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Author Topic: Any suggestion for Doctor visit in London?  (Read 7676 times)

joelawerence

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Any suggestion for Doctor visit in London?
« on: January 27, 2016, 09:33:53 AM »
Hi guys. I have tried Niacin and Fenugreek treatments to no avail. I don?t want to try any drugs without a doctor prescribing and monitoring me.

I am based in London and would like to see if I can meet any doctor who is helpful and understanding of POIS. From going through the forum I could see that some have met Dr Goldmeir and Dexter in London. Do you suggest meeting one of them or any other doctor?

Any help from you guys will be much appreciated. I am also ready to participate in any London based POIS research.
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33 years old, POIS for around 12 years with increasing severity.
Major symptoms - Severe fatigue, back pain, unrefreshed even after 9+ hours sleep, pain behind eyes, very dry face, bald head with inflamed scalp, digestion issues and constipation. Very low testosterone and high glucose in blood tests

less_fogged

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Re: Any suggestion for Doctor visit in London?
« Reply #1 on: February 18, 2016, 08:24:59 AM »
Hi joelawerence

Have you tried to find out if you could see one of these specialists?
I'd go visit them if I was living nearby.
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demografx

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Re: Any suggestion for Doctor visit in London?
« Reply #2 on: February 18, 2016, 01:11:11 PM »
Dr Jane Ashby, London, co-authored a POIS paper with Dr Goldmeier. Sorry I don't have her current contact info.
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: Any suggestion for Doctor visit in London?
« Reply #3 on: February 18, 2016, 01:39:29 PM »
I just found this on Dr Jane Ashby, her contact info is in the article, just click on "+ authors":
http://m.sti.bmj.com/content/91/4/231.extract


« Last Edit: February 18, 2016, 03:02:40 PM by demografx »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: Any suggestion for Doctor visit in London?
« Reply #4 on: February 18, 2016, 02:10:32 PM »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

COLM_2

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Re: Any suggestion for Doctor visit in London?
« Reply #5 on: February 19, 2016, 12:46:22 AM »
Hi joelawrence,

I met with one of the Drs in London. From a support and empathy point of view, I found it worthwhile, as I had never before met a Dr who had heard of POIS and in some way understood and perhaps didn't judge the many years of less than positive experience with POIS.

In terms of treatment strategy, there wasn't a magic bullet so to speak. He offered options, which I declined to follow, because I didn't think it was something that would impact me materially and I choose to stay the non pharma route with recovery until
something if available.

Message me if you want to know more.
Colm
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Formerly user COLM (previous username accidentally deleted). Few decades with POIS.

demografx

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Re: Any suggestion for Doctor visit in London?
« Reply #6 on: February 19, 2016, 08:30:00 PM »
Colm, many thanks for sharing your experience!
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

joelawerence

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Re: Any suggestion for Doctor visit in London?
« Reply #7 on: February 22, 2016, 05:52:28 AM »
Quote from: demografx on February 18, 2016, 02:10:32 PM
jane.ashby2@nhs.net

Found at:
http://www.stif.org.uk/documents/stif/REGISTERED%20STIF%20INTERMEDIATE%20COMPETENCY%20TRAINERS%20and%20ASSESSORS.pdf

Thanks Demo for your input, I am still sitting on the fence to see whether a doctor visit at this point of time is going to be of any use. I had one question for your regarding TRT ? I am only 30 years old now with one kid and planning for another kid in a couple of years. I suppose you may remember from my post in the Testosterone thread that my testosterone is very low. From your research and experience with TRT do you think TRT affects fertility drastically? I want to see if my GP or any specialist he refers me to will prescribe me TRT to see if it helps my POIS, but I am scared regarding the fertility issue. I am going to check with my doctor regarding this anyways but I wanted to get your opinion as well. Thanks :)
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33 years old, POIS for around 12 years with increasing severity.
Major symptoms - Severe fatigue, back pain, unrefreshed even after 9+ hours sleep, pain behind eyes, very dry face, bald head with inflamed scalp, digestion issues and constipation. Very low testosterone and high glucose in blood tests

joelawerence

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Re: Any suggestion for Doctor visit in London?
« Reply #8 on: February 22, 2016, 05:57:55 AM »
Quote from: COLM_2 on February 19, 2016, 12:46:22 AM
Hi joelawrence,

I met with one of the Drs in London. From a support and empathy point of view, I found it worthwhile, as I had never before met a Dr who had heard of POIS and in some way understood and perhaps didn't judge the many years of less than positive experience with POIS.

In terms of treatment strategy, there wasn't a magic bullet so to speak. He offered options, which I declined to follow, because I didn't think it was something that would impact me materially and I choose to stay the non pharma route with recovery until
something if available.

Message me if you want to know more.
Colm

Hi COLM2, thanks for your input. Are you able to share what treatments was proposed by the doctors, just so that I can see if it would be of any use for me to see them?
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33 years old, POIS for around 12 years with increasing severity.
Major symptoms - Severe fatigue, back pain, unrefreshed even after 9+ hours sleep, pain behind eyes, very dry face, bald head with inflamed scalp, digestion issues and constipation. Very low testosterone and high glucose in blood tests

joelawerence

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Re: Any suggestion for Doctor visit in London?
« Reply #9 on: February 22, 2016, 06:00:53 AM »
Quote from: less_fogged on February 18, 2016, 08:24:59 AM
Hi joelawerence

Have you tried to find out if you could see one of these specialists?
I'd go visit them if I was living nearby.

Hi Less fogged, I have not seen any doctors yet. I am sure if I see a doctor they would diagnose me as hypogonadism as I have very low testosterone. I am not sure if that would be the right thing for me, that's why I am a bit sceptical to see anyone yet.
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33 years old, POIS for around 12 years with increasing severity.
Major symptoms - Severe fatigue, back pain, unrefreshed even after 9+ hours sleep, pain behind eyes, very dry face, bald head with inflamed scalp, digestion issues and constipation. Very low testosterone and high glucose in blood tests

demografx

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Re: Any suggestion for Doctor visit in London?
« Reply #10 on: February 22, 2016, 12:12:29 PM »

I had the same, joelawerence, very low testosterone, saw an endocrinologist, did bloodwork, brain scan, consults, then was prescribed TRT for hypogonadism, which was a major POIS turnaround for me.

Best wishes!


« Last Edit: February 22, 2016, 12:44:42 PM by demografx »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: Any suggestion for Doctor visit in London?
« Reply #11 on: February 22, 2016, 12:23:42 PM »
Quote from: joelawerence on February 22, 2016, 05:52:28 AM
From your research and experience with TRT do you think TRT affects fertility drastically?

Yes.

But that's just my experience and opinion. Talk to a good endocrinologist. Mine told me that infertility can be reversed. I have 2 grown offspring so it's not an issue for me (personally) any longer.
Logged
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business
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