of the day I still feel much better off without it, as it partly cured most of my cognitive issues. I still find it strange there are only a % of people coming forward saying this technique has helped them.

According to a quote near the very bottom of this old article (2008) most "autoimmune specialists agree that patients should avoid wheat and gluten products and highly processed foods".

http://www.alternet.org/story/80129/the_autoimmune_epidemic%3A_bodies_gone_haywire_in_a_world_out_of_balance

This is still exactly what has helped me the most over time.

Thanks for the link, LF, interesting article.  I like the way she expains auto-immune diseases both by external factors like toxins, and also by personal factors like genetic predisposition, emotional stress, and diet.

Last part of the article:
"Studies show that patients with an autoimmune disease also do better if they build a wellness plan that involves reducing stress hormones through a daily habit of meditation and whatever form of exercise they can tolerate. Studies show that autoimmune patients also do much better if they follow "the autoimmune diet," which means consuming foods that are anti-inflammatory. For example, most autoimmune specialists agree that patients should avoid wheat and gluten products and highly processed foods, which can be inflammatory or provoke the immune system to overreact. So one needs to work with a doctor who is open to treating you not just with drugs but also with dietary changes, including making sure you're receiving adequate amounts of the main supplements that have been shown in clinical studies to help autoimmune disease patients, such as omega fatty acids, Vitamin D, antioxidants, probiotics, and glucosamine."


I have already described my own method of reducing POIS, and it includes many elements of what she is listing:  regular meditation, regular exercise, healthy diet ( even if in my case, I do not avoid gluten and wheat completely, I have reduced them, but have eliminated more allergenic food for me, in particular, cow milk, replaced by organic soy beverage.  I have eliminated almost all processed food, and eat a lot of raw nuts and fruits, and other healthy food).  And through my 37 years of POIS, I have already discovered the benefits of almost all the supplements she is talking about.  I take Omega-3 for calm and for less inflammation, Vitamin D because I live up north where there is not much sun, antioxidants, probiotics.  Glucosamine is the only one I didn't take so far, but I have recently bought a particular form of glucosamine, N-Acetyl-Glucosamine ( N-A-G), which is reported by some to help with intestinal inflammation control, and have for some a calming effect  ( too soon to report anything on that one). 

About regular meditation, I point to the fact that its real benefit is to help in emotional control, and avoid the horrible effects of emotional stress/cortisol and adrenaline overproduction.  So, other methods that help at developing a stable, calm, and caring emotional life are as welcomed as meditation, be it psychotherapy, or cognitive behavioral therapy, silent walk in a forest, communication skills development, or anything similar.  Of interest is that studies shows that meditation where one centers his attention on the heart and on compassion and loving kindness for himself, people of his surrounding, and everybody, even those who are not that likeable, is the type of meditation that brings the most benefits.  This type of meditation is called Karuna meditation ( for some scientific results: https://www.sciencedaily.com/releases/2008/03/080326204236.htm ;  for basic instructions for compassion meditation: http://www.wikihow.com/Practice-Compassion-Meditation )

I can add however that I didn't do all that only for POIS, but also to improve my health in general, and, in particular, have more stamina and be able to practice sport more often and enjoy life by being able to participate in interesting activities more often, connecting better with others, being tired and "out of order" the less often possible.
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Going less Crazy

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Re: Diet that CURED my POIS!
« Reply #39 on: May 17, 2016, 09:41:27 PM »
Just to reply on a trial I did on avocado oil. It did not help me, even when having extra during POIS but it sure did not make me feel worse.

Note: I changed Subject title from: "Diet that Cured my POIS" too: "Diet that partly cured my POIS".....there is no official cure for pois

Well maybe you're right.  It's not like I can go off this diet since I'm " cured".  It should be diet that 100% manages my pois.


Just recently I O'd 3 times without symptoms.  I actually took cats claw and vitamin c before in the day as well.  So this is evidence (my pois) that you can boost your immune system and still experience no pois symptoms.  Also supporting the "food sensitivity" theory.

I started taking cats claw again because of a weird thought that I have that I have some bacterial or viral problem, possibly Lyme.  It's not normal to have to eat like this to feel normal at 25yo.  It's weird that cats claw causes joint pain in me that I never have.  This indicated it's either killing something or I am reacting to the drug (probably the second part).  It's also stimulatory.  I wouldn't say I'm in the best mood while on it but it eases me in the sense that I am supporting my body in the case of a bacterial/viral infection (highly doubt but still possible).
« Last Edit: May 17, 2016, 09:49:08 PM by Going less Crazy »
My POIS 100% managed with modified Paleo Diet (@ diet that 100% manages my pois)Believe my POIS stems from inflammation in the gut. O and stimulation = neuro POIS from inflammation from the gut. Can O freely. Current supplements: tolerase g, ground ginger (microdosing)

Going less Crazy

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Re: Diet that CURED my POIS!
« Reply #40 on: July 18, 2016, 08:57:45 PM »
Just posting that those who do find improvement in POIS with eggs, it may be because egg yolks absorb and break down the gluten molecule.  They are even devising a pill for Celiac's that is just basically dried egg yolk in a pill to be taken before eating gluten.  By the way I am still "cured" as long as I follow my diet.
My POIS 100% managed with modified Paleo Diet (@ diet that 100% manages my pois)Believe my POIS stems from inflammation in the gut. O and stimulation = neuro POIS from inflammation from the gut. Can O freely. Current supplements: tolerase g, ground ginger (microdosing)

b_jim

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Re: Diet that CURED my POIS!
« Reply #41 on: July 19, 2016, 01:49:28 AM »
I don't have celiac disease (negative bloodtest). I tried 0 gluten diet. it didn't improve my Pois but is seems it improves my gut health (for example I can't wear trousers, diahreas,
Tympanites...).

But anyway, i think you may be right with the link gut - Pois. I have sugar in digestive system (sugar eaten some hours or the day before orgasm) it increase my pois and especially hot flashes symptoms. I try to change the hours when i take taurine to see if it counters sugar effects.

Taurine = Anti-Pois

Going less Crazy

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Re: Diet that CURED my POIS!
« Reply #42 on: July 19, 2016, 09:40:29 PM »
Interesting, I'm not sure I have it either.  I actually made a docs appointment this week to test for it.  Although I know you are supposed to be on a gluten containing diet for six weeks before testing... I am not since I am unwilling to do that.  So I am trying to get both a blood test and a genetic test for it.  I am almost like a textbook case for it... thin, but not extremely thin, mouth ulcers, gut pain when I eat gluten now, loose stools, brain fog/migraines/bad mood, dental problems, bone spurs (one on wrist) that all seem to go away when I abstain from such foods.  POIS may have just been a symptom for me.  So I dont know if it'll be celiac or some kind of gluten sensitivity/ncgs.  I would encourage others to get a blood test for it also (if you think you fall into such a category).

Maybe it is a different food for you causing symptoms.  I believe i have to avoid all foods listed cause I had celiac (possibly) for so long it opened the way for other food sensitivities.  There is a study where those like me went on a Paleo type diet that I'm on and there other food sensitivities disappeared and they were able to revert back to just a gluten free diet.
My POIS 100% managed with modified Paleo Diet (@ diet that 100% manages my pois)Believe my POIS stems from inflammation in the gut. O and stimulation = neuro POIS from inflammation from the gut. Can O freely. Current supplements: tolerase g, ground ginger (microdosing)

Nico

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Re: Diet that CURED my POIS!
« Reply #43 on: July 21, 2016, 12:22:01 PM »
Hi All,

I haven't posted in a while, but this thread resonates with my experience. My worst symptoms are both cognitive and physical: poor focus, irritability, general malaise followed by aches, fever, respiratory issues (increased sinus and chest congestion, etc.) Lately these have been much more mild. I've struggled with sinus and chest issues all my life and have taken a lot of antibiotics over the years. As with so many things, diet and exercise seem to be a great starting place for attacking POIS. Here's what I've been found to be the most helpful in managing my version of POIS:

- Regular exercise: soccer, cycling, jogging or other aerobic activity 2x/wk, weight training/anaerobic exercise 2-3x/wk
- Healthy diet: For me that means avoiding refined sugars, beer, wine, too much white flour, etc. - Focus on whole foods, clean meats and veg and don?t overeat
- Encourage healthy gut, take probiotics, yogurt, fermented foods
- Avoid antibiotics, treat mild infections with oregano oil, garlic, etc. and homeopathic remedies (probable placebo effect, but hey, it works for me)
- More saturated fat in diet - I have been starting my day with a cup of "bulletproof" coffee which is coffee blended with organic grass-fed butter and MCT (coconut) oil
- Reduce stress - meditation, time with friends, watching sports, exercise, massage, low dose marijuana tincture, etc.
- Finish shower with cold water for around 30 seconds
- Sex once per week, try to take Niacin before, best in morning otherwise sleep is restless
- For the past few weeks I?ve been able to O 3 times per week if I take two Benadryl right after. Sleep still restless, but other symptoms almost unnoticeable. I always feel a bit better in the summer.
- Accept POIS when it comes and try not to get too pissed off about it. I try to distract myself by listening to an interesting podcast, music, etc. Don't try to do too much while in POIS.
- Check this forum and remind myself I'm not alone

Cheers!,
Nico


Quantum

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Re: Diet that CURED my POIS!
« Reply #44 on: July 21, 2016, 09:58:45 PM »
Many thanks for your great input, Nico!

Whenever a member take the time to write about what works for himself, this give precious information and reference for the whole POIS community here, and for current and potential researchers as well.

It becomes clearer that for many POISers, a healthier diet along with a healthier lifestyle, including regular exercise, is positive and help reduce POIS severity.

Other things you have mentioned, like stress management techniques, probiotics, and so on, have also been proven useful for other POISers.

Your success with antihistaminic like Claritin or Zyrtec, and 2x25mg of Benadryl, is a point of interest too, since this has been proven very beneficial for at least 2 other members, if I remember it well.

The more members will share their success, the more it will help to understand POIS and know what help relieve POIS symptoms.  So if you have any success with something you heard about on this forum, or with something you have found by yourself, please take the time to share it with the poiscenter community.

 

You are 100% responsible for what you do with anything I post on this forum and of any consequence it could have for you.  Forum rule: ""Do not use POISCenter as a substitute for, or to give, medical advice" Read the remaining part at http://poiscenter.com/forums/index.php?topic=1.msg10259#msg10259