Author Topic: Getting Outside Funding.  (Read 24548 times)

Ccconfucius

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Re: Getting Outside Funding.
« Reply #15 on: December 11, 2011, 12:40:00 PM »
I have a wild idea   A couple of us buy lottery ticket  as a group if one person win  we donate a percent to pois and share the rest withing ouselves.  Wild but group of employees win lottery all the time

Daveman

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Re: Getting Outside Funding.
« Reply #16 on: December 11, 2011, 02:47:53 PM »
It's not a totally bad idea! If the group won $2M, it could put $100K into research and divide the rest between the participants.

Probably faster than the way we're going now!!

If there's enough interest I we could start a separate thread. We'd also have access to Worldwide lotteries. We can trust the lottery that one of our members may be a part of.

We could use Pay Pal to pay and "RECEIVE"!!

WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!

Vincent M

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Re: Getting Outside Funding.
« Reply #17 on: December 11, 2011, 08:02:15 PM »
Ehh I'm gonna disagree here. The lottery has the worst pay-off odds of any other form of gambling. We'd be better off going to a casino.
Taking ginger tea, no wheat, fenugreek+green tea/garlic, saw palmetto, niacin, boswellia, huperzine, B complex and nutmeg. See my treatment summary post for more info: http://poiscenter.com/forums/index.php?topic=81.msg3513#msg3513

mellivora

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Re: Getting Outside Funding.
« Reply #18 on: December 17, 2011, 05:36:42 PM »
I've posted a message like this twice on the other forum recently. However, the updates they appear to be doing to NSF don't seem to be going smoothly as my posts were lost and the NS site seems to be down at the moment...

I was thinking about what the forum thread with the most views on the web is. I did a few brief google searches to see if there were any references to this. These searches weren't remotely thorough but I found a couple of discussions on the topic. None of the forum threads suggested had anything like the number of views that our thread on NSF has had (well over 1500000). This set me wondering whether it might be worth writing to Guiness World Records to see if they can determine if our thread has had the most views of any forum thread or indeed if its the longest forum thread in existence. Its something that might be tough to assess but what if we do actually hold such a world record?

If we did, this could be a way of gaining publicity. With a bit of encouragement, online news sites and newspapers might run a short piece on this. Of course any article should mention our efforts to raise funds for research into our condition.

However, I did find this on the Guiness World Records website: "We no longer accept any email or postal based records, such as chain letters or similar variations."
Its possible a forum thread would be viewed as such a "similar variation" so might not be considered for a record. Might give it a shot though!

Can anyone find a forum thread that's had as many views as our NS thread? or is as long?

Ccconfucius

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Re: Getting Outside Funding.
« Reply #19 on: December 22, 2011, 01:34:06 AM »
https://affiliate-program.amazon.com/gp/associates/join/landing/referralfees.html

what about an amazon associates program, i shop there all the time am sure there are more here who do.
If that works out we can try other websites.

Ccconfucius

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Re: Getting Outside Funding.
« Reply #20 on: January 16, 2012, 07:00:31 PM »
If we are successful with nord,  we should start a different pot for dr waldinger, so he can continue his research, i think his next step will be to examine semen more closely to find the culprit.
Is it  possible to start one now.

mellivora

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Re: Getting Outside Funding.
« Reply #21 on: January 22, 2012, 12:47:44 PM »
I'll be brief as I have not much time:  I don't see us making the target this year UNLESS we get more people to donate who are NOT POIS sufferers, i.e. sympathizers.  The most amazing fund drives I've seen on the internet occur on the site reddit.com   A group (under the banner of atheists giving to charity) raised something like $200k in a day.  Big stuff happens when you crowdsource it.  If I were to head it up, I'd go along the lines that most reddit users are males who often celebrate the action of masturbation (search "fapping") or just sex in general.  If we could get some large-scale sympathy from that crowd, we could potentially see a lot of micro-donations.  Now they are a skeptical bunch, so any plea will have to be well written and backed up.

I have to go, I hope there is some discussion on this when I'm back!

I think Nightingale's post about raising money for the NORD fund through crowdsourcing could prove to be the most significant forum post for quite some time. If we act on it.

I've just been looking into reddit and twitter as possible means to fundraise. I can see how its possible to do this and its been done before.

Do any existing users of reddit/twitter have any thoughts?/tips?

Nightingale

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Re: Getting Outside Funding.
« Reply #22 on: January 22, 2012, 01:35:15 PM »
One step would be to choose which subreddit to put our plea into.  Reddit is divided into thousands of subcategories, some of which are well suited for us.  The first to come to mind would be http://www.reddit.com/r/IAmA/ , or IAmA.   Stands for "I am a" and is mean to be the prefix to your post, so for example our post could be titled "IAmA man who is allergic to my own semen" or "IAmA man who orgasams, and then feels like I just jizzed my brains out for days (I have Post Orgasmic Illness Syndrome"

Note the ridiculousness of the second suggestion.  Take a look at the most "upvoted" or highest viewed posts, and they have very witty/provocative headings.  One problem with that subreddit is that it is in the singular "I" rather than the "we" that would suit a general plea on behalf of everyone.  But that's a relatively small thing.

There are more subreddits, probably one for charity, but these smaller subreddits don't go nearly as viral as the others.  Explore the site, lets get some ideas!

Oh and feel free to write some content for our reddit post and post it here, we are going to need to fine tune it

Here's one that got a ton of attention: "IAmA guy that hasn't pooped in the month of August yet. Ask me anything about my extreme constipation." http://www.reddit.com/r/IAmA/comments/jo5at/iama_guy_that_hasnt_pooped_in_the_month_of_august/

Also note his username: "nopooshallpass" ,  a reference to that scene in Lord of the Rings where Gandalf banishes the balrog.  This stuff helps.
Turmeric and Rosemary 30-45 minutes before orgasm for anti-inflammatory and immune support has helped me a lot. Faster and easier than niacin approach.

Ccconfucius

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Re: Getting Outside Funding.
« Reply #23 on: January 22, 2012, 04:11:28 PM »
very new to reddit, going to start exploring more. i think we should propose on nsf for the witty message and people who can go over to respond.

FANTASTIC IDEA.
« Last Edit: January 22, 2012, 04:25:59 PM by Ccconfucius »

demografx

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Re: Getting Outside Funding.
« Reply #24 on: January 23, 2012, 12:32:09 AM »
EXCELLENT!
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: Getting Outside Funding.
« Reply #25 on: January 23, 2012, 12:42:57 AM »

I was thinking about what the forum thread with the most views on the web is. I did a few brief google searches to see if there were any references to this. These searches weren't remotely thorough but I found a couple of discussions on the topic. None of the forum threads suggested had anything like the number of views that our thread on NSF has had (well over 1500000). This set me wondering whether it might be worth writing to Guiness World Records to see if they can determine if our thread has had the most views of any forum thread or indeed if its the longest forum thread in existence. Its something that might be tough to assess but what if we do actually hold such a world record?

If we did, this could be a way of gaining publicity. With a bit of encouragement, online news sites and newspapers might run a short piece on this. Of course any article should mention our efforts to raise funds for research into our condition.

However, I did find this on the Guiness World Records website: "We no longer accept any email or postal based records, such as chain letters or similar variations."
Its possible a forum thread would be viewed as such a "similar variation" so might not be considered for a record. Might give it a shot though!

Can anyone find a forum thread that's had as many views as our NS thread? or is as long?


mellivora, would you be up to taking a crack at submitting?
http://member.guinnessworldrecords.com/register/login.aspx
« Last Edit: January 23, 2012, 01:07:52 AM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

mellivora

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Re: Getting Outside Funding.
« Reply #26 on: January 23, 2012, 12:44:24 PM »


mellivora, would you be up to taking a crack at submitting?


There's a number of poisy things I intend to do this week. Other things are about to get busy here but yep, its on the list for next few days!

mellivora

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Re: Getting Outside Funding.
« Reply #27 on: January 24, 2012, 10:47:06 AM »
One step would be to choose which subreddit to put our plea into.  Reddit is divided into thousands of subcategories, some of which are well suited for us.  The first to come to mind would be http://www.reddit.com/r/IAmA/ , or IAmA.   Stands for "I am a" and is mean to be the prefix to your post, so for example our post could be titled "IAmA man who is allergic to my own semen" or "IAmA man who orgasams, and then feels like I just jizzed my brains out for days (I have Post Orgasmic Illness Syndrome"

Note the ridiculousness of the second suggestion.  Take a look at the most "upvoted" or highest viewed posts, and they have very witty/provocative headings.  One problem with that subreddit is that it is in the singular "I" rather than the "we" that would suit a general plea on behalf of everyone.  But that's a relatively small thing.

There are more subreddits, probably one for charity, but these smaller subreddits don't go nearly as viral as the others.  Explore the site, lets get some ideas!

Oh and feel free to write some content for our reddit post and post it here, we are going to need to fine tune it

Here's one that got a ton of attention: "IAmA guy that hasn't pooped in the month of August yet. Ask me anything about my extreme constipation." http://www.reddit.com/r/IAmA/comments/jo5at/iama_guy_that_hasnt_pooped_in_the_month_of_august/

Also note his username: "nopooshallpass" ,  a reference to that scene in Lord of the Rings where Gandalf banishes the balrog.  This stuff helps.


I've had look around and I think you hit the nail at the first attempt Nightingale. I think the 'Iama' subreddit is the most suitable. Its easy to find on the site and popular. I don't think its a problem that it's "I" and not "we", it'll likely make the post more personal. Individual cases are often used in charity campaigns because people can relate to an individual more than an illness.

I don't think we should spend too long getting this up and running. I'm having a think about it now. I'd be happy to take it on but the drawback of me doing it at the moment is that I'm scheduled to be away for 3 weeks of February and will likely have no internet access for nearly all that time. We need to be able to respond to people's posts and we only have 2 months before our deadline.

I'll have a think about the content of the post - we need to include donating of course! But I'll kick things off with a couple of suggestions and look forward to reading any others people have:

Username suggestions:

sosexyithurts
imtoosexyformybody


Headings:

iama guy who hasn't been able to ejaculate for 15 years without being sick for at least a week afterward

Iama guy who can't have sex or masturbate without being ill for at least a week afterward

iama man who hasn't ejaculated for 15 years without being ill afterward and I need your help

iama man who, like several hundred others in the world, can't ejaculate without being ill for at least a week afterward.

I am a guy who cant jizz without being sick

« Last Edit: January 24, 2012, 11:24:42 AM by mellivora »

Ccconfucius

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Re: Getting Outside Funding.
« Reply #28 on: January 24, 2012, 11:36:45 AM »
i think ur headings should be one of your username
sosexyithrts
imtoosexyformybody    
those will attract alot of people, i was laughing when i read them, that is one thing that  attracts on reddit.


username can be boring, but heading should be fun.

what should be style of response to negative response, we cant be defensive
« Last Edit: January 24, 2012, 11:47:28 AM by Ccconfucius »

mellivora

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Re: Getting Outside Funding.
« Reply #29 on: January 24, 2012, 01:33:08 PM »
Thanks for the feedback CC

I agree the headings should have a good hook/bit of humour if we can word them right but I also think some intrigue based on fact goes a long way. As Nightingale said, I think a good catchy username can help with getting responses too even if its not the first thing you see. Its a second punchline.

Posts on the subreddit iama need to start I am a....
I do think some details of our case in the title could help. And there are several Iama's that have pretty "sensible" headings that have nonetheless had a lot of views because they give just enough specific info that you want to find out more.

Personally I think just putting: 'I am a man that is too sexy for his body' or 'I am a man that is so sexy it hurts' isn't quite enough. They might be a little intriguing but I think they only become funny when you already know the context. I might be wrong.

Perhaps a bit of both. Something along the lines of:

 I am a man who is so sexy it hurts. Ejaculation makes me sick
or
I am a man who is too sexy for his body. Ejaculation is killing me.

Perhaps the 2nd is going too far...! (or at least I hope its not literally true!)

Good to be getting some thoughts from on this....keep em coming!
« Last Edit: January 24, 2012, 01:43:03 PM by mellivora »