Author Topic: Grew up with friend with a VNS. Questions?  (Read 4586 times)

Defsync

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Grew up with friend with a VNS. Questions?
« on: February 05, 2016, 10:02:32 PM »
A lifelong friend of mine with severe epilepsy has had a VNS in place for over a decade. A wire runs up her neck, and when she feels an   aura for a siezure coming on, she takes one of her magnets and strokes the length of neck wire with it, stimulating the vagus nerve and helping stop an oncoming siezure.

This seems to be a common form of vagus nerve stimulation. Im a bit in  wonder that this so happens to be a.discussed and possible form of treatment. I swear sometimes i wonder if my life was predestined lol. Are there any questions people might want me to ask her about it?

demografx

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Re: Grew up with friend with a VNS. Questions?
« Reply #1 on: February 05, 2016, 10:39:54 PM »
Fascinating, Defsync.

Thank you!!
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

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40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Hoping

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Re: Grew up with friend with a VNS. Questions?
« Reply #2 on: February 24, 2016, 09:45:41 AM »
A lifelong friend of mine with severe epilepsy has had a VNS in place for over a decade. A wire runs up her neck, and when she feels an   aura for a siezure coming on, she takes one of her magnets and strokes the length of neck wire with it, stimulating the vagus nerve and helping stop an oncoming siezure.

This seems to be a common form of vagus nerve stimulation. Im a bit in  wonder that this so happens to be a.discussed and possible form of treatment. I swear sometimes i wonder if my life was predestined lol. Are there any questions people might want me to ask her about it?

Life is funny sometimes, haha. One question I have is if your friend knows much about the availability of VNS devices the US. Is it possible to get them without a prescription? If so, how/where?? From what I can tell, availability seems somewhat limited in this country.
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Stef

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Re: Grew up with friend with a VNS. Questions
« Reply #3 on: February 24, 2016, 04:59:21 PM »
Defsync,

Really amazing that a VNS prevents your friend's seizures!

Her VNS stimulator is surgically implanted, correct?

Stef




FloppyBanana

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Re: Grew up with friend with a VNS. Questions?
« Reply #4 on: May 23, 2016, 09:56:10 AM »

 I swear sometimes i wonder if my life was predestined lol.

Of course it is :-)
30 years of POIS. Mytelase after O with Iceman breathing technique.