wiped.

[Daveman]

Hi emi_b, you picked the perfect place to post.

Welcome. In the General Category at the top, you'll find lots of references to helpful information. Take a look around, and maybe you'll find something that rings your bell. Anything specific you need, ask on the forum or send a Personal Message to nyself or "demografx".

Yes, it's a little like you say, POIS may only last 4 or 5 days, some more, a few, less, but rarely are we "out of POIS'. It's hard to resist the orgasm, and especially when one begins to feel better, the first temptation is to go at it again. It's like we almost forget the pain it gives us. Sigh.

But there's a lot of interesting things going on in the POIS world right now, we might even have some sort of relief coming around the corner.

[emi_b]

Thanks for reply, Daveman.

First I want to say that I wrote to dr. Waldinger at the end of January. He replied to me in 3-4 days, and he said that he will send a questionnaire at a later date, but the articles were not attached, although he said them should be attached (I tried to contact him later trough e-mail but he didn't responded - probably he is very busy). I would like to ask if he send the questionnaire to any of you.

The other three articles, I've received from deomgrafx.

I have a suggestion for this forum: it might be helpful to have forum section for other languages, for people who speak better in their languages. This might help even more people.

[Daveman]

If Dr. Waldinger just forgot to attach them, parhaps we can find a copy.

Send me a PM with the names of what Demo sent you and I'll look into it.

Thx, What is you native language?

[emi_b]

My native language is Romanian, and I am from Romania.

I don't know anybody in Romania which might have this syndrome, or a doctor which might have an idea about this illness.

In future I would like to show the articles to the doctors I'll go, to see what they say. I hope they are open-minded  .

[Daveman]

Thanks for your PM emi_b. You do very well in English.

Hope what I sent helps.  And I hope to hear much more from you here. Also if you find trouble with your local doctors, let us know, who knows what we might be able to do...

[emi_b]

I'm glad to hear this, because POIS affected my language skills, not to mention my English.

Hopefully, I will post in the next days a more detailed description of my symptoms because I have a lot of them .

Regarding school I must say that I made a pause, to see if my health improves, and then to try to go to a faculty, because it was difficult to finish the high school.

Yes, your e-mail helped me a lot. Thanks.

[Daveman]

I can see where this would be a complex case, because the doctors are definately going to resort to psychological causes. When they don't understand, the say psychological, and it is.... in THEIR head!. Anyways, it's probably that there is some psychological component, but we KNOW that it is not the prime cause.

From our poll [in the polls section], it seems that cognitive symptoms are predominant among our members. And although my personal cognitive symptoms have been few, there have been a couple of instances where they have been very strong, so I know what kind of effect it can have. It's NOT just something you can wish away.

There's a difference between psychological effects and neuro-mechanical effects caused by hormonal imbalance or other outside physical factors, like inflamation etc.

There are many of us who seem to have POIS continuously, although in fact, for the mostof those, if they abstain long enough, it does subside and even go away. I[m not sure how many others may have continuous symptoms with or without orgasm.

I'm sure that if one goes with POIS, not knowing what it is, and perhaps not being sure that it is weven related to orgasm, he may also suffer psychological symptoms as a result of the pysiological problem of POIS! So the combination could produce a continual effect. But that's just my hypothesis.

The problem is, "how do we deal with it?".

I think knowing that it is POIS and that there are others with the same thing should help a little. There are many good diet tips that help reduce symptoms, and we are working feverishly at finding more definitve solutions.

Check out what's happening in the area of male birth control methods, both here and at NSF, and last but not least, lets see how you can be helped to receive the appropriate medical help. Not an easy chore, to be honest, but something is better than nothing!!

Repeat this last post of yours on the NSF forum too. You should receive a lot of help there as well.

[Yaniv]

Dear Emi, To be honest, I feel a strong solidarity to your situation and generally with your post and many of your symptoms that you mentioned.
You placed the "persistent headache" at first, don't know if it was incidentally, but for me these persistent headaches/migranes are the worst [it is even get worse when I wake up with a strong neck and shoulders mussles pain... not because of any other reason but POIS]  add to that the cognitive issues so you might imagine where it takes me in the day to day life [I work as an engineer, I'm 32, I learned how to deal with those situations, but it is very sad that wierd illness].
Honestly, I really do not have a magic formula for how to help, but I can recommend you, as you are very young man, do sports, workout, though the weaknessess and the bad feeling thatyou have, take care of your nutrition [there are good posts on that, and of course, try to eliminate the junk food from your menu], you might want to start taking Fenugreek tablets, it helped many poised people. [I have been using it for 2 weeks now, it has some kind of positive affects, I will update when I'll have more evidences], same for garlic;

That's my 5 cents,

Yaniv

BTW: I've got a whole list of natural medicines; I will start to buythem and investigate them 1 by 1; I will update if there will be any kind of success.

[emi_b]

To Daveman,

I'll post an updated and more complete post, on this forum and NSF. I had a depression before, but this is different, I'll explain in more details in the updated post, I hope it is not so long and boring . Thanks for the advices.

To Yaniv,

Thanks for your help and solidarity.
Garlic, I tried, one time, but Fenugreek, I'll have to search it. I never heard of it before.
I think the worst aspect of this illness for me, is that I can't do usual things, and things that I liked to do such as learning for school and now for faculty.

Thanks for advices,

emi_b

[Ccconfucius]

emi b, you are deffinately in the right place
all your symptoms but persistent sexual arousal has being mentioned by pois sufferers. 
i will start by trying what has helped others like fenugreek, we have a list somewhere and also at the same time start looking for a doctor that will do semen prick test on you, i bet you will react like crazy. If you are in the us dr bewtra is about the only person that has done the test.

[emi_b]

To Cconfucius,

Thanks, for advice.

[Habibou]

Today, i went to the hospital for an appointment with a "professor in Immunologie" and i said i was a particular case... His reply 'every case is particular' , but he never heard about POIS! He said "i have a cure for you, just abstrain " "what about NE?"  "ok ok" ^^

He didn't want to read Prof Waldinger's papers and said i shouldn't believe internet... so i said "ok, sorry for loosing your time " and then he started to listen to me and now he is willing to help me. I have an appointment with him in 2 weeks !

And then, we could talk about an intradermal test + rush procedure? intra lymphatic injections? we will see, i will update 

[Habibou]

Kingkong
Newbie

   
Hi,I'M 51 and i'm suffering of this desease since 12 years. I saw many doctors. Today i talked to one of them who met Dr Marcel Waldinger at Malaga on this november. Dr Waldinger said to my doctor thas he found the problem that cause POIS. However, Dr Waldinger don't want to talk right now. He's negociating whit a scientific publication to publish is work. He told to my doctor that it would be publiched by 2 or 3 months from now. They met at a congress in Malaga this november.


Please, do you know more about this conference?  my doctors asked me some details , thank you !

[Habibou]

I have an idea to make the buzz about POIS  we should say it is contagious !!!  So that, people would ask for more researches to cure the fastest possible  ^^

[emi_b]

I have updated the post where I describe my condition with treatments section, and more minor mods.

This is the post.

It would be nice if everyone would have a post with his history, collected from allover the forum.

[Daveman]

Emi_B,

Good work on your summary. It's difficult, as you say, to explain even in your native language exactly what the symptoms are, and you've done very well, even in English!

I think it's a good idea to do a summary like this. I find myself having to repeat often many of my various, causal or symptomatic effects. I'll see if I can ge the time to put it all togeher.

[Daveman]

I have the solution to POIS..... if only I could duplicate what happened last night!

It's been 3 wks of abstenence, and I'm getting a little horny (we can say that here). But I need a break! And besides, the last one was scary, I don;t wnat another one of those for a while!!

The wife and I played a little bit, but she knows I need a break, so we left it... there.

But later in the night I began to dream. In the dream I was really horny, and was touching IT. But I knew I couldn't get serious, albeit, I saw that I was going overboard, and so put my all into a really good orgasm. I didn't wake up right away, but when I did, the first thing I did was "check", and dry as a bone!

It was a virtual orgasm, but seemed very real and satisfying. I really couldn't beleive that I hadn't really "O'd". I had to check about 4 times. Sheets, pants, etc. Nothing.

At worst I had a fair pressure in the prostate area, which is giving me problems right now anyways.

But Today I'm fine. It wasn't a dry orgasm, I'm fairly sure that I didn't REALLY didn't "O". But if I could do it again, I would.

A dry NNE (Nocturnal Non-Orgasm)!!

Perfect. And besides, in the dream, I was with my wife.... what more can you ask for?

[hurray]

Hello emi_b - an excellent writeup of the difficulties you have faced due to POIS.

Have you tried getting in touch with Nicolae Calomfirescu in Romania? He specialises in male sexual disorders and is Chief of Urology - MIA Hospital "Prof. Dr. Dimitrie Gerota", which seems to be based in Bucharest. His website is http://www.uroandromed.tk/.

[emi_b]

Thank you Hurray for this finding.

[hurray]

My pleasure emi_b - I hope Dr Calomfirescu can help with your POIS